Lancing Beach. Just to throw you when I’m talking about Suffolk beaches later. Some guy found a gold coin here.
A strange week all round. I was going to share some of the questions and answers I’ve been doing with Gareth, because they are hilarious but a couple of bits happened that I thought I’d share instead.
First up Mum. As you know, Mum has dementia. She passed the NHS memory test with flying colours but then, everyone does. My Dad did, even after his diagnosis with Alzheimer’s in 2012 As far as I know, they were still giving him this stupid memory test until 2017 – because nobody told us or the Doctor about his diagnosis until then so we still didn’t know what he had – and he was still passing the bloody thing with flying colours. It’s not just the patient who is in denial for ages when dementia rears its head, it seems. The NHS also.
As well as dementia Mum has arthritic knees. A while back, in 2015, she had them looked at. The surgeon thought a new knee would be too complicated and that the requirements of the recovery process too taxing but they did give her a new hip, which she also needed. To be honest, I think the knee was more the problem but half was better than none and it did remove a fair chunk of pain so that was good.
Off I go wandering from the topic again … back to the point … the result of not having had her knee done is that Mum has one particularly dodgy knee which tends to give way on her. The other day it did and she ended up on the floor and hit her head – I blogged all about it here. Quick recap: because she’s on blood thinners, she had to go to hospital and have a brain scan. She had to go in alone because … Covid … which for someone with dementia who has banged their head, is not ideal. They were great with her, though, and she did well too. They took her in at three pm and was ready for collection by six. But she explained that her knee had given way and she’d grabbed the nearest thing for support which was, unfortunately, a door handle, so the door opened and she slid gently to the floor where she ended up wedged in a small space and so she couldn’t get up.
Having had this mishap, I thought that maybe it was time to get her something a bit more stable than a walking stick to use in the house. A Zimmer frame wasn’t much good as she’s quite frail and couldn’t lift it. She uses a fold up thing with wheels and a seat when she is outside which, I believe, rejoices in the name of a ‘rollator’. These are great because the wheels make them easy to push, the seat provides welcome respite from standing too long and they have breaks to help you control them. This one is ideal for outside but she needs one that’s smaller for use in the house. I had a look … God bless the internet … and found some that I thought might do.
Three Wednesdays ago, I sat down with Mum and the Carer and we looked at three wheeled light weight rollators. There wasn’t one with a seat, well there was but it was about £200 but I found one with a bag that she could use to get from one part of the house to the other. She can still put the secateurs in it lay flowers across the top of the bag etc. Having found it, I showed it to her and we had a chat and she decided it might be a good thing to have so I ordered it, there and then.
A week later and one of Mum’s carers found one that another lady wasn’t using. It wasn’t light weight but she thought it might be useful. I agreed it might be and suggested she bring it round and I’d cancel the other, except of course that the other then proceeded to arrive. Usually when you buy these things you get an email saying it’s been despatched. In this case, we didn’t. So it turned up without warning.
The Carer looking after Mum that day opened it, set it up and Mum … went into orbit.
I kid you not. She rang me, incandescent with rage, asking what the blazes I thought I was doing buying stuff without even consulting her. It was rubbish anyway, she fumed, because it doesn’t have a seat. How could she sit and talk to her friends if it didn’t have a seat?
I tried to explain that it was to use in the house, to replace her stick because it was more stable but a bit more compact than the one with a seat which she uses outside. There was no point in having it then she needed to do various things with it and without a seat she couldn’t.
‘But your stick doesn’t have a seat …’ I said.
‘No and so I can only sit in the kitchen or the drawing room because I can’t get in and out of the chairs anywhere else.’
Fair point but she doesn’t go anywhere else and she uses a shower stool I bought her (God bless you second hand shops in Galashiels). Sometimes though, Mum’s now is not the same as ours. I think she was at some point where she needed a walking aid but was still quite spry and doing stuff about the house. Things like cooking, and sending and replying to emails on her computer. She hasn’t done any of that for ages. I hadn’t properly clocked that her perception of when she is is changing, or how extensive her dementia is because she’s still so normal to talk to … usually.
I asked her if it might not come in handy?
Anyway, She told me in no uncertain terms that it bloody well wouldn’t, that it must be packed up forthwith and sent back.
After gently explaining to Mum that we had ordered it together and that she’d had a very hectic week and must have forgotten, she finally simmered down but wasn’t keeping it, oh no, she wanted it sent back and replaced with the version that had a seat. Now.
This is where I cocked up. The way you do this with a demented person is not to set them right on the facts, you just say, ‘oh dear, they’ve sent me the wrong one,’ or ‘oh dear, how did I manage to order the wrong one,’ and leave it at that. It would have saved a lot of angst filled explaining.
Never mind, let’s get on with it shall we. I’d bought the thing online with her debit card, because I have power of attorney, except the bank don’t know that or they won’t give us a card so I did it pretending to be her. Easy then, I’d ring them up and sort it out but … they were not answering the phone unless it’s really urgent because … covid. Ugh. So I emailed them. Yes they would take it back. No they would not be able to replace it with another one with a seat, have me pay the difference and swap one for another. Oh and the cost of return would be £16.
Sixteen quid! The fucking thing only cost £48.
Bollocks.
The Carer who’d found a similar one hadn’t brought it round yet and seeing the chat about this on the … well … chat, she asked if she should.
‘Yes,’ I said, ‘but hide it, she may come round to using it. We’ll have to see.’
In the meantime, since the company that had sold me the new one didn’t have the one with the seat in stock I just thought it best to hang fire for a bit. The carer packed the new walker away and hid the box away where Mum wouldn’t see it.
Two weeks on, and during this week’s visit, the Carer told me that she’d managed to get Mum to use the second hand one for a bit on Monday but she’d suddenly refused on Tuesday. I thought I may as well give it a go, so I wheeled it in to the drawing room and asked her if she’d like to try it. She quite liked it but wasn’t sure because … well because she uses her stick to pull things closer, pick things up, press buttons and light switches she can’t reach, point at stuff etc. That said, after a short test run during which she really quite liked it, I left her with it by her chair.
Thursday morning and she told the Carer how wonderful it was and that maybe we should get it cleaned up.
‘We could but d’you know Mary ordered you a new one, I think it arrived the other day.’
‘Did it?’ Mum asked.
The Carer said that yes, it had and asked if Mum wanted it set up for her.
‘Oh yes please.’
Apparently it is now a hit. So much of a hit that, nine days on from ringing me in a fit of something approaching rage at its arrival, she rang me to say thank you and tell me how wonderful it was.
That, people, is dementia. Light and shade, rain and sun, on and off: random.
The obligatory seal pup picture taken on the beach I was actually at this weekend. 🙂
On a personal note, remember I did an entire day’s metal detecting without sitting down for lunch the other day? Yeh. Well that was a bad idea, I did my back in. It recovered after two days so, happy that all was well again I did more metal detecting on the beach (only for an hour and a half) went for a walk etc. We saw a seal pup and I took the obligatory Norfolk (well … Suffolk) coast seal cub picture. Awww or what. Then we went and had supper at friends. At which point, back fully recovered, I was able to remove the pain relief pad while I was there and felt oh so much better. What a relief.
Or not.
The next day, the back pain was back a little and starting to get a bit worse, but nothing major. Thursday morning. Arnold’s dingleberries! It was hideous! Friday; also hideous, and even today it is still evil. Needless to say the first day anyone who might be able to fix it can see me is Wednesday next week. Of course. And needless to say the first day I can see anyone is Friday. It could be worse … I had a club dig scheduled for tomorrow, which I don’t think I’d have been able to go to, and now I have a week to get better, or at least, well enough to do an afternoon of metal detecting without three days of scream ab-dabs afterwards.
The pain levels have been pretty grim. Up there with breaking my collar bone in the constant nature of the pain and, when it has subsided a little, the ease with which the slightest of movements will set it off. Also, at the risk of being a bit personal here … weeing. Or more to the point wiping. Fucking hell that hurts. How, in the name of the almighty do women with chronic back pain wipe their arses every day? Is there a lot of screaming? Is there a … surgical device? Jeepers. It’s alright for you blokes, all you have to do is wave it about a bit and shove it back in your trousers. We ladies have to get our hand a great deal further round and fuck me that smarts. I never thought I’d envy the ancient Romans their communal loos with the sponge on a chuffing stick, but frankly, even the prospect of wiping my personal bits with device of dubious provenance that had been used by multiple others – and probably not washed particularly well – would be preferable to the pain of doing it my bastard self. I have, at least, reached the point where I don’t dread going to the loo but it’s still about as much fun as sticking cocktail sticks into my own eyeballs and possibly slightly more painful.
Yeh so … maybe little bit too much information there. Yeh. On that note … I’ll leave you. Don’t have nightmares kids.
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If you need to take your mind off that last paragraph …
You could always pop over to Kobo or WH Smith and download my latest audiobook from the Kobo Sale. It starts officially on 9th September but it has been reduced from £5.99/$6.99 to £2.99 and $3.99 the kobo link, among others, is on this page … here.
Small Beginnings is not quite out at all retailers but getting there … slowly. More on that story … here.
Read by Gareth (The Voice of K’Barth) Davies to the usual extremely high standards. If you want to see what it sounds like, you can catch a listen to Chapter 1 from my soundcloud page here. Or click on the picture.
Here’s a picture of the watch winder, which looked rather straightforward but turned out to be rather pretty when I cleaned it up.
worth seven tenths of bugger all. But it’s interesting because it’s rare. Many of these were handed to the commonwealth and melted down to make money so there aren’t so many left. It’s an interesting thing. I was chuffed because I worked the date out from the type of writing and the fact it reads, ‘Fere God Truly’ which, I felt, pointed to turbulent times. I also found a James 1 penny, too, which was interesting.
The new detector is called an ORX and bears more than a passing resemblance to the SSS Enterprise, which amuses me. ORX is usually pronounced as the letters in turn, an O-R-X but actually, if you say them, as if they’re a word, you get orcs.
If you’re impatient for the next book in the Hamgeean Misfit Series why not try listening to some of my books on audio.
Blimey but it’s windy here. Must be all the fruit I’m eating. Oh ho ho. The weather is pretty blowy too. Storm Ellen, I thought we’d had Ellen after Dennis but thinking about it I think that was some Spanish one with an exotic name from far further down the alphabet that muscled in.
Well there we are. If you are bored and at a loose end you could always try reading one of my books. They are a bit weird but I promise they are more interesting than reading a telephone directory … just.
At a recent event … well … not that recent – last year’s Christmas Fayre … I happened on a bunch of local authors. Julia Blake is one of them. Having discovered that I was not the only 
This book is one I happened upon ‘talking’ internetly (which probably isn’t a word) to other authors on a Facebook group. Yes, I am probably one of the few people who uses social media for actual social purposes. Writing is a solitary profession and I spend a fair chunk of my time sharing stupid pictures on my fan group or chatting to other authors in various Facebook groups; comparing writing techniques, marketing strategies, suppliers and services … or just having a good old gossip. During one of these conversations C Gockel’s name popped up. I had seen comments from her and chatted to her in passing from time to time, but I had not realised her books were funny as well as sci-fi. I asked her if she could recommend one and this is the one she suggested.
Also, as stated, they are often so tied up with being pissy that they do this without even asking to unsubscribe in the email either. I had one recently and I suppose that is why I cited people like this as my pet hate. I shouldn’t have done. It makes me come over as similarly small-minded. But I have to admit I do heartily dislike that handful of people in the industry; readers, other authors, sometimes editors, who actively go out of their way to be pissy to everyone else. Like those morons who register words like ‘tree’ and ‘sky’ as trademarks. Bellends, every man jack of ’em. I have no time for such cockwomblery.
As I understood it, the gist of this goes as follows; while things are opening up and people are able to get out again, there is an increased sense of danger. So on the one hand, your social well being is probably increased. On the other, your limbic system doesn’t really know the difference between the danger posed by a stalking tiger and the knowledge that if you get COVID:19 you might die, or might not. The whole Russian roulette nature of the thing is classed by your limbic system as ‘danger’. This, in turn, means that whether or not you actually notice, your fight or flight centre is at heightened awareness. Think of it as amber alert.
Then there’s the mental exhaustion. I have been on the brink of burnout, and suffering mental exhaustion for at least eight years. OK, so that is a massive pisser in many respects, but at the same time, a sustained situation like that means that coping mechanisms are already learned and lock down is merely more of the same. Most likely, there is another eight years or so to go but once Mum gets to the lying in bed stage, or reaches the point where visits are really hard and she doesn’t have much idea who I am, I will probably cut the visits to once a fortnight, maybe even once a month. It will be easier this time with just the patient to consider. Some of the hardest things to deal with about Dad was seeing Mum’s distress and trying to support her through it all as well.
Talking of simple decisions, if you want to try out one of my books feel free to have a look at this one. I’m afraid you’ll have to sign up to my mailing list – otherwise I can’t send it to you – but it’s not a problem if you unsubscribe afterwards! To find out more go here: 
Back to the plant. What does it look like? Well … imagine a Christmas Cactus on steroids. It’s getting a bit big. The two segmented um … bits … in a pot have become a large … thing. Every now and again it sends out an enormous long shoot which turns in to a long spindly branch. It has little hairy bits that grow out of it occasionally, leading me to suspect that normally it would climb things. This one doesn’t. It sits in our conservatory. A couple of times in the last four years, it has produced a flower bud. My life being what it is, we are usually away when this bud opens up so I have never seen a flower until now.
The room downstairs, which was his playroom, is near to the kitchen and other areas where I might normally be doing things. It worked brilliantly for him as a nipper as I was able to whizz through when he called but now he’s older it makes more sense if it’s an office for me. We have been setting everything up in there including my music system, which has not been in operation for twelve years. I’d forgotten how good actual vinyl records sound. Although mine are all a bit dusty and need fixing. Anyway, so far, the room looks like this. The wooden things in front of the shelves are a pair of 1930s (I think) skis which came with Mum and Dad’s house. Nobody wants them and I was going to sell them but now I think they’re too cool. This happens when I think I might be able to sell something. The blue oar is part of the escape dinghy set which came set into the wings of a B15. It’s from the rubber dinghy Mum and Uncle had when they were kids. It was yellow, apparently. Grandpa sourced it from army surplus me thinks! I’m pretty sure I mentioned that in another post somewhere. If I was any good at this blogging thing, I’d link but it will take me too long to find it if I want to publish this by the correct time.
McMini has also, finally, managed to procure all the items he needs for his ‘army costume’ and I thought I’d share the slightly sinister results. He’s now on the search for a thermo nuclear war suit. Hmm.
M T McGuire Authorholic 