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You need to know the truth about the elephant in the room.

This is a dementia related post I’m afraid, but it’s also, kind of, a warning. As I’ve probably said before, but I’ll say it again, the reason I write the posts about my dad are because most of us have no idea what happens when a person gets Alzheimer’s. Usually, we hear that someone has been diagnosed, they tell people, you meet them around the place and they have memory problems but seem more-or-less OK otherwise, and then they disappear. The next thing that happens is that five years later, you learn they have died. I’ve never known what happened between that point when they stop going out into society and the point at which their death is announced.

Now, I am learning, so I am sharing, as I have done all along, because I hope it might help someone.

Dad tipped suddenly and completely into full on swearing, spitting, shouting lunacy last week. So much so that the dementia nurse who came to see him called in the emergency dementia team. We looked at removing him from the house at once, for respite, but they could only do 3 days and we thought he would merely return even more disorientated and crazy. Then we discussed whether we should have him sectioned and taken to a psychiatric ward somewhere. Mum vetoed that one and certainly, it seems to involve a lot of moving the person about which is not what we want. We were asked how long we could go on with him at home and I told them ten days at the absolute outside.

Obviously, he needs to be elsewhere, fast but he doesn’t realise where he is at home – he asks Mum frequently if he is supposed to know this place and it’s been his home since 1974 – so it’s not going to help him if he’s moved from pillar to post before he’s settled somewhere new. We are hoping we can get him somewhere where he will then either stay, or if it’s miles away, only be compelled to move homes once, when a place crops up somewhere nearer. All this is complicated by the fact that he’s only just run out of cash so the financial assessment hasn’t been done yet – that’s for Wednesday, while his care needs will be assessed on Tuesday.

On the upside, Dad has a urinary tract infection and now that is being treated he may well be a little easier to deal with – UTIs as they call them are well known for exacerbating the symptoms of dementia because they affect kidney function so you get all sorts of stuff building up in the system that shouldn’t be there. However, the fact is, the shouty thing we have seen this last week is where the disease will go next and ideally Dad needs to be out of his home environment and settled in a care home somewhere before that hits full time.

Worse, if we get no progress by the end of the ten day deadline (end of next week) I will have to have him sectioned because he is violent, in that he shoves people and throws things and this presents a considerable threat to someone fragile such as Mum.

There’s a very good bit in The Contented Dementia Sufferer, which has, kind of, been my bible in this process. It talks about how you spot when it’s time to put the person into a home. It explains how you turn your house into a nursing home for this person with dementia and then the moment comes when you look around you and think, ‘hang on, this is ridiculous!’

We have reached that point. Actually, we’ve reached the moment when all three of us have hit that point. My brother has probably been up for having Dad in a home pretty much from the get-go, I have been from about November last year but now Mum has come round to the idea too. He’s unable to express it but I think that even Dad is up for moving to a home. Much of his challenging behaviour could be put down to boredom. Dad is always perfectly manageable when we go out, he hardly swears and is polite and chatty to people. In a busy dementia wing, with lots of folks wandering about, I think Dad would actually thrive. The care team are agreed that he’s bored. So we’ve all reached the same conclusion. Dad needs to go into a home.

Next we have to make it happen as quickly and compassionately as possible for all parties concerned.

Now there are ways and means to homes. With Dad we have tried to strike up a relationship with a lovely home nearby. We were hoping to get him in there for a day’s care each week first so he ould get to know the staff and when the time came, the move would be seamless. But they don’t do local authority rates, which means we’d have to pay at least £500 a week and of course, now that Dad’s assets are gone, we don’t have £500 per week. I think this strategy would have worked if we’d had a better understanding of the benefits and care system since we’d have chosen from one of the homes that takes funded residents. It’s excellent if you are self-funded since that’s not an issue.

Obviously at the time we started it off, Dad was self-funding but also, I was unaware that Dad’s income and Mum’s income are seen as separate for this purpose and therefore, Mum’s assets are hers and now that Dad’s have gone he is eligible for funded care, regardless of whether or not Mum has any money of her own. Dad will have either Local Authority care or (if applicable) National Health Continuing care – although that is a bit of a lottery – but we will have him assessed for it, anyway.

So, big lesson for the future here, couples. Keep your capital investments and your bank accounts separate; his and hers. A joint account is fine, but you also need one each of your own. And if you are looking after a brace of parents and only one of them is ill, it’s the ill one’s cash that is being assessed here, not the well one. Plus, if the well person owns a house with the ill person, it cannot be sold to fund care while either of them is living there. In other aspects, the rules of engagement seem to differ from local authority to local authority. There are check factors for NHS continuing care and certainly Dad’s symptoms would fit those, but he has Alzheimer’s so it’s not always a given, even if, legally, it is supposed to be.

Modern medicine being what it is, Dad has lasted a very long time. He was diagnosed with Alzheimer’s just over 5 years ago but has been experiencing cognitive and memory difficulties since 2004. By 2010 Dad was unable to read a full length novel. By 2014/15 he was unable to read at all. He has needed live-in care since 2016 – actually he needed it well before that but Mum did it all herself, refusing, point blank, to accept any but the smallest amount of help until 2016; March, to be precise, which was the point at which her health finally broke down and she ended up in hospital. We had seen it coming at Christmas and so we had been working with the local ladies who came in during the day to sit with Dad while she went out into the garden. We’d been trying to get a 24 hour rota together. We came close but couldn’t cover weekends.

Obviously, when Mum ended up in hospital, neither my brother nor I was available to sleep with my Dad for more than a week so we got live-in care then, against my mother’s wishes, initially, but she did come round eventually.

Dad is still going strong, even if his mind isn’t and I could see him being hale and hearty, if totally batty, in three, four or even five years’ time. The pace his Alzheimer’s is going, if it is the disease that kills him rather than time, nature, or something else, he has a good eight or nine years of twilight to come, minimum.  Even if he’d been a millionaire, his cash wouldn’t have lasted long enough to see him through. As it is, Dad wasn’t a millionaire, far from it, but his life-time accrued assets have amounted to three years of live-in care, with extra night cover, a fair few extra hours during the day and so on.

One of the things about self-funding is that many homes will need you to be able to guarantee residency of two years from the funds you have. Obviously if the person dies, it’s different, or if they ask you to remove the person. But it’s worth thinking about if you’re looking at a home. If you have say, three or four years’ worth of funds for care, I’d think hard about making sure you find a home that will accept local authority or NHS funded places. You and your loved one with dementia may well hope that they will die long before it gets to the point where they need the home. It’s true, they might, but you can’t bank on that. You have to plan for them being like my poor dad and having to endure every single last horrific minute of Alzheimer’s as they grind their way on to a slow, tortuous and frankly horrific end.

To that end, it’s worth finding a home that will provide respite care or do some kind of day care/club so you can get the person with dementia going there regularly and get them used to it. Either they have to agree to go into a home while they are lucid and able, and get to know the place first, or you have to make up an elaborate ruse as to why they are going. In Dad’s case, one of the carers came up with a totally inspired one that he was going to a social club where there were a lot of very bored people who needed someone to talk to. Dad is basically well-meaning and was only too happy to oblige, chatting, turning on the charm and generally being very well behaved.

Mum promised Dad that she wouldn’t put him in a home and as a result neither of them thought to pick one out one just in case. To be honest, Mum and Dad have always assumed they will die before the time when many of these tricky decisions have to be made. Now that Dad isn’t really cognitively able, Mum has done her absolute best to honour the promise she made. However, neither she, nor Dad had any clue of the horrors they were to endure. Let me elucidate.

Your Alzheimer’s suffering loved one will gradually regress. First they will lose their memory, forget things, then they will start to lose their understanding of social skills, they might swear, say inappropriate things, especially sexually inappropriate things and like small children, will ask people to marry them. As an example, some of the choice phrases I have overheard.

‘Have you ever been fucked up the cunt by a man?’ to a nine year old who countered,

‘Pops, I know what those words mean, but you really shouldn’t be saying them in front of me.’

Inappropriate sexual suggestions may be made to said nine year old.

Alternatively, your patient will shout,

‘Fucking hell you’re fat!’ at people who have come to help them.  They may spit at them, throw things and tell people to, ‘fuck off out of my house! You fucking awful fucking woman.’

On other occasions, while trying to actually be helpful, they may tip their food on the floor. They will think that scraping the leavings off their plate onto the carpet at their feet is helpful because they will have completely forgotten about the middle bit where they take the plate to the kitchen and scrape the leavings into the bin. As they realise it gets a result, they may relearn that it’s wrong but continue to do it to get a reaction.

Tiny things will cause them to completely lose their biscuits. You have no idea how bizarre it is watching an eighty six year old man throw himself to the floor and lie there kicking and screaming because he doesn’t want to get dressed, in the exact same manner as a very spoiled and unpleasant two year old having a trantarum. Except, of course, you can’t just pick up fourteen stones of eighty six year old and carry him off under one arm. It’s fucking surreal, I can tell you. You can’t reason with them the way you can reason with a two year old either, they lack the cognitive capacity.

The Alzheimer’s patent in your life will do completely odd things like decide they hate their walking frame and pick it up and throw it across the room as soon as they sit down. If it happens to hit the sufferer’s frail and elderly wife, things could get pretty grim. Thank god Dad can’t walk about, he’d probably have fucking murdered someone! But seriously, an aside on that, one woman did get attacked by her father who had forgotten who she was and thought she was a robber. He was chasing her around the house with a kitchen knife when she texted his neighbour asking for help. The neighbour came and knocked on the door. Her father stopped the chase to answer the door and explained he was looking for a burglar who was in his house. Meanwhile his daughter slipped out of the back door, climbed to safety over the garden fence and into her neighbour’s house, through the back door, which he’d left open.

Other things Dad has started doing, he chucks stuff. His chair was next to his record collection but after an afternoon where he sent the records spinning across the room at Mum and the Carer, Odd-Job style, these have been removed. He tears up and throws books. He spits at people. He clears his throat, leans forward and spits on the floor (we have Lino in our drawing room now).  He asks for tea and then tips it onto the floor. This means he can’t have his water cup near him, either. If he wants water, he will ask.

‘Will someone kindly get me a drink of water?’

Unfortunately, he has no sense of time passing so if the cup is not in his hand before the question has left his lips, sometimes before he has even finished the thought, he will believe he has been sitting, thirsty, for hours and he will ask again, more forcefully this time.

‘I said will somebody kindly get me a fucking drink of water.’

Say, heaven forefend, he has thrown his sippy cup at someone earlier, or lobbed it away at some point and it takes a little time to find, or its landed on its side and it’s empty, the Carer may well say.

‘Oh dear, it’s empty, wait a minute and I will get you some more.’

While she is walking to the kitchen, filling the cup and bringing it back, Dad will think he has spent many hours neglected, waiting for his water and will have worked himself into an apoplectic state of rage.

‘I hate you fuck off! You fucking horrible fucking woman!’ he will be shouting. ‘I want. A glass. Of fucking. Water! Is that too much to ask? Get me some fucking water you fucking horrible people. I hate you! You fucking stupid bloody woman!’ And so on.

As a Carer, you need to time your return since if he is too angry, he will spit at you and try to push you away, or throw something at you; this may include, a vase, place mat, handkerchief, glasses or even in one memorable instance, a clock.

This is absolutely standard for Alzheimer’s patients. A few escape but it’s only a tiny handful. It’s best to assume that your kindly gentle loved one will go thought the violent, paranoid shouty phase with as much energy and conviction as everyone else. And when you hear stories of Alzheimer’s affecting people like this, it is never accentuated as the norm. Nobody ever dares mention the elephant in the room and if you’re a blind knob, like me, you miss it.

Obviously, you don’t want your loved one to be at home when this phase of the disease hits especially if their spouse is still alive. Timing it is very difficult, though. Clearly, you want your person with you while you can appreciate every last tiny flickering spark of who they were and still have them happily ensconced in a home before they reach the point where they have transmogrified into a rather less amusing and a lot more dangerous version of Father Jack.

But there may be a waiting list for the home you like and the patient’s name might not have reached the top yet. Furthermore, you may well feel that you don’t want to peak too soon so a spot may come up while they are still perfectly manageable at home and then, suddenly, days after you’ve turned it down, you will wake up and find your hitherto placid – if forgetful – loved one has turned into a spitty, screaming rage ball.

If that happens, the most important thing for you to take away is, it’s not your fault or theirs, but it has happened and now that it has, something must be done, at once.

Ideally, you will have picked the home together way before that, and the patient will move in while still cognitively able to think altruistically about their loved ones. But ideal and real life are so different aren’t they? My parents did not do this. Neither of them expected years of twilight lingering, they expected to snuff it quickly, but twilight lingering is clearly their lot. If in ten year’s time I am still writing posts about Dad’s latest antics, I will not be remotely surprised. The way I feel right now, I wouldn’t turn a hair if he outlasted me. But my point is this, I think my parents had absolutely no idea what they were walking into and I think if he’d had the slightest clue what the shouty stage entailed Dad would have been a lot less intransigent about dying at home and Mum about letting him. In fact, Dad would have probably booked the home and moved in, himself.

Even so, it’s impossible to get the timing right, there will never be an instant place the moment the need arises. You will either be incarcerating your loved on a bit before they are ready or a bit after. Or the downturn will be extremely sudden and you’ll be having them sectioned.

It may be that when someone is diagnosed with Alzheimer’s there is all sorts of support that helps walk them through these decisions, helps them and their family to prepare for the point when the person becomes mute and the only thing that speaks is the disease. Because however distressing and horrible it is, you need to see that, need to be aware that it lies ahead for everyone.

But although Dad was diagnosed in 2012, nobody actually bothered to tell Mum or him until 2017. By that time, his memory capacity had fallen from 80% to 40% and my brother was already pressing for Mum to put him in a home – my brother’s wife was a care worker for a time so maybe they knew more about the screaming, spitty anger ball phase looming ahead of us than we did. I mean, we all knew Dad would go nuts but there’s nuts and … NUTS.

Even so, it was only in 2018 that Dad’s personality began to really change. Suddenly, he became a little more child like, a bit spoiled, had to be the centre of everything but even that was bearable, although I started thinking about respite care for him and because I didn’t have the right knowledge about how Dad’s care would be funded I was nervously husbanding our resources, knowing that there was only a year and a half of care left when we went over to Mum’s assets, or about six months if Mum was at home with carers and Dad was in a home. As it is, Mum’s funds will see her for about three years if it’s just her care (much less required than for the two of them) or if Dad is funded.

People talk to you about ‘nursing care’ and you don’t really know what it means, you think it’s continence or ability to walk and dress, or maybe waking up in the night a lot and not knowing what time it is. Nobody points out that what ‘nursing care’ is really for is that bit between the not-being-able-to-remember-things stage, and living-corpse-open-mouthed-gaping, end-game. Neither does anyone point out that during that bit, your relative with dementia is going to go completely, fucking bat-shit crazy.

I’m talking about The fucking Shining.

That’s why I’m telling you now.

Because you need to be prepared.

You will not find your loved one in crazy.

There’s no reasoning with crazy.

There’s no living with crazy.

By all means try and keep your loved one at home for as long as is humanly possible, but don’t be fooled by the vaguaries and pussy footling about from people who are too British and awkward to tell you the truth.

When someone says that your relative with dementia is going to need nursing care and need to go in a home, what they are telling you is that your loved one is highly likely to go absolutely, completely, fucking off their rocker. So much so that, if you’re at home at the time, they might kill you.

If you’ve followed my posts about dementia,  you’ll know that I have learned this via a somewhat circuitous route. Now, I’m telling you, so you don’t have to.

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More bad parenting.

Remember my post last week about my epic parenting skills well here is another instalment. I was going to tell you one from many moons ago but I don’t want you to feel you need to be sympathetic, I just want to raise a chuckle, and also, there’s a second instalment of last week’s debacle which you might enjoy. I’m afraid it’s not as funny but it’s the kind of thing that happens on a normal non-eventful day in our lives so it will give you the idea of the kind of life I lead.

This week I finally managed to go to the talk McMini and I enthusiastically tried to attend somewhat prematurely last week. Here’s how it went.

McMini is able to stay at home this time with McOther though, as in a rare moment of normal person working hours, he is home by six. Woot.

However, nothing is that simple and shortly before leaving I am faced with a new challenge. McMini explains that while at school that day, he took his watch off to do some painting and that when he came to put it back on again, ‘it wasn’t there’.

He’s McMini, he’ll have left it somewhere precarious it and it will have fallen onto the floor.

‘My teachers are going to have a really good look for it tonight,’ he tells me.

McMini is McMini. He is not one of the normals – CF this picture (left) – although he’s slightly better at pretending than I am. Also, he has time keeping skills like mine, as in negligible. This inconveniences him when he wants to watch his favourite TV programme, the Simpsons, which he loves, because he keeps losing track of time and missing the start. To combat this singular source of annoyance, he has set an alarm on his watch to go off at the time the Simpsons begins; six pm.

Cue 1950s Technicolor miraculous moment Oooo-aaa-aaah music.

Yes! I realise that if the watch is somewhere non-standard, which it will be because this is McMini, the caretaker or teachers may well have difficulty finding it. But should that happen, all they need to do is stand in the room where he lost it at around six o’clock, wait for it to start beeping and home in. It also goes off five minutes afterwards so even if they don’t quite manage to find it the first time, hang around for five minutes and they’ll get a second shot when it goes off again.

Following this blinding revelation comes another one – I know, two in one night! Steady on – but I realise that I’m about to go up to the school and actually be there at six pm. I reckon I can find McMini’s watch if I can persuade them to let me stand in the classroom for a minute or two. Excellent, the watch may have disappeared but I have a very real shot at finding it.

When I arrive at the school I discover there are two events going on and one of the ladies from the office is doing a meet and greet, pointing people in the right direction for each one. She steps forward the minute I appear and says,

‘Oh Mrs McGuire, about McMini’s watch, his teacher thinks it might be in his drawer. They all put their watches in their drawers before PE.’

‘Ah, I think McMini put his on again and took it off for art,’ I explain and then I tell her about the alarm that’s going to go beep at six and ask if I can go and stand in the classroom.

‘I can go and have a look for it if you like? If you don’t mind waiting here …’

‘Not at all,’ I say, ‘shall I carry on letting people in?’

‘If you could.’

So off she goes. I do what she’s been doing, press the button to let people through the airlock and tell them that the year two meeting is in bumblebee class and that year six parents are to go to the main hall.

Time ticks on. I say hello to various friends going into the hall for the meeting I’m supposed to be attending. Finally, when things are looking a bit worryingly quiet, the lady comes back.

‘You’re right,’ she says, ‘It wasn’t in his drawer but then I heard it beeping like you said, so I followed the noise and found it.’

‘Bonanza!’ I say, ‘Thank you.’

I take the watch and scuttle swiftly in the direction of the hall.

Obviously, I am last in, but to my complete amazement, the meeting hasn’t started yet. McMini’s class teacher rushes up to me to reassure me that all hands are to the pump in the search for the watch and I am delighted to be able to break the good news to her; that we’ve found it and I explain how.

‘That’s genius!’ she says, and appears to really mean it, bless her.

We exchange a few more brief pleasantries and I walk to the front and sit next to a friend.

All goes well until, a few minutes into the talk, there is an insistent beeping from somewhere. The speaker stops. As the beeping gets louder, and faster, people shift uncomfortably and rummage in their bags for their phones to check it isn’t them. That’s when I realise the noise is coming from my arm. The lovely lady who found McMini’s watch heard the alarm and used the sound to locate it, but it seems she didn’t get there in time to switch it off. That means the five minute snooze period is up and it’s going off a second time.

Luckily no-one really minded.

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Trust me, I’m an expert … mwahahahaahrgh!

As you are all aware, because heaven knows I bang on about it enough, I lead a very busy life and because the tolerances for error are quite small, I sometimes make a comprehensive fuck up of things. Quite a lot of the time, to be honest. One of my specialities on this front is turning up at the wrong place at the wrong time. It’s the latest instance of this which I’d like to share with you now. It happened like this …

McMini and I are sitting at home relaxing after he’s come home from school when I open an email from the school. It is a new layout, and it starts like this.

Thursday 8th January,

SATS evening for parents.

Dear Parents/Carers

On Thursday 17th January at 6pm, we will be holding an information event …

PFC – pretty fucking clear – right? Er, no. Not to muggins here. I have seen the date at the top, Thursday which is tonight, and the title, SATS evening for parents, and so I ignore the body of the letter, because I’m far too fucking busy to read that, and merely scan for the start time, ah yes, 6.00pm.

I look at my watch.

‘Shit it’s five o’clock!’

‘What’s up Mum?’ says a cheery voice from the other room.

‘The school is doing a thing about your SATS and it’s tonight, at six pm.’

‘Oh what? Do we have to go?’

‘Afraid so, it’s really important.’

McMini appears in the hall all rolling eyes and sighs, ‘Won’t Dad be back in time for me to stay here?’

‘Not at six, no, sorry.’

‘Oh well, I have some charge on my iPad, can I bring that?’

‘Yes, and your reading homework, you can write your book report while your’re there.’

He’s leaning over my arm, reading the email on my phone.

‘Hang on Mum, it says kids aren’t allowed.’

‘No it says it’s not for you, I can still bring you along if I’ve nowhere else to put you, they just mean that I don’t have to bring you if there’s someone you can stay with at home.’

So we get ready but we take too long so we have to go in the car because there isn’t time to walk. When I get up there, we are, parking, and of course it’s one of those ones where it goes wrong. You know how, when you’re in a hurry, you always get the angle wrong and have to come back out and start again. Off we go, second time, reverse, turn, turn, turn, ‘MEEEEEEEEEEEEEEEP!’

‘Shit.’

The arrow is actually pointing to the place where I’d put the firing button for the machine guns I will be placing behind the lights at some stage. Except now I’m thinking that if I’ll be inadvertently spraying the streets with fire every time I parallel park it might not be such a good idea. You can see the little trumpet where the hooter button is to the right of the arrow. There’s one of those each side so I have double the opportunities to beep in error like a fucktard.

I used to have a car with a hooter in the centre of the steering wheel and I beeped it with my elbow every time I reversed. This car has two hooter switches, one each side. Someone does something stupid on the motorway, nearly killing us all and can I find the hooter? Can I buffalo? But I still manage to beep the fucking thing by mistake every. Sodding. Time. I. Park! Maybe when I’m next in a dangerous situation, I should try not to hoot, then I might chuffing manage it.

McMini puts on an expression of mock shock at me for swearing and in his best Walter from Dennis the Menace voice he says,

‘Mother I’ve told you about swearing in front of me, you’re setting a very bad example.’

‘I know, I’m a terrible mother,’ I reply, giggling because I know he’s only taking the piss.

‘There’s an old man in that house staring out of the window at us, he’s looking very disapproving.’

‘I expect he is. I’m making a right pig’s ear of this parking.’

‘It’s not the parking, I don’t think he liked you hooting.’

‘I don’t blame him. I didn’t either. Right,’ I haul the handbrake on. ‘Come on, let’s go.’

Immediately a stream of cars comes up the street so we have to wait for them to pass before McMini can get out.

‘It’s the Truman Show!’ he says cheerfully. ‘They’ve been waiting ages to drive up here at the moment it would be most annoying for you.’

I heartily agree. My whole life’s the fucking Truman Show in that respect,

We arrive at the school as the clock on the church two streets over strikes six. Woot. Not exactly timely but we won’t have to do the walk of shame to the only seats left (at the front). Well, no, that’s not true. We will have to do the walk of shame but at least we won’t be doing it after the talk has started. I push the button to open the door but there’s no-one to buzz us through the air-lock or whatever they call the next bit.

‘Strange.’

Just then, two teachers appear and they come out and ask us if they can help. We say why we are there and they buzz us in.

‘Are you sure it’s tonight?’ asks one.

I’m not as it happens. I meant to check the email before leaving. ‘I thought it was,’ I say weakly.

‘The light’s aren’t on and there’s no-one else in the hall,’ says the other.

‘Uh … right,’ I say.

‘I’ll go and ask Mr Hammond,’ (the headmaster) ‘he’s still in his office,’ says the first one and she runs off up the stairs.

I have an Ely. That is, according to The Meaning of Liff, the first tiniest inkling that something has gone horribly wrong.

‘Hmm … I’m a bit of a spanner with dates, I may have stuffed up,’ I tell the other teacher as we wait. ‘Hang on, I’ll check the email.’

I get the email open and see that I have, indeed, misread it.

‘Shit,’ I say before I can stop myself. ‘Sorry,’ I start laughing, because cheery apology seems the best way to play it, ‘Will you look at that? I’m such a bell-end, I’ve got the wrong day.’ I remember that the other teacher has gone to get the headmaster. ‘Oh no I’m so sorry, and now I’ve woken the Kraken and everything!’ I say as I turn and realise Mr Hammond and the other teacher have just arrived and heard everything, including the bit where I refer to the act of fetching him from his office as ‘waking the Kraken’.

He looks knackered and I apologise for dragging him away from his work. The three of them are all extremely good natured and up beat about it, I’d have told me to fuck off! and we laugh and apologise cheerily and McMini and I go away marvelling, in a slightly giggly way, at my complete ineptitude. As I get into the car. McMini says,

‘Mother you swore in front of the teachers, you said ‘shit’ and you called yourself a bell-end in front of Mr Hammond.’

‘Oh dear, did I?’

‘Yes you did! You know in early years, when I said bollocks and I got told off and they asked me where I got it from and I said ‘my mum’ and they didn’t’ believe me?’ he says, reminding me of yet another example of exemplary parenting from my past.

‘Yes I do,’ I reply.

‘Well they know I wasn’t lying now! Because they’ve heard you swearing, so they know it was you and they know you’re a foul-mouthed shrek-lady. They’ve got … what is it when you have loads of evidence?’

‘Hard evidence?’

‘No.’

‘Cast iron proof?’

‘No.’

‘They’ve got me bang to rights?’

‘That’s the one! They now have you bang to rights because they have concrete evidence that you swear in front of me and not just in front of me but in front of the headmaster! They know you are a very bad mother.’

We start laughing about this but I do manage to leave the parking space without beeping the chuffing hooter again and the Disapproving Man has gone from the window so I thank the lord for small mercies.

‘I am a bad mother, but, at the same time, I must be doing something right if I have such a good, well mannered little boy.’ Obviously, I say this in a really syrupy voice, like the Walter the Softee one he does when he calls me ‘mother’.

‘True mother, despite your somewhat idiosyncratic parenting you really have produced a most charming and well behaved child.’

‘Exactly, you hear and see me behaving extremely badly but you don’t, that has to count for something,’ I say. ‘Although, they’ll be wondering back there, won’t they?’

‘Yes, they’ll be saying to each other, “how could such an evil crone produce such a perfect little boy?”’

‘Indeed. Why is he not affected by that potty-mouthed harridan he calls his mother? Mr Hammond has probably had to go and have a lie down.’

‘I bet he does an assembly about it tomorrow, he’ll say McMini is a lovely charming little boy despite the fact his mother is a horrific, sweary, shrek-like crone!’

‘That’s right, he’ll say I’m dirty! A dirty, filthy, vile, morally-dissolute, harridan!’

‘And a shrek!’

‘And a shrek.’

We spend the journey home coming up with more and more colourful adjectives for fictional Mr Hammond to use in assembly while describing my dreadfulness, and shouting them at a higher and higher volume, as if his fictional disapproval is moving from strongly-voiced, through angry to apoplectic.  The incongruity of this, when placed against the actual, real Mr Hammond, who is is the most calm, measured and even-tempered person you could care to meet, is a source of childish amusement to both of us.

We continue randomly shouting pejorative adjectives at one another for several days.

I really should be setting an example.

Yeh but …

Oh well, you can’t win ’em all.

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Feels like Friday!

Shall I let you into a secret? This is my favourite time of the year. Especially Epiphany (next Sunday).

Don’t panic! It’s 2019.

Why? Because I get to look back at what I’ve achieved in a good year, and on to what I might achieve – I might do a bit more looking forward than back if I’ve had a bad year but that’s the loveliness of it. It’s only the beginning of the year so there’s that glorious, clean-page feeling you can only possibly enjoy during the few, early weeks have when you haven’t fucked anything up yet.

Then there’s the fact the days are getting longer, the bulbs are beginning to peep through, the birds are suddenly singing a LOT louder. There is a buzz and energy to everything, as if nature knows that no matter how cold it might yet get and no matter how mid winter it actually still is, we have turned the corner. It’s a kind of school’s out feeling.

The big one, of course, is that Christmas is over, I am no longer writing lists, trying to remember all the things I am supposed to do, or trying to work out if I’ve posted the Christmas cards or remembered to buy more stamps. There’s no travel, no wondering, nervously, if I’ve booked the cat in kennels on the right dates even though I know I’ve checked and re-checked. There’s no packing or making sure that lots of things are clean so I can just put one suitcase down in the hall and pick up the other one as we make a quick 24 hour pit stop at home on the way from Scotland to Sussex, or vice versa.

There’s none of the omnipresent worry, the feeling I’ve forgotten something. Nor, indeed, the very real danger of causing horrific offence though some gifting oversight or greetings-related vaguary. No trying to recall if I’ve sent that calendar to Aunt Ada, and if I have, whether Aunt Doris should have one too, or whether I put a family letter in Cousin Mabel’s card. Or have I sent the right cards to the right halves of the divorcees? I did catch myself in time before I posted a card to the lady half of a divorced couple in the envelope addressed to her ex. That was close.

There’s no fielding all the calls from people who want to know how Mum and Dad are but are too shy to call direct, ‘because we know your father’s ill and we haven’t heard anything’. No more trying to explain to them that they haven’t heard anything because my father is ill, not because my mother doesn’t want to call for another year. No more efforts to try and underline, gently, that Mum would love to hear from them but that she has a dash of dementia too, now, and that they haven’t heard because they need to call her.

Doing Christmas and New Year is like sitting a rather onorous set of exams.  It’s alright if you are prepared but I am not always prepared because … life.

Christmas and New Year require me to be a grown up, be the matriarch and generally do adulting, hard.

Adulting is not something I do well.

Epiphany, on the other hand, is when I come out the other end, exams sat, adulting done, no clue as to the results but nothing more than the thank you letters to worry about, which are usually done by that time because even if they feel like pulling teeth, they’re the last push, the the last bit of grown-up-ness between me and freedom, and it always feels good to get them finished by the first weekend in January so I can relax.

There is the glorious revelling in the knowledge that Next Christmas and New Year are about as far away as it is possible for them to be. That smug feeling you get buying next year’s wrapping paper and Christmas cards for a third of the price in the sales and putting them away. There’s the fabulous relief that all the weird people who love Christmas and bang on about it from about July will actually shut the fuck up about it for a couple of months. No more Christmas jumper pictures on Facebook. Woot. But I suppose, most importantly, after a month or two of frenetic planning and pretending to be a grown up, Epiphany brings a bit of space, some time to reflect on the past year and look at what I have – or haven’t – done. And with that, usually, comes a feeling of great peace.

Next year is going to be tough but we’ll get through somewhow.

This year, I have learned that I need to write to maintain my sanity. More importantly, as well as learning that I needed to do that, I learned how to. I have not been so calm for a long time – don’t get excited it’s all relative, I’m still bouncing about like a kernel in a popcorn maker and I am still exasperated by trivial and mundane things. I still get menopausally, hormonally, mental baggage-ly angry about ridiculously small stuff and end up shouting at strangers but … er hem … in a more relaxed and benign way. Phnark.

So yeh. Very little has changed, except the gargantuan word total, there just seems to have been this weird shift in the way I look at it. It’s not all roses, but it’s not all stingy nettles and jaggy brambles anymore, either!

I am aware that my feeling of peace is probably nothing more than the calm before the storm but I’ll enjoy it while it’s here. As for 2019, I know some things are going to be grim, but I’m still looking forward to it, I’m still hopeful and still intrigued as to what it will bring.

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New Stuff? Yeh, excerpt, new release and old stuff for 40% off!

As you know, I’ve been writing new stuff this year and because of the state of my brain/demands on my time and general, inconvenient insistence of Real Life to get in my way, this new stuff is mostly novellas/short stories. I am now close to finishing my fifth short this year! Woot. Desparately trying to get it sort of done by the end of the year but it probably won’t quite happen now, although I will be, literally, about 1000 words short! Grrr!

Apologies that I don’t have a cover to show you. I did hope I would have by this time but, unfortunately, my car appears to be determined to bankrupt me, so I didn’t have any cash left over to stump up for a cover after new tyres, a new radiator and other extensive repairs. But I digress … After banging on about them so long, I thought you might like to read an excerpt anyway, even without the cover to look at. Barring one, the short stories start pretty much were Unlucky Dip leaves off. The one exception … remember that scene in The Wrong Stuff when The Pan of Hamgee, hero of the K’Barthan Series, tells Ruth he tried to kill himself? This story tells you how and why he failed.

If you’ve read Unlucky Dip, you’ll know that The Pan, gets employed as a go-fer by Big Merv, the local gang lord after making and ill-judged and pathetically cack-handed effort to steal his wallet.

Between that point and the start of the actual series there’s about a year when The Pan runs errands for his scary orange boss. A couple of people asked me what happened during that time so I wrote it down. It being The Pan, most of the errands he runs go wrong somehow and he has to put things right to avoid being incorporated into a motorway stanchion or sent to swim with the fishes in concrete overshoes.

When I’m writing, I tend to end up writing way more stuff than I use so this may not all make it into the final edit, but I thought you might like it anyway. It describes The Pan of Hamgee’s first visit to The Parrot and Screwdriver, shortly after he is ’employed’ not that he has much choice in the matter, by Big Merv. It also describes his first encounter with Humbert, the foul-mouthed parrot. I am hoping that my cat fans, in particular, will appreciate this one.

Enjoy.

K’Barthan Short Preview

Sort of on the same subject …

Christmas Lites VIII

You may remember me talking about Christmas Lites last year. It’s an annual anthology published in aid of victims of domestic abuse. This year I successfully got my shit together and actually wrote a 10k story for Christmas Lights Eight. Woot! If you’re interested in finding out how The Pan of Hamgee got the pink plastic ring which features in Looking For Trouble, the answer is in the story, Secret Festive Celebration – yes, naming my work is not my strong point but it’s probably better than ‘the pink spangly ring one’*. Marginally.

* the genuine working title.

As I write, I lack a cover photo for this one too – doing well aren’t I? I also lack any meaningful details of a release date but I have made the bold assumption that it will go live soon because I know that’s the intention, and the lady who runs it has just had a baby, which means it’s not going to happen in a standard manner. She has a small person in her life now and all planning disappears when that happens. However, I wanted to alert you all anyway, because I know it’ll be coming soon. I’ll do a post specially when it does.

K’Barthan Box Set on sale now! Woot!

If Kobo is your thing, or you buy your ebooks from pretty much any store and read them with the respective app, Kobo is having a box set sale until 17th December. The discount won’t show at first but if you click to purchase and then enter the coupon code DECSALE at check out it will knock 40% off the price for you. You can use this code again and again, so basically, if you like Kobo, this is a good time to mop up as many reduced books as you can!

To find out more, click on the picture or follow this lovely link here which should take you to your local Kobo … er hem, famous last words:

https://www.kobo.com/ebook/k-barthan-box-set

While I’m writing about that, I know it’s a little bit cheeky but if you’ve read the series and enjoyed it already, could you do me a huge favour? If you have time, would you be able to help new people find it by spreading the word about this promo, or sharing my Facebook post about it with your friends? I know dead cheeky, right? But if you think you can help, you will surely gain your right to fully-certified Christmas Awesomeness! You can find the Facebook post to share here.

That’s it from me for this week … next week I may tell you about my adventures when out metal detecting and I discovered the battery in my car key had gone, rendering the car impregnable. Perhaps I’ll describe how I fell to my knees in the mud and cried, ‘why me?’ as I realised my lunch was locked inside. Tune in next week and if I’ve got round to typing it up, you’ll find out what happens next and also the answer to the question, when you put a Lotus on a ramp, can you open the door and get in?

These and more adventures next week!

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The lady vanishes, or at least, the kids do …

So a light one this week from the non fiction family stories thing. The other day, there was a spoof article from SuffolkGazette – a jokey ‘news’ site on Facebook; ‘Girl, 9, disappears after putting on cream that makes you look 10 years younger.’  It made me think about this story about the antics my grandmother and great aunt got up to one evening when they were youngsters. My grandmother told me this story, herself, so it does come straight from the horse’s mouth, so to speak. She swore it was true and my mother thinks it quite probable that it is, so here, for your delectation …

The Vanishing Cream …

In this tale, Nye, my grandmother, was twelve years old, which would make Aunty, her sister, four. Nye comes over as a great deal less streetwise than twelve year olds today, but then, it was another era and having lived with ‘Granny’ Mum’s view was that she would have kept her children as young and naive as possible for as long as possible. Nye and Aunty didn’t go to school. They had a governess, who was French. When this story takes place I can only assume that she was elsewhere, or believed her charges to be in bed. 

Anyway, Nye had discovered a pot of Pond’s Vanishing Cream on her mother’s dressing table and was extremely intrigued as to what it did. Vanishing cream was first introduced in 1892 and got the name because it’s a cream that disappears when it is rubbed on. Nye’s Mum would probably have used it as a moisturiser or a colourless base for makeup. However, Nye had convinced herself that her mother wore it to make herself invisible. Reading a bit too much E Nesbitt, perhaps? Who knows, but whatever the reason, one night, while their parents were downstairs entertaining friends to dinner and the Governess was … elsewhere … Nye and Aunty, went ‘exploring’ around the house and crept into their mother’s bedroom. 

Immediately, Nye’s eye lit on the pot.

‘Look!’ she said, showing it to her little sister. ‘Vanishing cream! If we rub this on ourselves it will turn us invisible.’

‘Really?’ asked Aunty, saucer-eyed.

‘Yes. That’s how Mother knows when we have been naughty in lessons,’ Nye explained, never thinking, for a moment, that this might be because the Governess reported it to her when she reported on their progress.

The girls decided they would test how effective the cream was. Aunty went first and was disappointed to discover that she could still see herself. Nye put some cream on, with similar results. 

The two of them thought for a moment. 

‘I know what it is,’ said Nye. ‘We should undress because otherwise, even if people can’t see us our clothes will be visible.’

‘Is that why we can see one another?

‘I don’t know, let’s try.’

The two of them took of their clothes and put vanishing cream on literally every part of their bodies, I do hope, for their mother’s sake, that it wasn’t too expensive. They stood back and regarded one another.

‘Can you see me?’ asked Nye.

‘Yes,’ said Aunty.

‘I can see you too.’

‘Perhaps it isn’t working,’ said Aunty.

Nye thought for a moment. 

‘There is a way we can find out.’

‘How?’ 

‘I’ll tell you …’

Aunty was all set to try Nye’s cunning plan and so together, the two of them, still as starkers as the day they were born, crept downstairs. 

From the dining room came the sound of cutlery chinking gently on plates and genteel voices having refined and proper dinner time conversation. Nye pushed the door open a crack. Nobody took any notice. She turned back to her sister.

‘Remember, they can hear us, even if they can’t see us, so we mustn’t talk,’ she whispered, and put her finger to her lips. Aunty mimicked the gesture and nodded.

Nye opened the door a little more and slipped into the room.

The two girls stood there, in silence.

No-one reacted.

Nye walked round the table. The grown ups carried on talking, oblivious. Aunty’s hands flew to her mouth to try and muffle her gasp of delight. She went to join Nye and the two of them danced, cavorted and skipped about the room in silence. The grown ups made absolutely no sign of noticing anything. Perhaps if they were a bit older, our two heroines might have noticed Grandpop’s demeanour take on a somewhat stoic set, or might have seen the visible loss of colour on their mother’s face. They might even have noticed the atmosphere among the adults become a little strained, seen how a couple of the guests eyes bulged or heard how the conversation had taken on a somewhat stilted tone. But as it was, they were twelve and four, and not yet sufficiently aware of human nature to hoist in any subtleties like that.

After about ten minutes cavorting about without being seen got boring so Aunty and Nye left the room and returned to their bedroom; upstairs, next to the nursery. The Vanishing Cream Experiment had been an unmitigated success and the two of them slept soundly that night, dreaming of the wonderful things they would be able to do and places they would be able to visit now that they could become invisible.

The following morning, Nye and Aunty heard the governess being told off, extensively. When the two of them were called in to see Granny and Grandpop in the drawing room after breakfast they knew something was up. 

‘What do you think you were doing last night?’ asked Granny. 

‘Sleeping?’ asked Nye with more hope than conviction.

‘Before that. When you were cavorting about the dinner table divest of every single stitch of clothing.’

Nye was surprised. 

‘Did you see us?’ she asked. 

‘Of course I did.’

Oh dear. Although, thinking about it, maybe family members could see one another, yes, Nye reflected. That would explain why Aunty and her could see one another, too. However, she was sure none of the guests had noticed.

‘But we thought we were invisible,’ said Aunty.

‘Why on earth would you think that?’ asked Grandpop.

‘Because we were wearing vanishing cream,’ Nye explained, ‘and that’s why no-one else noticed us.’

‘You utter fools! Of course they noticed you!’ said Granny. 

She heaved a sigh and then Grandpop stepped in and went on to explain that some things are ‘not quite nice’ and those things are ‘not talked about’ and that two nude child children cavorting around the table at dinner would fall into the category of ‘not quite nice’ and ‘not talked about’ hence the gathered guests would do what any British person should do when confronted with such a disgusting spectacle. Ignore it stoically until it went away.

Nye was in a home by the time she told me this story and sadly, Aunty had already died, so I was never able to get her side of the story, and I’d have loved to have heard it. I remember Nye saying, 

‘Can you imagine it? There they were eating while two little girls danced around the dinner table naked and they were so stuffy they pretended we weren’t there.’

She clearly felt it served them right. I suspect Granny and Grandpop may have had more of a sense of humour than family history gives them credit for. But it’s quite clear that, whether or not they did, Nye was unrepentant, if not at the time then certainly in her late eighties.

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Updates, ramblings and witterings

Well, it’s prettier than a blue-arsed fly.

Wow! Time seems to have bitten me on the arse this week, my goodness but there’s been a lot for schools to use to torment me by giving me too many things to remember each day get McMini’s teeth into this term. First harvest: collect tinned and dry goods for the local shelter. It’s for people fleeing domestic violence too so toiletries like flannels, bath caps, toothbrushes and toothpaste are appreciated, as well as tampons and lady requisites. McMini, upon discovering a packet of tampons in our bag of stuff, refuses, point blank, to hand it in. Eventually, to spare his blushes, I have to.

Then it’s Halloween, a bit too quickly after our holiday for organisational comfort. I’m still catching up on the post holiday washing and do not have the capacity for pumpkin carving. Although this year it wasn’t me tramping the nearby streets with McMini as he shook down the neighbours for sweets, he went with a friend and the friend’s brave mum!

Having whinged, I quite like carving pumpkins. I was hoping to have a go at edgy political satire and make a Donald Trumpkin this year but alas, my cartoon drawing/cutting skills are not quite up there enough to make a suitably recognisable effort, indeed, the only similarity is the colour which doesn’t show in this photo. This year’s pumpkin crop seems to be particularly dense fleshed and thick skinned. Maybe it’s the heat. Good for cooking I may even make it all into pumpkin soup. But tough to carve. Indeed it took so long that I ran out of time to do the hair. As McMini said, I should have done it with a cheese grater, or a blonde wig. Meanwhile several of the people who saw it thought it was a set of ovaries.

Halloween Trumpkin.

Ooookay … mwahahahahrgh! Moving on then.

When it comes to the stress of life, clearly I’m not the only one affected. McMini’s school meals are all lovely winter warmers this quarter which means many come with sauces or gravy or other things he refuses to eat. As a result it was three packed lunches this week which stretches our supply of suitable receptacles. That meant he had to be sternly warned to bring his lunch bag home with him – otherwise every tupperware box I possess will end up at his school. Bless his little heart, he has managed to remember to bring the lunch stuff home so fair play to him.

However, it appears that, like his mother he is only able to remember a finite number of things to be done before extraneous others start falling off the list.

On Tuesday we cycled to school. McMini is walking some of the way home from school on his own now so as I waited for him at our designated half way point, I saw he was approaching on foot. For a split second I thought that maybe something terrible had happened to his bike. Then I remembered that this is my son, and relaxed.

‘Mum! I’ve remembered my lunch box,’ he said proudly holding out the lunch bag as soon as he was within earshot.
‘Well done mate,’ we high fived. ‘Um just out of interest … where’s your bike?’
‘I forgot it. I was walking down the street and I looked up here and I could see you and I thought, “Why on earth has Mummy come to meet me on her bike?” Then I remembered, I’d left mine at school. I’ll bring it home tomorrow.’
‘Well, Daddy is collecting you tomorrow so-‘
‘Oh yes, he doesn’t have a bike. I’ll bring it home on Thursday then.’

He forgot that, but he did remember the bike albeit on the wrong day. Apparently McOther had to run a bit to keep up but I expect it did him good. McMini is definitely making a concerted effort to remember more stuff though. It’s a bit hit and miss but I know how difficult it is for me so I have to give him kudos for trying.

There’s been another development this week, which is that McMini has discovered the joyous feeling of clean teeth, which is brilliant as instead of my having to force him at gunpoint he now happily cleans them morning and evening. As a child who normally eschews any attempts on my part to instil any sense of cleanliness, whatsoever, this is good news.

However, it has also led to what may well be one of the grossest conversations I have ever had. Yes, last night we had this conversation.

‘Have you cleaned your teeth.’
‘Yes I have. My mouth is lovely. My teeth are all smooth with no bobbly bits.’
‘Yeh, no horrible stuff under your fingernail when you do this,’ MT scrapes fingernail down front tooth.
‘Plaque you mean?’
‘Yes.’
Oh no Mum, plaque is AWESOME!’
‘It is?’ I ask weakly.
‘Yes it tastes just like sweetcorn.’
‘Bleurgh, ugh.’
‘Whereas scabs are like crunchy chicken, unless it’s other people’s scabs. Those are vile, like raw beef or something horrible.’

On the writing side, I have just discovered the gobsmacking truth that I’ve written 131,000 words this year. Clearly there are many people who write that many words a month but I reckon it’s not bad on an average of 10 minutes a day. I’m just tinkering with ideas for another two shorts and the new K’Barthan shorts series will be ready for editing and covers. Hopefully, they should be done for release next year. I’m a bit too concentrating on one thing at the moment, the short that’s turned into a long is taking far too much time, but I am too interested to find out what happens and the scenes that are popping into my head at the moment seem to be mostly related to it. I’m a great believe in doing what comes naturally so that’s where I’ve been concentrating my efforts for the moment. It’s creeping slowly forward but I definitely want to finish something soon so I need to get another short going too. Anyway, I’ll keep you posted on progress. In the meantime, for the word nerds among you, I’ve discovered a cracking website.

Have you ever wondered how to pronounce the word ‘gif’? Or what TASER stands for, or why the word ‘laser’ can never be spelled with a Z even in America? If you want to know the answer to these and many other splendidly obscure and trivial word related questions head on over to Emma Wilkin’s Wordy Rambles. It’s funny, too so I promise you will not regret it.

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