Tag Archives: writer parent

Can I do this in ten minutes? No? Stuff it then.

Yes, that’s been my motto this week. The Chaos fairies are back and I am clinging on to the hamster wheel of life with my finger tips. Everything that could happen to cause me extra inconvenience and time has happened but on the up side, I’ve been editing, primping and generally adding bits to the books in the new series for ten minutes every morning. And ten minutes is better than sodding nothing. Just.

It’s been one of those weeks when the intervention of unscheduled events has been so bad I’ve been railing and swearing at anything that crosses my path. For example, emptying the bin; while waiting for the plastic liner to slowly eek its way out of the bin in the kitchen so I can take the rubbish out and put a new one in I’ve been shouting.

‘Hurry the fuck up! I’ve got better things to do with my time!’

At a plastic bag.

Yelling at inanimate objects then. Probably not the greatest testament to a stable mind or much in the way of sanity but hey it’s the way I roll.

McCat has caught a bird three mornings running at exactly the same time of day, this morning I was not on the school run and so was monumentally pissed off that I forgot to lock him in for the three quarters of an hour of bird death between eight fifteen and nine am. Although on the upside, at least the last two mornings, while there were feathers to hoover up and blood stains to clean there wasn’t a body. If he has to catch people, I’d rather he ate them. Also, it wasn’t either of our lovely dunnocks (hedge sparrows). Once incredibly common, the dunnock population has declined by 93% since 1970 and they are now on the red endangered list.

McMini has been doing exams, SATS, which seem completely pointless and arbitrary and rather harder work than the o’levels I took aged fifteen/sixteen (the joy of  a June birthday is that it falls right in the middle of your exams). The SATS involve McMini having to be in school for a pre exam breakfast at eight am, which, on the back of two weeks having to be up and dressed and ready for the arrival of the painters at seven thirty in the morning has been hard for me but has clearly been a great help to him so, go school on that one even if it was a bit … bleargh for me.

In addition, I’ve been suffering more knee and heel pain which does knacker me out. I’m sure McOther thinks I’m lazy because I tend to batch getting up to do things. I tried to explain that if he knew he was going to get an electric shock every time he stood up from the chair and went to get something, he would probably wait, until he had several things to go and get before weathering the electric shock. I think he got more of an idea after that. I probably ought to go back to physio because while we think the pain is not necessarily arthritic, I’d like to try and find out what is causing it. Who knows, if we did that, maybe I could make it stop.

SATS involve McMini having even less of an idea of passing time, where he is, what he’s supposed to be doing etc and added to my already disastrously shite levels on this front, we have been well and truly home to Mr Cock up. Lurching from one crisis of our own making to another!

The school, in quite a decent gesture, have done a kind of parable of the talents on the kids. They have been put into groups and given a fiver. They have to use the fiver to buy things so they can make something or sell something and turn it into more. Each group of four is expected to try and aim for £25 minimum. McMini’s group split into two couples, both raised £70 last weekend and the other couple are doing a car boot to raise more this weekend. However, ours went like this.

‘Mum, my friend and I are going to sell lemonade.’

‘When?’

‘Now.’

I look out of the window, it’s five to five on a Friday and it’s pissing down.

‘Don’t you think tomorrow would be better?’

Long and the short, I ring friend’s mum who also agrees tomorrow would be better. I then spend an unscheduled two and a half hours making cakes on the Saturday morning and another unscheduled two and a half hours standing behind a table up the street with McMini’s friend’s mum plus McMini and friend, flogging said cakes to unsuspecting members of the general public. It went well and was fun but after two week’s sleep deprivation – that half an hour between six thirty and seven is important to me it seems – I wasn’t hugely endowed with energy for that kind of thing. And all that standing. I did sit on a wall but a sweet man came out and asked me, in the most tactful, kindly way anyone has ever asked me not to do something, if I would mind not sitting on his mother’s garden wall. My leg hurt for about five days afterwards too.

Spool forward to yesterday when I get a text from the school at four thirty reminding me to send McMini in the next day with £2 to spend at the year six cake sale.

‘Cakey what?’ I cry in horror. ‘Am I supposed to be baking something for this?’

Of course I fucking am. Luckily there’s enough ingredients and cake cases from last week’s impromptu cake sale to cobble something together but it’s all a bit shit.

Where the school falls down is a message in the middle. They’re great at warning you something’s coming up an a month or two, but even two weeks is miles away and you’re head down fighting the crises and fires that are blazing right now. They are also brilliant at reminding you about things that are on tomorrow but, unfortunately, they are singularly piss-poor at reminding you on say … Monday … that there’s a cake sale on Friday. McMini was supposed to do that but a) he’s McMini and b) SATS.

At the end of it all, if the kids have made enough cash, their efforts will fund a trip for all of them somewhere. Sounds good. In case there was any chance of a relaxing weekend, McMini has a football tournament today. Of course he does, poor little blighter, because it’s completely bastard freezing again. And it starts at nine so it’s up at the crack of fucking dawn again. I will have to be very careful to ensure I bring one of our fold up chairs or I’ll be walking like an arthritic John Wayne for the rest of next week. Still it’ll hardly make a difference. I look terrible at the moment.

Heaven knows what’s going on, maybe the stress hormones are high, but I’m getting fatter and fatter. It’s as if someone’s shoved a bicycle pump up my arse and they’re filling me with air, except it’s flab. Jeez, I mean, dressing has been like draping camouflage netting over a zeppelin for some time but today’s trousers, which were perfectly comfortable two weeks ago, are positively groaning at the seams. If the button goes, it’ll fly off with such force that it’ll probably kill someone. I’ll be sent to prison for murdering innocent bystanders with a flab powered projectile. Maybe I’ll squeak by with manslaughter and serve a shorter sentence. Here’s hoping.

At the end of next week it’s half term during which we are flying round the country like blue arsed flies, still, at least we’ll get to have a lie in and after that, it’ll be back to school for a chuffing rest.

Phew!

On the upside, on Friday morning, for the first time in three weeks, I got to set the alarm for seven instead of some varietal of Far Too Fucking Close To Six. I woke up at six thirty, had a wee and retired smugly back to bed for another glorious twenty minutes kip.

Chuffing marvellous.

Do you know, I read somewhere that night owls are more likely to be unhappy or suffer from mental illness than larks. The implication of the article was that if you’re the kind of person who, when left to function naturally, wakes at nine and goes to bed at one am, there’s something fundamentally wrong with you. You’re obviously more likely to end up being mentally ill the article posited because if you struggle to get up early you’ve clearly No Moral Fibre and you don’t fit in with Decent People. At this point, while reading, I was giving the magazine the bird and shouting, ‘Fuck off!’ because it’s bollocks.

If you ask me, it’s blindingly obvious night owls are more likely to struggle. They struggle because the entire fabric of society, of the working day and of completely everything is set up for and favours the kind of smug masochistic bastards who get up at six am, of their own volition, go to bed at eight pm – a few minutes before their children – because they get up too stupidly early to be able to hang out with the Normal Humans for an evening. Not that I mind getting up for the dawn occasionally, it can be very beautiful, but half the joy of it, when I do, is the fact that I don’t have to do it every day.

So yeh, been playing catch up this week even more than usual.

On the up side, the new book came back from the first edit today and in an amazing turn of events, despite bastard Real Life thwarting me at every turn, I managed to go through the edits and make the changes straight away. Those two pictures are the artwork from the covers, the orange and blue one is the cover of the new series, the orange bit will be a different colour on each book. The other one is the cover of a free short I’m going to give away to folks on my mailing list. It’s going to be completely exclusive so no-one else gets a copy, it’s not on sale anywhere else either. Now all I have to do is finish the sequence of hello emails people get on joining.

On the preparing the book front, I’m trying a different editor. She’s more expensive than the ones I’ve used thus far, but she’s local, in fact she goes to my gym and she’s a bit of a word/grammar spud. On the one hand, she charges more, on the other, she charges by the hour so I can ask her to do as much work as I can afford and then stop until I can afford more. Also, she doesn’t have the same kind of waiting list – not for a short story, anyway. Things are looking good so far so I’m quite excited about the work in progress, although I’m sort of frustrated in equal measure because there’s so much homework to do from Real Bastard Life at the same time.

On the Dad front, I had a really good visit this last Wednesday. He was sleepy and didn’t raise his head up but he knew I was there and was pleased to see me because he kept smiling. He smiled and chuckled as I chatted to him. These days, when I see him, I recall things to him that we did as a family when my brother and I were little. He may not remember, I don’t know, but it’s clear that they amuse him. This week it was about being on holiday and finding a field of carrots and how my parents tried to stop my brother and I from pulling up a couple and eating them.

‘It’s stealing!’ Mum told us.

But my brother and I persisted and my parents tried to pretend they were cross but I suspect they were just delighted that we were eating carrots. That memory made him smile. He was alright, and happy within himself, so I wasn’t as worried as I have been. And to be honest, just blogging about it last week helped.

Oh, it’s been half an hour and now it’s time to collect McMini from Boy’s brigade. Apparently he’s going to be painting a pot, I look forward to seeing what colours he’s used by looking at his shirt.

Onwards and upwards! A bientot!

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Red alert at Ice Station Zebra … And the Pile Howitzer

This one comes with a profanity warning. It’s not that profane but I do mention piles quite a lot. There. Don’t say I didn’t warn you.

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The thing about giving birth is that your dignity tends to be birthed along with your child. Not that I even had to give birth to my lad, having a c-section and all. Except while, after it’s all over, they give the child a rub down and hand it over for a cuddle, it seems that my dignity is still in Addenbrooks hospital somewhere. I’d like to think it’s wandering the corridors looking for me but I suspect it’s more likely to be in a drunken stupor. Then comes the menopause/perimenopause/postmenopause. Ladies, if you haven’t yet you do. Not. Know. What. You are in for. If you have … you’ll be laughing along with this.

Basically, when a lady hits mid-life then, if she has any dignity remaining, trust me, the whole change of life shenanigans will knock it unconscious, drag it away, murder it and bury it in a shallow grave.

Motherhood, menopause and adulting. They’ll be the fucking death of me.

Yeh. I don’t really know where to begin this week. It’s manic. The painters are in. For once this is not a euphemism there really are genuine painters painting the woodwork outside of our house. Yes, I’m sorry folks, it’s all our fault the weather had turned to shite. They’re in for three weeks I’m afraid, an’ all so crack out your waterproofs and thermals. The painters start at half seven, which means I have to set my alarm for half six so that I have some thought collection time between waking up and getting out of bed.

When you have to get up that early, who needs thought collection time, right? Wrong. Why do I need it so badly though? You ask? Well, you may not but for the sake of the point I’m attempting to make here, let’s pretend you did. Er … yeh, why do I need that? Because otherwise a terrible thing beyond our imagination may occur. A rush. Also … brain fog. A rush plus brain fog equals a day comprising one gargantuan balls-up after another, followed by an evening of wailing, gnashing-of-teeth and too much alcohol.

Also it has not helped that since it was constipation and brain fog week last week, it is, naturally, piles, headache and brain fog week this. I confess, the piles bit is, usually, only a mild annoyance but every now and again the little bastards decide it’s time for war.

Naturally, what with it being absolutely the worst week ever for it, this week they decided to declare war. So bad I’ve had to open, ‘that box in the fridge’ and crack out the heavy armour. These things are the mother of all cures, the big hitters and I confess, this is only the second time I’ve had to resort to using them. Privately, in my own warped head, I call them ‘The Pile Howitzers’. Normally their presence, in the box, in the fridge, in the paper bag, is enough to keep the little bastards under control.

Obviously with the painters in, it was inevitable that as well as a hectic week for McMini things would go a bit wrong with Dad, which they’ve done – to the extent that I can’t really look it in the eye enough to talk about it now.

But presumably that’s why this week, of all the bastard weeks I would be forced to do so, I’ve had to deploy the Pile Howitzers. It’s a mis-nomer, too, because it’s more like pile shells. Each one looks like a bullet, made of some candle wax like stuff – I assume there’s more than candle wax in it though. Anyway, these things bear a very passing resemblance to the missiles off one of McMini’s StarWars toys – it’s a Clone trooper transport ship, if you must know – and each one has to be shoved where the sun don’t shine – the medication I mean, not the missiles of scion’s Clone trooper transport ship clearly – after … er … daily motion.

As you can imagine this is not hugely dignified experience at the best of times. But when there’s a strong chance you’ll have to give a painter outside the window, sanding down the woodwork, a cheery wave first, it’s a whole new dimension of ‘interesting’! So as well as needing ‘thought collection’ time, in the morning, I have to have been up long enough for motility to occur before the painters arrive as well, in order that the Pile Howitzers can be deployed safely.

Nice.

As a result of this, we have managed, just about, to make it to the end of the week even if, yesterday, both McMini and I forgot his PE kit. I had to rush back to the school with it. Then, he came home wearing said PE kit having left his clothes at school in the bag. As he’s low on trousers, or at least, as he only has the one pair with knees in, I had to rush back to school with him and get his clothes. When he brought the bag out, I was smart enough to check the contents for once and sent him straight back in to get his shoes. This week has been like that.

Then there’s this morning. Although I’d call this a partially successful session.

Today is Saturday and, like many other small boys up and down the country, McMini has football practise. It starts at half nine so I need to wake up at 8 am or so in order to nag McMini to get ready, constantly, from about then on. If I do that, there’s an outside chance he’ll get himself sorted and ready by about 9.15. Today I was woken at about twenty past eight by a cheery cat who lay on my chest making burrping noises and generally demonstrating how pleased he was to see me. After a brief cuddle he headed off to do Important Cat Things and I went and cleaned my teeth, washed my face, brushed my hair and got back into bed for a moment to warm up. But I was fucking knackered after a week of six hours sleep a night instead of seven. Can you guess what happened next?

Yes. At about ten to nine I woke up. This was not good. Leaping out of bed in my pyjamas I ran down and put the coffee on, whacked a crumpet into the toaster for breakfast – first of two x four minutes – made McMini a cup of tea and grabbed his football kit from the airer, where it has been ‘drying’ since its last wash over a week ago – because I’m not a skanky ho or anything. Mwahahahaahrgh!

Ran up to McMini’s room as fast as the action of arthritically running up stairs while carrying a cup of tea and a football kit would allow and discovered that he was awake. It was he who had released the Kraken cat. Unfortunately, he was on the loo looking at videos on his phone. Fortunately, he was most accommodating about wiping his bum and getting his finger out with the dressing when I told him what the time was (I can only assume he’s all up to date with Dan TDM or that the battery in his phone had died).

In something that must be closely approaching a miracle, McMini got his football kit on in about fifteen minutes; evil, impossible-to-pull-on socks and all. I should imagine the tea helped because I’ve tried the ‘Oh shit we’re late’ approach to getting him up in the morning on many occasions and it’s never worked before. At the same time, I hurled on some clothes, put my face on, dragged a brush through my hair again and ran downstairs. I even remembered to push the toaster down to give the crumpet its second four minutes. McMini requested a tortilla wrap, just the wrap on its own, which I had right to hand. Despite the fact that the morning, so far, was like red-alert at Ice Station Zebra we were rocking this! What was going on?

McOther arrived home just as I was shoving McCat into the box to take him to the vet for his yearly shots. Cat in box, now it was time to find the immunisation card. Could I find it? Of course I fucking couldn’t. Never mind, it was now nine twenty and McCat had an urgent appointment on the vet’s table at half past. McOther was taking McMini to football so I hurriedly kissed the boys good bye and rushed off to the vet’s. Amazingly, I even remembered to take the cat with me.

In the short five minute journey I managed to see sun, rain and hail. Plus there seems to be a permanently gale force wind direct from Siberia or somewhere mind-(not to mention, extremity)-numbingly cold.

Despite a nervous few minutes sitting at the traffic lights which went red just as I got to them, naturally, we made it to the vet’s at nine twenty nine, went straight in, wormed, new card, shots done for another year and that was just the cat (badoom tish). Quick chat, paid … a LOT of money … and went home. I broke the cable for the solar charger I have for my car battery which was a bit of a pisser, but on the upside, I think I can fix it.

Even when McOther rang me at 10.45 to say they were holding the traffic on the main road after an accident, that he thought he might not be able to get from Sainsbury’s to football to collect McMini, and that I might have to, the traffic started to move while he was on the phone. Despite waking up, almost too late, everything had gone according to plan, and rush or not, we had achieved our aim. We were blessed! Yeh.

Mmm … just call me Van Halen.

So here I am now, sitting typing this, breathing a sigh of relief that everything is all done. Then I catch sight of my reflection in the kitchen cupboards.

Now, I may have whinged about my hair before but basically, it’s very affected by what the weather is doing. So when the weather doesn’t know what it’s doing, neither does my hair. So the downside of this? Let me show you.

Yes I’ve been going about all morning looking like the mad bag lady of Ning Dang Po. There’s just no way on God’s green earth that any normal person would look at that and think it wasn’t a wig. Blimey-oh-Reilly. Or perhaps it’s more of a 1980s stadium rockstar. Or is it a cross between Milton whatsisface and Ken Dodd? Ah, if only I was as funny as them! Or am I trying to ameliorate the effects of alopecia with a Brillo pad and some wool? I dunno, I’ll let you decide.

Ho hum, I suppose it could be worse.

Now, if you’ll excuse me, I have to go and put a thing that looks like a StarWars missile up my arse.

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How does this even happen?

This is McMini’s work.

Obviously there are points among the mayhem when I try to write a sensible post about something, but this week the madness continued so I felt I may as well just give in and tell you about it. To be honest, I was worried, a few weeks ago, that I was losing my sense of humour. The good lord has clearly decided to rectify this by making my life as surreal and bizarre as possible. The appreciation of oddity centre of my brain is definitely fully satisfied at the moment, anyway.

First, Dad.

Huge relief this week. After a meeting with Dad’s home, his social worker and the community dementia nurse on Wednesday, they said they were happy with his progress and thought he was settling well. The manager of the home confirmed that they will be able to look after him permanently. Since we were happy with the home, too, this is a huge relief. They addressed most of the doubts or misgivings we had before we got to the asking questions stage which was also a good sign. The home are taking it slowly and letting Dad settle, he flips from charming to very much not charming and has to be placed carefully since he is able to raise his voice to the kinds of levels required to be heard by rowdy teenagers. As the manager pointed out, that kind of volume, like hearing someone play the bagpipes in a small room, can be a bit much for the other residents in a confined space.

At the moment they are working out who Dad gets on with and who he doesn’t. Residents with dementia do irritate each other from time to time, apparently. Like life then. But they’re more like kids so there’s a lot more of the kind of nursery school exchanges. Go away I don’t like you, you’re smelly etc.

A highlight was when the lovely lady who runs the home was trying to get into the computer system to show us Dad’s record. The meeting room was just off the main hall/lounge where everyone sits. She forgot her password. So she opened the door and called for one of the other staff.

‘She’s gone,’ said an elderly voice from a chair nearby. ‘She got into the taxi.’

‘Did she?’

‘Yes, I don’t know where she’s going.’

The staff member appeared from the office next door and came in to join us. In the background I could hear a cheery commentary from the same resident.

‘Look! They’ve both got into the taxi.’

‘Oh,’ said someone else.

‘Yes, I don’t know where they think they’re going,’ said the first voice.

Very Alan Bennett.

At another point I heard a resident shouting and then the familiar voice of Dad bellowing, ‘shut up!’

There was a slight pause in the meeting room.

‘That was Dad,’ said Mum.

‘Yes,’ I agreed, ‘still, at least he didn’t say, “fuck off!”’

It sounds a bit grim of me but I’m afraid I actually found it hilarious. Luckily everyone else laughed too.

If you want to survive stuff like this, I sincerely believe there is no other option than to see the funny side. Were he still wholly himself, I’m certain it’s what Dad would have done. There is something gloriously, surreally random about listening to a background of conversation between demented people. Furthermore, Dad is much more settled and much more aware so we are happier because he is and therefore, so is Mum. She is a bit of a worry. We are standing at the top of the hill we were on with Dad three years ago, except with her. I’m hoping the cajoling, the getting extra care and all the other baggage that comes with getting people the care they need, rather than the care they want, will be easier to handle the second time.

Business in casa McGuire is mayhem as usual.

McCat is behaving abominably. As if his complete obsession with my evening primrose oil capsules wasn’t enough, I turned my back on the kitchen work top this morning only to discover he’d leapt up there and was drinking the dregs of McOther’s tea. For the love of the almighty was there ever such a skanky cat? I swear he’s suffering from species dysmorphia because he is clearly a labrador. I have discovered that screaming at him makes him stop and run away, and it also clearly communicates to him that I am displeased and he’s been bad. It doesn’t stop him, though, because not only is he mischievous but he also has a sense of humour and I suspect he thinks it’s funny.

Midweek, a friend from way back rang up out of the blue. She was up here on business and asked if she could stay over. Yes she could, I said. So after a grim journey home from the care home on Wednesday – a lovely 39 minute delay at the Dartford Tunnel and other shenanigans – I got home a few minutes before she arrived.

We had supper and there was lots to talk about, we’re in very similar situations with elderly parents although it’s just mum in her case and we managed to talk the hind legs off every donkey in the vicinity until we realised it was one am.

Nooo I forgot the soldiers in the bog!

I didn’t really think it through, since I had metal detecting club the next night and McOther is hoping to start a wine tasting group we had the first meeting round ours the night after. Long and short, I really can’t do late nights any more I have been recovering from Wednesday’s excesses all week.

When we had the wine group round, I spent the day trying to change my mindset to that of a person who does not live with a ten year old and to notice, and remove, some of the bizarre items that have come to rest around the house. A lot of nerf guns, bits of biro, headless action figures and other detritus later, I thought I had them all, only to discover, while having a nice relaxing wee during the wine evening, that I’d completely forgotten about the row of toy soldiers in the lavatory. Still, I suppose it could have been worse. The scale on our water here is brown and I did, at least, remember to give the lav a good treatment with descaler so it was mostly white.

Meanwhile, McOther had blithely imagined that he’d be home from work in time for us to eat a meal before the wine evening on Friday started. In fact, the first of our guests arrived about two minutes after McOther did. I chatted to him while McOther had a wee and unpacked his work bag before leaving McOther playing host and haring off up the hill in the car with McMini to Boy’s Brigade. Needless to say, because I have a tiny car and McMini is, himself, a microdot, he has elected to play the bass drum in the Boy’s Brigade band. To give him his due, he’s pretty good at it but it means I have to schlepp up the hill with it, or borrow McOther’s car. It’s only a matter of time before he takes up the double bass and the tuba I suspect … or possibly the euphonium or some other hugantic instrument I’ll need a luton van to ferry him about with.

On the recovery from my persistent socialising score, the fact it is the part of my monthly cycle which I privately refer to as Constipation and Brain Fog Week hasn’t helped either, but this time the brain fog and seems to have extended its sponge like caress, not just to my brain, but also to McMini’s.

On Fridays he has PE. Thank heavens he no longer has to go into school dressed in his kit, with his school clothes in a bag, but he tends to come home in his PE kit with his school uniform and school shoes stuffed into his bag. However, he also has Boy’s Brigade on Fridays so he has to put the school trousers and shirt back on again. Bless his heart, I took his uniform out of his PE bag, popped it on the sofa beside him without really looking at it and asked him to put it on. A few minutes later, I heard a shout of dismay.

‘Muuuuuum!’

‘Yes.’

‘These aren’t my trousers! They’re huge.’

He was standing in the middle of the room, sporting what looked like clown trousers. He held the waistband out from his stomach and there was, indeed, about three inches of extra room where, presumably, they usually sit snugly round a very much larger child. Luckily, I’d already washed the other pair of his own trousers and it was hanging over the airier in the utility room so I didn’t have to creep up the stairs on my shonky knees. Even more luckily, it was dry!

The week before last, he managed to get changed back into his school uniform but he came home with another child’s hoody. I didn’t find it for five days. The wee lad’s poor mum was probably wondering where the hell it was. At least I managed to wash it and get it back to her in time for the next PE lesson.

So now we have a pair of mystery trousers and some other child has McMini’s. As far as I recall, McMini’s are named, I’m not sure though, because he went through about six pairs in the first three weeks of term playing something which he called ‘human chess’ and so in the whirl of rapid acquisition and destruction of trousers I may not have named them. Still, I should thank the world for small mercies, I mean, it makes life interesting and at least he still has a pair to go to school in on Monday.

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New stuff, has landed! Woot!

So, I have a new release.

Yep. That caught you by surprise didn’t it? It’s a 10k short and it’s in an anthology of other excellent stories for yes, now, once again, ’tis the time of year for Christmas Lites. In this case, Christmas Lites VIII.

You may or may not remember the story behind this because I shared it last year. Splitter, an author friend from way back, found himself in a women’s refuge, dressed as Father Christmas with a bunch of candy canes in a sack. He was supposed to be arriving at the office party but instead, ended up doing the whole Santa malarky where he was and giving the candy canes to the people staying there.

You may also remember how his boss asked him where he’d been and how she then called him into work the next day where he found she had loaded her car with presents and how the two of them went back to the refuge with them the next day.

It’s a brilliant story, it’s human nature at its absolute best, and now every year, a group of authors join together and release a new Christmas Lites anthology to raise money for a charity which helps domestic violence victims, and which, I believe, was the the charity behind that shelter, the NCADV. It’s all the more poignant to the authors involved, now, since Splitter died of cancer a few years back so as well as the charity element there’s a dimension of doing a kindness in memory of a lovely guy. I am incredibly proud to be involved.

I’ve made a page of links to places where you can buy it. Unfortunately, because of the logistics of getting the money made to the charity, the book is only available on Amazon at the moment.  Hopefully that won’t be too much of a pain in the arse for users of other platforms – I can recommend the Kindle app if you have an Amazon account.

Grab your copy of Christmas Lites VIII here.

On other news, I also have stumbled upon a rather excellent give away.

It’s a Strange World Science Fiction

This giveaway is running from 22nd December through to 22nd January. These are authors who’ve written sci-fi books that are planet-based, you know, either future Earth, parallel Earth or different planets in other universes. If you enjoyed my stuff about K’Barth I think you may find some things you like among these too. At the least it has to be a release from Christmas telly and turkey farts!

You can find the books and have a look at what’s on offer by clicking on the picture or clicking on this lovely link here.

That’s about it from me, I hope you had a wonderful Christmas or, if you don’t do Christmas, I hope you had a wonderful whatever it is you do. Incidentally, did you know that the whole thing in America where they can’t say ‘Christmas’ is actually just something that occurred because Happy Holidays catches it all and shops didn’t have to have loads of labels, cards etc printed to mention all the other celebrations around at the same time. Then, in order to disguise their laziness, they pretended it was altruism and said they were doing it not to offend anyone. So now everyone’s up in arms at the liberals when the origin may well be down to Hallmark trying to save printing costs! Mwahahahrgh a little Christmas-tastic trivia for you. Sadly, I have not been able to fact check it, but I am very much enjoying the idea.

Anyway, happy it, whatever it is you do and all the best for a fabulous 2019. Whatever the New Year brings, here’s hoping it’s good.

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Filed under About My Writing, Author Updates, Blimey!, General Wittering

New Stuff? Yeh, excerpt, new release and old stuff for 40% off!

As you know, I’ve been writing new stuff this year and because of the state of my brain/demands on my time and general, inconvenient insistence of Real Life to get in my way, this new stuff is mostly novellas/short stories. I am now close to finishing my fifth short this year! Woot. Desparately trying to get it sort of done by the end of the year but it probably won’t quite happen now, although I will be, literally, about 1000 words short! Grrr!

Apologies that I don’t have a cover to show you. I did hope I would have by this time but, unfortunately, my car appears to be determined to bankrupt me, so I didn’t have any cash left over to stump up for a cover after new tyres, a new radiator and other extensive repairs. But I digress … After banging on about them so long, I thought you might like to read an excerpt anyway, even without the cover to look at. Barring one, the short stories start pretty much were Unlucky Dip leaves off. The one exception … remember that scene in The Wrong Stuff when The Pan of Hamgee, hero of the K’Barthan Series, tells Ruth he tried to kill himself? This story tells you how and why he failed.

If you’ve read Unlucky Dip, you’ll know that The Pan, gets employed as a go-fer by Big Merv, the local gang lord after making and ill-judged and pathetically cack-handed effort to steal his wallet.

Between that point and the start of the actual series there’s about a year when The Pan runs errands for his scary orange boss. A couple of people asked me what happened during that time so I wrote it down. It being The Pan, most of the errands he runs go wrong somehow and he has to put things right to avoid being incorporated into a motorway stanchion or sent to swim with the fishes in concrete overshoes.

When I’m writing, I tend to end up writing way more stuff than I use so this may not all make it into the final edit, but I thought you might like it anyway. It describes The Pan of Hamgee’s first visit to The Parrot and Screwdriver, shortly after he is ’employed’ not that he has much choice in the matter, by Big Merv. It also describes his first encounter with Humbert, the foul-mouthed parrot. I am hoping that my cat fans, in particular, will appreciate this one.

Enjoy.

K’Barthan Short Preview

Sort of on the same subject …

Christmas Lites VIII

You may remember me talking about Christmas Lites last year. It’s an annual anthology published in aid of victims of domestic abuse. This year I successfully got my shit together and actually wrote a 10k story for Christmas Lights Eight. Woot! If you’re interested in finding out how The Pan of Hamgee got the pink plastic ring which features in Looking For Trouble, the answer is in the story, Secret Festive Celebration – yes, naming my work is not my strong point but it’s probably better than ‘the pink spangly ring one’*. Marginally.

* the genuine working title.

As I write, I lack a cover photo for this one too – doing well aren’t I? I also lack any meaningful details of a release date but I have made the bold assumption that it will go live soon because I know that’s the intention, and the lady who runs it has just had a baby, which means it’s not going to happen in a standard manner. She has a small person in her life now and all planning disappears when that happens. However, I wanted to alert you all anyway, because I know it’ll be coming soon. I’ll do a post specially when it does.

K’Barthan Box Set on sale now! Woot!

If Kobo is your thing, or you buy your ebooks from pretty much any store and read them with the respective app, Kobo is having a box set sale until 17th December. The discount won’t show at first but if you click to purchase and then enter the coupon code DECSALE at check out it will knock 40% off the price for you. You can use this code again and again, so basically, if you like Kobo, this is a good time to mop up as many reduced books as you can!

To find out more, click on the picture or follow this lovely link here which should take you to your local Kobo … er hem, famous last words:

https://www.kobo.com/ebook/k-barthan-box-set

While I’m writing about that, I know it’s a little bit cheeky but if you’ve read the series and enjoyed it already, could you do me a huge favour? If you have time, would you be able to help new people find it by spreading the word about this promo, or sharing my Facebook post about it with your friends? I know dead cheeky, right? But if you think you can help, you will surely gain your right to fully-certified Christmas Awesomeness! You can find the Facebook post to share here.

That’s it from me for this week … next week I may tell you about my adventures when out metal detecting and I discovered the battery in my car key had gone, rendering the car impregnable. Perhaps I’ll describe how I fell to my knees in the mud and cried, ‘why me?’ as I realised my lunch was locked inside. Tune in next week and if I’ve got round to typing it up, you’ll find out what happens next and also the answer to the question, when you put a Lotus on a ramp, can you open the door and get in?

These and more adventures next week!

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Filed under About My Writing, Humorous Fantasy Author

Ch-Ch-Ch-Ch-Changes, the topic NO-ONE wants to talk about.

You know how it is, pretending to be normal, day after day, is exhausting and after three or four weeks where I was feeling surprisingly mentally switched on, the fog descended again this week. I had McMini off school on Monday which meant that, on some subliminal level, I managed to think it was Sunday and therefore spent Tuesday firmly convinced that it was now Monday, with interesting results. This brain fog is an entirely normal part of my monthly cycle but I’ve reached a point in life where my hormones are exacerbating it.

You may not know this, although you could well have guessed from all the effing and blinding and impotent anger on here – impotent but funny, I hope – but I am at that age when my periods are stopping, or preparing to stop or possibly finished already, I don’t know.

Amazingly, it’s not something people talk about that much. Well … I do, but I realise I’ve never really posted about it on here. I think I ought to. The bit where your periods stop is a part of your life that is probably different for every single woman but maybe if I share my own experience it’ll help someone, somewhere to know that they’re not a freak, and certainly not alone. If you, or any of your friends have reached that stage, hopefully sharing my thoughts will be of practical use. So here is your guide.

What is it, this menopause thing?

Well, what most women refer to as ‘the menopause’ actually happens in two parts. There’s the menopause, which is the actual moment your periods stop. A few years after you will still be enjoying – although that isn’t really the right word – the hormonal aftershocks. I’m not sure what they call this bit. Post menopause I suppose. Then there is the perimenopause which is the time leading up to the point when your periods stop when your body has clocked that the eggs are running out and is quietly, or not so quietly, shutting up the fertility shop.

OK so if it’s not the menopause, what do I call it?

The change.

Fine, so I know, in your Mum’s day, everyone called it the menopause but these days you’re not allowed to do that. When I say ‘the change’ I feel a bit giggly and old fashioned. I want to mouth it soundlessly, yet theatrically, possibly with a knowing expression and one finger pointing downwards, the way Les Dawson might in a Sissy and Ada sketch when they’re talking about ‘downstairs’ problems (snortle).

Seriously, though, avoid calling this time in your life ‘the menopause’ at all costs unless you’re absolutely sure your periods have stopped. Many people I’ve met use the word ‘menopause’ as a blanket term to describe the phase where they are experiencing symptoms, which are uniformly vile both before and after your periods finish. Don’t do this. For every person who knows exactly what you mean, there is another who also knows exactly what you mean but will still feel it their duty to explain to you that you are incorrect in your use of terminology. You will have to pretend this is news to you, or risk flaunting your sloppy and inaccurate use of language and eliciting another ear bashing for your shoddy lazy thinking and general wrongness as a human being.

Naturally, perimenopausal/menopausal as your anger levels are, this will annoy you extensively. Indeed, there is a real danger you might actually lamp one of these well meaning pedants if you let this scenario happen too often. So don’t. Call it the change.

Moving on.

What are the symptoms?

Try as I might I haven’t been able to verify this but as I’m sure I read somewhere that there are something like 98 different symptoms that can present themselves. Common ones, or at least, the ones the NHS list, are – and I quote:

  • hot flushes – short, sudden feelings of heat, usually in the face, neck and chest, which can make your skin red and sweaty
  • night sweats – hot flushes that occur at night
  • difficulty sleeping – this may make you feel tired and irritable during the day – especially if you have the problems with memory and concentration listed, below, because it’s frustrating as hell. Try remembering to make school packed lunches, to pack the swimming things in the school bag on the right day or turn up to a dental appointment when you are supposed to, when you can’t find your arse in the dark with both hands and need cue cards to remember your own fucking name!
  • a reduced sex drive (libido)
  • problems with memory and concentration
  • vaginal dryness and pain, during sex or, generally, itching and discomfort
  • headaches
  • mood changes, such as low mood or anxiety
  • palpitations – heartbeats that suddenly become more noticeable
  • joint stiffness, aches and pains
  • reduced muscle mass
  • recurrent urinary tract infections (UTIs)
  • in some instances, it can cause a recurrence of post/anti natal depression

How long is it going to last, Doctor?

Hmm, well the symptoms can start up to ten years before your periods actually stop and they usually go on for about four years afterwards, but one in ten women is lucky enough to have them go on for twelve years. Oh joy. I can attest to this, one of the ladies at my gym is in her 70s and still gets hot flushes. Sometimes, hot flushes are called hot flashes but we still call it looking flushed when we go red so unless you’re a bit Victorian about using the word flush because you think it’s something not quite nice a lavatory does (mwahahahargh!) or American – because they probably do talk about looking flashed rather than looking flushed let me know my lovely US readers – I can’t really see the point.

Yeh but how long is it going to take for me? How many years?

Ah yes, well, you see, there’s the thing, this is hormones. No-one has a fucking clue because the driving factor is your hormones and only they know and they’re cagey little bastards. Each woman’s body has its own, unique and joyous interpretation of how the business of ceasing to ovulate is achieved. For the record, the health professionals treating me reckon I went into an early one after having McMini aged 40. I’m now 50 and neither my periods, such as they are, nor the symptoms show any signs of stopping.

How do I know when it’s starting, then?

Some women start getting hot flushes, which is a big indicator. I haven’t really. However, I was first officially diagnosed as perimenopausal at the age of 45 when they thought I had been for five years, already. Nothing seemed to have settled down after McMini. My cycle was weird and I was getting constant headaches, the kind of nutbar hormonal activity that was giving me the spins, period pains that made the bout of appendicitis I had once look like a walk in the park and a temper that was … short. They reckoned I’d gone into it early  having waited until I was 40 to have McMini. I had a marina coil put in – this has nothing to do with Morris cars and does not mean I go faster but it did put paid to the headaches and stomach cramps every time I had what Viz magazine euphemistically calls, ‘the painters in’.

The folks who inserted my first coil reckoned I’d have finished my periods by the time the hormones wore out, when I was aged 50.

They were wrong.

Aged about 49 I went to the doctor because I’d had sore boobs – yes that’s another lovely symptom – for three months and thought I ought to get that checked. I also wanted to discuss what appeared to be early onset dementia. We did the boobs first and she asked a whole raft of questions finishing up with,

’I’m pretty sure I know what’s wrong but I just have one more question, are you having problems with your short term memory?’

I said that was the other thing I was there to see her about and she said that it was entirely hormonally induced which was kind of good and kind of not as in, I’m not going mad but I’m not going to get any better.

Am I peri or post menopausal? Well, ladies, the point of a coil is to limit or stop your periods, so unfortunately, I haven’t a blind clue. I have had one hot flush but that’s all. Contrary to popular opinion, not everyone does get hot flushes, one lady at the gym I spoke to never had any at all. If you don’t have them, try to ignore the people who say you can’t possibly be having the change if you haven’t had a hot flush. They’re talking through their arses.

Is there a cure?

Most judgements about, treatments of and general related aspects to the change are based on scientific fact but their application definitely appears to be more of an art than a science. Also, clearly, the symptoms you are experiencing make a difference to the treatments you can have and they are different from woman to woman. Here are few options, anyway.

HRT

You can have hormone replacement theory, usually, but not always, involving a pill with a tiny dose of progesterone and an eostragen gel which you rub on.

Originally, HRT merely put off the inevitable, hence my choice of a coil over HRT, so the eggs go on disappearing. The last thing I wanted was to come off HRT after five years only to have the whole bloody hormone circus back in town. HRT these days is getting to smaller doses at less risk so it’s not beyond the realms that you can just take it forever. My beef with that would be periods. NO WAY am I voluntarily going back to having periods in any way shape or form. On the up side, you’re not going to end up with brittle bones which can happen over the course of the change.

Some think that the risks of HRT are too great, there is a small risk of increasing your chances of getting breast cancer but it’s much smaller than the increased risk of getting breast cancer you’ll have if you drink too much or get fat.  It also means your cardio vascular system will remain in much better shape and you won’t have to worry about the brittle bone thing.

CBT

Yep you read that correctly, cognitive behavioural therapy. Addressing the anxiety about whether or not an embarrassingly hot flush will appear at a bad time has a sizeable impact on the number of hot flushes a woman has, linking them to stress. Obviously, this also works well for women who are suffering from totally irrational anxiety – another jolly symptom of the change. A friend told me, recently, that her first inkling that she was having the change was when she sought treatment for what she thought was a nervous breakdown. Yes hormones can really mess with your head.

On the hot flush front, the chemical that causes them has also been identified and a drug tested that blocks the effects of this chemical. It has worked extremely well in trials and is now creeping through the safety checks and validation process – it should be available in a few years.

Diet and gut health

What you eat can help a bit. There are various foods that can help balance hormone deficit, mainly things like oily fish, nuts and seeds, the omega things basically. I also take vitamin B12 and have for years, along with evening primrose oil which seem to take the edge off my PMT (or PMS if you’re in the US) and cranberry capsules which keep the cystitis down to a minimum. Much of this, in my case, is about feeling that I’m doing something to try and control my symptoms. It makes me fee less like a piece of driftwood tossed on a stormy sea and more like … well, if not a boat then at least, a life raft with some rudimentary form of steering and a vague notion where land is. Although, that said, whether or not it’s a victory of belief over science, it’s amazing what a can of sardines can do to get rid of the headaches I get at certain times of the month.

Yeast …

If you are suffering from the brain fog side of things, then, bizarrely, the balance of your gut flora and fauna can make a difference. Apparently 70% of your serotonin is produced in the gut. I am a great believer in trying anything once so when a friend said she had some Kefir grains going for a good home I went and collected some. Kefir can be grown in water or whole milk. It is a yeast which feeds on the water/milk and ferments it – the water has to have sugar and stuff in. Essentially, what this means is that you are drinking yeast shit. Try not to think about that. Like spreading manure on the fields, yeast shit in the guts does wonders and-

I should stop this here really shouldn’t I?

Anyway …

Bob the Blob

He looks like adenoidsMy personal stash of Kefir grains are collectively called Bob the Blob and they are the whole milk kind. Bob in his naked state looks like adenoids, under the milk he looks like something out of Dr Who – the Brain of Morbious springs to mind. He lives in a jar in a dark cuboard in our kitchen. Bob is like that thing out of one fish two fish red fish blue fish, he will grow and grow so you can give bits of Bob to your similarly post/perimenopausally challenged friends. I wouldn’t sell his … producings …  as yeast shit though or they might not want it.

Bob’s home made stuff is an acquired taste, it’s a bit like drinking feta cheese. To be honest – the water kefir is made with lemon and sugar and is much tastier – but Bob definitely cuts down on the brain fog and certainly on the length of time each monthly fog bout lasts.

Cutting down stress

Yes, I realise you can’t do this, but what I mean is, it’s worth taking an open minded approach and trying everything. Take Bob the Blob for example. If drinking yeast shit reduces my brain fog, it reduces my stress. It also reduces my total and utter frustration with the day to day business of dwelling among the normals – never my strong point even without brain fog. As a result, I am a lot less stressed and that makes the headaches easier to manage. And talking to people and making jokes about it certainly helped me cope.

Magnets and cucuramins

If you get joint pain, magnets and curcuramins may help. On the curcuramins front, not the turmeric pills I mean the real heavy duty ones where the curcuramins are extracted and concentrated way more. The bonus of curcuramins is that there is some actual proper scientific evidence that they do help, and they also help fight/prevent cancer. My joint pain was identified as not being down to my arthritic knees during a prolonged bout of physio therapy in the summer. Having tried turmeric pills and discovered a definite drop in the pain levels, I decided I’d give the curcuramins with extra grunt a go and they have helped. Like Bob, they haven’t eradicated the symptoms but they have drastically reduced them and I do now have days where it’s only my arthritic knees that hurts.

Magnets, similar. Putting magnets on joints that hurt works for me. I have no idea why but it does. I use big fuck off magnets, naturally. A lot of the ones you buy are too small to make a difference. You need maximum Gauss to get any benefits. I also find a magnet on the affected area works better than one on a wrist band.

Any other advice?

The best for me, was to talk about it with other people. I’m lucky enough to go to a ladies only gym where most of the ladies are going through the change now or retired. Iti

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Filed under General Wittering

Accepting the way dementia transforms someone you love.

It’s been a rough two weeks on the old dears front and now things have settled again, I feel I can talk about it. There is a maze of guilt and awfulness to experience when someone you love gets dementia. It is really hard to watch the pieces of their personality gradually disappearing. I know that Sir Terry saw it as little pieces of himself disappearing forever every day. The trouble is, if you are close to a dementia sufferer then for the sake of the sanity of both of you, you cannot allow yourself to see it like that.

Mum and Dad’s wedding photo. Check out the hands. Hanging onto one another like they never want to let go.

There was a time when I felt that Dad was dead to me. That the person I knew had gone. That made me feel like shit on oh so many levels. Actually, it isn’t true. The person I knew is still there, but parts of his brain have gone. I reasoned it out like this:

If he’d had an accident and become paralysed from the waist down, I wouldn’t write him off because his legs didn’t work. So his brain is stuffed, it’s just a different part of the body, so what was the problem?

Even so, there was a period when I felt that I could never learn to cope with this new stranger in a familiar guise. My dad who wasn’t my dad. There were times when I almost wished he would die, not because I wanted him to but to end his suffering, and ours. I still envy people whose parents die suddenly or after a short illness, but that’s because treating Dad with the dignity and humanity I should takes an exhausting amount of moral fibre, mental stamina and strength of character not to mention time, a commodity of which I have absolutely fuck all! And emotional energy, another commodity of which I have jack shit. I guess there is always going to be the odd day when I wonder what it would be like if I could stop being quite so badly needed and get my life back.

Then I remember what my Dad’s friend Ken said. Ken looked after his wife, Biddie, when she had dementia. He was just lovely with her and she’d wander off, get confused, be unable to work out where she was. Ask where the children were and he’d say, ‘They’re at home, now come along Biddie, it’s quite alright.’ I once told him I thought he was doing a wonderful job and that I thought he was amazing, the way he looked after her, the way he coped with it and that I was in awe of how he did it because I didn’t think I could.

‘It’s an honour. An honour and a privilege,’ he said.

He got emphysema and his son and daughter came to live in, turn and turn about. At one point, before his wife died, he was very sick and was given the last rites. The next morning he felt better and rang the priest to say thank you! Like Mum is doing for Dad, he held on. He survived Biddie, but not for long.

So that’s my motto for when things get difficult. Be like Ken. And it was Ken’s attitude to Biddie that I aim for, that ability to see her as she had always been when, to the rest of us, she seemed have become someone else.

Mental disabilities are hard. People who have cognitive problems, or who say and do inappropriate things can be hard to love. The parameters in which they operate are not the same as ours, so it’s awkward. Connecting is hard. Sometimes, it’s even dangerous. I confess, it’s not great when you consider it a success if you get away with hugging your father without him groping your arse. But the important thing with dementia is not to give up on the person. They’re still in there, they’ve just lost their ability to process the world through memory and all that is left is emotion, so the trick is to keep them feeling emotionally comfortable – yeh, I know, easier said than done.

Dad is not always very nice to people anymore (understatement of the century) when he panics he gets defensive and sweary. He’s particularly bad in the mornings. He’s never been a morning person and actually, I thoroughly sympathise there, because neither have I. When I wake up in the morning, the first thing I do is get up, wash my face and clean my teeth because, even with an electric toothbrush, cleaning my teeth is one of the most boring things in the world and I like to get it over and done with. And this is the thing with Dad. To look after him, we all have to make the links between the extremes in his behaviour to the norms in our own; to understand, to give it a lot of thought.

Despite being a very social animal, Dad also struggles with a busy house first thing, so he’s not great at having visitors to stay. Indeed, the vilest and most horrible I’ve ever seen him was last Chirstmas, when McOther, McMini and I went to stay with Mum and Dad. There’s a hotel just up the road and I think staying in that might be worth a try in future. But at Christmas most hotels have been booked years in advance, or are closed. At Christmas, it will always have to be round theirs.

Some days, Dad is completely switched on. He knows who I am, he remembers how to have a conversation, more to the point, he can follow one. He pauses and listens when others are speaking and chips in with his own comments. Other days, he shouts that no-one’s paying him any attention. That just means that, today, he can’t follow the thread and is feeling a bit frightened and disorientated, or just a bit left out. His reactions are more childlike as new parts of his brain succumb. It can be hard to find Dad in there, beyond all that effing and blinding, throwing things around. Strangely, while in some respects, there is an element of a two year old throwing a tantrum, with much of it, the main gist is seeking reassurance or trying to hurry things up. So he empties out his cup or clears his plate, but he doesn’t realise that scraping the leavings off it onto the drawing room floor is the wrong way to do that. It gets a reaction and gets everyone’s plates cleared so that’s fine by him, he fails to grasp the gap in his logic.

When Dad is like this, it’s really hard to engage. You don’t want to. You withdraw. You cut off contact. You don’t talk to him because it hurts you. Except that makes it worse. I guess the biggest trick is to remember that while he’s behaving badly to get attention, the reason he is vying for that attention is because he needs reassurance. You have to constantly remind yourself of the dementia sufferer’s humanity, even when they seem to be inhuman. If I chat to Dad and give him lots of attention when I arrive, he is happier and I also end up having far more time to talk to Mum.

A couple of years ago, Mum finally got too exhausted to look after Dad and her health broke down. Waking up and talking him to the loo whenever he needed a wee in the night, every night, for fifteen years had finally taken it’s toll. Lack of sleep and the rigours of living with someone who, essentially, needed the kind of vigilance required to look after a two year old is hard enough when you’re young. When you’re 82 it’s a pretty tall order. I remember talking to my brother, and we felt that Dad was dead and all that was left was this weird shouty stranger who was dragging Mum down, sucking out her life, her energy, the joy in her life. My brother wanted to put Dad in a home but Mum said she’d promised she’d never do that and refused. I stood by her because I wanted her to be OK with herself.

Luckily, I don’t feel that way about Dad anymore, but I’d lay bets that feeling is a natural stage in coming to terms with any brain-damaged loved one. So to anyone reading this who feels that way, chill. It’s normal. Likewise, feeling shit about yourself for feeling that way is, undoubtedly, normal as well. And if you work at the way you are thinking about this, analyse why you feel that way and do your best to work out ways to engage with dementia sufferer on their own terms, it will pass.

Dad can’t understand why Mum no longer looks like this.

While putting Dad in a home would, undeniably, be better for Mum’s physical health, it would be disastrous for her mental health and, at the moment, it would be terrible for Dad, too. Maybe further on, when he doesn’t really realise it’s a home he’s in but not now when he is very aware and wants to stay where he is, with Mum. For all that he is ‘engaged’ to one of the carers and two of the young women who work in the pub, there is still a weird habit of love for Mum. He doesn’t realise he’s old, so he can’t quite understand how they are married, but he does understand that he loves her, even if he has difficulty placing how or why. My brother is probably right. Looking after Dad may well be killing Mum, but it’s what she wants to do and it’s her choice. If she stops living life on her terms, or doing whatever she needs to do to be able to look herself in eye in front of the mirror in the morning, that really will kill her.

However, recently, Dad has been doing some very silly things, like throwing himself on the floor and refusing to get up. I worry that he may hurt himself and then Mum’s whole argument – My friend X put her husband in a home and he didn’t last three weeks – goes by the board. Because if he ends up in hospital and then has to just go somewhere where they have a bed, it would be disastrous. So we need to establish a relationship with a home. One where I think he would be happy if he lobbed himself onto the floor and broke his hip, or if something happened to one of the live in carers and he had to go there for respite. So this last couple of weeks, I picked out a home, a really, really lovely place nearby, took Mum and Dad to visit it and put his name down. It will be a while before his name comes up but at least he’s been there now. I was hoping to look at social days there but he realised it was a rest home, so I think we will have to wait and try that again in a month or two. The idea is, that he gets to know a home then, should he need to go into one, it will be a place with which he is familiar.

Going to see Dad and Mum every week does help me to see the dappled light and shade of Dad’s moods. Sometimes he is on amazingly good form and is unmistakeably my father as I knew him, others, not so much. The thing is, as the disease takes more and more of his brain, you have to work harder to engage. I guess I have come to see him as some kind of Dad-shaped enigma, a puzzle that has to be solved. Sometimes he says,

‘I don’t like you Mary.’

When he does this, I rush over to him, fling my arms round him and say,

‘Nooo! You can’t say that Dad! Because I love you!’

He will then hug me back with all his might, laughing with relief, well, we both laugh with relief at that point. It used to hurt me a lot when he did this to start with, until I learned the hug trick. But now I understand that when he says he doesn’t like me, what he’s really saying is that he’s worried that I don’t like him. He has enough emotional intelligence left to know that while bad behaviour gets him the attention, and therefore the reassurance, he craves, it also upsets people. He’s asking for a different kind of reassurance, but in a defensive, spiky way, and when I give it to him, he relaxes and his bad temper fades. But it’s hard and it takes mental energy. And I watch the carers, because they learn these techniques more quickly than I do, so I can see what they’re going that works best and copy. That side of it must be much harder for my brother because all the carers are women, so he has to work out his own path. I don’t envy him.

Sometimes, when you’re caught up in the admin, the things you need to get and do, it’s easy to forget that Mum and Dad are people; to forget the human element of the logistical problem. It’s not always easy to give them the freedom to make decisions for themselves and I often feel caught in the middle, because I think, being further away, my brother takes it harder than me and is more keen to just sort it out, by putting Dad, or both of them, in a home. The gaps between his visits are longer, therefore, the deterioration in Dad is more obvious, Dad’s behaviour is always at its worst, and techniques that my brother has learned, which are successful one visit, may no longer work on the next. Because I’m lucky enough to live nearer, and visit every week, most of the coping strategies will last longer before new ones need to be found.

Despite spitting on the floor, throwing stuff about, making inappropriate comments and loving the F word above all else, there are times when we do get Dad back, even on the bad days. Just pop on a dvd of Dad’s Army and suddenly we are all laughing together, on the same level. Or sometimes, listening to music, looking at something outside, taking him for a walk, talking about my grandparents, he will suddenly light up and tell a funny story and we will all be laughing as if he was fine.

But that’s the thing I need to get my head round, of course. He is fine. I’m the one with the problem. He’s just disabled.

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