Tag Archives: dementia

Jumbled thoughts on metal detecting, dementia and happiness.

Yep, that’s a hell of a mixture and it isn’t as philosophical as it sounds, this one.

As you know, I go metal detecting, or to put it the correct way, I’m a detectorist. After a very, very long break, I got to go detecting the other day and I found … THINGS.

The ground has been too hard and the crops too high or digs just not … on for a long time. I have wanted to upgrade from my trusty Garrett Ace 250 to a new detector for a year or two. But I wanted one with a display so I could check my ears, so to speak – the ritzy ones give you a numerical scale and if you know your onions you can tell what the metal below you is from the read out. The ones that give you a reliable read out like this, though, tend to be north of a grand. The read out on the Garrett Ace 250 has not, to my knowledge, predicted more than a handful of the metal I’ve dug up with it correctly. So I’ve persevered with the Garrett, because I’d got to know it’s foibles by now, and started saving up for a high end machine.

Meanwhile many of my friends at the clubs I go to suggested I should forget about the display and go on my ears alone because that way, I could buy a high end machine for £800 or thereabouts rather than £1k plus. I wasn’t sure and I waited … until I was at a dig in autumn 17 and I realised that because the display on my Garrett is so random I hadn’t actually looked at it for the whole afternoon I’d been out and hadn’t been using it, while detecting, for some time.

The detector I’d finally decided on was chosen because it’s light and would sell for a good price if I didn’t get on with it. However, that’s the rub. It’s very expensive, even second hand. Bemoaning this, at one of the clubs I go to, one fellow popped up and suggested I forget about the really ritzy one, and the ritzy one’s smaller £800 brother and go for the baby of the brand which is about £600 new, but which you can get second-hand for much less. Then someone else at the club knew someone who had one for £220 and I bit his hand off.

Bearing in mind how incredibly bad I was at getting the hang of the old detector, I wasn’t expecting much so when I first went out with it and found some nice things I was well chuffed! And then I stopped finding … well … anything except old iron and crap. Some of the crap was just luck – when you dig up a bit of copper you might find it’s just a tractor part, or it might be a Roman coin – the only way to tell is to get it out of the ground and have a look. It just so happened that it was tractor parts. It was also getting tiny, tiny fragments of things which were taking ages to find in the freshly dug soil because my pinpointer is a bit dodgy. They could have been beads or medieval fasteners but they weren’t. They were tiny bits of lead.

Bollocks.

Dig after dig went by and I was well aware that most of my failure to find interesting stuff was less about the detector and more down to the plonker waving it about. You know when you’re doing something wrong and you just can’t work out what to do to make it right. I could tell the machine was giving me a lot of information, I just couldn’t work out what the chuff it was  saying. So eventually after going to about 8 digs and failing to find a blummin’ thing, I discovered that one of the detectorist’s suppliers I use had a sheet of hints for setting the thing up. I rang them and the lovely fellow there spoke to me for about thirty minutes and sent the instructions over. That conversation was a bit of a scales from the eyes moment.

The principle of the new (to me) detector – or at least, the technique that works for me – is the exact reverse of the other one. Most machines have three tones, high, low and iron. This one is no different, although sometimes it feels like there are four. The iron on this one is a pulse more than a note, then there appears to be a very occasional low tone a mid tone and a high one on top, but the low tone may just be the way my ears hear one of the high ones mixed in with the iron pulse. So then you trundle round, listening, and it’s like hearing a chord. When it bings, you listen for the tick of the iron tone. If there’s lots it means you’ve got a really big piece of iron, deep down, unless you can turn sideways and swing the detector a different way and it becomes a bing on it’s own with no tick. Then it’s not iron. It might be canslaw, a blob of lead or a brass tractor part, or, worse, a cartridge cap – which gives the exact same signal as a Bronze Age axe head, I’m told – but it is, at least, the kind of metal you’re looking for.

So on the one hand, I was doing it all wrong because I wasn’t listening for the ticking iron tone, so I was only getting half the information. On the other hand, I was doing the right thing digging the signals I was getting because if you leave the distinctive tone of an old shotgun cartridge, you may actually be leaving something … better. So while it’s a pain in the arse as, ever the optimist, I dig them up, I’m actually doing the right thing.

Then came spring, the crops seeded at lightning speed and I didn’t get to test my new detecting theories until the first weekend in August. Then, to my joy, I got to go digging for an afternoon. It was thirty three degrees centrigrade that day (about ninety Fahrenheit) so I was actually quite glad it was only an afternoon.

I arrived just as everyone else was eating their lunch making an ignominious entrance across a stubble field, the freshly cut stalks just that little bit higher than the flat panel underneath my car making a loud screeching sound, like someone running their fingernails down a blackboard, the whole way. I parked, approached the nearest detectorists and apologised profusely. Turned out they were all fed up, the ground wasn’t too hard but the going was hot and the finds and signals few and far between.

Armed with my new machine, and new information, I headed off to detect in the furthest field under a big tree. Surely there had been trees there for many years and I would find something someone had dropped while sitting under it. On the way, I found a bit of the cap of an old bottle, probably from the 1940s or thereabouts. Junk, maybe, but it was a start. I detected around the tree for a while. I could hear the iron buzz most of the time but finally got a proper bing tone on top. Turned sideways and sure enough, managed to reach a point where the bing was on it’s own. Up came half a 14th century thimble with a lovely green patina. This is on my bucket list so even half of one was me set up for the day. With ridiculous optimism, I set about trying to find the other half. I got a shot gun cartridge. Well, you can’t win ‘em all. Next a thing that looked like some kind of silver stud but it was too muddy to tell. Then two signals which I thought were iron and dug to check. They were.

I moved to another field and dug up a piece of old wire and then a THING. The THING looked a bit like a Georgian drawer handle, or possibly a Roman brooch, only not. My fellow detectorists hadn’t been so lucky, many complaining, and one remarking, as we packed up to go, that the only thing he’d found worth keeping were some blackberries! I was dead chuffed with my stuff, but the best thing of all was that I came away realising that I have finally begun to understand the equipment I am using.

As I drove home, delighted with my finds, I wondered if I had really been the only person to find anything good or whether it was more about my standards. The thimble was only half a thimble after all and the Roman brooch-like-probably-drawer-handle-object, which probably wasn’t either, looked ancient but could just have easily have dropped off a Victorian cart or something. The folks out detecting with me were far more experienced. Had finds like mine become junk to them? Possibly.

This got me thinking about life, generally. It seems to me that a lot of the time, happiness is less about what you actually experience and more about how you look at it. I read somewhere that if you get one group of people to sit in a chair and think about exercising – without actually doing any and another group of people to do the same without thinking about running around, the people who think about exercising a lot are 25% fitter than those who don’t. Without actually doing anything. This is the power of the mind and this is why I am always interested in the use of mental techniques in pain management for my knees.

And that got me thinking about happiness. Is the illusive search for happiness nothing more than an exercise in lateral thought? In my own personal experience, I’m beginning to think that maybe it is. There are probably people who, given my life to live, would be a lot more appreciative and happy than I am. Likewise there are probably people who’d be a lot sadder. It’s all about how you look at it. As humans we tend to hear criticism more loudly than praise, the criticism is the stuff that sticks. Likewise, sometimes, I think our preconceptions are that things are a lot worse than they really are. Good things aren’t always newsworthy.

I like to think that I am positive in outlook. I’d say I usually prepare for the worst but I like to think that I also hope for the best. I’ve had to skew my view occasionally, mostly over what I should be able to do versus what is actually possible for someone with my knees, pain management and stuff like that. Has that helped me deal with the situation with my parents? I don’t really know? I’m in my fifties now and I’m starting to see my friends going though horrific shit, their children dying, marriages failing, getting sick … I have no idea how they get through it. I feel a combination of luck, that I have McOther and McMini beside me and rank fear that something will happen to them. But mostly, I’m grateful for them, and nutbag cat and the lunatics I call my family and friends. I’d definitely say I’m happy, overall, even if things that happen do make me sad. And for me I guess the secret is just being interested in what’s going on around me. Is that it? Curiosity? Am I happy because I’m curious? Yeh, yeh, as in enquiring of mind people, the fact I am odd is a given. Is being happy just about looking at everything through rose tinted spectacles?

Or is it that, sometimes, good things seem to appear at the exact moment you need them? Is it a bit of all that, rose tinted but without the delusional aspect? Maybe.

But on good things … this weeks’ visit to the old dears was a gift. On the motorway, stuck in a ‘slow down’ as they call it, a chap in a van next to us beeped at us. I was a bit nonplussed, being, as I am, wizened and ancient and he being a rather glamorous dark haired gentleman in his 20s or so. He waved at me and did a thumbs up, pointing to my car. Then he held up his phone. The screen was black.

‘Uh?’ We said.

He beeped the hooter again, ah yes, the phone was live now and on the tiny screen was a picture of a bright blue car. I’m far too much of a blind old bag to be able to say what it was but I reckon, from the colour, that it was a similar Lotus to mine. Even McMini couldn’t tell and he was on the same side of the car. Mind you, we were all laughing our heads off by this point. We waved and did a thumbs up. People can be real dickheads when you drive a silly car, but sometimes they do mad things like that! It’s all part of the fun and the trick, of course, is to realise that there are probably as many positive things like this as there are negatives. That lateral thought thing again.

On arrival in Sussex. Dad was snoozing and McMini went and sat with him, iPad in hand, to play games and keep him company if he woke up. The lovely Carer cooked lunch and Mum and I went down to the bottom of the garden to pick beans. Then we came back and prepared them. Mum was, mentally, at the top of her game and we had the kind of deep and heartfelt conversation that we haven’t had since the end of 2015. It was fucking magic. I went down there feeling so lonely and came back feeling that I had got Mum back for 40 pure, joyous minutes. We had reconnected, but also it was fantastic to be able to discuss Mum’s life with her and what she wants for her and Dad and confide in her about my own.

And it was brilliant.

After thought …

The Roman brooch-like-probably-drawer-handle-object turned out to be a Roman brooch, just not one from around here. European form, not the Colchester one which, being just near Colchester, I would have been expecting. The stud thing turned out not to be silver at all and was, in fact, a button. Just goes to show that you can never really tell until you clean it all up. The thimble is still a thimble, or at least half of one.

‘Silver stud’ that wasn’t and thimble that was.

 

Roman brooch-like-probably-drawer-handle-object that turned out to be a Roman brooch after all.

 

 

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The days when it drives you crazy! #dementia

Today, I’m going to explain some frustrations about looking after vulnerable elderly family members. Here they are:

  • Masses of frustrating administrivia.
  • The whole thing is a monumental time suck. You’ll find yourself wondering how the fuck they ran their lives before you and the care team came along to do it for them.
  • If you are going to allow the vulnerable person any independence, there will be slip ups. You will not believe how comprehensively they can stuff things up and you will have to do a lot of gatekeeping and/or clearing up.
  • Things will also stuff up randomly with monotonous regularity.
  • You will need to remember a lot of things for them.
  • Keeping them social and independent may involve covert surveillance from the wings, so to speak, so you can fix any bog ups quietly in the background, or at the least, see them coming. That may feel like spying or going behind their back. It isn’t. You’re just supporting them so they can be free for as long as possible. Hold onto that when it gets tough, my lovelies. Because …
  • The gift, or possibly the illusion, that they are running their own affairs (even when they aren’t) is the best thing you can give them. Aim to let the person have as much independence as is humanely possible, for as long as possible because however vulnerable they may be, they are not children, and allowing them to take responsibility for things is great for their confidence if they are supported the right way.
  • You will be amazed how crass people can be when presented with a dementia sufferer.
  • You will be amazed how lovely people can be when presented with a dementia sufferer.
  • There may be times when you feel trapped and cornered by the crushing weight of the responsibility and will wish that you could just run away and never return.
  • Sometimes you’ll wonder if they wouldn’t be better off dead. It doesn’t matter how ableist that is, it’s going to happen especially if one of them has told you, repeatedly, that  they hope they will die, ‘before I lose my marbles. I can handle pain, but I don’t think I could bear that, or knowing how awful it will be for you.’

In short you will have many thoughts that may not be pleasant but try not to beat yourself up because I’d guarantee that most of them are perfectly natural. You have to accept that your negative feelings are as natural as the positive ones. You have to accept yourself and look after yourself as well as them. Because if you go down, everything does!

When it comes to the time, you won’t mind putting the time in, and actually, most days, you’ll feel that it’s an honour. But on other occasions you may be roundly cursing your loved ones, especially if you have to drop everything and sort out whatever mess they’ve got themselves into. It’s nothing to be upset about when that happens so long as you don’t do it in front of them, because you’re human, and there will be times when it and they drive you buggy, no matter how much you love them.

Case in point, this week. It’s has been a bit hectic. Mum has reached the stage when we should really be activating the lasting power of attorney over her finances as well as Dad’s but if we do that, she can’t have a cheque book or bank card and neither can I. Running someone’s day to day finances and shopping needs from over 100 miles away isn’t going to be easy if none of them have access to a cash point and Mum can’t pay for anything by cheque either.

Sure, we can do it, but it will involve transferring hundreds of pounds to my own bank account every week and getting them out, putting them in an envelope and taking them down to my parents’ place. To be honest, I don’t fancy walking about with £500 plus on board, even in my quiet market town. Then, we have to hide the cash at Mum and Dad’s. We can put it in the safe but their having all that cash sloshing about is still not a prospect I relish.

Also even if I did it, what happens when I go away on holiday?

God bless my Mum, she managed to spend nearly £300 on some manure the other day. It’s excellent stuff, but she didn’t really need 36 bags. She used to, because she used to use a lot of it and would pass it on to friends. But not anymore. After that, and other scares, and a brief discussion with the carers we decided we’d hide the cheque book and card in the safe. Needless to say, when I looked in there, I found a bunch of cash I’d put in for emergencies while I was away on holiday a year ago – this was at a point where we were trying to have me bring cash each week and it wasn’t working. Obviously, there were four old tenners, so I had to put the new ones from my wallet in and take the others home where I could go into ‘any bank’ to swap them.

When I got home after three and a half hours of joy round the M25, I rang the fellow who sold her the manure. He wasn’t there so I left a message.

He didn’t call back until the next day and was extremely understanding but couldn’t really do much more than give us a discount and promise not to call again next year. I’ve had at least three bags of his manure, via Mum, so I do know he is legit but it was a pity. He also rang me just as McMini and I were leaving the house and it took us half an hour to sort it out. Half an hour that I didn’t really have.

Having agreed that Mum and Dad would have to keep the manure, but that he’d tear up cheque and I would pay a reduced sum by BACS, the next day, McOther then pointed out that I should wait to pay him until he’d sent the cheque back. Or stop it and then pay him. So then I had to stop the cheque.

However, HSBC’s Indian call centre came up trumps here. They still can’t pronounce the name McGuire but they are now more intuitive. Today I spoke to a lady who stopped the cheque for me and then, when I explained why I was stopping it, she waived the fee. Last time, when I was checking that there wasn’t a standing order pending for an insurance policy on her white goods that Mum had bought and I’d cancelled, the guy put a note on that no standing order should be approved without asking me. A stark contrast to the bastards at NatWest who would only change Mum’s old tenners if I had an account with them. Yes, after the thirty minute delay of the call with the manure man, it took us another fifteen to find a bank in the centre of town who’d swap the stupid tenners. Thank heavens there’s a Santander, where, ironically, I have an account but the teller swapped it all over without even asking if I do.

So the moral of this story appears to be don’t bank with NatWest, they’re a bunch of cAROOOGAHts.

It looks as if the suckers list Mum and Dad are on has just changed hands again and the ‘call blocker’ bastards are phoning every day, along with people ringing to say that the TV/Washing Machine/insert white goods here ‘insurance’ policy is due when there isn’t one. The former are scamming bastards out to rip off the vulnerable. The latter are selling worthless, overpriced services by cold calling people who are on the Telephone Preference Service (which is punishable by a £5k fine) but they are at least legitimate companies with websites and directors registered at Companies House even if their corporate ethics are in a fucking mess.

All of them call themselves something generic which is searched for lots on Google; Home Insurance Services or Call Technology Services, Home Services Limited or the like, things that will ensure any internet search for a record of their existence is buried under pages and pages of results. The other trouble is, if you are kind of person who purchases a suckers list in the first place, you’re not going to worry about selling it on with records that are duff when you’re done. As a result, every three months or so, Mum and Dad get a massive surge of these scam calls and then, as the shit-heads realise there are gatekeepers, the calls fall away until the list is sold on again.

Bastards.

However, I have a plan for the next call blocker selling weasel who phones when I’m at my parents. It’s going to be a gas! I’ll let you know how it goes.

I have a cunning plan … hnur, hnur, hnurrrrr.

 

 

 

 

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And on the up side …

Just a quick one today. First of all, report on Dad. This week he was so much more himself it was unbelievable when I visited. Turned out that after about ten days of not sleeping the doctor came to see him and gave the carers a light sleeping pill. This has worked wonders. Dad had not slept for ages and as you will have gathered from my previous post, he was behaving abominably. I had started to worry as to whether or not he should go into a home. However, all the carers have reassured me that it isn’t necessary, what we have to do, as the changes in his temperament happen, is ensure that Mum spends more time doing other stuff. She needs to get out and away from the atmosphere at home when it’s charged. The time she spends with Dad needs to be batched and in smaller high quality doses.

That all made excellent sense to me, but what I was overjoyed by, was Dad’s return to form. He was saying please and thank you, there was no swearing, no spitting. His continence has improved again so he knows when he needs to go to the loo. His whole outlook is breezier and sunnier. It’s amazing what a little thing like a good night’s sleep does for a person. The carers also raised a good point which was that he is a very intelligent man and his mind needs to be stimulated. Dad loves a trip out and they have combined this with … well … basically they use him, and his wheelchair, as a shopping trolley. He loves this because instead of saying, ‘would you like to go for a walk,’ they can say, ‘John, would you mind coming to town and helping me do the shopping?’.

One of the biggest things about dementia is that it makes people feel useless. Giving them things to do, or finding ways to spin pursuits dementia sufferers enjoy doing as helping others is great for the person’s self esteem. It was so lovely to see Dad back to cracking jokes and taking the piss out of me about my trousers.

‘I must buy you a new pair of trousers. Those ones are terrible.’

‘Thanks Dad.’

It’s amazing how sometimes the answer to a problem that seems insurmountable turns out to be simple. Oh how I wish the rest of my life was that straightforward! I am drowning under a mountain of admin at the moment and every time I finish one thing, another one comes in. All of them are ten minute jobs that go wrong and end up taking hours. But hey ho, it could be so much worse.

Since things are better, I’d like to share one of Dad’s favourite jokes.

The Statues and the Wish

Two statues, male and female, spent a couple of hundred years in a London park, their plinths facing one another. Come rain, or shine they were there and gradually, they fell in love. One day, God turned up and said to them,

‘Righty oh. I’ve seen what’s going on down here and I’d like to give you an hour of life, you can do whatever you like.’

A look of perfect understanding was exchanged between the male and female statues.

‘It’s not just the bastard pigeons either!’ said Churchill. ‘Fucking Banksy!’    *

‘Come on!’ said the male one. He took the female’s hand and they rushed off into the bushes together.

There was a lot of rustling and much giggling. God whistled a tune and nonchalantly made his way to a nearby bench where he sat and enjoyed the sunlight, very much ignoring the continued giggling and rustling from the bushes, while he answered some prayers using the app on his celestial smartphone. He was surprised when, after forty minutes, the two statues emerged from the bushes, breathless, dishevelled and still giggling uncontrollably.

‘Wait a minute, you haven’t used your whole hour yet,’ said God.

‘Really?’ asked the female statue her eyes shining with joy.

‘Really,’ God confirmed. ‘You have another twenty minutes.’

‘Oh good!’ The female statue gave the male a sly look.

‘Shall we do it again?’ he asked her.

‘Yes please!’ she said, ‘Only this time, so it’s fair, why don’t I hold the pigeon and you can shit on it?’

I put this one on because George IV’s horse looks completely gobsmacked. *

* I have no idea who owns these pics, I got them off Pintarest. No infringement of copyright is intended and I will happily remove them if required.

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That’s Alzheimer’s not Dad.

The post is a bit grim but at least this picture is pretty!

A couple of weeks ago, someone shared one of my posts of dementia-related whinging on Facebook – this post if anyone’s interested – and it got an interesting comment.

There is ample opportunity for me to have misconstrued here but, as I interpreted the comment, I think it basically said something along the lines of that we don’t really know why some folks get to die suddenly or well and others get something a bit more operatic; by which I mean they get the real world equivalent of twenty minutes of singing and an encore after a wound that should have killed them instantly. The gist was that ours is not to reason why.

The poster went on to say, if I’ve understood correctly, that if it was God’s will that they linger who are we to argue, and to just have faith that it’s all happening for a reason, that it is not our place to judge or begrudge them their time in the twilight zone, and we can give them that time. That this process of slowly withdrawing from one world and preparing to step into the other is clearly of spiritual importance in some way and we should accept our part in it with grace. Thinking about it, I should probably post what was said. This is the comment in question.

It’s a kindly, wise comment and clearly meant to give comfort but instead, reading it, I feel as if I am being chided for my lack of faith, and for my selfishness in feeling that fourteen years of this is a tad fucking long. I found myself wondering how much of the poster’s own care/worry marathon they had completed, two years? five years? seven? ten? I’ve reached the stage, now, where I worry that the pressure of worrying about my folks may do me in; that I may not out live my parents. I mean, I can’t die! It would kill them. Then there’s the whole cancer thing. Have you noticed how many people who have been through a tough patch like this one end up going down with cancer just as they get right again? I dearly hope I avoid joining them.

Clearly the commenter has a great deal more grace and faith than I, but I confess, the thing about the comment that really threw me was that I had no idea that anyone could so completely and utterly miss the point of why I post all this stuff.

Bearing that in mind, I thought I’d better explain to clear things up! Because I accept my father’s fate is clearly not a swift and merciful death, trust me, there is no mercy in dementia. Indeed, if this is the greatest mercy they can wish for I shudder to think on the horror of any alternatives my parents have missed. Likewise, if they have to suffer this now I hope they have manifold blessings in store. My father has been losing his memory the whole of my son’s life. Even when my lad was born in 2008, Dad couldn’t really be left alone. It began before that, in 2004. Fourteen years is a fuck of a long time in anybody’s book. It’s probably my fault and I’m the one being punished. I expect I snogged too many boys or wanked too much as a teenager or something, but I digress.

It’s no good my railing against fate, it merely wastes energy. I just have to bite the bullet and get on with it. I will endeavour to give my parents as much quality of life and freedom of choice as possible, and I am trying to make this twilight time for them a time of gentleness, peace and compassion. That my brother and I aim to do that, however painful it may be for all of us, is moot.

But you know what? Just because my brother and I are doing what we hope is the right thing, it doesn’t make it any more fun. And I doubt the feelings I have experienced as I’ve watched my father lose his mind over fourteen long years are any different to those of other people in my position. And that’s why I write about this.

When I write about Dad’s sickness on my blog, it isn’t about my brother and I doing the right thing by our parents, it’s not even about our efforts at trying to. That’s a given.

No.

This is about what tenderness and mercy to one member of a family costs the others.

Similarly, I doubt the dismay I felt as I realised, three years ago, that my mother also had dementia, is unique. If there is anything merciful in this perhaps it’s Mum’s dementia. Because I do not know how she finds the strength to endure some of the stuff Dad says to her and at least if she forgets, she won’t know what she’s lost.

The posts I write about my father’s Alzheimer’s and my mother’s dementia are not here to give you answers, they’re here to show you my reactions. Because I think I’m very average and I suspect most of us feel the way I do but may not admit it, not even to ourselves. Well if that’s you, I’m writing this so you can see that your reactions are normal. The things you think about the situation that are so dodgy and shameful that they almost hurt? You aren’t alone.

That’s the only gift I can give to people suffering through this. Thousands of people have come before us, doubtless many thousands will come after. You’re not alone, I’m not alone, we are united in this trouble.

When the dementia patent in your life does something that completely shocks and repulses you, it’s OK to recoil, to feel sad, hurt, horrified and angry. It’s OK to feel those things because it’s natural, and yes, it’s OK to feel trapped by their neediness. The key is not how you feel but how you act when you are with the person affected, the key is not whether you are disgusted but whether you show it. They no longer understand or even realise that their actions are unacceptable. Much of what they are doing is caused by them feeling frightened and alone, you can reduce the number of melt downs, if you can get alongside them and have them working with you not at you, but if you fail, well that’s OK, because there’s always next time, when you can try something else.

Showers, but also sunny intervals.

Also, attitudes to dementia are changing and I write about things that happen to us which reflect that change because I want people to see it and know about it. I want people to realise that if they want to take a dementia sufferer out somewhere they should go right ahead. It’s just a disability. You don’t have to hide them like a shameful thing but at the same time, you need to have an idea of what you are all facing. I describe our journey to help you understand what is coming as you embark on yours.

When I was a kid, if someone got Dementia it usually went something like this. Person gets dementia. No-one is allowed to know it’s all kept secret because it’s a Bad Thing. Person does something a bit strange in public which a handful of folks hear about but which is not ever passed on but is just mentioned as, ‘that time at …’ or something similar. Person disappears from all social life. Five years later, you attend their funeral. I used to wonder what happened in between. Now I know. And I want other people to know and understand. That, yes, it is horrible, but it can also be uplifting. I want people to know that they needn’t feel afraid, that it is unbelievably harsh but they will cope.

While Dad can still enjoy the company of others – and he can most days – I want my dad to be active and social. To be able to go out and Mum with him. I want him to be able to go have lunch at the pub or whatever. Amazingly, they attend a huge number of social events but it is getting more and more difficult now. Bless them, a decent number of his friends now come to him, or if they’re no longer mobile, ring him.

As I said, attitudes are changing, although it takes a certain brazenness to be a carer. For example, back in 2011 when we were on the ferry to the Isle of Wight. Dad went to the loo and got a bit disorientated while he was in there. He came out with his zip open and his cock out. A lady sitting nearby rushed over to him, just as I noticed and ran over to him, too.
‘Oh thank you, I’m so sorry,’ I told her when I got there.
‘Is he yours?’ she said.
‘Yes,’ I said as I turned to Dad. ‘Dad, we need to pop back in there for a moment.’
‘Oh dear, do we?’
‘Yes,’ I leaned over and whispered, ‘You’ve forgotten to do your flies up.’
He guffawed and we thanked the lady and went back into the loo.
‘What am I coming to? I left my cock out,’ he said when we got inside. We giggled some more and he made some joke about Winston Churchill’s reaction when someone pointed out his flies were undone, ‘The dead bird does not leave the nest!’ my Dad said in his best Churchill voice. Giggling, we sorted it all out and we started back to our seats. We passed the helpful Lady so I thanked her again. She gave me a big smile and said,
‘Not to worry, we have one of our own at home!’
It was all done with a wink and a smile at Dad, too, to include him. Naturally he joined in. People are kind these days, when you rock up somewhere with a dementia sufferer.

Likewise, when your father clears his throat, leans over the side of the chair and gobs a massive steaming greenie onto the kitchen floor in front of company, as if that is the most normal thing in the world, a certain brazenness is required. I reckon it’s fine to use graveyard humour to make light of it, or any other form of tasteless joke that will get you through the surreal horror you’ve just witnessed. We avoid jokes at Dad’s expense in his presence and we avoid them where we can if we are not in his presence. However, if treating your father with the decency and compassion his humanity affords him to his face means laughing at his child like antics, and calling him Spoilt Bastard after the well known Viz character behind his back, I say knock yourself out. Because if you can’t do both then do what it takes behind the scenes to achieve compassion and kindness where it matters, when you’re with the person.

Recently, a couple of visits have gone badly and my father has been unremittingly vile to me, not to mention Mum. Some days, he doesn’t know who we are any more. He doesn’t remember that he loves us. Except that he is always pleased to see me initially. However, my gentle, good-humoured, loving father – with the wicked sense of humour – is now, quite often, just wicked. He refers to me as a trollop, or a fucking stupid woman, or sometimes, for variety, a stupid fucking woman. I take no offence since he refers to nearly all the females around him like this.

But I miss my dad. I miss my mum. There is much more of Mum there but we have still lost enough to miss. Dad, is still there too, but we have to dig hard for those precious shiny glimpses of treasure. And I’m raw about it at the moment because at my Uncle’s funeral last week we prayed for the sick and when we did that we prayed for Dad and Mum. And it was the sweetest, kindest thought, a truly lovely act on their part, and so touching, and I nearly lost it, and I realised how much grief there is; an enormous, bottomless black pit of the stuff at the centre of me. Too much to look at head on. Too much to acknowledge. I can see it all the time out of the corner of my eye. Look it in the face and I am undone. And as the male lead says in one of my books, ‘I can’t be undone.’ For the sake of my parents and also the rest of my family, I have to hold it together.

And the weird thing is that even with this huge bottomless grief, this mourning that will end in death, but which, without a death, cannot end, even though it’s fourteen years old and huge and dwarfs me somehow, I do hold it together. If I have any kind of faith, I suspect that’s where it counts. Because I’m no saint. I have no grace. I’ve never been one to cope well with a long drawn out process. I do not know how I keep my grief about my parents in its box, but it happens, and I doubt the strength required is all coming from me.

In the face of this, I’ve come to believe that there are really only two things that matter when dealing with dementia:

Number one. Trying to hang onto who the patient was and what it was in him we loved. We look out old photos, read letters, memories from the boys and girls he taught. We do whatever it takes to keep in touch with the real person who is living under that disability. We do it because it’s the only thing we can do to hold onto him.

Two. On the days when Dad is vile to me; like the time when he grabbed the wee bottle from my hand on Sunday and tried to throw his warm piss in my face, shouting, ‘Get that thing off me you bloody trollop! I’ve finished, you stupid fucking woman!’ Or yesterday when he did the same thing to the carer in the loo, all the while continuing to wee copiously down his trousers and onto her foot, proving conclusively that he was NOT finished, not by a long chalk, it’s important to keep a sense of humour; to laugh about it – and we did laugh because what else can you do? I mean, it could be worse, it’s not as if I had to hide behind the sofa while he searched for me with a knife (genuine dementia story, luckily, not mine). It’s also important I keep a firm enough grasp of who he is. I will always try to treat him as the man he was. Dad is in there, somewhere. I refuse to believe he is wholly the man he’s become. Because that is not my father. That is Alzheimer’s.

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Chin up lass!

There is a popular trope that being happy is just a state of mind. It’s a little more complicated than that, I suspect but I think there is something in the idea that trying to cultivate a positivity of outlook can help. For me it’s definitely about noticing things. Noticing the smell of hyacinths from the flower bed beside our back door. Noticing the way the birds start to sing way, way more loudly from January on. Noticing how even in December, the bulbs are starting to break through. If I wasn’t lucky enough to spot these signs of hope and spring, naturally, I suspect I would be a much less happy person. But once you’ve noticed this stuff once, maybe you look harder for it the next time? Who knows.

This week, has been … interesting. Really tough at times. Not helped by a dash of sleep deprivation; they resurfaced a bit of our street … at night and, apparently, with the help of the Mysterons.

They also foolishly parked their rollers etc outside my house where I could eyebomb the living smeck out of them so there’s an upside to everything but …  after a couple of noisy nights mental energy was low by about Tuesday and by Wednesday I was running on fumes – no not my farts, I’m trying to say there wasn’t much fizz in the tank – and there was even less after I had to sort out a bit of a ‘situation’ at Mum and Dad’s. Suffice to say, I should be driving to Hexham right now to celebrate the 50th Birthdays of two lovely friends from school. And I’m not.

In my defence, it’s a five hour trip each way and after my uncle’s death, the night works and a furore (now sorted) that blew up around my parents this week, I decided that if I was being realistic, there were not enough spoons/fuel in the tank – my tank, not the car’s – to do 600 miles in bank holiday traffic. I cancelled. I feel bad about cancelling but sitting here right now, I know I’ve done the right thing.

Meanwhile alongside these it has been a week of small and unusual things. Lovely things that have lifted my spirits. Rare stuff. It’s strange how these things happen sometimes, often when the rest of your world is at its worst. Little mini-boosts that filter through to you, as if the world is trying to tell you, in it’s own small way, that despite feeling that you haven’t measured up, it’s alright.

First, an account from a friend of someone waxing lyrical about my intelligence – as in that she thought I had some – left me with a nice warm feeling. The Scottish man who served me at the market today who asked if I’d be having those strawberries and without thinking I said, ‘Aye.’ The moment in church when a lady visiting, who had the misfortune to sit near me, tapped me on the shoulder at the end of the service and thanked me for my singing. I’ve discussed my singing before, an attribute about which I was teased a great deal at school – so much singing, so little of it in tune. But recently people have been saying how nice my voice is. I’m not sure if something’s happened to my voice, if the people in church are tone deaf or if I’ve always had a decent voice and the girls at school were just jealous. Whatever it is that’s happened there, I suddenly feel I can sing. I’ll take that and be happy!

This last fortnight, after the death of my uncle, I felt very low, about Dad as well as about him. Strangely, I’ve been seeing butterflies and rainbows everywhere. Butterflies, obviously, because it’s spring. Rainbows; I had a memorable journey back from Sussex to Suffolk this week; two and a half hours over waterlogged roads in bright sunlight. Lots of spray, car got a Sussex respray and was covered in white chalky puddle water stains, visibility was terrible, lights on but blue sky above and rainbows dancing around me everywhere pretty much the whole way home. That was a hell of a thing.

This is hardly a phenomenon, either, after all, it’s typical April weather really, showers then sun but it’s not something I’ve witnessed in quite such abundance before and it’s different to the norm so it makes for a change. Some ditzy article I read somewhere, which I can’t find now, of course, talked about about how butterflies are messengers from your guardian angel to let you know s/he’s listening, while rainbows are messages of reassurance from the cosmos. Butterflies are wonderful, they’re always going to cheer me up and as for the rainbows, well, when something is able to make a British motorway look beautiful then, dubious theories on cosmic reassurance aside, it’s still uplifting.

Then after a fair time with no reviews one from ‘An Amazon User’ for Few Are Chosen popped up this week. I always think that makes it sound like some kind of drug.

‘Hello, I’m MTM and I’m a recovering Amazon User.’ [applause] ‘Yeh, it’s tough but I’ve been clean several months now.’

Sorry, where was I? Oh yes, the review. Actually, they left it two weeks ago but I only found it this week. It reminded me of something my brother in-law said. He thought there were two interesting, and slightly amazing, phenomena about the reviews of my books. The first thing he pointed out was that if you look at most reviews on Amazon, generally across the site, while some are superb far more are less than articulate. He felt a surprisingly high number of reviews for my books were witty and amusing, as if the reviewers loved the jokes in the books and are joining in. If that’s true, it’s a lovely thing for them to feel and I’m delighted it’s happened. The second thing he thought was intriguing is the fact that even the one-liners are reasonably well spelled and punctuated, suggesting a level of intelligence in the readers reviewing my books that is way above average.

Mwahhahahrgh! So there we have it. Congratulations to anyone who has read my books, then. Clearly you are very smart and arbiters of good taste! Phnark! It is a cheering thought though, because it makes me feel that I am reaching my intended audience; eccentric people like me. And if the people who feel moved to write reviews of my books want to join in with the jokes then maybe there is the possibility that the small beginnings of a community of … I dunno … K’Barthan-heads? Is forming. Maybe, or maybe not but it feels like a little seed of hope.

And I needed all those small things this week. You see, one of the hardest bits about the death of my uncle was the way it made me feel about about Dad. Sometimes, when I think he’s suffering or unhappy, I wish Dad wasn’t around, not because I want him dead but because it’s hard to see him suffer, it’s difficult not to see his disability as Dad going under and dragging Mum down with him. It’s horrible to think either of them is unhappy. Other times, when he seems cheerful, I see, with crystal clarity, that he is a man with a disability and I am being incredibly able-ist and condescending. At least it makes for a new topic to beat myself up over.

In a minor miracle this week, something in me was able to let a lot of that baggage go. Dad is, mostly, happy and enjoying life, as is Mum. That’s really all I can hope for. No doubt the worry will return but for now, I’m OK with the situation again, things are on an even keel. The house I grew up in is still a place of laughter and compassion. The rest is kismet, right?

Perhaps that’s all you need to do to be happy; look for the small gifts, be kind to yourself and be kind to others.

Who knows? I leave you with the review, because it was lovely. Thank you and Godspeed ‘Amazon User’.

Don’t Giggle Out Loud
You know when you are sitting in an airport and the guy next to you starts giggling at the book he is reading? And it’s so annoying because you can’t quite see the title? This is the book. The anti hero, The Pan, is terrific, his search to find the Chosen One before the ultimate baddy Lord Vernon gets his evil hands on her, The Swamp Thing, all go to make a refreshingly funny and well laid out plot. Oh and did I mention the car chase? or the lovely old man, or the drink that hits the spot, especially of the evil one’s soldiers? But that would spoil the story for you. Go read it yourself. It only has five stars as Amazon is tight with them.

 

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It’s my party and I’ll cry if I want to … #dementia #ranting

I’ve sort of been debating whether or not I should post this. I wrote it just too late to publish last weekend and things have been so much better this week that, in some ways, it’s no longer relevant.

Except that, from the point of view of the people who read this, I’m now thinking that actually, it might be helpful. Everyone has bad days, everyone feels swamped sometimes and if that’s you then at least when you read this, you’ll know you’re not alone, that it happens to everyone, that there are people out there who can sympathise with how you feel. No-one’s life is roses the entire time and I think being honest about that is allowed!

Basically, I’m feeling a bit ‘meh’ today. Like this.

Some days I feel a bit like this.

Ten years ago, heavily pregnant, I went to a lot of fortieth birthday parties. I thought, blithely, that I’d organise one of my own but then I spent the actual day doing a lot of drugs and having a c-section.

Never mind, I thought, I’ll have a ‘Not my 4oth Birthday Party’ when I reach the magic age of 42.

But then Dad began to get really ill and I got in a tizzy and I had a two year old, for fuck’s sake, and my in-laws sold their house with no-where to go so they had to come and live with us and my head imploded. My in-laws are ace and I’d never have done anything else than put them up, but I found having them here really difficult, and I was cross with them for coming here, which threw me completely. I hadn’t seen it coming and I was utterly disappointed in myself not to mention, completely perplexed. I mean, I couldn’t understand it at all. Why was I so angry? Why was I finding it all so hard? Even after they had sorted themselves out and left I was asking myself what on earth had got into me.

Finally, a couple of months after they’d gone, I worked out that my irrational anger stemmed from the fact that with them in the guest room, my parents couldn’t come to stay and worse, they just happened to be in the guest room over the last summer that my parents would have been able to visit us here. It was all bound up with the subconscious realisation that I would never be able have my folks here again and my subconscious was blaming my in laws for being homeless at the wrong time! Obviously it couldn’t do anything constructive like give my conscious mind the heads up but at least I worked it out eventually. As I said last week, I’m a bit slow. Once I’d finally cottoned on I cried most of the day but it was such a huge relief to work it out, and the next morning I woke with shingles, which I still believe I had instead of a nervous breakdown.

Looking back on it, not a great year for trying to plan a party then, that one. Indeed, I completely forgot about it and I guess I should consider organising a thought as an achievement at that point! Yes. Party planning was definitely right out. So I thought I’d wait until I was 45 but neither McMini nor I had a party that year because we got hit by a car and then I was going to be fifty so soon that there wasn’t much point.

Thus, it was that celebrating hitting 40 never worked out and here I am, looking down the barrel at another Important Birthday with an equally huge lack of enthusiasm to do anything about it. Although at least I’ve remembered, I suppose that’s a step up.

Originally, I was in the clear. McOther told me he would organise something and not to worry but a month ago, he fessed up that with his work the way it is, and no prospect of his work-life balance moving towards the ‘life’ end of the see-saw any time before he retires (0r, more likely, dies of some stress-related illness) he wasn’t going to be able to organise anything.

This has left me with a conundrum. I feel that having failed miserably to organise a party-like ‘event’ for my 40th Birthday, even if McMini’s arrival was pretty cool. It behoves me to do it now. So far, you’ll be impressed to know that I’ve done a really good job of ignoring it and hoping it goes away.

The thing is, when I think of a party, I think of a bar-b-queue or a marquee on the lawn, and caterers and everyone I know; family and friends, turning up to eat food and get pissed and have a good time. And I’m thinking of, possibly, a couple of speeches. You know, kind of like a wedding only more relaxed. Except that I realised that one of the main reasons I don’t really want to have a party is because at all the events like this I’ve had so far, my parents would be there. And in this case it wouldn’t be an issue if they were dead, we could raise a toast to them and remember them fondly, but they’re not dead. They’re alive. But they can’t stay here; no chairlift, no 24 hour care etc. Putting aside the fact that my dad … well … when you hug your father goodbye and he sometimes gropes your arse you know it’s getting to the stage when public appearances have to be handled carefully and only attempted on the right kind of day.

So that’s the nub of it. If I have a party. I have to plan it all as if my parents are dead while they’re alive. And few things bring home the fact they are both losing their minds – and that my brother and I get the special joy of watching that happen – more forcefully than planning an event they would have attended, but can’t, as if they are dead, when they’re alive. Which also highlights that they are … kind of … undead.

And it drags up all that other stuff about how part of me almost wishes they were dead because it might be the most merciful thing and because watching them fade away is so painful. And the fact that some days I rejoice that they’re around but others their predicament is like some enormous millstone around my physical and emotional neck that just gets heavier and heavier and heavier and cannot be put aside. Ever. And it brings home how hard it is to live a normal life with this crippling sadness and makes every other load I have to carry so much heavier. And I try to see the joy in life, I really do, and normally I’m quite good at it. But sometimes it’s extremely difficult especially when the physical pain of my knees over the last year has been at about the same level as a newly twisted ankle every. fucking. day.

Thinking about it, I guess I just want to be more than someone other people need; a dead leaf blown about on the winds of other peoples’ neediness, but it’s hard to find the time to be anything other than mother or carer and when I do, that has to be spent looking after my stupid bastard knees, or creeping round the house taking about ten hours to do the amount of cleaning able people do in two minutes. Perhaps I’m getting carer fatigue. Is that a thing? Dad has been losing his mind since 2004 and Mum since 2015. It’s a long time to keep CBT-ing yourself and to drag that shit around and it takes more and more time so then of course, you end up with less and less time to yourself; pretty much none once you’ve taken care of the physio/gym/exercising/pain management routine.

This last two weeks we were away and in the first week of our holiday, while the others skied, I wrote. I only managed an hour or two each day but it was so unbelievably wonderful to get my life back. Once I’d done enough walking or swimming to feel I could eat as much as everyone else, I sat down at the table. There was no washing or cleaning to be done. There was no meaningful internet so none of the things I was supposed to be organising – the Parish magazine, for example – could be attended to.  No stupid shitey little ‘can you book so and so’ or ‘can you find a weekend when thingwat and oojah can visit’ or jobs that should take ten minutes but end up taking for fucking ever.

There was no replying to emails, no organising anything, no futile attempts to get folks round for play dates with McMini which end in failure because other people work or are more organised than me and sorted their free days months before the holidays began. That week of writing was a tonic but it has made it all the harder to go back to the, ‘treat yourself to 20 minutes a day two days a week if you’re lucky’ regime under which I usually live. I think I’m feeling this now because it’s the summer term, which means that, in the first half, at any rate, it’s pretty much all three day weeks for me so I’ll get bugger all done. So as we do the inevitable PD day – heaven forfend that the number of full weeks this half of term should outnumber the short ones – I’m just looking down the barrel of disappearing up my own arse as I try to do the stuff I usually do, organise myself enough to be able to attend and plan social events and steel myself for the fact I have to plan a party and probably won’t write anything until July now.

So, many apologies, but sometimes, I think it’s OK to have a bit of a rant about things, like this. When it feels as if life has punched you to the floor, it’s alright to kick your legs about and scream like a toddler having a tantrum every now and again. You know, just for a moment or two, before you pick yourself up and carry on. I have therefore added this post to the ‘rant’ category but not the ‘massive rant’ category on this blog. (Yes those categories really do exist.)

On the up side … there’s my boys and McMini. On Monday, McMini and I spent the day together. It was hugely entertaining. For example, I sat with him while he was doing his homework. It took about three hours because his concentration levels came in three millisecond bursts but he got it done and we had a very entertaining conversation along the way. How’s this for an opener?

‘Mum, it’s interesting isn’t it but you would think phlegm was spelled f-l-e-m wouldn’t you?’

At no point did the word phlegm crop up in the pursuance of his studies, it’s just a random thought that occurred to him. Or there’s this one, from our holiday, in a restaurant.

‘Hey Mum! Those curtains are just like the ones in Jabba the Hutt’s palace.’

This one was followed by a lengthy discussion as to whether frogs use fart and if so, whether it will help add lift when they jump – complete with demonstrations by McMini, naturally. All conducted as he demolished a bowl of frog’s legs and compared himself to Jabba the Hutt in Return of the Jedi, you know, when he was eating those little squeaky things.

Then there are the Horrible Choices questions.

‘Mum, which would you rather? Be killed by a giant sword or run over by a steam roller?’
‘Neither.’
‘No Mum, you HAVE to choose.’

Or the use of a glue gun to make a sniper’s rifle. Amount of time from McMini seeing the glue exit the front of the gun to our making ‘fake’ drool: too short to be measured by current instrumentation.

And there’s his continued torturing of Alexa. Yesterday’s questions include:

Alexa, how do you make chocolate ice cream from poo?
Alexa, what does urinate mean?
Alexa, what is urine?
Alexa, where does poo come from; the willy or the mouth? (He’s so desperate to make her say ‘bum’.)
Alexa, what is poo?
Alexa, can you eat poo?

So purile but so funny. Because I’m really mature. By next year McMini will probably be rather more mature than I am but at the moment, hanging out with him usually involves us giggling until we cry at some point.

Meanwhile McOther and I are watching TV and I ask, in exasperation with a character, why she is sleeping with someone she knows is a baddie on the other side,

‘Ah, keep your friends close but your enemies closer,’ says McOther.
‘So that’s why you married me!’ I say. McOther laughs and I get a little fizzy buzz from amusing him.

I would be so lost without them.

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Welcome to my world. Oh look! It’s like a car crash only less pretty …

Last week I was talking about being organised.  Remember that. Mwahahahrgh! Yeh. I did mention, I think, that it’d be a while while I set my house in order first? Mmm. Looking at my schedule, it’s going to be quite a long while even for a normal person. But a good day, for me, is like the aftermath of a multiple car pile up. Messy. And then there’s the weird shit. Take yesterday. Yes, actually, take yesterday, I’d like a new one because it was dreadful. I’m just going to dump the day’s events here, wholesale, to give you an idea of what I’m up against.

For heaven’s sake!

Yes, let me share a glimpse of what my life is like; day in, day out. It all started earlier this week, Wednesday, I think when my Fitbit app started acting very oddly. All of a sudden, it was labelling today’s stats as completely blank, while the day before’s stats – the yesterday section – that was actually showing today’s step total etc. It was weird but I could still understand it so like the plug-in hard drive that my computer won’t read since the spring 2017 update, and like the printer I bought after Window’s decision that I didn’t need to be able to print pdfs anymore, and still haven’t set up, or my computer’s sudden – yet random – habit of arbitrarily closing down all open programmes without saving anything when I put it to sleep,  it wasn’t worth the time and effort sorting it out.

Come Friday morning I wake up, muzzy-headed and gritchy throated with pending cold and discover that it’s 7.33. That is 33 minutes after the alarm on my phone is supposed to have gone off and woken me. Never mind, all is not lost. I eschew any waking up time and leap straight out of bed, never something that puts me in good spirits. I rush to the bathroom to do my ablutions and head back into the bedroom to get dressed. I set the alarm alarm on my phone to go off at 8.50 so I can snooze it and it will keep ringing each 10 minutes. I have no sense of passing time, so if I don’t do this, I will get engrossed in something and suddenly realise that we are all still at home and it’s five to nine.

As I try to set my alarm it keeps saying it’s going to go off in six days’ time. Why the hell is it doing that, I wonder. I check. I’m setting it for ten minute’s time. Why won’t it chuffing set for for this morning like I’m asking it to. I go do something else, come back and the phone has locked, when I look at the lock screen I realise it is displaying the day and date as Saturday 13th January. My alarm didn’t go off in the first place because it’s set to go off from Monday through to Friday and the moronic sodding phone thinks it’s Saturday. Likewise, setting my alarm for 8.00 on a Friday won’t work.

Because it’s Saturday.

According to my phone.

Except it’s not.

Great, so now I will have to set the alarm for Saturday. No wait I really can’t be doing with this. Maybe if I turn it off and on again it will reset? What’s the worst that can happen? Oh yes, that the phone stops working and I lose my Mum and Dad’s banking app for ever. I did drop it in a car park before Christmas, and someone had driven over it and cracked the screen before I managed to find it but hey …

Hoorah it is OK. See the time, the weather app refreshed, 19.04 on 12th except it was the eleventh because this screenshot was taken on the 12th at the time shown the top right hand corner; 15:02. Yes, my weather app went into the future and refreshed itself.

No. It’ll be OK.

Are you sure MT? This is you, after all.

Yes, what’s life for if you can’t take risks now and again.

Sure enough it reboots but nothing goes wrong! Now it’s Friday. I set the alarm to get my 10 minute count downs and carry on. Downstairs, grabbing a hurried breakfast I lay out some vitamin pills and nip through to McMini with a bowl of cereal. When I return McCat is on the counter.

‘For fuck’s sake Harrison! Get off there!’ I shout.

He complies but he trots away with that special fast, I’m-not-running, there-is-nothing-to-see-here trot which means he has something he shouldn’t have. Sure enough he stops in the next room and puts something down that he’s been carrying in his mouth. One of my vitamin supplements. It’s some kind of essential oil but I’d laid out three different ones which come in identical capsules so I haven’t a blind clue which one. The cod liver oil capsule, I assume.

Later, buying cat litter at the pet shop the lady there and I had a bit of a giggle. She told me,

‘He’s definitely in the wrong body, that’s not a cat you have, it’s a dog. Still, maybe he thought he needed a more lustrous coat.’

The day didn’t improve. I had two skeins of wool which I decided I’d make into a pussy hat. I should have known that today was not the day to try and unravel a skein of wool shouldn’t I? I mean, why did I even fucking try. On I go, tosser that I am, and try to do it anyway. I even googled doing it right, hung the skein over a chair the way they tell you but I got this:

That’s fifty metres of wool there, my lovelies. I would buy another one but it’s silk and merino. Not something you think about buying twice. So over the next year and a half I’ll be unravelling that bastard in my spare time. For now, if anyone wants to hire a clown wig …

Yeh. That’s M T McGuire when she’s following the sodding instructions; using the back of a chair to hang the skein of wool over, winding it carefully onto one hand. What I didn’t realise was that the bloody thing was already knotted beyond help so when I started winding it just tied itself into the gargantuan Gordian knot you can see there. At first I couldn’t even find the other chuffing end so it was taking ages to tease out each loop and pass the ball of wool through. Finally I found the other. Then Harrison intervened and now I have four. All this because I want to knit a pussy hat but hate pink, so I thought light pink and the kind of pink that is, essentially, red, would get the message over without being all pink and I’m-a-girl-therefore-I-like-pink and fucking … PINK. Knob that I am.

On the up side, when I scolded the cat he did get the hint and he went away. Mummy is being both boring and grumpy while shaking the biggest and most exciting cat toy ever.

I’ve given up on the bloody thing for a while.

Actual plans for January …

Yes, I did have some.

However, unfortunately January is very busy with trying to catch up with all the shite I didn’t do because it was Christmas. There’s this quarter’s parish magazine – not going to happen until early February I’m afraid, and I promised I’d write a children’s picture book by mid January! Why in the name of God did I think I could do that? And of course, there’s all the pissy admin like putting all the dates of our holidays and term times in the diary in the kitchen and the one on my phone. Want to know how long that took? One and a half hours!

One and a half effing hours!!!! This must be a special skill. I’ve not even finished.

Now, I have to book the cattery for all our holidays and put the drop off and pick up dates in the diary. Aaaargh. And then there’s booking a baby sitter for the inevitable Christmas Party that one of McOther’s clients or another will always have – and yes, are having – this January. And not forgetting windows borking updates.

And I still haven’t done my tax return which has to be done end of January. Two years ago, I opted to do this online which is the stupidest thing I ever did. Sure I have until January to hand it in instead of October but actually October is easier, I have more time then than I do now. Also, if you fill in a paper form, then, if your income is under a certain amount – and mine very much is – you can fill in a short tax form. The online form is the long version. Fifteen pages of questions most of which are so incomprehensible to me they might as well be printed in a foreign language. All with the exciting frisson of knowing that if I get one wrong it’s a crime, my solicitor husband will be struck off and I’ll probably go to prison. Thank heavens the help line is helpful, even if there is a hefty wait to get on.

Then there’s the deadline aspect; miss the January deadline and I’m screwed, it’s a £100 fine but I am already at the point where HMRC will not be able to get a new password to me or unlock my access to their website should I discover I’ve lost my password and am unable to get onto it (they say it takes up to four weeks). That also adds to the excitement. Yes, of course I meant to do it last month! And the one before! But with all the joyous task of filling in those bastard Lasting Power of Attorney for Health forms and preparing for bastard Christmas it was impossible. Short of pulling an all-nighter, there was no time left to do it in.

Organised people won’t understand this but then organised people don’t have phones that tell them it’s tomorrow all fucking week and they probably have time to work out how to get Windows to install security updates but not the other periperal-destroying shite my version insists on adding as well.

Then there’s Dad. Dad is becoming increasingly surreal. On Thursday one of our lovely carers, Aimee, took Mum and Dad to the dentist, where Dad announced, loudly, that Mum was his mother, Aimee was his girlfriend and that although there was a bit of an age gap it was OK because he does have a ten inch cock. Jeez someone is going to sue us before long, and we will counter-sue for discrimination against someone with a disability. Luckily the folks in the dentist, like the folks at the garden centre and all the other places where Dad has been inappropriate are OK with it. On a lighter note, I discussed this behaviour with Mum and Dad’s doctor on Thursday morning. He was telling me that he had to prescribe medication to stop some of the gentlemen in the dementia wing at the local care home from making improper overtures to some of the lady inmates. I guess when you think you’re eighteen but are really an octogenarian with the social niceties of a toddler that’s what happens.

God help us.

And now, as I sit here and type, I look down and realise I’m wearing my jumper inside out and have been for half the day. Head, desk.

Every single fucking day is like this. Frankly, I’m I consider it a victory if I get enough of my shit together to dress before dark. And it’s not going to improve. This is a short term. Five weeks either side of half term. In other words, there will not be time to sort all this bollocks out before the wooden spoon is inserted back into my brain and everything is given a good old stir.

So to put it in pictures …

Planned MTM January.

Obviously … but I’m a realist.

Type of January MTM would settle for.

Yes, I would settle for this, I mean, it’s a bit stringy but it’s tidy and it’s all there.

How MTM’s actual January is going so far.

See illustration, left.

Status of MTM’s efforts to catch up: Exactly the same as day one.
Progress achieved: Zero.

Hey, it’s January, let’s see more people and do more things and catch up after being away for Christmas!

NO! Fuck off!

So there we have it. Clearly, I’m going to be spending January and February firefighting and catching up. Ho hum.

Here’s to the start of the MTM New Year in March, then.

Thank you for reading. If you have been trying to organise yourself this new year, and, like me, have had the wheels fall off your efforts before you begin, I hope this has given you a laugh and cheered you up.

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