Tag Archives: dementia

Well … that was weird …

Lancing Beach. Just to throw you when I’m talking about Suffolk beaches later. Some guy found a gold coin here.

A strange week all round. I was going to share some of the questions and answers I’ve been doing with Gareth, because they are hilarious but a couple of bits happened that I thought I’d share instead.

First up Mum. As you know, Mum has dementia. She passed the NHS memory test with flying colours but then, everyone does. My Dad did, even after his diagnosis with Alzheimer’s in 2012 As far as I know, they were still giving him this stupid memory test until 2017 – because nobody told us or the Doctor about his diagnosis until then so we still didn’t know what he had – and he was still passing the bloody thing with flying colours. It’s not just the patient who is in denial for ages when dementia rears its head, it seems. The NHS also.

As well as dementia Mum has arthritic knees. A while back, in 2015, she had them looked at. The surgeon thought a new knee would be too complicated and that the requirements of the recovery process too taxing but they did give her a new hip, which she also needed. To be honest, I think the knee was more the problem but half was better than none and it did remove a fair chunk of pain so that was good.

Off I go wandering from the topic again … back to the point … the result of not having had her knee done is that Mum has one particularly dodgy knee which tends to give way on her. The other day it did and she ended up on the floor and hit her head – I blogged all about it here. Quick recap: because she’s on blood thinners, she had to go to hospital and have a brain scan. She had to go in alone because … Covid … which for someone with dementia who has banged their head, is not ideal. They were great with her, though, and she did well too. They took her in at three pm and was ready for collection by six. But she explained that her knee had given way and she’d grabbed the nearest thing for support which was, unfortunately, a door handle, so the door opened and she slid gently to the floor where she ended up wedged in a small space and so she couldn’t get up.

Having had this mishap, I thought that maybe it was time to get her something a bit more stable than a walking stick to use in the house. A Zimmer frame wasn’t much good as she’s quite frail and couldn’t lift it. She uses a fold up thing with wheels and a seat when she is outside which, I believe, rejoices in the name of a ‘rollator’. These are great because the wheels make them easy to push, the seat provides welcome respite from standing too long and they have breaks to help you control them. This one is ideal for outside but she needs one that’s smaller for use in the house. I had a look … God bless the internet … and found some that I thought might do.

Three Wednesdays ago, I sat down with Mum and the Carer and we looked at three wheeled light weight rollators. There wasn’t one with a seat, well there was but it was about £200 but I found one with a bag that she could use to get from one part of the house to the other. She can still put the secateurs in it lay flowers across the top of the bag etc. Having found it, I showed it to her and we had a chat and she decided it might be a good thing to have so I ordered it, there and then.

A week later and one of Mum’s carers found one that another lady wasn’t using. It wasn’t light weight but she thought it might be useful. I agreed it might be and suggested she bring it round and I’d cancel the other, except of course that the other then proceeded to arrive. Usually when you buy these things you get an email saying it’s been despatched. In this case, we didn’t. So it turned up without warning.

The Carer looking after Mum that day opened it, set it up and Mum … went into orbit.

I kid you not. She rang me, incandescent with rage, asking what the blazes I thought I was doing buying stuff without even consulting her. It was rubbish anyway, she fumed, because it doesn’t have a seat. How could she sit and talk to her friends if it didn’t have a seat?

I tried to explain that it was to use in the house, to replace her stick because it was more stable but a bit more compact than the one with a seat which she uses outside. There was no point in having it then she needed to do various things with it and without a seat she couldn’t.

‘But your stick doesn’t have a seat …’ I said.

‘No and so I can only sit in the kitchen or the drawing room because I can’t get in and out of the chairs anywhere else.’

Fair point but she doesn’t go anywhere else and she uses a shower stool I bought her (God bless you second hand shops in Galashiels). Sometimes though, Mum’s now is not the same as ours. I think she was at some point where she needed a walking aid but was still quite spry and doing stuff about the house. Things like cooking, and sending and replying to emails on her computer. She hasn’t done any of that for ages. I hadn’t properly clocked that her perception of when she is is changing, or how extensive her dementia is because she’s still so normal to talk to … usually.

I asked her if it might not come in handy?

Anyway, She told me in no uncertain terms that it bloody well wouldn’t, that it must be packed up forthwith and sent back.

After gently explaining to Mum that we had ordered it together and that she’d had a very hectic week and must have forgotten, she finally simmered down but wasn’t keeping it, oh no,  she wanted it sent back and replaced with the version that had a seat. Now.

This is where I cocked up. The way you do this with a demented person is not to set them right on the facts, you just say, ‘oh dear, they’ve sent me the wrong one,’ or ‘oh dear, how did I manage to order the wrong one,’ and leave it at that. It would have saved a lot of angst filled explaining.

Never mind, let’s get on with it shall we. I’d bought the thing online with her debit card, because I have power of attorney, except the bank don’t know that or they won’t give us a card so I did it pretending to be her. Easy then, I’d ring them up and sort it out but … they were not answering the phone unless it’s really urgent because … covid. Ugh. So I emailed them. Yes they would take it back. No they would not be able to replace it with another one with a seat, have me pay the difference and swap one for another. Oh and the cost of return would be £16.

Sixteen quid! The fucking thing only cost £48.

Bollocks.

The Carer who’d found a similar one hadn’t brought it round yet and seeing the chat about this on the … well … chat, she asked if she should.

‘Yes,’ I said, ‘but hide it, she may come round to using it. We’ll have to see.’

In the meantime, since the company that had sold me the new one didn’t have the one with the seat in stock I just thought it best to hang fire for a bit. The carer packed the new walker away and hid the box away where Mum wouldn’t see it.

Two weeks on, and during this week’s visit, the Carer told me that she’d managed to get Mum to use the second hand one for a bit on Monday but she’d suddenly refused on Tuesday. I thought I may as well give it a go, so I wheeled it in to the drawing room and asked her if she’d like to try it. She quite liked it but wasn’t sure because … well because she uses her stick to pull things closer, pick things up, press buttons and light switches she can’t reach, point at stuff etc. That said, after a short test run during which she really quite liked it, I left her with it by her chair.

Thursday morning and she told the Carer how wonderful it was and that maybe we should get it cleaned up.

‘We could but d’you know Mary ordered you a new one, I think it arrived the other day.’

‘Did it?’ Mum asked.

The Carer said that yes, it had and asked if Mum wanted it set up for her.

‘Oh yes please.’

Apparently it is now a hit. So much of a hit that, nine days on from ringing me in a fit of something approaching rage at its arrival, she rang me to say thank you and tell me how wonderful it was.

That, people, is dementia. Light and shade, rain and sun, on and off: random.

The obligatory seal pup picture taken on the beach I was actually at this weekend. 🙂

On a personal note, remember I did an entire day’s metal detecting without sitting down for lunch the other day? Yeh. Well that was a bad idea, I did my back in. It recovered after two days so, happy that all was well again I did more metal detecting on the beach (only for an hour and a half) went for a walk etc. We saw a seal pup and I took the obligatory Norfolk (well … Suffolk) coast seal cub picture. Awww or what. Then we went and had supper at friends. At which point, back fully recovered, I was able to remove the pain relief pad while I was there and felt oh so much better. What a relief.

Or not.

The next day, the back pain was back a little and starting to get a bit worse, but nothing major. Thursday morning. Arnold’s dingleberries! It was hideous! Friday; also hideous, and even today it is still evil. Needless to say the first day anyone who might be able to fix it can see me is Wednesday next week. Of course. And needless to say the first day I can see anyone is Friday. It could be worse … I had a club dig scheduled for tomorrow, which I don’t think I’d have been able to go to, and now I have a week to get better, or at least, well enough to do an afternoon of metal detecting without three days of scream ab-dabs afterwards.

The pain levels have been pretty grim. Up there with breaking my collar bone in the constant nature of the pain and, when it has subsided a little, the ease with which the slightest of movements will set it off. Also, at the risk of being a bit personal here … weeing. Or more to the point wiping. Fucking hell that hurts. How, in the name of the almighty do women with chronic back pain wipe their arses every day? Is there a lot of screaming? Is there a … surgical device? Jeepers. It’s alright for you blokes, all you have to do is wave it about a bit and shove it back in your trousers. We ladies have to get our hand a great deal further round and fuck me that smarts. I never thought I’d envy the ancient Romans their communal loos with the sponge on a chuffing stick, but frankly, even the prospect of wiping my personal bits with device of dubious provenance that had been used by multiple others – and probably not washed particularly well – would be preferable to the pain of doing it my bastard self. I have, at least, reached the point where I don’t dread going to the loo but it’s still about as much fun as sticking cocktail sticks into my own eyeballs and possibly slightly more painful.

Yeh so … maybe little bit too much information there. Yeh. On that note … I’ll leave you. Don’t have nightmares kids.

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If you need to take your mind off that last paragraph …

You could always pop over to Kobo or WH Smith and download my latest audiobook from the Kobo Sale. It starts officially on 9th September but it has been reduced from £5.99/$6.99 to £2.99 and $3.99 the kobo link, among others, is on this page … here.

Small Beginnings is not quite out at all retailers but getting there … slowly. More on that story … here.

Read by Gareth (The Voice of K’Barth) Davies to the usual extremely high standards. If you want to see what it sounds like, you can catch a listen to Chapter 1 from my soundcloud page here. Or click on the picture.

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Dementia too, because obviously dementia once wasn’t shit enough

Yeh, I selected that heading from Whiny Titles R-Us but it does sum up the way I felt at the start of this week and the feeling I’m trying to describe.

The slough of despond; rain and yellow lines …

Bits of this week have been tough. I’ve had a couple of down days, mainly because I suspect I have had a mild UTI but also it’s the time of the month when I can’t remember my own name without cue cards. Worse, I’d forgotten to put the morning HRT gel on for two days running and that does make a difference. The traffic is back to normal so there has been the usual 40 minute delay along the bottom of the M25 on the way to Mum’s. This last two weeks, the journey time is back to three hours down and two and a half back, so long as I am on the road at half two sharp.

Worse, I’ve been finding it really hard engage with Real Life. To care about the little things that other people need me to care about. Silly stuff. McMini’s bedroom curtains need hemming but it’s difficult to do that while he’s in there with them attending his virtual lessons. It’s the last day today, so that’s fine, I can do it tomorrow, but it’s been a long time and both he and McOther have been eyeing them impatiently. Meanwhile, McOther has a favourite beanbag. The material is completely rotten and sewing it up is a thankless task that I have to repeat every three weeks or so, unless he does it. It’s bust again and so the choice of thankless tasks was twofold: try to get him to understand that the material is rotten, which, itself is a hiding to nothing. Or I fix it again when I know it will break in a few weeks. But fixing it is a duty of love, so perhaps it’s a bit less pointless than it seems. Quietly, without saying so, I know McOther feels unloved if I say I’ll fix it and then take ages to deliver. It’s not good to feel so meh I can’t do anything. More on that story later.

This Wednesday, then, I was not in the right place to drive 288 miles, not even in a Lotus. I felt unbelievably meh. I was teary about the state of Mum, teary about the state of myself and feeling miserable. Then the radio proceeded to play some of my favourite songs. Things which are in my record collection but which I haven’t heard for ages because most of my music equipment assumes that anything I’ve ripped from my own CDs or vinyl is a pirate copy and refuses to play it.

Hearing all these songs again, it seemed that something out there in the ether was trying to tell me to cheer up. Finally one of my very favourite songs as a teenager; Big In Japan, by Alphaville came on. Despite being in very slow moving traffic jam, the gauntlet was thrown down. I was going to sing. I rolled up the windows so, in theory, nobody would hear me, jacked up the volume and joined in. This involved full on pop star style gurning and a selection of ridiculous hand actions, I kept going, even when everything started moving. There’s nothing like giving zero fucks to cheer yourself up, and it did, at least for long enough to realise what was wrong.

You see, lockdown was quite easy, it was like a little six week holiday from the administriviative  shit. I worried about Mum but I rang her every day and I didn’t have to go anywhere or organise anything except my books! I just hung out with the McOthers and sat around in the sun writing. Woot.

Pseudo lockdown is insanely difficult. All the admin has returned with a vengeance, except because of Covid19 it’s about six times harder to do all the things you should be able to do by making a phone call. It’s the hard bits out of Real Life plus extra duties of lockdown, like the calls. All the hassle but none of the convenience. I did manage to get the scan I was due at the hospital but now I need to try and get the cat some shots. As usual, every piece of admin which should involve nothing more than a phone call involves several, and a protracted, drawn out effort, posting things, sending things. Case in point, I’ve just stuffed up my chances of opening a Barnes and Noble vendor account by transposing two numbers in my bank account number. It’s gone into ‘pending’. Probably forever. I can’t change it and I know their help desk is offline until after covid. I think they’re the only site where I have to have a W8EN still too. Everyone else you can just add your tax number and it works. I don’t know much about it but I suspect I have to get another W8EN as mine’s probably expired. Sadly, I do know that this is a great deal more complicated than it was because Americans don’t really understand what a sole trader is.

Meanwhile Mum is still shielding so she can have a few people round but not everyone. The lady who cuts her toenails has started coming again. Yes, when you’re old and arthritic you can’t do that anymore and you have to have someone come and do it for you. The lovely lady who cuts her hair came and gave her an appropriately socially distanced ‘do’ this Wednesday as well.

However, a lot of her friends are shielding, too, or can’t come to see her because she is, so she’s still bored stupid. Hopefully, as the small things that structure her life return, like the hairdresser visiting and the foot lady, she’ll gradually be more grounded again. Just as Dad did, she thrives on social interaction. My fingers and toes are, therefore, crossed. Although I have to accept that there is no guarantee of this. Because I think the main source of my malaise this week was realising that Mum is going to take the same path as Dad. Her own version, but the same horrific journey into oblivion. And I’m going to have to walk beside her; because I love her, and because, if I want to be a decent human being, that’s what I must do.

Please do not feed the animals

As we take these first steps, I guess what struck me down, temporarily, was the renewal of that familiar pain. It still hurts. Even though I’ve done it before and I am aware of the cost. I should know by now. I should be strong. But I’m not. I really wonder if I have the courage to do this a second time. I don’t want her to die, I don’t want to lose her but I pray that she will enjoy a kindly easy passing before it gets too bad. Yet, at the same time, I know she won’t because that might actually be kind to all of us and God forbid that my family should be shown a scrap of mercy over this. Instead, it seems life brings whatever will cause the maximum amount of misery and pain to all of us. Sorry Mum.

I have wondered about consulting my doctor and seeing if some medication might be in order. The trouble is, I’m pretty certain that any kind of medication for depression will merely make me even more forgetful than I already am. And since three quarters of my insane frustration is with my inability to remember a single fucking thing for more than about two and a half seconds, I suspect it would be a bad idea. And anyway. I’m not depressed. I’m sad. There’s a huge difference. When Dad died, there was grief but the sadness went away. It was a liberation.

Now that Mum is showing more acute signs of dementia, it’s back. If you wanted to present me with the perfect storm of things I am shit at dealing with, there are parts of my life over the last eight years that would be an excellent fit. I can do level-headed, clear thought in a crisis. Yeh, I can do that. But long, slow, sustained suffering. No. Not very good at it to be honest.

As I sat there, singing in the car, I realised that I’d started to withdraw completely into inner space. I lost myself in K’Barth, where my characters were suffering but where, I knew, eventually, they would be OK. I made them suffer in the faint hope their pain would somehow alleviate my own. I gave them a happy ever after in the hope that maybe if I did that, I could have one. This is an approach which works really well for me, but, unfortunately, not for those around me. That was another cause of the misery, the misery I was inflicting on my very much loved McOthers. Withdrawing helps me but it hurts everyone else. Small doses then.

As I drove, something happened. I don’t know how, but something in me fixed it. The blinkers came up again and I saw what I needed to see. I saw what was there in Mum rather than what wasn’t there. I stopped seeing drudgery and saw small acts of love. And I remembered that I have done this before. And suddenly, I slipped into the coping strategy. Short bursts of activity. An hour at the computer and then half an hour doing something else around the house. Tiny steps. 10 minutes a day. Pigeon steps, inching forward one tiny step at a time. Lists. Lots of lists. Each project broken down into manageable tiny items which are ticked off as they are done.

Don’t be a … or maybe do be one … or work smarter not harder … or something.

Lockdown was a luxury. Lockdown afforded me big chunks of time in which to write. My work came on in leaps and bounds. But lockdown is over. I need to see the me time as brief moments of something else among the admin. I need to see life as peppered with acts of love, which is what the housework side of stuff really is. Except it’s a horrible phrase … very ‘putting out love and keeping it there’ but until I can think of something better it’ll have to do. And anyway, because it sounds like fake Oprah, it’s sort of funny and that helps. As for the worry about Mum and the trying to sort things out for her. I need to call all that something different too. Same thing? Ah why not?

Duty is a crushing, heavy suffocating word, calling it an act of love makes it feel a lot lighter.

It’s amazing how, always, always, always, holding onto your sanity is about how you look at what’s happening, how you frame it to yourself. That simple switch and I’m cheerful again, and reasonably happy. I feel the weight, for sure, but it’s lessened. Cognitive Behavioural Therapy, is a chuffing marvel. If you are struggling with anything heavy and millstone-like in your life, I urge you to look it up. I never cease to be amazed how I can actually do a PR/Propaganda job on myself. I know what I’m doing, I know I’m just putting a different slant on it, yet it works.

You may consign the coping strategies to the past when you don’t need them, but it’s slightly miraculous how quickly they came back when you do. I feel better, a lot better. To be honest, I still don’t really don’t know if I can do this a second time. But there’s no point in wondering. I swam through the dark waters with Dad and came out the other side. I’ll just have to take each stage as it comes, strike out into the void and give it my best shot.

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If you are feeling a bit meh, yourself, you could always pick up a good book! Indeed, if you’re feeling really lazy you don’t even have to read it. Choose one of the audiobooks and Gareth will do that for you. Indeed anyone who signs up for my audio mailing list gets two books free; Unlucky Dip and Night Swimming. That’s two hours of glorious K’Barthan lunacy for zero pence. Yep! Night Swimming comes later on, although I may switch it so it’s the story people get first. It’s just that suddenly I have very little time so for now it’s Unlucky Dip first, then a week or two and Night Swimming.

Anyway, Gareth played a blinder on both but the really lovely thing about it is that Unlucky was the first one he did and Night Swimming is his most recent. You get to see what he’s learned in the interim. So there you are, if do want a listen, just go here, sign up and they should both arrive in your inbox over the course of about three weeks: https://www.hamgee.co.uk/audio1fb.html

Unlucky Dip Audio Book


If you do join in, and it’s not obligatory or anything, but if you do, or if you have and there’s any stuff you want me to ask Gareth about how he did the recordings, let me know and I’ll ask him.

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Dementia redux; rinse and repeat …

It’s a bit of a mixed bag this week. On the one hand, life is getting slowly back to normal, people are allowed out to visit other people and I have been visiting my significant family member: my mum, for two weeks now. On the other, I’m gutted. It probably says a lot about me that I am actually sad that lock down is ending. I’ve enjoyed the absence of traffic noise, the friendly waves at people, and the laughter as we try to make crossing the road to avoid each other look a bit less pointed! I’ve enjoyed the walk every day and I absolutely loved the bike ride I had round town along smooth deserted roads rather than squeezed against the kerb, buffeted by endless streams of resentful traffic.

OK so the lappers/boy racers in their souped up 500cc insurance punishment vehicles were still driving round, and round, and round, and round, and the blokes on the big bikes that corner like a waterbed and have an engine note that sounds exactly how I imagine a whale fart does, but everyone else had stayed at home.

There was a day, a week and a half ago, where the traffic picked up again and I noticed this horrible petrol smell in the air. After wondering what it was, all morning, I realised it was traffic fumes. It smells of traffic fumes where I live, the entire time, and I never even noticed that until it went away for a while and came back.

The pace of life in lockdown has been slower. I’ve enjoyed the company of my husband and son and having time to write. There is much admin I need to do but I can’t because it’s lockdown. Hoorah. Next week I’ll have to find some bloke to come and look at a wall at my mum’s, sort out a donation to the place where Dad’s memorial service was held and re-arrange shots for my cat, my and my son’s dental appointments and a whole host of other jizz which will suck in my time. On the up side, hopefully my writer’s circle will be able to meet for our next get together. That will be wonderful as we are, all three, vulnerable, so it will be great to get together again. It was also lovely to have a socially distanced encounter with friends last night.

That said, I think part of the slight feeling of malaise that rested on the beginning of this week was about Dad. You see, after a year, when someone dies, you have a year’s mind. Which just means you think of them in church. Dad’s was last Sunday. I wasn’t in church and that was a bit sad. So sad that it caught me completely off guard. As I sat in the garden live streaming a service from somewhere, I burst into tears. After a while it wore off but I never shrugged off the sadness throughout that day. I should be remembering Dad, like properly, with prayers and things. In a church. But that was probably as much about how important a weekly bout of quiet time interspersed with the singing of hymns at an anti social volume is to my mental equilibrium.

Later that day, we had a zoom chat with friends which, strangely, left me feeling even more isolated. I’m not sure why, and then when I hit the shower, I started blubbing like the giant girl I am and couldn’t stop. I’m a firm believer in letting these things ride their course so I let it all hang out for a while and finally when the flow appeared to have slowed up enough, I put my jammies on and sat on the bed.

Vimy Ridge 100 years on

There’s usually a reason for outbursts like this so I like to try and work out a plausible explanation. Understanding it helps. It’s not going to stop weird stuff like that from happening, but if I can put my finger on a bona fine reason, it’s less scary. Partly it was a simple case of missing Dad. The further away I am from the well-meaning but cantankerous, Father Jack-like gentleman suffering from Alzheimer’s the closer I become to Original Dad. I shouldn’t say that both Dads were real, but one was the original and the other was like bad archeology. A wild guesstimate of the man constructed from the things that were left.

But the other thing I was missing was my mum. I realised that I was mourning for her as much as for dad. Lively, smart funny Mum, who read all my books, who knew all the family history, who could cook better than most of the restaurants I’ve visited. Mum who had a garden full of people, ‘you can’t cut the head off that, it’s Betty Leigh-Pollet’ she used to say when Dad demanded that a bush in front of the window be cut down so he could see more from his seat in the drawing room.

Now, on bad days, Mum has reached a similar stage of anchoring herself to the TV, as if it will keep her alignment with space and time. She now sits and gazes out of the window. She has issued orders and Betty Leigh-Pollet’s head has been cut off without a second thought, and ‘Betty’ looks none the worse for her experience. Mum’s forgotten who all the plants are. Sometimes she remembers, other times, only that she got them from somewhere, sometimes she’ll say that she got them from … ‘that nice woman, you know the one, lives up the road, had a husband called Roger who dropped dead in the garden.’ Sometimes I’ll be able to tell her, on the back of that, who she got them from, other times, I won’t.

She’s forgotten the things she couldn’t do. She’s back to fretting about earthing up the potatoes but at the same time, understands she can’t do it. Not because she’s remembered that she isn’t supposed to be digging like that, but because she still remembers that the potatoes are in a part of the garden that’s out of the range of her emergency help button.

‘How old am I?’ she asked me the other day.

‘Eighty seven,’ I said.

‘Good heavens! Am I really, I can’t be can I? What year is it?’

‘It’s 2020, Mum.’

‘Goodness! I thought we were in the 1990s.’

Mum hasn’t gone at all, she’s still very much as she was, but the changes are beginning to take place. Last week she told me she’s voted conservative all her life, she has no recollection of the fact she’s voted green in every election since about 1996. It’s weird. And it makes conversation interesting because I never quite know which Mum I’m going to get, the sharp as a whip, switched on Mum or the one who is convinced she and Dad bought their house for £40 in 1986 (they bought it for a lot more than that in 1972) and thinks I lived with her and my uncle during the war.

Sometimes, she’s more than much-muddled, as she calls herself – or very much-muddled on a bad day. She’s started having strange ideas, bizarre theories. Suddenly, after telling us, for years, that she’d like to stay in her house until she dies but that, after she’s gone, though it’ll make her sad, she appreciates we may have to sell it, she’s started talking about changing her will so the house is left to her oldest grandson because, ‘it must stay in the family, it must be protected.’ The point is moot, since selling it isn’t an issue and anyway, she ordered me to activate the power of attorney over her finances some time ago, which I did, because no way is she in control of enough faculties to change her will. But it’s kind of strange.

She’s been telling me she wants to take on an extra gardener because the lovely couple who are doing the garden for her at the moment, ‘can’t cope.’ One minute she is telling me the garden looks better than it ever has, the next she’s telling me that the drive must be tarmaced because it has grass growing up the middle. I did finally get to the bottom of this. She is worried she’ll die before her current gardening project is complete. It’s been delayed by lockdown and although she understands about lockdown and what it is, she’s kind of forgotten why the delay has happened and how to apply it to the garden.

Interestingly, she has been a bit more imperious with her team, too. Apparently there’s a lot more, ‘I want’ and a lot less, ‘could you please …’ I don’t know what to make of that. What I have ascertained is that she’s nervous, in some ways, but not afraid to die, and not afraid of dying alone. She’s worried about dying before the garden is ‘finished’. Although it looks pretty fabulous to me.

We’ve had the conversation about coronavirus. If she gets it she’d like to stay at home but she appreciates that she a) can’t look after herself and b) can’t expect others to put themselves at risk to do so … not even my brother and I, because we have small children who need their parents to stay alive. So she’d have to go to hospital and die alone. She’s totally alright with that. ‘I have a faith and John’ (Dad) ‘is waiting for me.’ It’s still a grim conversation to have but the point here is, that she can think stuff through, a lot of stuff, but not all of it.

She’s OK really, so what was I crying about? Well, it’s like this.

When your loved one gets dementia there’s a horrible dichotomy. On one hand you don’t want them to die because a lot of them is still there and you love them dearly and you want to spend as much time as possible with them while you can. On the other, you want their suffering to end (and yours, watching them suffer) and the only way that can happen is if they snuff it. I don’t want Mum to die. We still have wonderful conversations. I want that to continue. But at the same time, I’m exhausted, so exhausted with looking after Dad, her and Dad and now her. I’ve driven to Sussex every week for five years now. It’s nothing compared to what other people do, living alone with a profoundly demented person, being their sole carer for years with no let up, no break. It’s no surprise that, in couples where one is ill and needs cared for, the ‘well’ one nearly always dies first. But the fact is, for all the knowledge that I have it easy compared to most people in this position, I, me, find it hard. What’s more, my struggle is no less valid for being easier or harder than that of others, just as theirs is no less valid for being different to mine.

Another thing that may have hit me broadside is my position along the arc so to speak. You see, there are certain stages of the dementia journey.

Stage one is the place where your loved one is a bit forgetful, but functioning pretty much as they always have mentally. Stage one is the one where they suddenly forget the recipe for something they’ve made every week since you’ve known them. Or you get a all in church and rush out to find Mum calling in a panic on someone else’s mobile phone to say that she can’t remember the burglar alarm code. This is the stage when you can tell yourself it isn’t anything odd, it’s just ageing, a slight aberration.

When they are in stage one, you bury your head in the sand. It will be OK. It will be a long time before it gets really bad. They will die before they hit stage two. But deep down, even though you are hoping and denying your arse off, you know it’s more than a bit of vagueness.

Stage two is the place where your loved one starts to be a so forgetful it might be dangerous. In Mum’s case it was Christmas 2015, when one of the people who used to come and sit with dad arrived to find both my parents sound asleep in the drawing room and the turkey giblets, in a pan, in the kitchen, on fire. Mum had put them on to make stock and forgotten about them.

The worst part of that, as far as she was concerned, was that she really liked that saucepan. The lovely man who looks after their garden managed to clean it so it could still be used but something had happened to its bottom and it was never the same again.

This is the worst stage, in some ways, the one where you know they need outside help but they refuse to accept it. When you can see the storm clouds gathering but don’t know when or where the rain is going to fall, only that it’s coming. They want to remain independent and you want to let them for as long as possible but there is the very real chance that if you don’t get someone in to check up on them several times a day they will die in a gas explosion, a roaring inferno of their own making … etc … In Mum’s case we were unsure if it was a kind of senior baby brain from dealing with Dad, or a problem she had. Either way she was going to die from exhaustion looking after Dad or they were both going to die from her own hand from left on gas or something similar.

Stage two is the hardest part, where you have to convince the person with dementia to get someone in to help before the shit hits the fan. I failed, the shit did, indeed, hit the fan. I had to drive to Sussex at four am (the second of three midnight mercy dashes). I had one hour’s sleep and then I had to look after both parents, who could do little more than sleep and ask for food at various intervals (like two baby birds). My parents ate a lot of meals too, breakfast at nine, lunch at one, tea at four – usually approximately thirty minutes after the last of lunch had been cleared away – and supper at seven. Then, I had to spend two nights sleeping with my Dad while Mum was in hospital, which meant waking up ever 40 minutes to make sure he got to the loo and back without falling. We had some lovely chats and he was so sweet, but I was dead on my feet by the time I handed over to my brother!

We got someone in after a week to live with them. That’s when the extent of Mum’s dementia became apparent. She had enormous trouble adjusting to a situation she’d have breezed through even six months before, because she was already suffering from memory problems of her own. One of the things I particularly remember was her absolute adamance that it was the Carer who had burned the saucepan rather than her. She berated them for putting things away in the wrong place and not ‘where they’d always lived’ but ‘where they’d always lived’ was a fluid concept depending on whether she was in the 1980s, 1990s 2000s or 2010s in her head.

Stage two though, you can still convince yourself that they’ll die before you lose them.

Stage three is when you realise that the person you love, who has dementia, is leaving you. It’s when you begin to understand that they are not going to die before you lose them. Because since you’ve already watched it happen to your father, sparing your mother would be far too merciful.

Stage three is when you realise that yes, you are going to have to walk beside them. Every. Horrific. Step. Because there’s nothing else you can do for them. And it’s the point when you realise how much, exactly, that is going to hurt you.

It’s the, ‘father if it is possible, let this cup pass from me,’ moment.

That’s what I was having on Sunday.

Stage three is when the person starts to become a bit different, they suddenly like different things or their version of events is suddenly wildly at variance with the real one they remembered. I hate pistachio nuts. But I thought you liked them. No, I’ve always hated them. This after them receiving a bag with pure delight two week’s previously and then opening the bag so you can eat them together like naughty children raiding the larder before lunch (although that’s Dad rather than Mum). They may cling to a couple of stories they remember and repeat them again and again. I have a couple of similar ones that I always add to the ones Mum tells. Do you remember when we did …? Oh yes that was hilarious and thingwot says you did it on x occasion too. Dear thingwot. Yeh, thingwot is lovely, cue long succession of stories about thingwot. That kind of stuff. It works a treat and always gets us laughing, which is brilliant. I thoroughly recommend it as a technique!

This is the place where you discover disconnects of which you weren’t aware: that your loved one thinks you grew up together, for example. That’s lovely because it means they see you as part of the things that make up their entire being. But tricky when you’re trying to pretend you remember what your great grandfather, who died well before you were born, was actually like. This is the stage when you have to face up to the fact that they are not going to die before it gets any worse, that you need to grasp the nettle, get care for them, sort out a lasting power of attorney for their health and finances and generally prepare for the total loss of marbles that lies ahead. This, with Mum, has been so much easier because we were able to keep on a lot of the care Dad had. And while Dad was a wanderer, Mum seems to be more of a sitter. She likes to go out into the garden and potter in the greenhouse, but she doesn’t get agitated and wander off, not yet anyway (hopefully never).

Mum is in completely denial. The doctor is too. He is prepared to get her evaluated but would like to start any investigation with blood tests. She refuses to have them. I’d like to know what type of dementia she has, but if giving it a name scares her, I’ll leave it. I think she’s a bit sort of … well it’s all dementia, who cares which type I have.

Stage three, and usually, you will still be in denial at this point, still thinking that life will be kind and the person suffering will carry on like this for years without any further deterioration and then die a good and happy death, before it gets any worse.

You will be wrong.

This is where Mum is now, I think.

What does it feel like? A bit less scary but still fairly horrible. I know I can do it because I’ve done it before. I know what the stages are but actually, I don’t know how this is going to take Mum. Everyone is different and she is definitely different from Dad. On the up side, she seems much happier and much more ready to accept that she has a terrible memory or sometimes, if required, that it’s us who are all mad, not her. Dad, on the other hand, never swallowed that lie. It would have been a lot easier if he had.

But even though it’s a little kinder, a little easier, it’s so hard. I’m tired now. So, so, tired. For a while there, I’ve had a window on what it’s like not to worry much and an excuse not to take any action (thank you covid for that small mercy). Certainly this time, I seem to have switched off and retreated under a big layer of scar tissue. That’s probably not very good for my mental health but shucks, whatever gets you through right? And it seems to be moving faster with Mum than it is with Dad and I guess that’s … kind of … a mercy.

Stage four. This is where there is now something unequivocally, definitely, bizarre about your loved one. This is where most dementia patients disappear from social life. Usually it’s because they start doing something embarrassing. But this is where socialising them can really help them and keep them enjoying life. Because they will be enduring every last minute of this horrific end. It’s your job to make it as pleasant as possible for everyone involved; them and you. It’s amazing what other people will put up with for the sake of the person they knew before. Try not to be afraid. Many people will understand, many bar maids will laugh along as your father asks them to marry him, and will join in the joke when you explain that he can’t because he’s not a Mormon and already engaged to all of his carers.

This is where you start getting some places used to the dementia sufferer and working out who can’t cope and who doesn’t mind. In our case, the local pub, the local shop and the local church were all brilliant with Dad as was his brother. Doubtless they will be with Mum, too. It’s really important that the dementia sufferer can still socialise as far as is possible, even when the disease finally claims their faculties. Far more people will be kind and gentle than will be shitty. Also, this is the stage where you need to try and evaluate what is and isn’t possible with their particular methods of dealing with life.

They may not sleep well, or at all and that will make their symptoms way, way worse. They may wander at night. Dad did both, although he wasn’t mobile enough to wander so he just used to have a jolly good go.

You might see some of the unacceptable shouty stuff coming out at this point. Not much, just enough to be hurtful. I remember Dad shouting at me to hurry up when I changed his nappy and also getting massively angry at having to wait for a crepe flambé. Cardinal sin committed there, no non-stick pan which meant I should have cooked all the pancakes first and then done the sauce and flambéing. I remember being so upset because he was still quite normal so this sudden total melt down over waiting a few minutes for a pudding was inexplicable – not to mention painful.

If you see any behaviour like this, it means you’ve reached the point where you need decide how much of that sort of stuff you can cope with. If you know you can’t take that, 24/7 now’s the time to scout out a good home and get the dementia sufferer used to the idea of going there. It is wise to choose a home ahead of time, wise but incredibly hard. But if they turn shouty then, once the anger kicks in you will NOT be able to look after them at home.

Brighton’s over there somewhere

This is the stage where they may go from being absolutely OK with the idea of dying to looking at death the way a small child would. This is also the stage where you need to accept that they will not be mercifully taken before the disease takes every last vestige of their dignity because that only happens to other lucky bastards. But it’s also a stage where, at the start, you may not yet be certain where the disease will go. Not everyone gets shouty or starts telling nine year old girls they’d like to fuck them. But now is the time you have to accept and plan for the fact it may happen.

Stage five is the one where it ends. They end up in bed with people coming to turn them once in a while and spoon food into their mouths or in a home. This is the stage where Dad came back to us because suddenly, he got some sleep. By the end of his spell in hospital he genuinely could have come home to us. Except he couldn’t, because he’d have stopped sleeping again and it would have all been rinse and repeat. So he want to a really lovely home, but a home nonetheless. He knew where he was and more to the point, where he wasn’t.

The hardest thing is that, throughout all the stages, you will find vestiges of the person’s pre dementia personality. You will never lose your ability to love and value them as a person. You will never ‘get used to it’. It will never stop hurting. Even though there will be times when they say really horrible, hurtful things you will keep loving them.

I’m not looking forward to stages four and five with Mum, but at least I have more of an idea what to expect. Who knows, maybe the disease will be kinder to her than it was to Dad. I can hope, can’t I?

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Sweeping the cat for tinfoil and other adventures …

Still no zombies … every cloud has a sliver lining eh? It’s quite surreal though, which means your world might be a bit more like mine right now … probably.

This week I have been mostly searching my cat’s guts for tin foil. Mostly, but not entirely. We’ll get to it. In the meantime.

Slightly blue this morning, I expect I’ve stuffed up my HRT dose, in fact, I reckon I’ve forgotten to do the evening one for a couple of days, although, needless to say I can’t be sure because I can’t remember. Mwahahaargh!

A big part of it is that, now we are in lockdown, I can’t visit Mum. Sure I ring her every day but that’s not the same. She definitely has some form of dementia and it’s definitely getting worse. At the moment, although she can’t remember which way is up or what day it is most of the time, she’s still able to follow a conversation and still retains her personality as Mum. But … I’ve walked this path before with Dad and I have to accept that it isn’t going to stay like that. I have to accept the fact that maybe, by the time lockdown is over, my Mum – my real Mum, I mean – will be gone. And that makes me feel incredibly sad. Indeed, I’d probably be blubbing a bit as I write this, but McOther is sitting the other end of the table.

It feels as if each week I will lose another few precious hours of time with Mum by missing our lunch. I phone her every day but it’s not the same, and I can see, or at least hear, her deteriorating day by day. I’m not alone. For example, hardly anyone with a loved one in a home is able to visit them right now. Some have family members in hospital who are stuck there, some have loved ones who were in a home for recovery after say, a new knee op, and they are now stuck there apart from the people they care for until this is all over. It’s mightily grim and we just have to live with it, but I guess I was just hoping, against hope, that I could squeak another visit in before lockdown this week. In the event, lockdown came on Monday night. The temptation to drive down there and see her on Wednesday was almost overwhelming and it’s only the first week.

Bugger.

Other news, I’ve finally finished going through the alts of One Man: No Plan on audio. This has taken me way longer than I expected because there are a lot of blips and half breaths in it which weren’t there in the first two – one of the reasons this has taken me so long is because I re-listened to the first two beforehand, really carefully, to check. Gareth has at least three other audiobooks to do, to my certain knowledge – there may well be more – so I have a little while before he’s likely to be able to look at the alts, and plenty of time to get the fourth finished.

I confess I was horrifically nervous sending the alts for the blips/plosives and audible breaths. I am not 100% sure if my noticing these things was gimlet-eyed helpfulness or pedantic twattery. To be honest, even after checking with some narrators I know on t’interweb who reassured me that any comments like that are always welcome, I’m still a little unsure. It’s a fun listen though, so I hope it all works out OK.

This week more excitement in Lockdown Towers. Run with me on this one, it does get to the point. I have a desk in our dining room. Underneath it is a bag of foil-covered chocolate sweets which I give out at book signings. There are three types, chocolate oranges, chocolate eyeballs and chocolate sprouts. They all come in plastic net bags of about forty. They are spherical, marble-sized and individually foil wrapped. I had two bags of orange ones, about half a bag of eyeballs and four bags of chocolate sprouts.

On Monday evening, just after discovering that we were all in official lock down, I decided that I would ameliorate the impact with chocolate. I went into our dining room, intent on liberating a packet of sprouts for consumption over the coming weeks. However, when I got in there, I and found four plastic net bags with holes in spread across the floor.

Uh-oh, I thought.

I checked the bag and discovered a hole had been eaten in it. Yes. There were teeth holes around the … other hole. Not my son then. Checking the other bags I discovered the holes in those looked more … chewed than cut.

Hmm …

Upon further exploration, I discovered that both the eyeballs and the sprouts were all but gone. The orange ones, however, had been left. They were still in their bags although one bag had clearly been chewed, small pieces of foil removed from the chocolates inside and a couple had teeth marks. These ones had been tested and found wanting then, worse tested enough for me to not be able to eat them with confidence. The others … 520 grammes of chocolate, minimum, had gone.

Turning to Dr Google, I typed in, ‘does chocolate kill cats?’

OK, look, I’m not going to blind you with the technicalities of science here but the basic gist of it is, yes it does. Milk chocolate is less poisonous but 520 grammes in one sitting is lethal. About 30 grammes in one sitting is.

Shit. Now what?

I was wearing my pyjamas. The vet was closed, I knew. That morning I’d had a dental appointment which had been cancelled pretty much as I arrived. I’d tried to buy some cat food from the vet’s on the way home and discovered that it was locked and the customers were all standing in the car park, 2 metres away from one another. McCat’s constitution is pretty bomb proof but I felt that a poison overdose of such gargantuan quantities might be a bridge too far, even for him.

OK, calm, breathe. He hadn’t started throwing up yet.

Then I remembered. I’d found one of the chocolate sprouts on the doormat the week before. Could McCat have been quietly eating them over the three month period, since the Christmas Fayre, that the chocolate had been stored there. Were the scattered string bags merely the culmination of several month’s pilfering, a last hurrah now that the lovely edible balls were gone … well except for the orange ones he doesn’t like.

McOther checked under other furniture but there was nothing to be found so it’s clear that all 520 grammes of chocolate sprouts and eyeballs – minus a handful – had been eaten. The one million dollar question was … when?

McCat. Butter wouldn’t melt would it? Not ill and no fucks given, clearly.

I had a think.

McCat clearly wasn’t ill at that precise moment. I began to wonder if a ready cache of chocolate might explain his greatly relaxed approach to food since the beginning of the year. Not to mention the recent resumption of his tendency to be less relaxed and obsessively request each meal a few minutes after eating the last one. But if he had just eaten all the pies chocolate, we needed to get him to a vet, fast. How to find out though, preferably before he started throwing up, at which point, it would have been too late, Dr Google had told us. That’s when I remembered my pinpointer and had An Idea.

The chocolate was covered in foil. He’d peeled some of that off, clearly but it was equally clear that not all of it had been removed. Some had gone down his greedy fat cat gullet with the chocolate. If he’d eaten them all in one sitting, nearly all the foil had been eaten too. This meant that he contained almost as much wrapper as chocolate and, that being the case, if I ran a metal detector over him the signal from all that foil would blow my ears off. The detector, itself was too sensitive, it would pick up nearby stuff as well and I’d never be able to narrow it down reliably. The pinpointer, however … that was a different case entirely.

Yes, ladies, gentlemen and everything beyond and in between, when you go detecting and you’ve heard a signal and dug a hole, should you have any trouble finding the thing giving off that signal, if it’s really small, say, you can narrow down its whereabouts with a pinpointer. This is good for me because I tend to dig in fields that are bristling with coke, which gives off a large and loud signal. As a result I end up ignoring big signals, because there are that many hot rocks in the fields on which I dig that I find very little else. The little signals, are a different matter, but the things you find are also little, and that means you need to pinpoint them, fast, or you’re sifting about in the clod of earth you’ve dug out all day.

That’s how I ended up with a pinpointer, and that’s how I ended up running my Garrett carrot over the pooh in McCat’s earth box – without touching clearly – along with the cat shit bin – not touching that either – and not forgetting his lardy stomach. Despite a hitch, to start with, when I realised it was picking up the nearby washing machine, I did finally manage to get him in a position where I could reliably detect any foil in his innards. There was none, luckily. We stood down. I didn’t need to get dressed, leap into the car and brave lock down to find a vet. What a relief for everyone.

How many detectorists end up searching their pets? Who knows but I’d guess there are more than we might think.

So that was my week, sweeping my cat for tin foil. I am agog to see how next week is going to out-weird this one.

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Why is life so fucking annoying?

Yeh, I know. There’s an eternal question if ever there was one. Not a great week so far. The chaos fairies are afflicting me with a vengeance. I literally cannot remember my own name, or the names of, for example, any of the ladies I go swimming with.

Everything seems to be a bit up and down. Good things happen but the frustration levels of every day existence are at an all time high. Why, I can’t fathom. I’m not sure if I’m feeling it extra specially at the moment. Maybe I am. I got the power of attorney over Mum’s finances back this week. I’ve been managing them for nearly four years, but this does make her vulnerability that bit more official. Maybe I’ve passed through the eye of the storm with the relative calm after Dad’s death, and it’s the prospect of going through something similar with Mum that’s hurting. I suppose that could be it. Or am just going through one of those phases when every single fucking thing that can go wrong does, at a point where I’m not quite as emotionally robust as usual? Hmm … could be that too.

Whatever is causing it, I’m afraid the irritation needs to be exorcised the only way I know how. Yeh, this is going to be a rant, although I’ll try to walk the line between a Basil Fawlty style funniness and poor little me. Apologies in advance if I fail on that one. And of course, as usual, there’s a certain amount of melodrama.

But seriously. Why does life have to be so fucking annoying? And why won’t the Chaos Fairies piss off?

First up, Mum’s electricity. She pays by direct debit but she’s over paid this year so they have told me they’re carrying more than £200 over to her next bill. So I have to ring them and ask for it back. At the time I phoned them, I had to do this with Mum so she could tell them it was OK for me to speak on her behalf. So yesterday, we duly rang and after pressing various buttons to navigate our way through the menu reached a message which said.

‘Our offices are currently closed for staff training. We apologise for any inconvenience this will cause. Goodbye,’ click, dialling tone.

NO, SSE. This is how it’s done,

‘We apologise that our offices are closed for training today but we will reopen on X date at X time.’

And you don’t leave customers navigating through all the bloody menus first either, wasting minutes of their precious chuffing time. Even a government department, like the Office of the Public Guardian, knows to tell you about that sort of stuff up front.

Second, I’ve been referred for a gym membership on the NHS, three months at a reduced rate to try and get my knees a bit better. Unfortunately, I sat on this for a while, I got it in the last week of November, just after Dad’s memorial. Two weeks before Christmas I rang to book an evaluation. I got an out of office reply message explaining that the lady was now away until after Christmas. I tried ringing, anyway. The answerphone message said that we would be contacted about appointments in the order we’d rung.

When the lady returned to work in January, I discovered that no, the appointments were not being allocated the way the message said, it was the usual free-for-all, post-Christmas gannet fest where the Normal Organised people ring and bag the appointments for the next four months within about three minutes of the lines opening and the rest of us are left with their pecked over, spittle-flecked remains. Bastards.

So now they’re taking bookings for February but the lady only works three days a week and of course one of them’s Wednesday. Sigh.

Double foiled then, in my efforts to get the booking in before Christmas and then in believing the message. I found this out when she sent an email saying she’d a few appointments left in January to everyone on the waiting list. I emailed back about the one I could do, which was gone, and she suggested I call and gave me the number.

I called the next day, and was told that they only had January’s appointments, that she’d already gone home and to ring the following day, which was Wednesday, of course. So I rang from Mum’s at two and discovered that she’d already gone home. The staff informed me that they’d lost the appointment sheet so I was best emailing her, I explained I had and she’d told me to ring them. They suggested I try a different email address, which bounced.

So I sent her an email saying, politely, and I hope humorously, ‘throw me a frigging bone here.’ I’ll try again on Monday. Who knows, some time in the next month, I might manage to swing things so that I remember to ring at a point when she’s actually there.

Third … sort of … Wednesday’s visit to Mum’s was good and bad. Mum was on form, but very tired after an extremely windy night – wind blowing round the house and garden banging things about, I mean, not Mum’s bum. I could go off on a tangent here about how much Mum and I laugh about farts, but luckily for you, I’ll leave that for another day.

Anyway, Mum was knackered so not as switched on as sometimes. And she kept falling asleep, which made it hard to have a conversation, but at the same time, instead of just relaxing and having a snooze, she was trying to stay awake, bless her, so she’d just drift off and I’d keep talking until I reckoned she’d gone off, get out my book and bing, she’d wake up again. So the conversation was quite weird because it happened in instalments and I had to keep reminding her what she was saying before she dozed off. At which point, on a couple of occasions, she dozed off again.

We had lunch, and it was pork chops. It was one of those days when the rinds hadn’t caught. I looked at the uncrackled rind on my plate and then at the fire, which Mum laid first thing, and which had lit itself, and was now burning merrily in the grate. It would be nice to have crackled pork skin, but we didn’t want to go obviously into the kitchen and put it in the microwave (brilliant way to crackle crackling is 1.5 minutes on high, however many times it takes). We didn’t want to do it because it might look like an oblique criticism of the lovely lady who’d cooked lunch. (Not overthinking this in a ludicrously British way at all, there, were we?)

We decided we’d try toasting the un-crackled crackling on the fire and after some reminiscences about Dad toasting crumpets that way, when my brother and I were small, I toasted both our rinds. The two of us giggled like naughty children as the rinds bubbled and spat in the flames. If I’m honest, I could have done with another foot on the toasting fork, but never mind, our skins crackled up beautifully and no matter how it might have felt, I was relieved to discover that my knuckles hadn’t.

So it was light and shade, but sad – especially as, of course, Mum still gets 28 out of 30 in the pathetic NHS memory test which seems to be constructed as a method of delaying any meaningful treatment for as long as possible. I’m guessing Alzheimer’s drugs are expensive. But whatever they say, she’s not alright. There is something wrong. And it may be vascular dementia but it may also be Alzheimer’s and if is Alzheimer’s and we knew, we could hold it back for a little while with treatment. The Doctor said he’d put her through, but she’d have to have blood tests first, and that he thought, personally, that she was OK. She’s said she’ll go with what he advises, sigh.

Meanwhile, fourth my car. One of its dipped headlights has been randomly turning on and off for some time. Serendipitously, I discovered, this week, that Kinky Winky, as I’ve been calling it, is probably the same trouble as last time. The £1,120 plus VAT part trouble. How did I discover this? Incidentally actually, during …

Fifth, my car ate my son’s sports bag.

Six, because of five I missed parents’ swim.

Bastard thing. It may look the dog’s – it may be the dog’s, it can proceed, axle deep, across a muddy farm yard and it ploughed through at least six inches of standing water at 60mph without so much as a twitch on Wednesday (driving in the dark with one headlight anyone?) – but aspects of it are ridiculous. And why does Kinky Winky have to afflict dipped beam? I probably used full beam for about five milliseconds last year, in 25,000 miles of driving. And driving with one light, well, when the person in front of you who’s overtaking suddenly slows up and pulls in … because he’s seen a massive puddle that you haven’t … that’s when two working dipped lights are a lot better than one.

Because I hit the massive puddle with McMini on board and two cars next to me. And the bow wave came over the windscreen. Tight lipped I hung grimly onto the wheel and kept accelerating, in the hope that I could keep the pressure of the exhaust coming out of the pipe higher than that of the water wanting to come in, and the balance of the car where it was. The ABS light came on to tell me that it was giving up on this one, but the car stayed straight and true. Which was good because with the two cars next to me on McMini’s side, any fishtailing would have ended badly.

We did get steam in the ventilation system though and the entire car fugged up, instantly. I had no meaningful clue as to the location of the traffic round me, although I knew it was clear ahead and that I was approaching a roundabout. Once there I was supposed to be turning left. Rather than try and pull in where I knew there were two cars … somewhere … I wiped a quick hole in the fugged up windscreen, opened my window so I could see, indicated right and turned left by going all the way round.

That was when I thought maybe I should get the Kinky Winky syndrome investigated. I should have known. I mean this is Britain, and if there’s one thing we do know about Britain, it’s that it’s fucking heaving with people. And they all drive. You know when you lift up a stone and there are loads of ants under there, rushing around with white eggs? Yeh, that’s Britain’s roads, except there aren’t enough bastard ants for this analogy to ring totally true. Our roads are a lot busier than that.

The only thing you can guarantee about driving in the dark here in Britain is that no matter how obscure or empty the road appears to be THERE WILL ALWAYS BE SOMETHING COMING THE OTHER WAY. If you are living in an obscure part of the Outher Hebrides and there’s only one other car on the entire fucking island, IT WILL BE COMING THE OTHER WAY should you decide to drive anywhere at night.

Yes. You’d better get used to driving with dipped headlights people, because if you think you’re going to be able to use full beam for more than a fucking millisecond per nine billion hours of night driving, you’ve another think coming. So yeh, completely missed the existence of a massive eff off puddle. Won’t be doing that again.

Where was I?

Oh yes. Thing five.

My car ate my son’s sports bag.

No shit. It has a ridiculous boot which opens by pulling a string in the cab. Every now and again the string breaks, or becomes detached. When it does that, the boot can sometimes be opened with a bit of jiggling the lid but mostly it’s only going to be opened by experts. The latch on the boot is adjustable, so it can be aligned, precisely, to go through the hole in the bodywork where the rest of the lock is.

Mmm sports bag. Om-nom-nom. Look at its smug fucking face. The git. 😡

Trouble is, roads are bumpy and so this beautifully aligned latch, which is held in place with a bolt, can move if the bolt loosens. And it does.

Muggins here, with her arthritic thumbs, was aware this was happening and tried to put it back. This worked but only sporadically as the Stupid Hands won’t do it tight enough, even on the rare occasions when I can find The Right Sized Spanner. So it was that on Thursday morning, I put McMini’s bag in the boot, plus the clubs he takes to after school golf lessons, and closed the lid. Then I remembered I’d forgotten his sports shoes. That was OK, I would just open the boot and … add … them …

Could I open the boot? Could I bollocks?

No of course I could. I tried all the usual things that work.

Nothing.

Shit! Shit! Shit!

I stalked back to the kitchen, because if I stayed in the garage with that bloody car I was going to take a hatchet to it. And then … which is the slightly worrying bit here … I had a full on melt down. At my husband. Well, not at him, but to him, about … everything. I cried and railed and told him that he and McMini were the only good things in my life (which is not entirely true but they are the only consistently wonderful things, everything else does tend to be a bit off and on … rather like the Noisy Cricket’s stupid bloody headlight).

And McOther listened in silence. And then he said.

‘I’ll take McMini to school, you get onto the mechanic and get this sorted.’

And he did.

And I hot footed it to Newmarket to get the lovely and extremely competent mechanic who works on my car to open the fucking thing. He has constructed a special tool out of wire to do this.

It turned out the latch was so loosely attached to the lid it had, basically, enmeshed itself in the lock and got stuck. While I was there I asked him about the headlight, which is how I know. As he was pretty sure it’s the same deal. So we’re starting to look into that, because it’s only the dipped light at the moment and it’s not off all the time so if I can limp through to summer, it should be OK until next October.

So … I’ve a car that ate my son’s bag and doesn’t work properly in the dark.

Footnote, or possibly seven and eight, my metal detector turned itself off the other day and wouldn’t turn on again for five seconds. I’ve a dig on Saturday, and I bet I’m going to discover that’s not a one-off anomaly. Nine, I’ve just put the washing out and some Important Piece of Metal pinged off the washing line. It pinged off easily enough but would it go back? Would it fuck? I had to go and slip it over the side of a saucepan and pull the long end about so it’d widen and go back on. Now it’s too wide and it’ll ping off every time. Grrr. And having phaffed about with all that and put the washing out in bright sunlight, here we are ten minutes later and it’s sodding raining. Biblically. So that was another twenty minutes of my precious fucking time pissed up the wall to nowhere!

See that? That’s the road of life … cold, dark, uphill the whole fucking way and all the shops are shut!* It’s doing my head in.

I also finally reached the stage where, instead of laughing at the fact every single fucking thing I do goes tits up, or odd, or according to someone else’s bastard plan, I lost it. Totally. When I am looking at one to five years of walking beside Mum and with the very real prospect that we will be following the same journey as Dad I know it’s going to cost me. Keeping my shit together is quite important. So that’s not a great sign. Protective measures will be taken. I’ll let you know what they are when I do.

Oh yeh, ten, The Stupid Hands … knees, shoulders back and ankles. And eleven. I still have my tax return to do. I suspect I’ll feel a lot better when I’ve done that.

Ho hum. I swear this would be a lot funnier if I wasn’t fucking living it.

* Yes. I do completely, and utterly know that’s not true. I’m actually ludicrously blessed and I understand that. I’m just having a rough time right now so it’s harder to appreciate.

Never mind, on the upside, thanks to the HRT, my hair’s looking quite good at the moment. Suddenly it has body again. It’s all long and curly and everywhere. There aren’t many people who could rock a periwig without one! Mwahahahargh! And it’s keeping my head nice and warm.

Eeee look at my chuffing periwig! Phnark.

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Birth of The Prophet Greetings to one and All … and a mini whinge.

Yes, of course K’Barth has it’s own equivalent of Christmas. They celebrate the Birth of The Prophet, or The Prophet’s Birthday as the feast is also known. The Prophet was born on the darkest, dimmest night of the year – aren’t they all? In memory of His birth, K’Barthans prepare an enormous meal, with numerous courses and specific – mostly alcoholic – beverages, none of which particularly goes with the other. Does this sound familiar?

However, they don’t exchange presents, oh no, instead they present each other with pastry effigies of Arnold The Prophet, stuffed full of confectioner’s custard. Anyone who stumped up for a copy of Christmas Lites last year will have read about this in the short story I had in there. It was a truncated short though, I had to hack mercilessly at it to make the 10k word count and you know me, I believe in never throwing anything away, so I decided I would polish up the longer original version and add it to my current series and publish it at Christmas time.

Unfortunately, what with Dad dying and all that malarkey, I didn’t get it finished as quickly as I expected so it’s coming out in February, 8th February, 2020, put that date in your diary peps. If you’re interested, it will be up for preorder soon but, unfortunately, not yet as … Christmas … which is so much more complicated and a significantly greater pain in the arse than exchanging pastries, mwahahahargh! But fret not! If you do want me to tip you off when Nothing To See Here, is released/available for preorder you can sign up for a special email bulletin. If you haven’t joined my mailing list, you will receive no other emails. Yep. Unless I cock it up mightily, I will only tell you those two things. Nothing else. To sign up for that, just follow the link, below or click on the picture of the cover:

Tell me when Nothing to See Here is released.

And here’s the blurb, in case you wanted it!

It’s midwinter and preparations for the biggest religious festival in the K’Barthan year are in full swing. Yes, even though, officially, religious activity has been banned, no-one’s going to ignore Arnold, The Prophet’s Birthday, especially not Big Merv. He orders The Pan of Hamgee to deliver the traditional Birth of The Prophet gift to his accountants and lawyers.

As usual, The Pan has managed to elicit the unwanted attention of the security forces. Can he make the delivery and get back to the The Parrot and Screwdriver pub in time for an unofficial Prophet’s Birthday celebration with his friends?

Other news …

There are lots of things I wanted to say this week. I wanted to talk about racism and how stupid it is, I wanted to fact check all the U-turns the Conservatives have been accused of making so far and see if it really is that dire, I wanted to do a lot of things. But … Christmas.

OK, so this is where the upbeat stuff stops, so if you want to feel upbeat, this is probably where you should stop too. The next bit is honest, and a bit of a downer.

The thing is, I’m missing Dad quite badly, it’s not quite as grim as it was, I haven’t felt weepy for over a week now, which is grand, and splendid progress. I just feel down. The grief counselling has come through for the New Year, so I know that will help and I’m looking forward to it.

In the meantime, life. It’s like we are sliding into anarchy and extremism and I’m the only person in the world who can see. I’m so weary of it all. I can’t do it anymore. I can’t go on politely pulling people up every time they say something shitty about immigrants, asylum seekers, LGBT etc folks, disabled people, brown people or anyone different from them. I know what goes around comes around. If kindness and tolerance was trendy for a while then, clearly, we’re going to go through another phase where it’s cool to be a bigoted fucktard. Cool for twaaaats (sing it to Squeeze).

At the moment it feels as if the world is being run by the stupid jocks out of seventies movies. You know, the popular bully in the class in seventies films. The one who make our geeky hero or heroine’s life a misery until said geek saves the world using knowledge and science while the jocks who think they rock stand by with their mouths open. That’s right, the people in charge right now, the people being heard and calling the shots are the equivalent of Biff from Back to the Future.

Joy.

Once someone you love has become, ‘other’ be it disabled, mentally ill, whatever, it changes you for life. I met a couple yesterday, a man and his disabled wife. He was pushing her in a wheelchair and she was incredibly apologetic about getting in the way in a very small and pokey shop. They were both sweet, but he, especially, had the kindest, wisest face I have seen on another human in a long time. Here was someone who had clearly been the recipient of unending twattery from morons and doggedly continued to treat other people with kindness and dignity. Someone truly, truly good in a way that was impossible to hide.

Apparently people frequently have a go at this couple for taking up too much space and getting in the way. I had a bit of an oh Lordy moment, myself, trapped in a very narrow aisle between them and a pram and trying to get out of the way! Only last week, at the supermarket, the lady told me, they saw that one aisle where they had to get some stuff was really full. He parked her next to some things she wanted to look at and went to get the bits they needed from the packed aisle alone. While he was gone someone came along and wanted to get to something from the shelves by the lady. She was in the way, so instead of speaking to her, or even asking her if she could pass it to them, they just moved her. Without a word. As if she was a piece of furniture. Moved her out into the middle of the aisle and left her there.

How fucking rude is that?

This is Brexit Britain. It’s not Brexit, itself that’s the problem, it’s the fact that it’s given the handful of people who voted leave because they’re racist and bigoted the courage to think their Neanderthal, shitty viewpoint is OK. The courage to commit hate crimes against disabled people, to air views that are, frankly, pretty evil, and it’s made them feel entitled to do so. I’m not even talking people who think we need to look at immigration, here. We do need to manage immigration properly, you know, with thought, compassion and empathy. Not only for those who are wishing to move here (what on earth are they doing coming to our crappy little island) but for those among whom they will be placed. No, I mean people who are out-and-out vile and seem to rejoice in it. The kind of people who would call me a snowflake, simply because I have an imagination and, occasionally, use it to try and appreciate what it might be like for other people who are different from me.

Incidentally, lots of people call me a snowflake in jest and that’s fine. Let’s be clear, I don’t mean my right wing friends taking the piss out of me here, I mean the really scary people.

The fact we are standing at the top of the same hill, with Mum, as we were with Dad four years ago is probably not helping me to feel jolly either. I did have a brief respite, but I know what’s coming and it’s coming much faster with Mum. A few months ago, when Gareth the Voice first contacted me I played Mum the demo he sent. She read and loved the K’Barthan Series years ago, and we discussed how exciting the whole audiobooks thing was. By the time Gareth and I were speccing the voices, a month later I had one voice I wasn’t sure about and I thought I’d play it to Mum. Gareth had definitely delivered what I specced but … had I specced it right?

Mum has a very good marketing brain – she was director of a PR firm in the 1960s and that is some going in an era when it was considered perfectly OK for a client to refuse to work with a copywriter on the grounds of them being female. As a result, Mum and I have chatted about my writing in depth from time to time. I did branding, which was pretty similar to PR and she’s one of the few people in Real Life I can talk to about both my writing, and my efforts to market it.

When I mentioned the voice conundrum to Mum she said,

‘Oh yes, darling, I meant to remind you about that. I haven’t read any of your books and I haven’t a clue what they’re about, it’s awful. I’m your mother. I really ought to read them. Could you lend them to me?’

I was a bit thrown.

‘Uh … I can’t remember now, but I think you read them,’ I lied. ‘But it was a very long time ago, so you’re well within your rights to have forgotten them. I pretty much have. I needed to re-read them thoroughly to get up to speed for doing the audio,’ I told her, continuing to lie comprehensively, through my teeth. ‘Does anything come back if I remind you? D’you remember Ruth, or The Pan of Hamgee? Big Merv? Lord Vernon?’

She remembered the ones in my latest story, which is short enough for her to be able to follow it. But otherwise, that’s it. She’s completely forgotten about all of it. She’s completely forgotten so much stuff.

Already.

All of it’s gone forever.

Which is grim.

I was hoping, so hoping, that it was just the strain of looking after Dad but it isn’t.

One of the toughest bits about Dad is that even though he is out of pain, and, even though, as a Christian, I believe he’s gone on to somewhere happier, I still find it hard to look his suffering in the eye. I need to if I’m going to move on, but it hurts, it hurts a lot and I suspect it always will. And now I have to walk the same journey with Mum. A costly, painful journey. One that’s going to make my heart ache for the rest of my life.

Pain on pain, hurt on hurt.

Another three years of this. Minimum. Where, in God’s name, will I find the strength to do it all over again?

Um … yeh. Merry Christmas.

Never mind, I’m going to church now. With any luck, when I come back, I’ll feel better.

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Let’s talk about things …

Wow, I have a whole gamut of stuff washing around to talk about this week. I’m not sure if I’ll get through it all or do it justice but off we go.

First of all, last week, you’ll have noticed there was a break in transmission. Yep. No blog post. I meant to do one but then it was time for the Christmas Fayre I was getting all my shizz ready and … er hem … I forgot.

In my defence, my father’s memorial service took it out of me. It was wonderful but blimey I was knackered afterwards. Lots of emotional stamina required. Which reminds me, I should write and thank a lot of people. Yet more stuff to add to the gargantuan, War And Peace-length list of Shit MTM Hasn’t Done. Gulp.

The fayre was kind of a mix. It was the first time in a new venue and it took a while for people to realise we were there. Friday was quiet, Saturday reasonably busy, and Sunday a lot busier. The books sold well, although differently, a lot of people bought two; a copy of Escape From B-Movie Hell and a copy of Small Beginnings. The EyebombThereforeIAm calendars, which I thought would sell like hot cakes and bankroll everything, they didn’t sell at all. So that was bizarre.

The ill fated eyebombing calendar

The consensus among friends and family is still, ‘oooh I’d buy one of those,’ and some even have, but they clearly left the general public cold. I am selling some for charity, which might help. I had to sell 30 at £9.99 to pay for costs, I sold five at £9 and I have sold three to a lovely friend for £9.99. I picked £9.99 after researching them in local shops and discovering they were mostly £9.99 – £15.99 so I went for the lowest price. However, McOther tells me a pop up calendar shop has opened in the new shopping centre with prices from about £7.00 to £9.99 so perhaps I’m now at the high end.

Never mind, onwards and upwards. If you think you’d like one you can find out more here.

Dad’s memorial went well. It’s always interesting going back to Lancing because for the first sixteen years of my life it was my home. I also had another home, kind of a two sheds Johnson, that was me, because we lived off site in the holidays. But Lancing means as much to me, in a different way, as the other place I grew up, which Mum still lives in now. Going back is like having a little squiffy in your old house, seeing how the new owners have changed the decor! Although I haven’t been in our actual old house.

It was a glorious celebration. Really lovely. I cried my eyes out at the end in a way I hadn’t at the funeral, which was a bit embarrassing but also kind of cathartic and easy enough to hide because I was wearing a big hat. Just look down and hey presto! Nothing to see here. I suppose I felt it more because this was the last goodbye and the last thing we can do for Dad … well … except inter his ashes but we are going to … er hem … batch him and Mum. The eulogies were great, really funny, the way Dad would have wanted. Lots of stories about his antics. Some good shouty hymns. Really well chosen readings and the readers and speakers did a grand job. I even managed not to cock mine up! Woot! Although I was last up so I was shitting gargantuan bricks for most of the service. Listening to audiobook proofs all week helped in that respect as I just followed the little voice in my head that said ‘read it the same way’ and did. Minus the funny voices, of course.

Highlight of the readings they chose an excerpt from 1 John Chapter 20, which included verse 4:

If anyone says, “I love God,” and hates his brother, he is a liar; for he who does not love his brother whom he has seen cannot love God whom he has not seen.

A perfect summation of Dad’s attitude, since he was the embodiment of love thy neighbour in a way that many of the loudest Christians on the internet – especially the mentalist, old-testament-thumping, gun-loving ones in the US – are not. Yes, if you think anyone is Satan’s own spawn because they think differently from you and say you love Jesus, you’re a liar! Love that.

Desmond Tutu stood here and so did I.

Huge amusement afterwards when we discovered a plaque bearing the legend, ‘Desmond Tutu stood here to dedicate this window to his friend Trevor Huddleston.’ Much incredibly mature ‘standing here’ where Desmond Tutu had stood ensued, from me, Bruv and Eldest Nephew, Good-King-Wenceslas-‘heat-was-in-the-very-sod’ stylee. Mwahahahrgh! Phnark.

With the election on, I think I am feeling Dad’s absence a lot more, mainly because of the race the bottom that is the election campaign. I’m one of these weird, old fashioned people who thinks that lies, soundbites and dirty tricks, just make a party look like a bunch of twats. I think fake news is a danger, not something to be embraced. I’m one of these old fashioned people who thinks dishonourable and shoddy behaviour, unkindness, opponent smearing, hypocrisy and bare faced lies, you know three year old caught with a hand in the biscuit tin and denying it, Scottish Spaceport is nearly built, let’s change our twitter name so we look like an impartial not for profit organisation disseminating facts rather than one of the contenders, kind of lies, and a general complete lack of integrity, are actually bad things. I still believe elections should be fought on issues although I’m not 100% sure if the labour site I’ve found is their real site or a conservative spoof. Sigh.

When it came to the day to day discipline of running his house, Dad had zero tolerance for three things, drinking hard spirits (he’d Not Catch boys drinking beer, wine or cider, so long as it wasn’t too out of hand but he would catch the spirit drinkers) drugs and bullying. Even so, nearly every boy my Dad expelled was expelled for bullying. One, who was expelled for doing something particularly stupid but which wasn’t bullying, was finally reinstated after three days, at my Dad’s behest. He didn’t stand by and let something go if he believed it to be an in justice.

Maybe that’s the trouble with this election; the glaring lack of statesmanlike behaviour in pretty much every one of the high profile politicians. The trouble is, there are decent people beavering away on the back benches for all parties. They just never seem to make it to the front.

To me and many others, the NHS is a good thing, and the death of a thousand tiny cuts to which the current and previous governments (of all colours) have subjected it is a bad thing. Successive governments have been breaking it so they can say, ‘look this doesn’t work’ and contract it out.

Take dementia care. My father paid tax all his life but until he was down to his last £14k he was not eligible for free health care, and even when he was, because he had a work pension, he actually paid for it, they just charged a lower rate. If he’d had a frontal lobe tumour it would have presented the same symptoms, but he would have been half a million quid richer when he died. Half a million quid of life savings which he’d earned and already paid tax on. You know tax don’t you, the stuff you pay so you get things like free healthcare from the NHS? At the point where he was weakest, most vulnerable and most in need of help, Dad was betrayed.

The thing is, hanging out with my Dad, as he became more and more mentally disabled, has turned something round in me. My Dad said and did some pretty grim things during various phases of his disease. Partly because there were no filters, partly because his world was warped and distorted by his disability, and I guess partly because his disability also warped his efforts at self expression. Sometimes he was horrible and that hurt because he was always my dad. And I knew that somewhere inside that inappropriate, screaming exterior was the gentle, kindly soul I knew. He just couldn’t reach us. A lot of the time, all he needed was the right word, the right help, to bring him back. We couldn’t always find it but we tried and I think he was aware of that.

But now when the conservatives talk about scroungers and tell disabled people to get jobs, when they foster the zero tolerance, claw-it-all-back attitude to social care and disability benefits I begin to wonder if I’ve jumped timelines or something, I’m so out of kilter with the way other people think. When they shame and vilify disabled or chronically ill people as scroungers, I feel sick. When Social Services ask my friend’s daughter, with achondroplasia, when she expects to get better I am unimpressed. This, a bright, very bright, intelligent human being, someone with a great deal to contribute to society, who was also in with a chance of becoming a future Olympic athlete. So not a scrounger or a free loader then. I’m beginning to understand what Sir Terry meant when he talked about holding onto the anger. It’s not angry ranting, well not always, it’s just righteous ire that burns the whole time. That’s why I have to write it out, it’s doing my head in.

The anguish of Dad’s last half year or so still haunts me and it probably always will, but it has also profoundly changed the way I see my fellow humans. I now realise, more than anything, that imagination is the most important gift we possess. It’s imagination that makes us able to see the other person’s side. It’s imagination that enables us to find a way through. It’s imagination that helps us understand that, if our enemies saw people’s heads off with a kitchen knife and post it on YouTube, the thing that raises us above them is that we don’t. It’s imagination that allows us to understand that torturing suspected torturers, ‘because they do it to us’ merely makes us one of them, possibly worse, because while they’re brainwashed and uneducated, we have the tools to know better and have made a conscious choice. It’s because we have imagination what we can realise that an eye for an eye merely debases all the arguments that our way is better than theirs at a stroke.

It’s imagination that makes us think before we wade in. It’s imagination that tells us when taking sides is necessary or merely petty. It’s imagination that allows us to step outside the bubble, accept and enjoy friendships with people who have different political viewpoints to us or are friends with people we don’t get on with. Politics is about issues and problem solving, it’s not a competition to see who can tell the most lies or paint their opponent as the biggest shit, although anyone looking at it now could be forgiven for thinking it is.

Another thing I have learned from the experience with my Dad is that everyone has a value, everyone is of some importance, everyone has something to contribute. I’m even beginning to see how Corrie Ten Boom’s sister, in Auschwitz, was able to feel sorry for the guards because they were so cruel. She thought their lives must be so empty, so without empathy, love, compassion and all the other things that make living so wonderful. I thought she was nuts at the time, now … I dunno. I am beginning to think it must be truly terrible to be as pompous as vainglorious as desperately in constant need of ego affirmation as Trump or Bojo. And yet I’m also beginning to see the humanity in the psychopaths, the killers, the mentally ill; those who I would have dismissed without a second thought as evil before I watched my father go insane. Perhaps I’m beginning to understand that many of them are just unwell. Mental illness is horrifically complicated but I seem to be able to extend them a courtesy I am finding it very difficult to give Boris, Trump and their ilk.

Dad always held the view that to get anywhere or do anything, you had to be a decent human being. He believed that being decent and honourable gets you quietly, unobtrusively, where you want to go. Because if you are straight with people and stand by them they will love you, and people who love you will move mountains for you. Not necessarily at the times, places or in a manner you expect but they will.

More and more, now he’s gone, I find myself sticking my head above the parapet, not because I care that much even, but because Dad’s not here to do it. Even if it’s just to joke about being the token bleeding heart liberal in some of my friendship groups and put a different point of view. But the thing is, despite half my friends having voted Brexit, which is a bit of a downer, we still all have so much common ground and we are still friends. Maybe this country will heal, if the politicians and the loud mouths will stop using the divisions to score points and entrenching them further; ie, shut the fuck up and give it time.

I can’t wait until this bloody election is over.

 

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A snapshot of blue …

It isn’t always like this, but I’m feeling a bit blue today. Then again, it’s probably only to be expected because I have, as we might euphemistically say, the painters in. But I’m going to take a few moments out to bang on about grief again because I suspect the way I’m feeling is pretty universal, so it might help someone to read it and see they aren’t alone.

As a human, I’ve always approached my life, and my future, with an attitude of mild interest, a kind of, ‘I wonder how this is going to turn out.’ That doesn’t mean I don’t try and mould my destiny at all, but I am aware how many other riders there are affecting the outcome of anything I plan. I hope my actions make a difference. Fervently. But I also think I’d be a fool to think I can realign the stars and guarantee anything about my destiny through my own efforts … well … you know … beyond how I react to what happens.

So my dad died. It happens to lots of people. And I’m OK with that and, more to the point, he was. It was his time, he led a full and wonderful life, he was loved … it was, dare I say it, beautiful.

The thing I am having trouble with is what happened first.

Losing someone to Alzheimer’s is really hard. There’s a strange mixture of emotion at the end where you’re glad their suffering is over but really want them back. There’s always hope, until they draw their last breath, that a miracle will happen and they’ll come back to you, that the gradual extinguishing of the light can somehow be reversed, the damage undone, your loved one returned. That you’ll find them again.

It can’t, although you might find enough of them. Dad definitely came back to us a bit at the end, I am in no doubt whatsoever about that.

They say that you don’t get over some things but that you do get used to living with them. That makes perfect sense to me. I try to give myself gaps to grieve, and in between, I tell myself it’s hormones, and yes, I am looking forward to reaching the stage when I no longer have a cycle, when Psycho Week, Misery Week (which is probably where I am now) Extra Special IBS Week and of course, not forgetting Brain Fog and Constipation Week all come to an end and every week becomes Mary Week. I do have a Mary Week once in every five and it is literally like being someone else, someone I really like.

Anyway, I try to convince myself that I’m busy or tired or hormonal but the truth of it is, I’m just sad. And I guess I’m learning that I have the strength to carry that sadness, which is nice, but at the same time, unfortunately, I’m not quite as strong as I hoped I was. Which is a bit of a shitter.

One of the things you can notice about people, if you look hard enough, is that those who are suffering or damaged are marked. They have an intensity, a brittleness about the edges, a burning brightness to their eyes that acts like a huge neon beacon over their heads saying, ‘Damaged Goods.’

Sometimes, I have to tell people that my dad died recently. It’s cringingly embarrassing because usually it’s part of an explanation as to why I’ve forgotten to pay a bill that arrived around that time, or pay in a cheque etc. I find it difficult to keep my voice flat. The emotion always creeps in and evinces an outpouring of kindness from strangers that is only reserved for folks they are very, very sorry for. Which is lovely but quite mortifying. I also find it really, and I mean really hard, to keep it together in the face of sympathy. No matter how hard I try to be dispassionate, they hear the emotion. I am always hugely grateful for their concern. But at the same time, it’s also difficult and embarrassing because there’s only a finite amount of time about which I can talk about it before I cry. I wouldn’t want people to stop showing sympathy though, or stop being kind. Because for all the awkwardness I feel, it’s also a wonderful and uplifting thing.

There’s very little time for sadness in modern life and even less in mine. Mum has dementia, someone has to run her financial affairs, pay the care team, make sure she’s OK. In some respects my weekly visits are a lifeline for both of us. It is wonderful to be able to talk to her about Dad. We discuss how we feel, how there was nowhere else for him to go, how illogical our sadness is when it was such a good death and when it was clearly a death he embraced. I think it helps both of us. Mum is definitely better than she was but she’s had a bit of a blip recently, which, I suppose, is  another reason why I feel the responsibility a bit more keenly than I usually do, and feel sadder.

Typically, now he’s gone, it seems that my life is full of events and problems that I would have discussed with Dad. Things he would have been able to advise me about so I could have made sense of it all and it would have been OK. Interpersonal stuff. It’s a loss I would have felt badly any time in the last one and a half, possibly two, years but it seems a great deal worse now. I think it would be melodramatic and downright wrong to say I’m sinking but it’s definitely a struggle. And I’m so raw. Oh blimey I’m ridiculously raw and so easily hurt about other things. Everything makes me cry, I reckon if I was walking round with a thistle stuck up my arse I’d cry less.

Politics hasn’t helped. It’s like the loss of Dad’s goodness and humanity, the compassion and empathy in him has taken it out of the entire fucking world. This week Britain has stepped up it’s efforts to make a monumental tit of itself on the international stage. The jury who found Boris Johnson’s proroguing of Parliament illegal have been warned to wear stab vests for fear of nutters who are also pro Brexit.

And the two sides bang on at one another, the left getting all drama llama about Jo Cox so they can tell the right that they are heartless twats who don’t give a shit in a way that makes the whole thing reek of faux. The right are totally unmoved, of course, since the majority of them are heartless twats who don’t give a shit and I really don’t understand why the left felt that point had to be made, since we are all already aware.

In the middle of all this, I’m still waiting to hear someone mention the good of the people. Not ‘the will of the people,’ as decided by a ridiculous sham of a vote to decide which side’s lies were less plausible (but sadly, a vote, nonetheless) not who should be in power, not how much better we would be if x or y was in power. Likewise, I don’t want to hear politicians spouting off in the media for the benefit of sending a message to other politicians via the press, rather than because they have anything meaningful to say to us.

Wouldn’t it be great to see someone in Parliament who genuinely seems to be there to try and make life better for the British people rather than to feather their own nest? Someone who isn’t a plutocrat foisting left wing sentiments they can afford to hold onto people who can’t, or conversely, someone who isn’t a hedge fund manager, wholeheartedly buying into the vileness of the party opposing them; a party which continues to demonise the vulnerable, the disabled, the chronically sick as scroungers and weaklings, quietly passing laws to punish people for their disabilities, or chronic illness, or having dementia like my parents, as if these people are to blame for their own suffering. A party pedalling the view that anyone who is vulnerable is weak and that those who are sick somehow deserve to suffer and are not worthy of our compassion. A party that puts the view that, contrary to the tenets of the Welfare State, those less fortunate, or who have fallen on hard times are somehow stealing for us when they are given help. A party which is punishing the elderly for having savings and being careful, stamping on the fingers of everyone working or lower middle class who has dared to put a foot on the ladder. A party which is quietly dismantling the welfare state and the NHS while everyone is too distracted to notice by the circus of shite that is Brexit and all that goes therewith.

We need normal people in politics. Now. Because at the moment, for the most part, it’s just a bunch of rich, entitled pricks doing what they like. On all sides. Their wages alone put them into the top 6%, the expenses some of them charge probably put them into Fortune 500*. Only 8% of Labour MPs are working class. We need a proper mix and we need to hold them accountable, the trouble is, voting doesn’t seem to work so I really don’t know how we do that.

* That was a joke even if it does ring true.

All I know is that watching the different parties competing to out do each other over the lowest depths to which they can sink I feel like something inside me is dying. It’s like grief has taken my reality filter out and I can see every crack and fissure and smell the foetid pus below.

But then something will happen that snaps me back.

For example, today I had to explain to the lady in the building society that I’d failed in some duty of admin because the summons arrived while my dad was sick and dying, or possibly while I was on holiday just before, or maybe in the six weeks previously while I was sick as a dog with a massive temperature and road testing different varieties of antibiotics to get rid of a persistent chest infection. The minute I fess up to her, I know she’s seen the rawness. My orange neon ‘damaged goods’ sign is flashing. She nips out back and comes back with a leaflet.

What to do in a bereavement, it’s called.

‘There are numbers in the back,’ she says. ‘And your doctor can help you too.’

My doctor? Shit.

Is it that bad?

Is it that obvious?

Am I more damaged than I think?

OK so watching my father go mad was pretty horrible, but I genuinely believed that once it was over I’d bounce back. It’s happening but it’s not a bounce and I’m aware enough now that in many ways I will never be the same. I thought it would be a lot faster than this and I thought I would get over it all. I’m not and it’s going to be slow. I guess the hard thing is having to keep going, having to carry on paying the carers and doing the pathetic amount I do to keep things running – the care and gardening team do literally ALL of it but I still find my few duties tough. I probably need to look what happened to Dad squarely in the eye but if I do that right now I’m undone and I can’t be undone, because … Mum.

Or maybe I’m just humiliated that another person has seen the extent of the damage, noticed my brittle cheerfulness and angular edges. I am worried and grateful in equal measure. As I try not to well up at her compassion and kindness I remember what Dad always said,

‘And this too shall pass.’

Maybe that’s the thing that’s so hard. Grief is amorphous. It oozes about inside you like a liquid and leeches out where and when you least expect. There’s no stopping it and no answer. You just have to ride the storm and wait until you are used to it, or it goes. It’s not as if I’m the first person who’s lost a parent, or the last … It’s just … hard.

On Wenlock Edge the wood’s in trouble;
His forest fleece the Wrekin heaves;
The gale, it plies the saplings double,
And thick on Severn snow the leaves.

‘Twould blow like this through holt and hanger
When Uricon the city stood:
‘Tis the old wind in the old anger,
But then it threshed another wood.

Then, ’twas before my time, the Roman
At yonder heaving hill would stare:
The blood that warms an English yeoman,
The thoughts that hurt him, they were there.

There, like the wind through woods in riot,
Through him the gale of life blew high;
The tree of man was never quiet:
Then ’twas the Roman, now ’tis I.

The gale, it plies the saplings double,
It blows so hard, ’twill soon be gone:
Today the Roman and his trouble
Are ashes under Uricon.

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This week, I am mostly, cheating!

Greetings, late as ever. I appreciate that this is a late post. I knew things were going to get a bit hectic and sure enough they have. I had to set up McMini’s computer for school and it took approximately one thousand years. OK not quite one thousand but it felt like that, especially when I had bloody microsoft asking me to sign in and then saying ‘oops there seems to be a problem.’

After searching for what felt like fucking aeons, I realised that the problem was simply that McMini is under age and therefore I had to sign in as me to move windows from some crappy version, where you can’t download anything off the Microsoft app store, to normal windows that everyone else uses. As a result I have nothing to witty to blog this week and had to resort to Things I Have In Reserve, in this case, my Dad’s Eulogy.

It might seem like a strange thing to share, but it was written for laughs and it even got some! Next week, I have some absolutely chuffing amazing news for you! In the meantime … enjoy …

________________________________

Dad post retirement but pre dementia.

The difficulty talking about Dad is that I have so much material, so it’s tricky to know where to begin and when to stop. The fact his nick name, at the school, was ‘Johnny the Legend’ probably says it all.

I’ve made some notes.

Obviously, as his daughter, I’m biased and see him as a shining example of what it means to be human, and a Christian, and to do Christianity and humaning really well. There are certain words that crop up again and again in the letters and cards we received; Gentleman, kind, warm, radiant, humour/joie de vivre, fun, funny, witty, generous, non-judgemental, wise, humanity and a word he used about others but which also very much applied to Dad, himself, effervescent! Dad lived his whole life with an aura of intelligent enquiry and seemed, to me, to have a genuine interest in everything and everyone around him. He also had a sense of fun and mischief but coupled with a sense of social justice and a kindly disposition which meant the mischief was never cruel. He was genial and good humoured and would often tell stories against himself if he believed his antics were funny enough. Probably one of the most indicative things about Dad, and Mum, is the friends they made and the people they have around them. They seem to be pied pipers of lovely people.

Dad delighted in sharing the Latin and Greek roots of words, especially if they were slightly dodgy or a little bit lavatorial. I can still decline the latin verb from which we get the word, ‘constipation’. Despite being a committed Christian, Dad would sometimes take me aside after church and we would both giggle as he pointed out the double entendres which Victorian poets, in a more innocent age, had unwittingly put into that Sunday’s hymns. ‘Oh Lamb of God, I come,’ was a particular favourite, and the fact it was written by an ancestor on my Mum’s side just made it even funnier.

He loved to prick the bubble of the self-important and was proud of any signs of rebellion in my brother and I. He once hauled a colleague to the window of the master’s common room and, glowing with proprietorial, that’s-my-boy pride pointed out a scene in the quad below, where a member of staff who ran like the original Minister for Silly Walks was sprinting across the grass followed by my brother doing a near perfect impression of the man’s ridiculous run a few yards behind. Another time, I remember Dad carrying a copy of the unofficial school newspaper round one speech day and, when he met the right parent or colleague, he would whip it out of his inside jacket pocket, like some war time black-marketeer selling stockings, to show them a slightly scurrilous cartoon I’d drawn of the Bursar.

Life with Dad was never dull. He was always cheerful and sociable. He enjoyed entertaining friends and relations during the holidays and would wear his bedroom slippers ‘to make it more relaxing’ often prank phone calls would be made to other, absent, members of staff, or those who’d moved on to better things at other schools. Sometimes he would invite people round and forget so Mum would be surprised and delighted to see them arrive but have to pretend that she knew they were coming. She, and we, usually pulled this off, except for the time my uncle and aunt turned up and found the four of us sitting down to a grilled trout each.

Dad was, as he would have put it, ‘a good trencherman’. On holiday France Dad demonstrated that, were he ever to go on Mastermind, his special subject would be not classics but instead, Guide Michelin, Normandy edition. As we drove through some village he’d suddenly stop the car and announce that it was lunch time because the auberge had a red underlining. No-one I’ve ever met before or since could sniff out a good restaurant as surely as Dad.

He also enjoyed wine, although, in that respect he was quite a long suffering father, luckily he had a very forgiving nature. I remember I inadvertently drank one of his best bottles while he was away on holiday. ‘What? You drank my Gevrey?’ he cried, his expression a mix of horror and disbelief at my iniquity in drinking his wine and pride that I’d made such a quality choice. Luckily pride won out although I did replace the bottle as soon as I could. I also remember spilling mayonnaise all over him at a restaurant in Durham when we were having a meal to celebrate Giles’ graduation. There was complete silence and, again, Dad’s face was a mixture – of anger and humour, this time. For a few seconds we watched the two emotions battle for control. God bless Lil, who guffawed before she could stop herself, Dad’s habitual good humour reasserted itself immediately and all was well.

I’ve already alluded to Dad’s selective memory. Any timely attendance at social events was due to Mum’s insistence that he put them on the kitchen calendar … also, most friends were wise enough to ensure she knew about them. The odd one or two slipped through the net though. I remember in my last year at school, Dad had just left the house and was commuting in daily from home. One evening, I found him, Mum and two friends wandering disconsolately through the cloisters in their dinner suits having arrived at the common room guest night a week early. This was a particularly spectacular achievement since Dad was chairman of the common room at the time and, therefore, the person responsible for organising it.

A familiar refrain in our house when I was growing up was the phrase, ‘have you seen my biro?’ Dad had two Papermate biros: there was a red one, which with Dad’s characteristic fuzzy logic, contained black ink, and a turquoise one which contained red ink. The hunt was on for one or other of them (and his keys) most of the time. Finally, he lost the red one, apparently forever, so I bought him a new one for his birthday, a top of the range black and gold Papermate. Yes, from now on the ‘black’ biro was going to BE black. I was incredibly proud when he hung onto it for years, although it turned out it was several biros. He couldn’t bear to upset me by admitting he’d lost my gift, so he kept buying replacements. It was only after he tried to buy replacement number five and he discovered Papermate had discontinued that model that he was forced to come clean. It was typical of Dad’s kindness. He was a soft old thing. He used to hug the cat goodbye before work in the mornings. She always smelled of aftershave at the start of the day.

For all Dad’s legendary forgetfulness, though, the headmaster’s secretary once told Mum that he was the one housemaster she could always rely on for an instant answer to any question asked about any of his charges. There was no filing system, no having to look things up. He always remembered the things that mattered.

One more instance of fuzzy logic. One summer night we left our pet rabbit in his outside run which had shade but very little shelter. Mum was the first to realise when she was awoken by a rumble of thunder.

‘Darling! There’s a storm coming and the rabbit’s still out!’ she cried and Dad went out to rescue him.

Mum heard the door go just as it began to chuck it down with rain. She ran to the window to see Dad rush into the orchard, completely starkers, barring a pair of wellies, grab the rabbit and take him, through the pouring rain to his more permanent home in the garage.

‘I didn’t want to get my pyjamas wet,’ he explained when Mum asked what on earth he was doing.

Dad was a committed Christian with a deep and enduring faith. Interestingly, his efforts to be Christ-like in every aspect of his behaviour could make him come up as a bit of a maverick – which suggests he may have been doing it properly.

Dad had a very firm idea of right and wrong and, as it was governed by his faith, it didn’t necessarily involve proceeding as convention, or the rules, dictated. Luckily most of the people he encountered appreciated this, even if his tendency to take the same approach at work, coupled with a propensity to forget housemaster’s meetings frustrated some of his bosses. Neither tendency let up after he retired.

One evening he and Mum got talking to a homeless man in the churchyard and brought him home to spend the night. Mum, rang me and explained that if I hadn’t heard from them by half nine the following morning I must call the police as they would probably have been murdered. She put the phone down with the parting shot, ‘Don’t tell your brother darling, he’ll go into orbit.’ Mum and Dad were a team and as you can tell from this story, it was definitely a case of six of one and half a dozen of the other.

One of Dad’s maxims was,

‘Never let anyone see you’re shocked by anything, most of the time, it’s what they want.’

Dad was pretty good at not being shocked especially by some of my more punk friends not to mention us, his own kids. I remember his reaction after I attended my first party. Unfortunately I mistook the fruit punch for a non alcoholic beverage. By the time I realised my mistake I’d downed gallons of the stuff and I was terribly ill. The next day, I felt truly awful and spent the time very quietly in my bedroom. When supper time arrived, I came downstairs and Dad said,

‘I thought we could have a treat tonight, I’ve made some wine cup.’

I have no idea how he did it but Dad had managed to replicate the exact same punch that I’d drunk to such horrific excess the night before. I sunk two glasses with a heaving stomach and a thin pretence of enjoyment. It was a much more salutary lesson than any lecture on the evils of drink. Fizzy logic, perhaps, in that case, but no less effective.

Dad was also great at understanding the way other people thought. A naughty friend of mine told how, when about to be cautioned by the police for some argy-bargy at the Goldstone, Dad stopped him just before he went in and said,

‘Now listen, Duncan, there’s one thing you have to remember and it’s very important.’

‘Yes Mr Bell?’

‘Yes, whatever you do, DON’T laugh! It’s yes sir, no sir, thank you sir and out again. No backchat, and NO arguing the toss. Right?’

My friend confessed that, the moment he was confronted with the police officer cautioning him, he was indeed, seized with an urge to guffaw or make sarcastic comment, but he managed to contain himself because of what Dad had said.

Dad wasn’t afraid to be human if, by venting occasionally over something small, he could be better at something bigger and more important. I remember him mowing the orchard at home. The lowest branches of the trees were all about four feet off the ground. As Dad mowed he was watching the grass in front of him so he bashed his head on pretty much every single tree. Each bump was greeted with an ever lengthier flow of invective, mostly comprising the word, ‘bugger!’ It lead to a new family measurement scale of vexation, ‘how manyb’uggers was that, Dad?’ we’d ask after a particularly vexatious escapade doing something or other.

Dad told me that he’d wanted to be a teacher for as long as he could remember. To be honest, if you grew up around him while he was going about his job it was fairly obvious. He was extremely dedicated, but even when he had retired, even when he had Alzheimer’s, children still flocked to him to chat.

His pet advice on housemastering was, ‘It’s not about catching the boys it’s about knowing when NOT to catch them.’ I only found that out recently, which is probably why it was many years before I realised that, when he came home to regale us with something funny he’d caught the boys doing, they didn’t actually KNOW. The famous Johnny Bell warning cough made sure of this, unless they were seriously up to no good, in which case Dad would omit the cough and attempt to catch them. He allowed some slack but had a zero tolerance policy for bullying. I remember him agonising when he had to send boys to the headmaster for drinking, smoking, going awol or the like, but if they’d been bullying people he never had a qualm about having them expelled, which was entirely in keeping with his sense of right and wrong and social justice.

One of the greatest gifts Dad taught me was that, if you want to be happy in life, it’s essential to be able to laugh at yourself. He had a way of being self depreciating and using humour to keep things light without losing the message. His humour also helped him keep things in proportion, in a way that not everyone can. Perhaps that accounted for some of his courage when facing the grimness of Alzheimer’s. Wherever he is now there will be light and laughter.

In the classroom, too, Dad liked to allow space among the learning to enjoy a bit of levity. His pupils soon realised that you could have a far more interesting Greek lesson if you got Dad onto some off the wall topic after about five minutes. He got decent enough results, so it seems to have worked. Even after he’d retired, Dad’s one-to-one students knew to ask about his most recent holiday if they wanted a break. At school, the lateral and inventive nature of Dad’s red herrings was so famed that they were featured in an article in the school magazine, which amused Dad greatly. I have a photocopy of that article which I’ve included, below.

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More thoughts about grief …

Vimy Ridge 100 years on

This week we’ve been visiting a lot of First World War sites. On balance, this was probably less than smart, so soon after my father’s death. But in another way it was cathartic. Grief is a properly odd thing and sometimes it does you good to take a few quiet moments to have a snivel and let it out. You can’t sweep it under the carpet and pretend it’s not happening. That doesn’t help.

However, that said, it does tend to pop up in weird ways when you least expect it. Case in point, Dad. When Dad died it was the culmination of nearly fourteen years worrying about his mental health. He was calm, totally ready and for those few days before he left us, it was as if he’d come back to us. After his total loss of reason, and the psychotic stage he had returned to us a fair bit, in the home. He came out of the small boy stage and was a grown man again, struggling with his affliction in different ways.

In those weeks, he was calmer and seemed happier but looking back on it, perhaps it was because he’d decided this was the end of the road and resigned himself. I worried that he was fighting and losing. Looking back on it, I think it more likely that he was coming to terms with things and I was seeing the light and shade of his various moods as he worked through it. The thing about Dad’s death though, was that it was a really, really good one. People who loved him were with him, reassuring him and he was a man of faith, and while I’m sure he appreciated that reassurance, he probably didn’t need it.

It was a relief, for him and us, because it was the end of his suffering. It may look callous saying that but I remember waking up the morning after Dad had died and feeling sad that he had gone and that there really was no going back now and at the same time, also feeling as if an enormous weight of responsibility had been lifted from me and feeling happy for Dad (although as a Christian who believes there’s some kind of after life that might be easier for me than it is for some folks).

Now, I don’t know what I expected from the grieving process but it seems most sensible to accept it’s there and roll with the punches when it pops up. But I’ve noticed two things which might help other people.

Thing one: No matter how good the death, no matter if death was the only place to go and no matter if the death was a good one, you will feel incredibly sad. Not only that but if my own experience is anything to go by, you will feel way, way, sadder than expected.

‘But it’s your dad! Of course you’re sad!’ I hear you say. Well, yes, but I’ve spent the last eight or nine years, at least losing little pieces of my dad each day, and I’ve spent the last five years grieving for those pieces of his personality, facets of his sense of humour, things that gradually faded until I could no longer resurrect them. There was a horrible point where the jokes we used to have suddenly stopped working.

‘I don’t know why you think that’s so fucking funny,’ I remember him saying about what I’d thought was his absolute favourite joke between us. ‘Stop saying it.’

Various people have told me that, after an illness, you get the person back. I think I’m too brain fogged to get much back, my short term memory is completely shot, just yesterday I was chatting to McMini and he reminded me of something we did together, when he was a child, an event of which I have absolutely no memory. That is quite frightening because such a total and utter memory loss has never happened to me before. No matter that my diagnosis was hormones, I have some pretty deep set misgivings, in my own mind, that I have dementia, myself. That said, a friend (0lder) who suffered depression when her kids were growing up says there are huge tracts of their lives she simply can’t remember. She put it down to the medication, but it must have been stressful, and I’ve been pretty stressed for at least eight of McMini’s eleven years, maybe I it’s just that. Yeh, I’ll cling to that hope. If it isn’t, I just hope I can hold it together until Mum goes, or even better until McMini hits twenty one. That would be another eight years. Mmm … fingers and toes crossed.

What I was trying to say, after that considerable tangent, is that I haven’t got the memories back really, I still can’t remember anything much before the dementia (Dad’s) but I do have a much better conception of what he was like when he was firing on all cylinders; his cheekiness, his sense of fun, the things he loved and the things that made him laugh. I can remember his humanity, his compassion, his kindness – partly because his behaviour was the antithesis of many public figures today, not to mention the current behavioural ethos which seems to be that we should each be as big a cunt as we can be because it’s our right and we ‘shouldn’t take it’ from other people.

Which brings us to Thing Two: I guess the moral of this is simply that even if you are expecting it to be weird and trying to be open, not fret and accept the nature of the beast, grief still pops up when you don’t expect it and surprises you.

But after a death when it’s really a release and the person who died was clearly at peace and happy to do so, I guess I assumed I’d mourn less perhaps, or at least differently. I wasn’t sure what to expect, but when you’ve been losing a person for so long while they’re alive and grieving their loss has already been going on for some years I suppose I thought that the grief of the actual death would be … easier?

Or to put it another way, for all my trying to be open minded and take it as it comes, it seems I’d assumed that there’s a finite amount of grief and that I’d used up a good half of it while Dad was still alive.

I was wrong.

That’s probably worth remembering. Meanwhile, for now, for me, it’s head down, give it space whenever I can and wait. I’ll get used to it eventually.

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