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Red alert at Ice Station Zebra … And the Pile Howitzer

This one comes with a profanity warning. It’s not that profane but I do mention piles quite a lot. There. Don’t say I didn’t warn you.

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The thing about giving birth is that your dignity tends to be birthed along with your child. Not that I even had to give birth to my lad, having a c-section and all. Except while, after it’s all over, they give the child a rub down and hand it over for a cuddle, it seems that my dignity is still in Addenbrooks hospital somewhere. I’d like to think it’s wandering the corridors looking for me but I suspect it’s more likely to be in a drunken stupor. Then comes the menopause/perimenopause/postmenopause. Ladies, if you haven’t yet you do. Not. Know. What. You are in for. If you have … you’ll be laughing along with this.

Basically, when a lady hits mid-life then, if she has any dignity remaining, trust me, the whole change of life shenanigans will knock it unconscious, drag it away, murder it and bury it in a shallow grave.

Motherhood, menopause and adulting. They’ll be the fucking death of me.

Yeh. I don’t really know where to begin this week. It’s manic. The painters are in. For once this is not a euphemism there really are genuine painters painting the woodwork outside of our house. Yes, I’m sorry folks, it’s all our fault the weather had turned to shite. They’re in for three weeks I’m afraid, an’ all so crack out your waterproofs and thermals. The painters start at half seven, which means I have to set my alarm for half six so that I have some thought collection time between waking up and getting out of bed.

When you have to get up that early, who needs thought collection time, right? Wrong. Why do I need it so badly though? You ask? Well, you may not but for the sake of the point I’m attempting to make here, let’s pretend you did. Er … yeh, why do I need that? Because otherwise a terrible thing beyond our imagination may occur. A rush. Also … brain fog. A rush plus brain fog equals a day comprising one gargantuan balls-up after another, followed by an evening of wailing, gnashing-of-teeth and too much alcohol.

Also it has not helped that since it was constipation and brain fog week last week, it is, naturally, piles, headache and brain fog week this. I confess, the piles bit is, usually, only a mild annoyance but every now and again the little bastards decide it’s time for war.

Naturally, what with it being absolutely the worst week ever for it, this week they decided to declare war. So bad I’ve had to open, ‘that box in the fridge’ and crack out the heavy armour. These things are the mother of all cures, the big hitters and I confess, this is only the second time I’ve had to resort to using them. Privately, in my own warped head, I call them ‘The Pile Howitzers’. Normally their presence, in the box, in the fridge, in the paper bag, is enough to keep the little bastards under control.

Obviously with the painters in, it was inevitable that as well as a hectic week for McMini things would go a bit wrong with Dad, which they’ve done – to the extent that I can’t really look it in the eye enough to talk about it now.

But presumably that’s why this week, of all the bastard weeks I would be forced to do so, I’ve had to deploy the Pile Howitzers. It’s a mis-nomer, too, because it’s more like pile shells. Each one looks like a bullet, made of some candle wax like stuff – I assume there’s more than candle wax in it though. Anyway, these things bear a very passing resemblance to the missiles off one of McMini’s StarWars toys – it’s a Clone trooper transport ship, if you must know – and each one has to be shoved where the sun don’t shine – the medication I mean, not the missiles of scion’s Clone trooper transport ship clearly – after … er … daily motion.

As you can imagine this is not hugely dignified experience at the best of times. But when there’s a strong chance you’ll have to give a painter outside the window, sanding down the woodwork, a cheery wave first, it’s a whole new dimension of ‘interesting’! So as well as needing ‘thought collection’ time, in the morning, I have to have been up long enough for motility to occur before the painters arrive as well, in order that the Pile Howitzers can be deployed safely.

Nice.

As a result of this, we have managed, just about, to make it to the end of the week even if, yesterday, both McMini and I forgot his PE kit. I had to rush back to the school with it. Then, he came home wearing said PE kit having left his clothes at school in the bag. As he’s low on trousers, or at least, as he only has the one pair with knees in, I had to rush back to school with him and get his clothes. When he brought the bag out, I was smart enough to check the contents for once and sent him straight back in to get his shoes. This week has been like that.

Then there’s this morning. Although I’d call this a partially successful session.

Today is Saturday and, like many other small boys up and down the country, McMini has football practise. It starts at half nine so I need to wake up at 8 am or so in order to nag McMini to get ready, constantly, from about then on. If I do that, there’s an outside chance he’ll get himself sorted and ready by about 9.15. Today I was woken at about twenty past eight by a cheery cat who lay on my chest making burrping noises and generally demonstrating how pleased he was to see me. After a brief cuddle he headed off to do Important Cat Things and I went and cleaned my teeth, washed my face, brushed my hair and got back into bed for a moment to warm up. But I was fucking knackered after a week of six hours sleep a night instead of seven. Can you guess what happened next?

Yes. At about ten to nine I woke up. This was not good. Leaping out of bed in my pyjamas I ran down and put the coffee on, whacked a crumpet into the toaster for breakfast – first of two x four minutes – made McMini a cup of tea and grabbed his football kit from the airer, where it has been ‘drying’ since its last wash over a week ago – because I’m not a skanky ho or anything. Mwahahahaahrgh!

Ran up to McMini’s room as fast as the action of arthritically running up stairs while carrying a cup of tea and a football kit would allow and discovered that he was awake. It was he who had released the Kraken cat. Unfortunately, he was on the loo looking at videos on his phone. Fortunately, he was most accommodating about wiping his bum and getting his finger out with the dressing when I told him what the time was (I can only assume he’s all up to date with Dan TDM or that the battery in his phone had died).

In something that must be closely approaching a miracle, McMini got his football kit on in about fifteen minutes; evil, impossible-to-pull-on socks and all. I should imagine the tea helped because I’ve tried the ‘Oh shit we’re late’ approach to getting him up in the morning on many occasions and it’s never worked before. At the same time, I hurled on some clothes, put my face on, dragged a brush through my hair again and ran downstairs. I even remembered to push the toaster down to give the crumpet its second four minutes. McMini requested a tortilla wrap, just the wrap on its own, which I had right to hand. Despite the fact that the morning, so far, was like red-alert at Ice Station Zebra we were rocking this! What was going on?

McOther arrived home just as I was shoving McCat into the box to take him to the vet for his yearly shots. Cat in box, now it was time to find the immunisation card. Could I find it? Of course I fucking couldn’t. Never mind, it was now nine twenty and McCat had an urgent appointment on the vet’s table at half past. McOther was taking McMini to football so I hurriedly kissed the boys good bye and rushed off to the vet’s. Amazingly, I even remembered to take the cat with me.

In the short five minute journey I managed to see sun, rain and hail. Plus there seems to be a permanently gale force wind direct from Siberia or somewhere mind-(not to mention, extremity)-numbingly cold.

Despite a nervous few minutes sitting at the traffic lights which went red just as I got to them, naturally, we made it to the vet’s at nine twenty nine, went straight in, wormed, new card, shots done for another year and that was just the cat (badoom tish). Quick chat, paid … a LOT of money … and went home. I broke the cable for the solar charger I have for my car battery which was a bit of a pisser, but on the upside, I think I can fix it.

Even when McOther rang me at 10.45 to say they were holding the traffic on the main road after an accident, that he thought he might not be able to get from Sainsbury’s to football to collect McMini, and that I might have to, the traffic started to move while he was on the phone. Despite waking up, almost too late, everything had gone according to plan, and rush or not, we had achieved our aim. We were blessed! Yeh.

Mmm … just call me Van Halen.

So here I am now, sitting typing this, breathing a sigh of relief that everything is all done. Then I catch sight of my reflection in the kitchen cupboards.

Now, I may have whinged about my hair before but basically, it’s very affected by what the weather is doing. So when the weather doesn’t know what it’s doing, neither does my hair. So the downside of this? Let me show you.

Yes I’ve been going about all morning looking like the mad bag lady of Ning Dang Po. There’s just no way on God’s green earth that any normal person would look at that and think it wasn’t a wig. Blimey-oh-Reilly. Or perhaps it’s more of a 1980s stadium rockstar. Or is it a cross between Milton whatsisface and Ken Dodd? Ah, if only I was as funny as them! Or am I trying to ameliorate the effects of alopecia with a Brillo pad and some wool? I dunno, I’ll let you decide.

Ho hum, I suppose it could be worse.

Now, if you’ll excuse me, I have to go and put a thing that looks like a StarWars missile up my arse.

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This will end in tears … the chaos continues

It was Mothering Sunday lunch at McMini’s school yesterday. I know, bit late but who cares. Incidentally, before I go on, folks in the rest of the world, Mothering Sunday is a UK thing and part of the church calendar. It was when people in service were allowed to go home for the day and see their families during Lent before the Easter rush – yes they got one day off each year. Looking forward to labour laws like that post Brexit, still at least Farage, Reese Mogg and Johnson will have left the country so it’s not all bad. Mother’s Day is something different and more to do with legislature than tradition as I understand it, but I’m probably wrong and I digress, as usual.

When I booked a ticket McMini was completely horrified, telling me that I might be the only mother in his group of friends who was coming. Then I discovered that, no, another friend’s mum was also going. Phew! When I revealed this fact to McMini his horror at my impending visit was lessened considerably, indeed, he hid it well but, at the same time, he clearly quite liked the idea of my turning up as long as he wasn’t the only person lunching with Mum. I texted the other mum to make sure she was still on for it and she’d forgotten so that was lucky!

Needless to say, I left a bit late because I managed to drop a whole load of receipts out of my back pocket as I pulled my trousers up after a last minute wee. Obviously there was absolutely nowhere in the entire world that they could land other than in the lavatory and obviously this was just before I flushed so there was a few minute’s hiatus while I fished them out of the wee water and washed my hands. What a joy that was.

Clearly, this is the only picture I could post here!

As I left the house I discovered that someone had left an absolutely hugantic turd in our drive. A couple of the dog owners in our area are terrible, letting their animals crap all over the pavements and seeming to work on the theory that the more chance some poor bugger has of standing in it, the better. But no dog could have laid a cable this large.

It’s human.

I have absolutely no idea why people feel compelled to shit in our drive but every now and again they do. They do drugs there, park there to take ‘legal high’ capsules, leave stolen goods and their used syringes … I even turned up at midday once and discovered two young people having sex against the wall, although I’d pressed the open sesame button for the garage door while still out on the main road so they were, at least, rearranging their clothing by the time I got there – he zipping up, she pulling up her jeans. I always blip the button in the road now, in the same way my Dad used to cough a lot in certain parts of the school when he was a housemaster, to alert anyone in the vicinity breaking the rules of his impending arrival.

Reverting to the enormous Richard in question, it was about as wide as my wrists so as McOther remarked when he came home, it was definitely a copper bolt. Frankly, I hope the trauma of doing that one tore the stupid bastard’s arse in half. I mean fine, sometimes things happen and you are caught short and it’s better to whip your trousers down and poo in the street than in your pants but seriously? How much of a fucktard do you have to be to take a shit in someone’s garden? I like to think that even I, at the height of my self-destructive punk, fuck-you-world phase would have had more style, panache and general humanity than to do that.

We human beings can be truly monumental wankers can’t we? I mean look at the rise of Marxism and Nazism oh I’m sorry, I’m not allowed to call that second one by it’s actual name, am I, even if they are following Hitler’s playbook and their ideology appears to be identical, I have to call them the alt right. The ones who bang on about how we fought a war … yes against a bunch of people like them. Waves at Nigel Farage. Oh the irony.

Sorry where was I? Ah yes, well, on the upside, at least I didn’t do my usual trick of managing to get my rucksack, with its many straps, hooked up on our stupid garage door handle. That handle kind of sums up life really. It moves a full ninety degrees but only the last one and a half degrees of that full, ninety degree swing actually moves the latch. The result is that you tend to find is that you attempt to open the door, only to find you haven’t pressed hard enough for that last millimetre of travel and therefore haven’t opened the stupid fucking thing after all. I hate that door, I hate it with a venom and passion that surpasses even the ill feeling I currently harbour towards the cockwomble who shat in our drive. But the door handle does make quite a good metaphor for adult life; an awful lot of effort seems to be required to do the tiniest thing and most of the time, it seems you are doomed to get absolutely bugger all done.

Here’s an example. Remember how McMini came home with the wrong trousers? Well, we effected a swap and McMini’s trousers arrived back washed from his friend’s mum last week. When I unfolded them, I discovered that at some point during the day, before his PE session, he’d gone through them at the knee. Never mind, there were only four days of term left. He’d get through those with the last pair of trousers wouldn’t he?

Er … no.

He arrived home on Wednesday with a massive hole in one knee. Such things tend to go under McOther’s radar and I arrived home from Sussex after the shops were shut. There was nothing for it but to compare trousers and send him in to school the next day wearing the pair with the smaller hole. Then I had to go and buy another pair for him to wear for the last day of term and his Boy’s Brigade awards evening. I bought the last two pairs in the shop and now I’m thinking that may have been unwise as they’ll probably be just below the knee by next term.

At about the same time this was going on, I also noticed a strange rough patch on my left hand. It took me a while to work out that it was not some rampant skin disease taking hold, or some horrible alien affliction gradually turning me into a scrofulous space zombie but was, in fact, the remains of an act of such incredible rank stupidity that I am feeling rather guilty for my castigation of the phantom turd burgler now. Read and weep …

Oh no M T you total wanker …

Last week we did dinner for some friends and we decided to make creme brûlées (woah! My iPad put all the right accents in there! Magic.) with a blow torch. So far so good, we have a chef’s blow torch and have had it for years. I filled it up with gas the night before but, when I came to use it, I discovered that contrary to expectation there was no gas. Further efforts to fill it revealed that smething in it had broken so as the gas went in one end, it leaked out of the other. By filling it up and then using it for about twenty seconds at a time, I managed to do two of the four creme brûlées but progress was slow. Yes, I checked my watch, I’d been at this for ten minutes already and I still had two more to do.

Hmm. I sure as hell wasn’t going to make seconds.

I turned the grill on, toyed with the idea of using it to make the last two. But putting aside the fact that the average electric grill takes about twenty minutes to reach optimum temperature, even when it does it isn’t hot enough to caramelise sugar. A friend of mine once researched ovens back in the noughties and discovered that, unless you spend three or four thousand on a La Conche oven, every single element in every single electric grill and oven is made in the same factory in china. The upshot of this is that if you have an electric grill and you want to make creme brûlées you will get this weird scrambled egg thing and all the fruit will cook and the juice will rise to the surface and combine with the sugar to make this kind of sticky slurry on top with a kind of curds and whey style thing that used to be soured cream underneath.

Trust me, the real thing is even less attractive than I make it sound.

There was no other option, I had to use the effing blow torch but surely there had to be a quicker way. I had a think and hit on a cunning plan, I would stick the butane refill bottle on the bottom and turn the thing on so that gas was always coming in. Yeh the plan was Baldrick cunning.

Oh yes, cracking idea, I thought, that’ll get it done in no time.

You can see where this is going, can’t you? My cunning combo did, indeed work long enough to complete the other two creme brûlées but it wasn’t real cunning, it was Baldrick cunning. Flushed with my success I went back to the first one, which was looking a bit gritty still, to give it another blast.

Unfortunately, what I hadn’t quite grasped was that the seal around the butane refill nozzle and the intake valve on the blow torch wasn’t as … um … airtight? as I’d anticipated. A large cloud of gas had been building up around the blow torch and my hands and eventually, the inevitable happened and it ignited. There was a noise.

‘Whump!’ it went.

A large pale orange-white fireball engulfed the butane bottle, the blow torch and my hands. In my head there was no time for words, merely a picture of the refill aerosol exploding. Luckily the picture came fast enough for me to cease all pressure on the release valve of the butane refill bottle at the W of whump, actually it was probably at the first V of the W or maybe even the first \. Quickly enough for the fire not to be sucked into the aerosol canister anyway, so no actual explosion occurred. Which was nice.

In the aftermath of this substantial ignition, there was a very strong smell of burning wool and I noticed that the fluff on the jumper I was wearing was considerably shorter in the area closest to the fireball. I was mightily glad I had worn a non-combustible wool jumper that night, rather than a fleece or something made from highly combustible man-made fibres. As I thanked my lucky stars for that, I noticed that the first and second fingers of my left hand were smarting mightily and rather red. I ran them under the cold tap and to my relief the burns stopped at second degree and by the end of the evening I’d forgotten about them, until a few days later when, like all sunburn, they peeled.

So yes, my cockwomblery is confirmed, but it could be worse, it could have ended in tears. My tears. Still, at least I’m not turning into a scrofulous space zombie.

Is there a moral to this story? Possibly. I mean, thinking about it, a lot of us are struggling. A lot of us have lives like the stupid bollocking garage door. Lives where it seems to take the most gargantuan effort so shift the needle while other folks stroll on by making it look simple. We want those things, the adverts tell us we can have them now, and society tells us that if we haven’t earned enough or got X, Y or Z we have failed. But that isn’t real, that’s just advertising and fashion. It’s no more real than my books. But still we persist in applying these unrealistic standards to ourselves. Then when we ‘fail’ we look for someone or something to blame for that failure, brown people, gay people, people of a different religion.

And what’s so stupidly ironic is that it’s all stuff and it isn’t stuff that makes us happy, it’s people and relationships and experiences. Money helps, and it makes things easier, but if there are no true friends to share it with it seems pretty pointless to me. As for the ‘failure’ in question, sometimes it’s down to having a hopelessly unrealistic dream, sometimes it’s us but most of the time, I think it’s random luck.

Whatever the reason, it isn’t easy to give up on a dream when so many folks on line appear to be living it. But I do think being happy takes work. You have to focus on what you have. And taking myself as an example then yes, it’s true, I don’t have the several million I’ll need to pay my care fees when I’m elderly and leave something for McMini, but I do have McMini and McOther. I have a loving family and a cracking bunch of friends and for the most part, I have a good time.

Is that what’s wrong with us all in Britain, too many broken promises, too many broken dreams? We can’t all be rich and famous, and it’s becoming ever more apparent that fame isn’t much fun. Maybe what we need to fix is our attitude. We have a parliament full of MPs who seem to have forgotten what they’re there for. Meanwhile Brexit rumbles on and the government sneaks cuts to essential services through under the radar.

We’ve had another big row on about Brexit this week, lots of outcry and resignations, lots of talk about loyalty to the party and betrayal of party values from all sides of the house. Oh I know there are MPs who care and work hard for their constituents, but what shocked me most about this week’s row was how it was all party politics, throughout all the reportage I heard. The idea of anyone doing anything for the good of the nation didn’t make so much as a blip on the radar.

The cruellest blow is that it’s our fault. We elected these idiots. Heaven knows how we go about engaging normal people in politics again, people with life experience outside the political spectrum, people who will put their nation first and their party second, people who have had careers rather than career politicians, but we have to do it, fast. Making it to cabinet is not the same thing as getting promoted at the investment bank or making partner at the law firm. One is a job promotion, the other is a service to a nation. There’s a subtle difference and it’s one our current career politicians seem to be missing.

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How does this even happen?

This is McMini’s work.

Obviously there are points among the mayhem when I try to write a sensible post about something, but this week the madness continued so I felt I may as well just give in and tell you about it. To be honest, I was worried, a few weeks ago, that I was losing my sense of humour. The good lord has clearly decided to rectify this by making my life as surreal and bizarre as possible. The appreciation of oddity centre of my brain is definitely fully satisfied at the moment, anyway.

First, Dad.

Huge relief this week. After a meeting with Dad’s home, his social worker and the community dementia nurse on Wednesday, they said they were happy with his progress and thought he was settling well. The manager of the home confirmed that they will be able to look after him permanently. Since we were happy with the home, too, this is a huge relief. They addressed most of the doubts or misgivings we had before we got to the asking questions stage which was also a good sign. The home are taking it slowly and letting Dad settle, he flips from charming to very much not charming and has to be placed carefully since he is able to raise his voice to the kinds of levels required to be heard by rowdy teenagers. As the manager pointed out, that kind of volume, like hearing someone play the bagpipes in a small room, can be a bit much for the other residents in a confined space.

At the moment they are working out who Dad gets on with and who he doesn’t. Residents with dementia do irritate each other from time to time, apparently. Like life then. But they’re more like kids so there’s a lot more of the kind of nursery school exchanges. Go away I don’t like you, you’re smelly etc.

A highlight was when the lovely lady who runs the home was trying to get into the computer system to show us Dad’s record. The meeting room was just off the main hall/lounge where everyone sits. She forgot her password. So she opened the door and called for one of the other staff.

‘She’s gone,’ said an elderly voice from a chair nearby. ‘She got into the taxi.’

‘Did she?’

‘Yes, I don’t know where she’s going.’

The staff member appeared from the office next door and came in to join us. In the background I could hear a cheery commentary from the same resident.

‘Look! They’ve both got into the taxi.’

‘Oh,’ said someone else.

‘Yes, I don’t know where they think they’re going,’ said the first voice.

Very Alan Bennett.

At another point I heard a resident shouting and then the familiar voice of Dad bellowing, ‘shut up!’

There was a slight pause in the meeting room.

‘That was Dad,’ said Mum.

‘Yes,’ I agreed, ‘still, at least he didn’t say, “fuck off!”’

It sounds a bit grim of me but I’m afraid I actually found it hilarious. Luckily everyone else laughed too.

If you want to survive stuff like this, I sincerely believe there is no other option than to see the funny side. Were he still wholly himself, I’m certain it’s what Dad would have done. There is something gloriously, surreally random about listening to a background of conversation between demented people. Furthermore, Dad is much more settled and much more aware so we are happier because he is and therefore, so is Mum. She is a bit of a worry. We are standing at the top of the hill we were on with Dad three years ago, except with her. I’m hoping the cajoling, the getting extra care and all the other baggage that comes with getting people the care they need, rather than the care they want, will be easier to handle the second time.

Business in casa McGuire is mayhem as usual.

McCat is behaving abominably. As if his complete obsession with my evening primrose oil capsules wasn’t enough, I turned my back on the kitchen work top this morning only to discover he’d leapt up there and was drinking the dregs of McOther’s tea. For the love of the almighty was there ever such a skanky cat? I swear he’s suffering from species dysmorphia because he is clearly a labrador. I have discovered that screaming at him makes him stop and run away, and it also clearly communicates to him that I am displeased and he’s been bad. It doesn’t stop him, though, because not only is he mischievous but he also has a sense of humour and I suspect he thinks it’s funny.

Midweek, a friend from way back rang up out of the blue. She was up here on business and asked if she could stay over. Yes she could, I said. So after a grim journey home from the care home on Wednesday – a lovely 39 minute delay at the Dartford Tunnel and other shenanigans – I got home a few minutes before she arrived.

We had supper and there was lots to talk about, we’re in very similar situations with elderly parents although it’s just mum in her case and we managed to talk the hind legs off every donkey in the vicinity until we realised it was one am.

Nooo I forgot the soldiers in the bog!

I didn’t really think it through, since I had metal detecting club the next night and McOther is hoping to start a wine tasting group we had the first meeting round ours the night after. Long and short, I really can’t do late nights any more I have been recovering from Wednesday’s excesses all week.

When we had the wine group round, I spent the day trying to change my mindset to that of a person who does not live with a ten year old and to notice, and remove, some of the bizarre items that have come to rest around the house. A lot of nerf guns, bits of biro, headless action figures and other detritus later, I thought I had them all, only to discover, while having a nice relaxing wee during the wine evening, that I’d completely forgotten about the row of toy soldiers in the lavatory. Still, I suppose it could have been worse. The scale on our water here is brown and I did, at least, remember to give the lav a good treatment with descaler so it was mostly white.

Meanwhile, McOther had blithely imagined that he’d be home from work in time for us to eat a meal before the wine evening on Friday started. In fact, the first of our guests arrived about two minutes after McOther did. I chatted to him while McOther had a wee and unpacked his work bag before leaving McOther playing host and haring off up the hill in the car with McMini to Boy’s Brigade. Needless to say, because I have a tiny car and McMini is, himself, a microdot, he has elected to play the bass drum in the Boy’s Brigade band. To give him his due, he’s pretty good at it but it means I have to schlepp up the hill with it, or borrow McOther’s car. It’s only a matter of time before he takes up the double bass and the tuba I suspect … or possibly the euphonium or some other hugantic instrument I’ll need a luton van to ferry him about with.

On the recovery from my persistent socialising score, the fact it is the part of my monthly cycle which I privately refer to as Constipation and Brain Fog Week hasn’t helped either, but this time the brain fog and seems to have extended its sponge like caress, not just to my brain, but also to McMini’s.

On Fridays he has PE. Thank heavens he no longer has to go into school dressed in his kit, with his school clothes in a bag, but he tends to come home in his PE kit with his school uniform and school shoes stuffed into his bag. However, he also has Boy’s Brigade on Fridays so he has to put the school trousers and shirt back on again. Bless his heart, I took his uniform out of his PE bag, popped it on the sofa beside him without really looking at it and asked him to put it on. A few minutes later, I heard a shout of dismay.

‘Muuuuuum!’

‘Yes.’

‘These aren’t my trousers! They’re huge.’

He was standing in the middle of the room, sporting what looked like clown trousers. He held the waistband out from his stomach and there was, indeed, about three inches of extra room where, presumably, they usually sit snugly round a very much larger child. Luckily, I’d already washed the other pair of his own trousers and it was hanging over the airier in the utility room so I didn’t have to creep up the stairs on my shonky knees. Even more luckily, it was dry!

The week before last, he managed to get changed back into his school uniform but he came home with another child’s hoody. I didn’t find it for five days. The wee lad’s poor mum was probably wondering where the hell it was. At least I managed to wash it and get it back to her in time for the next PE lesson.

So now we have a pair of mystery trousers and some other child has McMini’s. As far as I recall, McMini’s are named, I’m not sure though, because he went through about six pairs in the first three weeks of term playing something which he called ‘human chess’ and so in the whirl of rapid acquisition and destruction of trousers I may not have named them. Still, I should thank the world for small mercies, I mean, it makes life interesting and at least he still has a pair to go to school in on Monday.

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Adventures and alarums!

What the fuck is going on?

This last week has been rather fun but it has been a bit like some badly written situation comedy. Then again, most of my life is like a badly written situation comedy. McOther often tells me that if my life were written up as a screen play, it’s so barkingly strange that no-one would believe any of the true life events depicted were … well … true.

In a strange coincidence, two old friends who I haven’t seen in ages have rung up to say they’ll be in the area and could we meet up. To my delight they were around when I am, as well so I met one friend yesterday and another is coming to see me on Wednesday! Woot all round.

On top of that, it’s been an adventurous couple of days. The night before last McOther was due to come home late. He rung and told me he’d be even later than he thought as he was swamped with emails. I could hear the tension in his voice. That was fine though, I would make sure everything was spic and span and try to ameliorate the mess so it was not as bad as sometimes, or at least, so enough of it had disappeared for him to register that we’d made an effort to be tidy and feel loved accordingly. I began by starting McMini’s supper early and also putting McOther and my supper together ready for when he came home.

Meanwhile, McMini was convinced that he had to have a drink and it had to be ‘a potion’. I haven’t a blind clue why but we looked out a jam jar and he made himself a rock shandy (two thirds ginger ale to one third soda with a dash of bitters, ice and a slice of lemon).

Rock shandy made, although he never does the ice and slice, he explained that it needed to be a lurid colour.

‘What sort of lurid colour?’ I asked him.

‘Do you have blue?’

The food colouring is on the top shelf of the larder ever since I discovered McMini, as a three year old, taking a good pull out of the bottle of yellow. Accordingly, I went into the larder and climbed onto the fold away stool thing I use to reach the top shelves. Frankly, I’m too fat and heavy for this thing, so having already broken one, I have learned to stand on it very carefully. It can take my weight but only if I place my feet in a certain way – you know like always stepping on the joists rather than the bit between when you’re up in a roofspace.

The stool creaked and groaned ominously but held up as I had a shufty on the top shelf of the larder. Eventually I discovered the blue food colouring and passed it down to McMini. I was still stepping off the stool with a slowness that only glaciers, or the arthritic, can achieve, when McMini had whipped off the lid and upended the bottle.

Oops.

Luckily only about half of it came out before he realised what he was doing and stopped.

‘Sorry Mum, I thought it would have a dropper like the bitters.’

‘Nae bother sunshine.’

The result was a tall thin jam jar full of the most bizarre blue liquid. We both knew it was rock shandy but it did look like something fresh from hell, or an antifreeze tank, in rat-poison blue. Mmm-Mmm!

‘Please, please, please keep the lid on that at all times and don’t drop it,’ I told him. I handed him the lid which he placed carefully on the jam jar and tightened under my supervision before he went off happily, potion in hand. It really was very blue – I’m thinking Regalian Brandy, StarTrek fans, or certain brands of lavatory bleach, everyone else.

McMini disappeared with his strange concoction, to have a poo, he informed me.

Lovely.

I carried on with whatever it was I was doing, faffing about in the kitchen doing something or other and then I heard a noise.

‘Flabado-do-do-doom!’ It went.

I listened.

Nothing. Then …

‘Mum.’

‘Yes.’

‘Can you come upstairs a minute?’

‘Why?’

‘Something’s happened. Please don’t be angry.’

He’s fucking spilled it, I thought. There’s blue bastardy jizz all over my fucking stairs.

‘What’s up?’ I said.

‘I’ve fallen down the stairs and banged my head.’

Oh, or maybe not on the blue jizz front, I thought hopefully.

‘Oh dear. That sounds a bit grim. Are you alright?’ I was pretty sure he was, it sounded like a small boy version of a terrible injury rather than an actual … you know … terrible injury.

‘Yes I am but … listen Mum, please, please don’t be angry.’

Oh fucking bollocks! He knobbing has spilled it! We have a blue chuffing carpet, I thought

‘Have you’ve spilled rat poison blue liquid all over the stair carpet?’ I asked, just to check.

Long silence.

‘I’m really, really sorry Mum. How did you know?’

Because the klutz gene is dominant and Sod and his bloody law made it fairly inevitable, I thought.

‘Skill,’ I said. ‘I’ll just get some kit together and then I’ll come up to join you and we can clean it up. Where is it?’

‘Outside Dad’s office.’

Oh fuckity fuck.

Dad also known as McOther. The same McOther who rang twenty minutes earlier, his voice full of tension. OK, no matter how disastrous this was, it had to be gone before he got home or he was going to lose his fucking biscuits. McOther is a neat bot and although he tries not to let living with the two messiest and most disorganised people on earth get to him, things like a sudden stain on his beige carpets can drive the poor man buggy. Especially if he’s stressed and he’s had a tough day. Code blue had to be neutralised before McOther got home or the three of us would all have a horrible evening.

As you may have gathered from accounts of my activities on this blog, I’m a total and utter klutz. Or the spill-o-tronic, 3,000 series as I am known. This means I have a library of stain removal products that is second to none. I am also pretty good at removing stains because otherwise, I would have nothing to wear and a house that looked like an ongoing Jackson Pollock project.

I grabbed a bucket and put every bottle of propiatory cleaning product I could find into it, and trust me there were a lot of bottles in there; vanish soap, OzKleen carpet cleaner, white vinegar, washing up liquid, you name it, I equipped myself with it. And sponges. Then I took some old ‘real’ nappies that we now use for just this type of emergency and clanked my way upstairs with it all.

McMini was standing beside a football-sized carpet stain of a lurid torquise colour. To give him his due, the lid was on the potion, so only about a quarter had spilled. As he fell, he’d dropped it and it had tumbled from his hand and landed on its side, the impact loosening the lid and allowing leakage. He’d then tried to wipe it up with his hands, bless him, merely smearing a small concentrated spillage into a much wider area. A bit like the time he used his goal keeping gloves to pick up a poo he’d done in the hall by mistake after he’d waited too long to go to the loo because he had to stand his Lego General Grevious up first and it kept falling over. He’d seen me put on rubber gloves to clear up sick so grabbed the nearest gloves to hand. In other words, he’d got it so right and yet … so wrong.

There was a nerf gun on the floor beside the stain so it was clear he’d been taking too much stuff down the stairs at once and probably missed a step because he couldn’t see or he may not have fallen and have just lost his hold on one bit and ende up dropping the chuffing lot.

We started by putting nappies on the stain and standing on them to wick it away.

‘So were you taking all this gubbins down stairs at once?’ I asked him as I marked time on a nappy that was rapidly turning blue.

‘No,’ he told me. ‘I took the gun down and then I went back for the liquid and got that and then when I was walking down with it I fell.’

I looked at the gun, half way down rather than at the bottom.

‘I see,’ I said.

So that’s a, ‘yes I was trying to carry everything and dropped the lot,’ I thought, but I’m not going to say anything. How could I when he was supremely contrite and nearly in tears.

We put half a bottle of OzKleen carpet cleaner on the stain and scrubbed it, then, when that had almost run out, I chucked half a bottle of white vinegar in with the rest of the OzKleen in an approximation of a recipe McMini had just found on the internet using his phone. We put that on. Then I filled the bucket with water and ‘rinsed’ it out at which point McMini, feeling that he wasn’t helping, left me to it.

After standing on more nappies to ‘dry’ it out a bit, it was better, but still blue. Blue like the touch paper on the firework McOther would turn into when he saw it and went into orbit.

Arse.

Then I remembered the condescendingly helpful lady in the advert for the Vanish in-wash stain removal stuff. She got it in a small pot and added some water. Then you were supposed to be able to make a paste and spread it onto stubborn stains, scrubbing it with the stippled bottom of the pink scoop that came with it. Leave over night and rinse the next morning. That’s what it said. Yeh. So I did that. Making a vile pot of claggy slime with bits in that wouldn’t dissolve. But fuck it, what did I have to lose? I went ahead and scrubbed it into the carpet. Along with those little white bits like polystyrene balls that they put in to take up space, stay loader as Mr Bol* wash used to call them, which resolutely refused to blend into the rest of the mixture at any cost. Then I left it to work and emptied the water out in the bathroom and left the bucket up there, along with the sponges and the two nappies I hadn’t used which I set aside for ‘wicking’ the slimy gloop back up again (complete with blue hopefully).

McOther rang to say he was leaving the office. He sounded a lot less stressed but I realised that in order to ameliorate the impact on his wellbeing of the blue carpet outside his study door, I now had to break it to him gently so he was prepared for the sight of the blue stain and ready for the shock.

Hmm, how to do this?

Then like lightning, inspiration struck! Of course, I’d just say what McMini did. So I said that McMini had fallen down the stairs and bumped his head but was OK. McOther was all concern, at which point I broke the news that it was only a little bump and that McMini had also spilled blue juice everywhere in the fall. Bless him, McOther was just happy that the head bump was minor as I had been.

Even better, by the time I’d finished cooking dinner and went back upstairs to see how the claggy gloop was doing, the stain had … yes … vanished. OK we have a weird clean bit of carpet that looks like a pale stain but I expect I can fix by rubbing some dirt into it or something.

Meanwhile, McCat has been such a thieving bastard these last few weeks that I feared he may be ill. Like The Blob, he has been eating everything in his path. But he hasn’t been putting on weight, adding to my fears about his health. Some very expensive tests later it turns out that no, he is not ill, he is just a scrounging shite. This morning he capped it all by opening a plastic bag of this week’s vitimin pills. I take several different ones each day and I can’t be arsed to faff around with all the child proof lids that nobody in the house apart from my ten year old son can open. So I decant them all into a plastic bag each week. Only one thing to open. Except this week, McCat opened it. Twice.

McCat likes cod liver oil and evening primrose oil. It appears he’s also quite partial to vitimin A and cranberry cystitis pills.

I cleared up the mess and counted up a second bag. He ate a lot of the actual bag this time, as well as the cod liver oil and evening primrose capsules. He left the rest though. So now I will be putting the pills in a small pot with a very tight lid. Presumably McCat will have a blindingly luxuriant coat for a day or two. I just hope it doesn’t make him ill. Rock on summer when he will have insects to chase and will, almost certainly, become a well behaved cat. In the meantime, as well as vitimin pills he eats sugar snap peas, peas, broccoli, cheese, bread, olive oil, yogurt, pasta and anything else that is not nailed down.

Another eventful week then.

* Spelled the way the bloke in the ad used to say it, rather than the proper way.

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Knowledge comes when you least expect it …

This month, I have mostly been ill.

That isn’t the entire sum of it, obviously. I mean there weekend at the end with the dig where I found the howling beastie and there was a rather jolly week after that plus a weekend when we had visitors and I danced arthritically on a table, remember. McMini was ill on the Sunday our guests left and off school the entire week. Then it was half term and he gave whatever it was he’d had to me in time for me to be ill over the school break, obviously. McMini threw it off in a week or so, but felt a bit weird from time to time during the half term holiday. McOther binned it in about twenty four hours. I felt as ill as I’ve felt since I was ten, and had the highest temperature I’ve had since I was ten too, a mighty 103.9 but it was only for one day and on the up side, I got rid of it in four days. On the downside it’s kindly left me with a chest and a sinus infection which I foolishly believed would go on its own. Needless to say I’ve managed to get the one that involves experimenting with multiple courses of antibiotics and some steroids. I have two friends who are ahead of me having completed my current regimen of eight pills plus a blue and white capsule every morning.

Upsides? Well, to be honest, anything is better than the way I felt with the flu AND I was well enough to creep out for a half term outing the day my flu subsided, despite feeling very dizzy and post feverish, so we got a quick day trip in before McOther went back to work on the Thursday and Friday of half term. We all ventured out again on the Saturday so at least we did have a half term that felt like it actually was a holiday, sort of. Neither McMini nor I was up to much on the Thursday and Friday anyway. He was much better but still fatigued and post viral, I was, thankfully, back to normal human temperature, albeit feeling a little tight across the chest and laughing like Mutley as the chest infection began to take hold. We chilled and relaxed together which was lovely, he screened (probably too much) and I read a stack of books! I even discovered a Jim Webster short from the Port Naain Intelligencer series that had escaped my notice. Bonus!

The half term trips out were both to air museums. The first, I had discovered quite by chance going to a dig back before Christmas. First I passed a farm selling raw milk from a vending machine outside. It also had what it called a cheese window. It was obligatory that I photographed that for McMini who loathes and detests yet also obsesses, slightly, over cheese. A few hundred yards further on and suddenly, in what looked like a pub car park.

Aeroplanes.

Not just any old aeroplanes either. Jets. I had passed it by the time it registered and stopped the car.

‘Did I just see that?’

I backed up.

‘Bloody hell. Yes I did!’

I took a photo and squirrelled it away for future reference. So it was, that ‘Future Reference’ turned out to be my sickly Wednesday half term day out.

It was a cracking museum. Not only were there some excellent and interesting planes but there was a fascinating collection of pieces of plane that had been hauled up in the nets of the fishing fleet based around Lowestoft, Gorleston on Sea and Great Yarmouth. This stuff was amazingly well preserved, yet a lot of it was crumpled and bent because it got into the sea by being blown apart. There were wonderful planes, helecopters and there were rooms full of artefacts, models and what I tend to call shed finds. All of it was free to look at and staffed by knowledgeable and enthusiastic volunteers. The loos were lovely too, clean, well stocked with loo roll and soap, the towel dryers worked and they were warm! Ah bliss.

While we were there, I discovered a shed find of my own. First let’s spool back a few years. Er hem, about thirty eight, to be precise. I was a nipper and my brother and I had a rubber dinghy which Dad would inflate, laboriously, with a foot pump when we went to the beach. A rubber dinghy, friends from other nations, is basically an inflatable rowing boat. Nothing to do with sailing. Anyway, back to the story.

The inflation process was pretty lengthy, so the dinghy was only wheeled out on day trips. Days at Stiffkey salt marshes when we were on holiday in Norfolk, or trips to Cuckmere haven; that kind of stuff. But back home, on a Saturday morning, or after school, when we wanted to go to the beach for a quick swim, I still wanted to be able to scull about on the waters. To this end, one holiday in Greece I bought a thing that was a cross between a surf board and boogie board, made of polystyrene. You couldn’t stand on it and surf, it would break in half, but it was ok to lie on it and scull with your arms or you could sit and row with a double ended oar. Except I didn’t have one and the only oars were to be kept with the dinghy on pain of death, after arriving somewhere and discovering we only had one.

Blue oar … the varnish has turned brown, which hasn’t done it any favours, it was a much prettier colour.

So it was, on warm afternoon ferreting about in my grandparents’ shed I discovered some of my grandmother’s toys, which she let me have, and an oar in a pleasing shade of blue. The oar had a brass bit in the middle and had clearly come apart into two halves at one point, before someone had drilled a couple of holes and put a some screws in to keep it together. OK so it wasn’t double-ended but it would be better than nothing for sculling about on my crap, polystyrene neither-boat-nor-surf-nor-boogie-board. Could I have it? I asked Nye, my grandmother, and when she agreed that yes, I could, I was stoked. I bore it triumphantly home.

As my mother made a space for me to put it in the car, she explained that it came from her and my uncle’s rubber dinghy. Said dinghy, like ours, had been used to great effect but, like ours, was also somewhat reliant on the stalwartness of those available to pump it up, and, of course, the time available. At the point in my mother and uncle’s life when it was in use, my grandfather was working in Greece and my mother, uncle and grandmother would take a two day flight out, in a Dakota, to join him for the long summer holidays. This meant that the only people available to pump the thing up each time on beach trips during term time weekends or half term, were my grandmother and Grand Nan, Mum and Uncle’s nanny.

Mum then went on to tell us about a trip the four of them made to Newhaven beach with the rubber dingy. My grandfather was still in Greece at this point, trying, on one hand, to help set up the new Bank of Greece and general economy in the aftermath of the war and on the other hand, making concerted efforts not to be killed in the revolution. He saw a fair few atrocities perpetrated by both sides – quite a lot of lining people up and shooting them down with machine guns – and at one point he had to defend the Bank of Greece from a communist attack. I never got the full story of this one, I should think it took a fair bit of balls from all of them, but he always spun it as less to do with courage and more about an ardent desire to avoid being put up against the wall, alongside his staff, and machine gunned. He and the staff held the bank and he was given an OBE. Needless to say the OBE, itself, has long since been nicked from a relative’s house in Kew, according to the police, by drug addicts burgling small shiny things to sell for the next fix – although we still have the box (there’s always an upside).

Anyway, Grand Nan, as she was called, and Nye (my grandmother) worried about the possibility of their little charges floating out to sea while they were engrossed in their reading or their conversation, had an ingenious idea. They took a long piece of string and tied one end to the dinghy and the other to Grand Nan’s wrist. Grand Nan was wonderful; tiny, twinkly eyed and gentle. She had a great sense of fun, and humour, and she was still around when I arrived on the planet. I’m not sure quite how effective she would have been as anchorage but clearly she felt she would cut the mustard. She is another of the people from my Sussex past who turned out to come from near my Suffolk present. She was from Thetford and her grandfather was head gardener on the Elvendon estate, I believe.

Sorry, gone off on another tangent again, where was I? Ah yes. Grand Nan and Nye sat back to chat, or read books or generally chill on the rug while the joyful chatter of Mum and Uncle told them all was well in the dinghy. They were soon so engrossed in their conversation that they didn’t notice a large ship come out of Newhaven harbour and sail rather close to the shore. Neither did they notice the wash, which presented itself in the form of a couple of very large waves heading for the beach.

Mum, in the dinghy, realised something was amiss but too late. The dinghy breasted the first wave and her and my uncle bobbed happily over it, unscathed. Then the second wave came and washed them onto the shore. Mum said she remembered seeing Nye and Grand Nan looking shocked with the the wave which had broken and reached the fluffy white stage now, sloshing over them, and the rug, as she and my uncle, in the dingy, floated gracefully past them. Mum and Uncle were deposited on dry ground a little further up the beach and left there as the wave retreated. Grand Nan and Nye scrambled about in the undertow rescuing rug, lunch, thermos, shoes, books, towels and their clothes. To their impressive credit, I believe nothing was lost. I suspect Mum and Uncle were less than sympathetic. Mum says that even at 85 years old, having seen a lot of funny things, the sight of her mother and nanny scrambling for their belongings, as she and my uncle were floating gently past, still ranks as one of the funniest things she has ever seen in her life.

This one’s in the museum.

How can you discover something about your mother and uncle’s rubber dinghy at an air museum, I hear you ask? Ah you’d be amazed at the things you can learn in the most unexpected places if you are prepared to explore. While I examined the exhibits in an area devoted to rescues at sea, I found an oar which came apart into two halves. It was painted a pleasing shade of dark blue. It was exactly the same as mine.

That is how, by going to an air museum in Gorleston, I discovered that my mother and uncle’s rubber dingy was the escape raft from a B17 bomber. The rubber ‘dinghy’ that went with is long gone, but even so, it transpires I have the oar from a B17 bomber’s escape raft in my shed.

This bit of plane was used in the film, The Dambusters.

On an end note; if the person who stole a red-ribboned medal from a house in Kew in the late 1980s/early 1990s is still around. OK no they’re probably dead but if they got clean or or if anyone out there bought an OBE that was given to R B T Castle from someone who looked quite high, do get in touch because I’d love to buy it back.

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You need to know the truth about the elephant in the room.

This is a dementia related post I’m afraid, but it’s also, kind of, a warning. As I’ve probably said before, but I’ll say it again, the reason I write the posts about my dad are because most of us have no idea what happens when a person gets Alzheimer’s. Usually, we hear that someone has been diagnosed, they tell people, you meet them around the place and they have memory problems but seem more-or-less OK otherwise, and then they disappear. The next thing that happens is that five years later, you learn they have died. I’ve never known what happened between that point when they stop going out into society and the point at which their death is announced.

Now, I am learning, so I am sharing, as I have done all along, because I hope it might help someone.

Dad tipped suddenly and completely into full on swearing, spitting, shouting lunacy last week. So much so that the dementia nurse who came to see him called in the emergency dementia team. We looked at removing him from the house at once, for respite, but they could only do 3 days and we thought he would merely return even more disorientated and crazy. Then we discussed whether we should have him sectioned and taken to a psychiatric ward somewhere. Mum vetoed that one and certainly, it seems to involve a lot of moving the person about which is not what we want. We were asked how long we could go on with him at home and I told them ten days at the absolute outside.

Obviously, he needs to be elsewhere, fast but he doesn’t realise where he is at home – he asks Mum frequently if he is supposed to know this place and it’s been his home since 1974 – so it’s not going to help him if he’s moved from pillar to post before he’s settled somewhere new. We are hoping we can get him somewhere where he will then either stay, or if it’s miles away, only be compelled to move homes once, when a place crops up somewhere nearer. All this is complicated by the fact that he’s only just run out of cash so the financial assessment hasn’t been done yet – that’s for Wednesday, while his care needs will be assessed on Tuesday.

On the upside, Dad has a urinary tract infection and now that is being treated he may well be a little easier to deal with – UTIs as they call them are well known for exacerbating the symptoms of dementia because they affect kidney function so you get all sorts of stuff building up in the system that shouldn’t be there. However, the fact is, the shouty thing we have seen this last week is where the disease will go next and ideally Dad needs to be out of his home environment and settled in a care home somewhere before that hits full time.

Worse, if we get no progress by the end of the ten day deadline (end of next week) I will have to have him sectioned because he is violent, in that he shoves people and throws things and this presents a considerable threat to someone fragile such as Mum.

There’s a very good bit in The Contented Dementia Sufferer, which has, kind of, been my bible in this process. It talks about how you spot when it’s time to put the person into a home. It explains how you turn your house into a nursing home for this person with dementia and then the moment comes when you look around you and think, ‘hang on, this is ridiculous!’

We have reached that point. Actually, we’ve reached the moment when all three of us have hit that point. My brother has probably been up for having Dad in a home pretty much from the get-go, I have been from about November last year but now Mum has come round to the idea too. He’s unable to express it but I think that even Dad is up for moving to a home. Much of his challenging behaviour could be put down to boredom. Dad is always perfectly manageable when we go out, he hardly swears and is polite and chatty to people. In a busy dementia wing, with lots of folks wandering about, I think Dad would actually thrive. The care team are agreed that he’s bored. So we’ve all reached the same conclusion. Dad needs to go into a home.

Next we have to make it happen as quickly and compassionately as possible for all parties concerned.

Now there are ways and means to homes. With Dad we have tried to strike up a relationship with a lovely home nearby. We were hoping to get him in there for a day’s care each week first so he ould get to know the staff and when the time came, the move would be seamless. But they don’t do local authority rates, which means we’d have to pay at least £500 a week and of course, now that Dad’s assets are gone, we don’t have £500 per week. I think this strategy would have worked if we’d had a better understanding of the benefits and care system since we’d have chosen from one of the homes that takes funded residents. It’s excellent if you are self-funded since that’s not an issue.

Obviously at the time we started it off, Dad was self-funding but also, I was unaware that Dad’s income and Mum’s income are seen as separate for this purpose and therefore, Mum’s assets are hers and now that Dad’s have gone he is eligible for funded care, regardless of whether or not Mum has any money of her own. Dad will have either Local Authority care or (if applicable) National Health Continuing care – although that is a bit of a lottery – but we will have him assessed for it, anyway.

So, big lesson for the future here, couples. Keep your capital investments and your bank accounts separate; his and hers. A joint account is fine, but you also need one each of your own. And if you are looking after a brace of parents and only one of them is ill, it’s the ill one’s cash that is being assessed here, not the well one. Plus, if the well person owns a house with the ill person, it cannot be sold to fund care while either of them is living there. In other aspects, the rules of engagement seem to differ from local authority to local authority. There are check factors for NHS continuing care and certainly Dad’s symptoms would fit those, but he has Alzheimer’s so it’s not always a given, even if, legally, it is supposed to be.

Modern medicine being what it is, Dad has lasted a very long time. He was diagnosed with Alzheimer’s just over 5 years ago but has been experiencing cognitive and memory difficulties since 2004. By 2010 Dad was unable to read a full length novel. By 2014/15 he was unable to read at all. He has needed live-in care since 2016 – actually he needed it well before that but Mum did it all herself, refusing, point blank, to accept any but the smallest amount of help until 2016; March, to be precise, which was the point at which her health finally broke down and she ended up in hospital. We had seen it coming at Christmas and so we had been working with the local ladies who came in during the day to sit with Dad while she went out into the garden. We’d been trying to get a 24 hour rota together. We came close but couldn’t cover weekends.

Obviously, when Mum ended up in hospital, neither my brother nor I was available to sleep with my Dad for more than a week so we got live-in care then, against my mother’s wishes, initially, but she did come round eventually.

Dad is still going strong, even if his mind isn’t and I could see him being hale and hearty, if totally batty, in three, four or even five years’ time. The pace his Alzheimer’s is going, if it is the disease that kills him rather than time, nature, or something else, he has a good eight or nine years of twilight to come, minimum.  Even if he’d been a millionaire, his cash wouldn’t have lasted long enough to see him through. As it is, Dad wasn’t a millionaire, far from it, but his life-time accrued assets have amounted to three years of live-in care, with extra night cover, a fair few extra hours during the day and so on.

One of the things about self-funding is that many homes will need you to be able to guarantee residency of two years from the funds you have. Obviously if the person dies, it’s different, or if they ask you to remove the person. But it’s worth thinking about if you’re looking at a home. If you have say, three or four years’ worth of funds for care, I’d think hard about making sure you find a home that will accept local authority or NHS funded places. You and your loved one with dementia may well hope that they will die long before it gets to the point where they need the home. It’s true, they might, but you can’t bank on that. You have to plan for them being like my poor dad and having to endure every single last horrific minute of Alzheimer’s as they grind their way on to a slow, tortuous and frankly horrific end.

To that end, it’s worth finding a home that will provide respite care or do some kind of day care/club so you can get the person with dementia going there regularly and get them used to it. Either they have to agree to go into a home while they are lucid and able, and get to know the place first, or you have to make up an elaborate ruse as to why they are going. In Dad’s case, one of the carers came up with a totally inspired one that he was going to a social club where there were a lot of very bored people who needed someone to talk to. Dad is basically well-meaning and was only too happy to oblige, chatting, turning on the charm and generally being very well behaved.

Mum promised Dad that she wouldn’t put him in a home and as a result neither of them thought to pick one out one just in case. To be honest, Mum and Dad have always assumed they will die before the time when many of these tricky decisions have to be made. Now that Dad isn’t really cognitively able, Mum has done her absolute best to honour the promise she made. However, neither she, nor Dad had any clue of the horrors they were to endure. Let me elucidate.

Your Alzheimer’s suffering loved one will gradually regress. First they will lose their memory, forget things, then they will start to lose their understanding of social skills, they might swear, say inappropriate things, especially sexually inappropriate things and like small children, will ask people to marry them. As an example, some of the choice phrases I have overheard.

‘Have you ever been fucked up the cunt by a man?’ to a nine year old who countered,

‘Pops, I know what those words mean, but you really shouldn’t be saying them in front of me.’

Inappropriate sexual suggestions may be made to said nine year old.

Alternatively, your patient will shout,

‘Fucking hell you’re fat!’ at people who have come to help them.  They may spit at them, throw things and tell people to, ‘fuck off out of my house! You fucking awful fucking woman.’

On other occasions, while trying to actually be helpful, they may tip their food on the floor. They will think that scraping the leavings off their plate onto the carpet at their feet is helpful because they will have completely forgotten about the middle bit where they take the plate to the kitchen and scrape the leavings into the bin. As they realise it gets a result, they may relearn that it’s wrong but continue to do it to get a reaction.

Tiny things will cause them to completely lose their biscuits. You have no idea how bizarre it is watching an eighty six year old man throw himself to the floor and lie there kicking and screaming because he doesn’t want to get dressed, in the exact same manner as a very spoiled and unpleasant two year old having a trantarum. Except, of course, you can’t just pick up fourteen stones of eighty six year old and carry him off under one arm. It’s fucking surreal, I can tell you. You can’t reason with them the way you can reason with a two year old either, they lack the cognitive capacity.

The Alzheimer’s patent in your life will do completely odd things like decide they hate their walking frame and pick it up and throw it across the room as soon as they sit down. If it happens to hit the sufferer’s frail and elderly wife, things could get pretty grim. Thank god Dad can’t walk about, he’d probably have fucking murdered someone! But seriously, an aside on that, one woman did get attacked by her father who had forgotten who she was and thought she was a robber. He was chasing her around the house with a kitchen knife when she texted his neighbour asking for help. The neighbour came and knocked on the door. Her father stopped the chase to answer the door and explained he was looking for a burglar who was in his house. Meanwhile his daughter slipped out of the back door, climbed to safety over the garden fence and into her neighbour’s house, through the back door, which he’d left open.

Other things Dad has started doing, he chucks stuff. His chair was next to his record collection but after an afternoon where he sent the records spinning across the room at Mum and the Carer, Odd-Job style, these have been removed. He tears up and throws books. He spits at people. He clears his throat, leans forward and spits on the floor (we have Lino in our drawing room now).  He asks for tea and then tips it onto the floor. This means he can’t have his water cup near him, either. If he wants water, he will ask.

‘Will someone kindly get me a drink of water?’

Unfortunately, he has no sense of time passing so if the cup is not in his hand before the question has left his lips, sometimes before he has even finished the thought, he will believe he has been sitting, thirsty, for hours and he will ask again, more forcefully this time.

‘I said will somebody kindly get me a fucking drink of water.’

Say, heaven forefend, he has thrown his sippy cup at someone earlier, or lobbed it away at some point and it takes a little time to find, or its landed on its side and it’s empty, the Carer may well say.

‘Oh dear, it’s empty, wait a minute and I will get you some more.’

While she is walking to the kitchen, filling the cup and bringing it back, Dad will think he has spent many hours neglected, waiting for his water and will have worked himself into an apoplectic state of rage.

‘I hate you fuck off! You fucking horrible fucking woman!’ he will be shouting. ‘I want. A glass. Of fucking. Water! Is that too much to ask? Get me some fucking water you fucking horrible people. I hate you! You fucking stupid bloody woman!’ And so on.

As a Carer, you need to time your return since if he is too angry, he will spit at you and try to push you away, or throw something at you; this may include, a vase, place mat, handkerchief, glasses or even in one memorable instance, a clock.

This is absolutely standard for Alzheimer’s patients. A few escape but it’s only a tiny handful. It’s best to assume that your kindly gentle loved one will go thought the violent, paranoid shouty phase with as much energy and conviction as everyone else. And when you hear stories of Alzheimer’s affecting people like this, it is never accentuated as the norm. Nobody ever dares mention the elephant in the room and if you’re a blind knob, like me, you miss it.

Obviously, you don’t want your loved one to be at home when this phase of the disease hits especially if their spouse is still alive. Timing it is very difficult, though. Clearly, you want your person with you while you can appreciate every last tiny flickering spark of who they were and still have them happily ensconced in a home before they reach the point where they have transmogrified into a rather less amusing and a lot more dangerous version of Father Jack.

But there may be a waiting list for the home you like and the patient’s name might not have reached the top yet. Furthermore, you may well feel that you don’t want to peak too soon so a spot may come up while they are still perfectly manageable at home and then, suddenly, days after you’ve turned it down, you will wake up and find your hitherto placid – if forgetful – loved one has turned into a spitty, screaming rage ball.

If that happens, the most important thing for you to take away is, it’s not your fault or theirs, but it has happened and now that it has, something must be done, at once.

Ideally, you will have picked the home together way before that, and the patient will move in while still cognitively able to think altruistically about their loved ones. But ideal and real life are so different aren’t they? My parents did not do this. Neither of them expected years of twilight lingering, they expected to snuff it quickly, but twilight lingering is clearly their lot. If in ten year’s time I am still writing posts about Dad’s latest antics, I will not be remotely surprised. The way I feel right now, I wouldn’t turn a hair if he outlasted me. But my point is this, I think my parents had absolutely no idea what they were walking into and I think if he’d had the slightest clue what the shouty stage entailed Dad would have been a lot less intransigent about dying at home and Mum about letting him. In fact, Dad would have probably booked the home and moved in, himself.

Even so, it’s impossible to get the timing right, there will never be an instant place the moment the need arises. You will either be incarcerating your loved on a bit before they are ready or a bit after. Or the downturn will be extremely sudden and you’ll be having them sectioned.

It may be that when someone is diagnosed with Alzheimer’s there is all sorts of support that helps walk them through these decisions, helps them and their family to prepare for the point when the person becomes mute and the only thing that speaks is the disease. Because however distressing and horrible it is, you need to see that, need to be aware that it lies ahead for everyone.

But although Dad was diagnosed in 2012, nobody actually bothered to tell Mum or him until 2017. By that time, his memory capacity had fallen from 80% to 40% and my brother was already pressing for Mum to put him in a home – my brother’s wife was a care worker for a time so maybe they knew more about the screaming, spitty anger ball phase looming ahead of us than we did. I mean, we all knew Dad would go nuts but there’s nuts and … NUTS.

Even so, it was only in 2018 that Dad’s personality began to really change. Suddenly, he became a little more child like, a bit spoiled, had to be the centre of everything but even that was bearable, although I started thinking about respite care for him and because I didn’t have the right knowledge about how Dad’s care would be funded I was nervously husbanding our resources, knowing that there was only a year and a half of care left when we went over to Mum’s assets, or about six months if Mum was at home with carers and Dad was in a home. As it is, Mum’s funds will see her for about three years if it’s just her care (much less required than for the two of them) or if Dad is funded.

People talk to you about ‘nursing care’ and you don’t really know what it means, you think it’s continence or ability to walk and dress, or maybe waking up in the night a lot and not knowing what time it is. Nobody points out that what ‘nursing care’ is really for is that bit between the not-being-able-to-remember-things stage, and living-corpse-open-mouthed-gaping, end-game. Neither does anyone point out that during that bit, your relative with dementia is going to go completely, fucking bat-shit crazy.

I’m talking about The fucking Shining.

That’s why I’m telling you now.

Because you need to be prepared.

You will not find your loved one in crazy.

There’s no reasoning with crazy.

There’s no living with crazy.

By all means try and keep your loved one at home for as long as is humanly possible, but don’t be fooled by the vaguaries and pussy footling about from people who are too British and awkward to tell you the truth.

When someone says that your relative with dementia is going to need nursing care and need to go in a home, what they are telling you is that your loved one is highly likely to go absolutely, completely, fucking off their rocker. So much so that, if you’re at home at the time, they might kill you.

If you’ve followed my posts about dementia,  you’ll know that I have learned this via a somewhat circuitous route. Now, I’m telling you, so you don’t have to.

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More bad parenting.

Remember my post last week about my epic parenting skills well here is another instalment. I was going to tell you one from many moons ago but I don’t want you to feel you need to be sympathetic, I just want to raise a chuckle, and also, there’s a second instalment of last week’s debacle which you might enjoy. I’m afraid it’s not as funny but it’s the kind of thing that happens on a normal non-eventful day in our lives so it will give you the idea of the kind of life I lead.

This week I finally managed to go to the talk McMini and I enthusiastically tried to attend somewhat prematurely last week. Here’s how it went.

McMini is able to stay at home this time with McOther though, as in a rare moment of normal person working hours, he is home by six. Woot.

However, nothing is that simple and shortly before leaving I am faced with a new challenge. McMini explains that while at school that day, he took his watch off to do some painting and that when he came to put it back on again, ‘it wasn’t there’.

He’s McMini, he’ll have left it somewhere precarious it and it will have fallen onto the floor.

‘My teachers are going to have a really good look for it tonight,’ he tells me.

McMini is McMini. He is not one of the normals – CF this picture (left) – although he’s slightly better at pretending than I am. Also, he has time keeping skills like mine, as in negligible. This inconveniences him when he wants to watch his favourite TV programme, the Simpsons, which he loves, because he keeps losing track of time and missing the start. To combat this singular source of annoyance, he has set an alarm on his watch to go off at the time the Simpsons begins; six pm.

Cue 1950s Technicolor miraculous moment Oooo-aaa-aaah music.

Yes! I realise that if the watch is somewhere non-standard, which it will be because this is McMini, the caretaker or teachers may well have difficulty finding it. But should that happen, all they need to do is stand in the room where he lost it at around six o’clock, wait for it to start beeping and home in. It also goes off five minutes afterwards so even if they don’t quite manage to find it the first time, hang around for five minutes and they’ll get a second shot when it goes off again.

Following this blinding revelation comes another one – I know, two in one night! Steady on – but I realise that I’m about to go up to the school and actually be there at six pm. I reckon I can find McMini’s watch if I can persuade them to let me stand in the classroom for a minute or two. Excellent, the watch may have disappeared but I have a very real shot at finding it.

When I arrive at the school I discover there are two events going on and one of the ladies from the office is doing a meet and greet, pointing people in the right direction for each one. She steps forward the minute I appear and says,

‘Oh Mrs McGuire, about McMini’s watch, his teacher thinks it might be in his drawer. They all put their watches in their drawers before PE.’

‘Ah, I think McMini put his on again and took it off for art,’ I explain and then I tell her about the alarm that’s going to go beep at six and ask if I can go and stand in the classroom.

‘I can go and have a look for it if you like? If you don’t mind waiting here …’

‘Not at all,’ I say, ‘shall I carry on letting people in?’

‘If you could.’

So off she goes. I do what she’s been doing, press the button to let people through the airlock and tell them that the year two meeting is in bumblebee class and that year six parents are to go to the main hall.

Time ticks on. I say hello to various friends going into the hall for the meeting I’m supposed to be attending. Finally, when things are looking a bit worryingly quiet, the lady comes back.

‘You’re right,’ she says, ‘It wasn’t in his drawer but then I heard it beeping like you said, so I followed the noise and found it.’

‘Bonanza!’ I say, ‘Thank you.’

I take the watch and scuttle swiftly in the direction of the hall.

Obviously, I am last in, but to my complete amazement, the meeting hasn’t started yet. McMini’s class teacher rushes up to me to reassure me that all hands are to the pump in the search for the watch and I am delighted to be able to break the good news to her; that we’ve found it and I explain how.

‘That’s genius!’ she says, and appears to really mean it, bless her.

We exchange a few more brief pleasantries and I walk to the front and sit next to a friend.

All goes well until, a few minutes into the talk, there is an insistent beeping from somewhere. The speaker stops. As the beeping gets louder, and faster, people shift uncomfortably and rummage in their bags for their phones to check it isn’t them. That’s when I realise the noise is coming from my arm. The lovely lady who found McMini’s watch heard the alarm and used the sound to locate it, but it seems she didn’t get there in time to switch it off. That means the five minute snooze period is up and it’s going off a second time.

Luckily no-one really minded.

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