This week I was going to write about The Queen, I may not have time to do it justice because I am going to have to write today’s blog post yesterday and speak to you from the past. That means I only have half an hour or so before I’m due to take McMini off to a club. Then, since he’s already eaten I have to come home and eat, then shower and then McOther will be picking him up. Tomorrow, or at least, today as you read this—Crikey! This is complicated isn’t it?—I’m off at 6.30 am to Norcon; and on Sunday too.
The Queen was a reluctant monarch. She prayed that she’d have a brother so she didn’t have to be queen—at that time, a boy took precedence over a girl even if he was younger. She also prayed that her father wouldn’t have to be king because she understood, correctly, that it would do for him in the end. Then she went on to do this thing she didn’t want to do for 70 years. That’s … seriously impressive.
Managing my parents’ finances and watching them gradually losing their sanity is probably a perfect storm of everything at which I am shit. Seriously, if God had set out to give me everything I find difficult he couldn’t have done a better job. It’s all maths and being organised and remembering to do staff, remembering to phone at certain times, sitting for hours on hold, patience, and numbers; a side of my personality which is seriously lacking and an aspect of my intelligence that is entirely absent. If my other brain was like my numbers brain, I’d be living in sheltered accomodation for people with learning difficulties. I’m great in a crisis and so naturally I am given a long-term millstone; a grinding expanse of interminable twilight grey that stretches as far as I can see. I’m one for the sprint, so I have been given the marathon. I can’t bear watching people suffer and so I must. For years.
Thanks for that, God. Thanks a fucking bunch.
Then, of course, I look at The Queen who stuck at it for 70 years, and I’m complaining about seven. Maybe I should rethink my weapons-grade whining levels then. Although not here, because, clearly that’s what this is for. I watched all of the State Funeral, and I enjoyed it too. Oh I know all the miserable republicans will be saying that the money shouldn’t have been spent on the funeral but frankly, I would consider a national event like that more valuable than the pathetic drop in the ocean of public funds the money it cost would entail. Clearly, I lack the miserable protestant fun-sapping outlook to think The Moral Way. President Johnson? In his dreams but thankfully, not our reality. It’s worth the expense for that, alone. I believe it’s actually quite important to have someone in power who doesn’t want to be there. King George VI was a reluctant monarch, Queen Elizabeth II was a reluctant monarch and I suspect Charles III is equally reluctant.
Good.
Sorry Chas but at the same time, I feel your pain.
I suppose it’s hard to see past the luxury but to me, guilded or not, a cage is still a cage. I wouldn’t fancy it myself. Oh yeh, money makes things easier, C.F. my present predicament dealing with the whole Mum Thing, and money can contribute to happiness, but it doesn’t make you happy on its own. Something inside you has to do that.
Having lived in a very small community where everyone knew who I was, even though I didn’t know them, and where everyone felt as if they knew me, and treated me like a long lost friend (lovely in many respects but sometimes difficult) I can imagine what being Royal is like. I lived in a place where everyone expected me to know them the way they felt they knew me, even if we hadn’t actually met before (still touching but also extremely scary) I can tell you that, even from direct experience in a very, very small arena, this kind of notoriety is significantly less fun than people think. If there was no escape? Ugh.
Royals have lots of stuff but only two weeks a year in which to enjoy it. As non royals, the rest of us Brits get four. It’s easy to forget that people with money, or kept by the state, are still human beings like us at the bottom of it all.
Personally, I feel that the debate about costs is disingenuous; a blind to cover the real issue, which is that some nod to a sense of social justice among those in Parliament would be very helpful right now and seems to be distinctly lacking.
Yes. In all walks of life it seems we are still raging at the most vulnerable in pissy, small-minded anger and egging our government on to even greater heights of petty vindictiveness towards the have nots, while it does the metaphorical equivalent of trying to chisel off a fifty pence that’s been superglued to the pavement as a joke while they ignore the huge suitcase of money behind them in the form of corporate tax dodging efficiency. You know, the stuff over and above the 1% companies like Google and Starbucks pay that they’re supposed to be paying.
Also, excuse me but why the fuck are they using my tax money to cap fuel payments? The fuel companies are posting record profits while the vulnerable and poor are choosing between eating or heating. Who should be paying for this crisis? I’d humbly suggest the fuel and energy companies whose corporate greed caused it.
Here’s another example; supermarket petrol. Supermarkets use your loyalty card and credit card transactions as anonymous data to track which products sell best where. They give people a rating based on income, A through to C and possibly D, I don’t recall (it’s a while since I’ve done this kind of marketing). Then they split each group into numbered bands, A1 the richest, A2 less rich, A3 still loaded but not as rich, B1 well-off professionals, etc through to C3 … possibly D3 I have neither the time nor the inclination to look it up for this, a very generalist passing point.
The supermarkets use this information to look at who buys what, where and then provide more of those products in the places where they sell withdrawing unsuitable products for the market demographic in that particular place. There’s no point having shelves groaning with caviar and truffles in a place where most people take home about £20k a year. They can’t afford it.
However, they also use this information to set prices. In areas where they perceive the population as less well off, they will sell the same staple, petrol for example, at a lower price than they will in another area where the population contains a higher number of B and A level purchasers who can afford to pay more.
This is how petrol costs more at Tesco’s in Bury St Edmunds—£1.69 a litre as I write this—than BP petrol does at my Mum’s in Sussex—£1.67 a litre. It’s also why Tesco’s charges £1.59 a litre for its petrol 15 minutes down the A14 in Newmarket. More C-level purchasers in Newmarket Tesco’s, clearly, or perhaps there’s a local garage round there that they’re trying to drive out of business.
Yes, I suppose it depends how you look at this. A Bury resident, might see them as pitiless, profiteering bastards hiking up prices in specific areas, where a Newmarket resident might seen them as kindly benevolent people cutting the prices in an area where people can afford less. They might see it as folks of my ilk, in Bury, who the database classes as better off subsidising those less fortunate than ourselves. If only that’s what it was but I’m afraid it’s a simple case of their being profiteering bastards. They’re not going to sell anything for less than the biggest margin possible and where they can, they’ll carve out an even bigger one … like the energy companies and every other company that gets so big it loses sight of it’s actual customers, the point of its existance, in its bid to grow even bigger, lock people’s spending in with it and no-one else, serve shareholders a nice fat dividend etc.
Frankly, the older I get, the more of a raving pinko leftie I become. I cannot believe we are going to have a recession caused by the corporate greed of our energy providers. There might be a fuel crisis, I dunno, but they don’t seem to have had much trouble providing power and fuel so far. Any shortages have been about logistics rather than scarecity; people panic buying and the stores running out.
How I wish we could re-nationalise the whole bloody lot. Properly. Sure, keep the government at arm’s length and run it as a business but as a not-for-profit or simply a company that is accountable to it’s customers first—the nation in this case—rather than its board or its shareholders.
Maybe it’s just the way I’m feeling at the moment but I’m angry and bitter and everything feels grey.
Indeed, I had a major melt down at the boys the other morning before leaving for Sussex to see Mum in hospital. This was partly because the vertigo was truly appalling. The worst thing was that I woke up feeling fine, but then, as I raised the glass to finish the rest of a pint of water, it suddenly kicked in. The boys laughed and I just lost it completely. I nearly cried as I ranted at them. Not about the vertigo, but just about how I just couldn’t keep a lid on my grief, and how awful I felt about having to hurt my lovely Mum and make her miserable because of the institutional prejudice the State, and the NHS, displays against people with dementia. Because we are going to run out of money. And we will have to sell the house for her care. And every time I think about it my stomach ties itself into a veritable Gordian knot which no amount of breathing exercises and sundry attempts to relax will undo. I think I got so melodramatic that I actually said I wanted to die, and right there, in the moment, I probably almost did. Jeez it’s a fucking hard row looking after dementia people and the NHS and government seem to go out of their way to make it as hard as possible.
Putting the vertigo on top of that was the last straw, I guess. It was a right royal pain in the arse on a Wednesday, too. I was so giddy that accelerating was giving me the spins. I have perked up a great deal since then. But seriously, why no compassion? Why no mercy. Why make it as hard as possible for people to endure one of the most horrific illnesses out there. Oh yeh, because it takes a long time and so it’s expensive. Seriously though, dementia care in the UK needs an overhaul. Fast. And something approaching compassion or empathy in our lords and masters would be a good place to start.
So what is compassion? Well I saw some in hospital the other day; the most gloriously surreal moment but also lovely. An example of someone with dementia being treated, not as a thing, but as a debilitated human, who was worth something. Treated with understanding, compassion and kindness.
While I was sitting with Mum she told me she needed a poo, which involves several staff and a bed pan so I went and got the nurse who told me I should make a sharp exit and sit in the waiting area. There was a little old dear there, who’d been there for some time. She was very thin, with straggly hair and she was cradling a handbag in her lap. I had clocked that she might have dementia because of the handbag and the fact there was often a nurse or carer with her. I sat down and all was quiet for a while until she spoke.
‘You’d better watch your bag round here,’ she warned me.
‘Oh. Thanks. Right. Yes, I will,’ I replied, lifting my bag from the floor and putting it on my lap the same way she had hers. We sat in silence for a moment or two and then she said.
‘Has my friend gone home?’
I guessed she might be making sense of her situation by connecting it with a comparable experience from her past, which is what people with dementia are doing when they have those back-in-time moments apparently. It’s important to say the right thing so they are guided towards a make-sense-of-this memory moment where they are reassured rather than agitated so I answered with a certain amount of caution,
‘I’m very sorry but I don’t know.’
‘Oh. Only she said to wait for her but I think she’s gone without me.’
‘Oh. That’s a shame if she has,’ I said still treading water a bit, ‘I haven’t been here before, though so I wouldn’t know for certain.’
‘She was making up to some bloke, I think she’s gone home with him and left me here on my own.’
‘Oh dear. Would you like me to ask one of the others?’ I asked, looking helplessly over towards the ward desk where the nurses and clerk were in discussion about something. ‘They might know,’ I told her.
‘She said to—’ she began, at which point a nurse walked past. ‘Big boobs and a fat arse, that one,’ she said and then reverted to topic without missing a beat. ‘She said to wait for me but I haven’t seen her for some time,’ then she smiled and said. ‘I’ve not seen you here before.’
‘No, this is my first visit,’ I squeaked, trying not to laugh at her previous comment. Lucky I was wearing a mask.
At this point one of the admin or at least a plain clothes staff, she might have been a consultant I guess, came over and with a smile at me and the lady I was talking to she sat down on a chair the other side of her from me.
‘Hello Edna,’ she said.
‘Hello,’ said the little old dear, or Edna, as I now knew she was called. The newly arrived lady smiled over at me and I tried to smile back in as crinkly an eyed manner as possible so she realised that, behind the mask, I was smiling back and grateful to her for being kind to a dementia sufferer. Edna continued, ‘Has my friend gone?’
‘Yes Edna, she has,’ said the staff lady gently.
‘Oh,’ Edna’s face crumpled a bit. ‘She said she’d wait for me. What will I do now? How will I get home?’
‘Well, maybe you could go back to your room for a little while?’ asked the staff lady. She was so gentle and so sweet with the old lady that I almost wanted to cry (and I definitely wanted to hug her) because … Dad. And Mum but especially Dad because Mum isn’t as far gone as Edna was yet.
‘Should I? What if she hasn’t gone, I don’t want to miss her.’
‘No, I understand. Aren’t you tired, though, Edna?’
‘Yes, I am, very but I think I should wait for my friend.’
‘Why don’t you go back to your bed and wait there, then? You can have a little sleep.’
Clearly the idea of a sleep was very tempting but Edna’s reply sounded hesitant. ‘I don’t know if I should …’
‘Aren’t you tired?’
‘Yes I am.’
‘Why don’t you go back to your bed and have a sleep then? You won’t get lost. I’ll go with you and then, if she comes back, I can come and find you.’
And so they set off, ward lady taking Edna’s arm, shuffling slowly up the corridor, then back, into one of the ward bays and out again … at which point Mum had had her poo, the curtains round her bed were opened again and I was ushered back. I never found out if they got Edna back to bed. When I left the two of them were still shuffling slowly up and down the corridor, looking for Edna’s friend. The staff on that ward were lovely. Nothing was too much trouble and so many of the patients had dementia. Bearing in mind this was a ward to treat infections, the added load wasn’t what any of the staff would have signed up for.
We need more of this. We need compassion, and love and kindness. And I don’t know where it’s gone but we need it back. Maybe if everyone reading this tries to go out of their way to do one kind thing this week. One random act of kindness, it would be a start. Feel free to give it a try if you like. No obligation though.
And now … I must fly because tomorrow I have a six am start. Eeek!
Yep, tomorrow is Norcon. If you are interested, I will be at the Norfolk Showground which is on the outskirts of the city of Norwich, Norfolk, UK, tomorrow and the next day. I will be there, flogging my books to the unsuspecting public and devaluing them by signing them. Except it will be today and tomorrow by the time you read this because … scheduling techology. 🙂
If you want to know more or would like to come along, you can find more information here:
On a completely different note …
Here’s some good news if you like cheap audio books!
Once again, I’m cutting my own throat and having a sale. Kobo is doing a buy more save more deal on audiobooks this September and the K’Barthan Series, as well as Too Good To Be True, are in it. As a result, to make it more exciting, I’ve reduced the first book in the series to 99c on Apple, Kobo (of course) and my own website. For anyone in the States, it’s also 99c on Barnes & Noble and Chirp (which is USA and Canada). So if you want to grab it while it’s mega cheap you can find store links and a bit more info here
The vole was not well. It appeared unable to move its hands. It was clearly injured, it was squeaking and it was in distress. I rang the vet and explained that I had this rodent that was probably a vole only now … looking at it … I wasn’t 100% sure and could they help.
If you enjoyed the short story, The Last Word, the audio of that is also available or at least, still available. If you need it, here’s a quick reminder of the blurb.
My audiobooks are on sale again, so you can grab Few Are Chosen for 99c and Small Beginnings for 99c or free.
None of this is quick. Oh my goodness no. But I stayed on hold for the prerequisite 20 minute plus to each of the august bodies I was required to contact and got the forms sent out. In the case of the pension, although Mum had signed a chitty to say they could talk to me, it was too long ago. They gave me an email address to send my power of attorney to and then told me I’d have to wait 10 – 12 working days before it would be ‘on the system’ and I could ring to ask my question again, at which point, they assured me that they’d answer it. I put a note in my diary to ring on the magic day and relaxed knowing the forms would arrive at Mum’s while I was away and I could pick them up a couple of days after getting home.
Why not try the audio box set of the K’Barthan Series from my shop with 30% off. If you’d like to give that a go, click on the link and type ARNOLD at checkout.
The hardest thing is that originally, when I did my tax, I would have a four page short form which I’d fill out and send in. I just declared how much I’d earned, how much I’d spent and then any income from bank accounts and shares. Now that I do an online return, I have to fill in the long tax form, which appears to be written in a cross between legalese and accountant speak. Jeepers. Even the simple stuff is complicated. Where it was profits, turnover and loss it’s now turnover and ‘allowed expenses’.
On a happier note. My cousin came over this week and we took Mum out to lunch at the pub round the corner. She wasn’t in the best of form but the visit went well and my cousin had some prints of the school I grew up in which she offered to my brother and I, but I don’t think he was interested, which was handy as I’m very pleased with them.
Ah.
Do I care about that?
Which reminds me, if you want to decide for yourself if my books are any good, feel free to read one. You can find a list of them, with links to buy them from the major stores, and mine, at the end of this smashing link here:
M T McGuire Authorholic 