Tag Archives: off topic

26 Dec 2023 · 7:52 pm

The end …

This is weird. I’m posting to wish everyone a happy Christmas, although it’s so long since I’ve written anything that there may be no-one here!

But also because, if anyone is still likely to read this, there’s something you need to know. You see … my mum died.

Yep, exactly three weeks ago yesterday, my brother and I became orphans. It’s sad in a lot of ways, obviously, but strangely, the main thing about Mum’s death so far has been that it really wasn’t sad. Poignant? Yes. Beautiful perhaps, and moving, oh yeh. But sad? No. Not really.

Mum on honeymoon taken by Dad.

I’m going to tell you about it, partly because it always sets my head straight to write these things down and partly because there’s an outside chance it might help other people.

It all started on Saturday 2nd December. The carers rang to say that Mum seemed groggy and was looking a bit blue. We agreed that she probably had a chest infection. I told them that Mum had left instructions for this and that she would want to be at home. They understood but also had to walk the line as professionals so they dialled the out of hours doctor service at 111. 111 sent a paramedic who wanted to take her to hospital.

The carers rang me and put the paramedic on so that I could say no. But when she spoke to me, she explained that Mum was not about to die but needed access to pain meds and antibiotics which she would not get until Monday and that while letting her die at home was one thing, and perfectly possible if she was about to die, this wasn’t actually a life threatening situation. She totally got about Mum’s wishes, her own mother having been the same. It’s just that. In her view, Mum was going to get better, anyway, ergo denying Mum access to antibiotics for two days was actually just a bit mean.

So I let her go.

This is the bit where I experienced some of the crappy aspects of the NHS.

The paramedic with Mum told me that casualty wasn’t busy and that I would probably get a call by 2.00pm but if I didn’t to ring at five. In the event, I rang at 2.30 and got nowhere but that was fine, they’d said five so I waited and tried again then. I got through to a nurse who told me she hadn’t been allocated to Mum but went and asked the nurse who was how she was doing. Apparently Mum was through triage and in ‘major’ whatever that was. They were waiting for a doctor to see her a second time and she was settled and comfortable. I rang again at 7 and failed dismally to get anywhere. Actually, I failed to get anywhere every time but every three or four goes, I’d throw myself on the mercy of the lovely ladies on the switchboard who would try to help. A couple of times they managed to get me through to different people who could ask a nurse to find out if there was any news or look at a database, which did, at least, have the basics of were Mum currently was in the system.

Nobody would answer the phone without help from Becky and Wendy on the main switchboard who deserved a medal because they were fucking golden … and later, in the night, Jacky.

A bit like the bit in Red Dwarf where Rimmer says, ‘You can’t scare me I’m a coward! I’m already frightened.’

The only actual doctor I spoke to in that time was an arrogant bastard with the bedside manner of a particularly unsympathetic cyberman. I pity anyone in dire straits, in casualty, who got him. He told me to get off the line because he had an urgent call coming in. The fucking knocky prick. I asked him how I was supposed to find out about my Mum. He told me I’d have to go back to main. I asked what the hell was main? He said that was the main switchboard. I asked him how long he thought I’d been trying to get someone to answer the goddamn phone and why, having finally made this major breakthrough after twelve fucking hours, he thought it was fair to ask me to go back and start again (only without the swearing). He said tough and hung up.

So that was that.

I went back to ‘main’ and threw myself on Becky’s mercy (or it might have been Wendy). I explained that I lived two hours away that my mother was seriously ill but I didn’t know if she was just seriously ill, or dying and NOBODY WOULD FUCKING TELL ME. I told her I’d been trying to get news on Mum for nearly 12 hours, that she was a dear person but she had dementia so she might be frightened and confused and no-one she knew was with her, and that I’d been told she’d be there for a couple of hours … AND that, had anyone bothered to tell me how long they were actually going to keep her sitting around on her arse with … whatever it was that nobody would confirm or deny to me was wrong with her … I would have jumped in the car when it happened and been with her from about eight bloody hours ago.

Except that, also without the swearing. Indeed, I was actually really polite about it, but laid it on a bit thick because I did want her to hoist in that I was only asking all this because I was desperate. She managed to find a member of clerical staff in casualty who was prepared to answer a phone and able to access the database. She made me wait while she spoke to the woman and told her she had to talk to me. Then I was put through and I found out that Mum had been admitted with a chest infection and was now in the emergency level. I said nobody had called and this lady said the next of kin was listed as Dad. I said I was a bit surprised as he’d died three years ago and Mum had been to hospital since, and she said, get this, ‘Oh, I see. So you haven’t changed the record.’

I? That’s right. It was all my fault. I pointed out that I’d given the paramedic my number and she said that no-one had passed it on. Since she was actually prepared to speak to me and give me information, I didn’t get as antsy as I felt or ask her how come the database hadn’t been mentioned the other time Mum had been to hospital since Dad had died, or why this was suddenly my fault.

Finally at 9.00 pm I managed, with the help of Jackie, another lovely switchboard lady at the hospital, to talk to a nurse on the emergency floor. Mum’s nurse was on her break but this one was kind enough to go and find out how she was for me. She also apologised and said that I’d probably have to ring the following morning to get any sense out of anyone. She confirmed that Mum was admitted, receiving treatment, sleeping peacefully and in a bed. Yes it was serious but no it wasn’t life threatening. So there was that.

Mum in the pink jumper in the chair at the back celebrating, being 90. The reason all the other chairs look small is because those blokes are all over 6ft. My uncle there on the right, he doesn’t sit down, he folds up.

It took until 2 o’clock on Sunday afternoon to get proper news of Mum but at least they were nice about it this time. She’d had breakfast and was responding well to the antibiotics but would probably be going up to a ward rather than straight home. The nurse also told me that Mum had been sleeping most of the time so probably wouldn’t have noticed time passing or got bored and confused the way I’d feared. Her care team also said that. One of Mum’s lovely care team went in to see her and phoned me so I could have a chat to her, which was wonderful and a huge relief as she was very much herself and, if anything, a bit more switched on than usual.

I went down on Monday to see her. At this point we were still expecting to move her so I popped in at her house. The gardener was there and wondering what had happened so I had a chat to her and I discovered the carers had looked out some chicken thighs for Mum’s lunch on the Saturday so I cooked them in the oven for myself and roasted a bit of cauliflower. I decided I’d have cauliflower cheese next time I was down (Wednesday). There were quite a lot of chicken thighs but I cooked them all and gave the gardener some to take home.

When I got to the hospital, Mum was in a ward. And this is where the NHS was absolutely bloody golden. Hats off to Byworth Ward. They were lovely. Yes, as compassionate, kindly and attentive care goes they absolutely smashed it out of the park. The staff there were wonderful. Watching them look after some a lady with quite challenging dementia they were so patient and so sweet with her that it made me want to cry. When I arrived, the first thing they said was, ‘how lovely is your Mum?!’ the second thing they said was sorry for the way I’d been kept in the dark. They said Mum was knackered and sleeping a lot but that she’d been very chirpy when she’d arrived on the Sunday afternoon. She woke up enough to be pleased to see me and then slept most of the time but that was fine, because she knew I was there, so we just chilled together. I’d brought my knitting and spent a couple of hours hanging out with my mum, knitting, relaxing a bit actually, patting her arm every now and again so she knew I was there and chatting to her when she woke up.

The staff told me that my phone had no voice message and because it didn’t say it was me, if someone did ring and I didn’t manage to pick up, they couldn’t leave a message because it would breach confidentiality rules. This was absolute news to me so thanks O2 for your arbitrary decision to delete my voice message. I can only assume it got deleted when I renewed my contract but the Vodafone one never used to disappear so I wasn’t ready for that. Weird. I recorded an answerphone message as I sat by Mum’s bed.

One of the care team went in on Tuesday and I visited again on Wednesday with my brother. I made us a cauliflower cheese and added some macaroni, mainly so my brother would have something to eat for supper as he was staying over, but also because at 6ft 4, he’s a big unit, so he does eat a lot. Mum was much perkier but still a little frail and sitting in a chair by the bed. She was still quite tired and a bit confused, but the staff were lovely and she seemed cheerful, so I felt confident that she was in good hands.

My brother visited again on the Thursday and he thought she looked even frailer at that point but the prognosis was still that she’d get better and leave and certainly that if it went the other way, she’d be in there for a while before anything happened.

I cocked up Friday, so she didn’t have a visitor, and the person I’d arranged for Saturday was one of the care team and couldn’t make it at the last minute because one of her other ladies was ill and she had to stay with her. I made doubly sure someone was going on the Sunday and got ready to go down on the Monday either to visit or help her move.

Sunday morning, as I was getting ready to go warble in the choir at church, a doctor from the ward rang saying that Mum was very ill. I explained that I was over 2 hours away, 3 in that day’s weather and that my brother was 4 hours, how bad was it? Did we need to come? The doctor said it was a bit up in the air but that if she carried on deteriorating the way she had over night the outlook was not good. If the worst did happen, and I wanted to see her, I should come now.

I rang my brother who was about to attend his goddaughter’s confirmation in Wales and we decided that since he was outside the church, he’d better carry on with that and come after.

As I joined the M11 it ground to a halt. The whole journey was a bit like that. Oh and it absolutely pissed it down, it was more like driving a submarine than a car. I drove faster than I was comfortable with but I still didn’t exceed 60mph. It was that soggy and the roads that waterlogged.

A still from my dashcam in one of the clearer bits …

Luckily in the many bits where the traffic stopped, it was just caterpillaring as it slowed for patches of extra heavy rain. As I joined the M25 from the M11 the doctor called again to check we were on our way. I explained that we were and she said that Mum was fading quite fast. Which was a bit stark.

I thanked her and then remembered that I’d booked Mum holy communion, so I rang the ward and asked if they could get the chaplain to give her the last rites, instead, as it was important to her. They did and Mum was awake and conscious, and bless her heart, still thinking of everyone else first. She gave the chaplain a message to give to the ward staff. She said that her son and daughter were on their way and if she went before we arrived to please tell us not to worry because she’d be quite alright. God love her. I didn’t find this out until later but it was a wonderful thing to say and even more wonderful that after two years of not being quite sure, most of the time, what our relationship with her was (only that she loved us) that she knew exactly where I and my brother fitted in. They gave her a cross and taped it to her pillow. The chaplain sent an apology via the ward staff that they are all stamped ‘Bethlehem’ at the moment because it’s Christmas. It’s on my desk.

The cross …

There was a bumpy moment when one of the carers rang me. I was over the bridge stuck in a traffic jam near Clackett lane by this point, pretty much in the exact same spot where, three years before, as I sat in a similar traffic jam, the same carer had called me to say my Dad had died.

However, luckily, this time, it was just to say a group of them had arrived and would stay with Mum until I got there. The gods were smiling, the traffic kept moving and I kept creeping closer to the hospital. Would I make it? Would my brother? I had no idea.

The car park at Worthing Hospital is notorious for filling up extremely fast. On the Wednesday, when I’d visited with my brother, I’d noticed a spot where I could use the raised surface of speed bump to mount the kerb and get my car onto a small patch of grass, next to a wall where it was out of the way. Yes it would get clamped but it wasn’t actually blocking anything so I could Break The Rules to save time if I had to, without being a selfish bastard. There are advantages to driving a car the size of a peanut.

When I arrived on that Sunday afternoon, at 2.30, the car park was absolutely rammed. I didn’t even bother to scope for legitimate spots. I headed straight for my kerb mounting area only to find that there, right beside it, was a single, free legitimate spot. I flung the car into it and ran for the ward, saying a small prayer of thanks to the almighty as I went and then giggling because I remembered that Wendy Cope poem, ‘Jesus found me a parking space! Bang the gong and praise Him.’

The carers were there, I said hello and then I Did The Thing. Yes, like Dad, my poor mum had to sit through me telling her what a fucking legend she was and how lucky I was to have her as a Mum. And yes, I cried because … tension … and also relief that I’d made it to say good bye. And because I couldn’t help it. She laughed and said, ‘Oh Mary!’ and I laughed too because I was being a fecking eejit and we both knew it but at the same time, I meant it and we also both knew that because it was the last time I’d get to say it, it was important that I did.

So then the staff asked about treatment. Did I want them to give Mum more intravenous antibiotics? I had plenty of time to think because her next dose was due at 11.00 pm they told me.

‘Will it make her better?’

‘No, I’m afraid not. But some families prefer to have more time with their relative.’

I remembered how Mum had been when she’d had pneumonia in 2012. She’d told me afterwards, that it was ghastly and that she’d felt terrible and if Dad hadn’t needed someone to look after him she ‘would have gone then’. Her words.

‘Will she suffer, will she be in pain?’ I asked.

They explained that she would feel short of breath and feel tightness and pain in her chest but that she could have morphine for that. I remembered a friend once telling me that having pneumonia was like trying to breathe through a straw. It didn’t sound pleasant and I didn’t want her to have to put up with any more of it than was absolutely necessary.

‘So basically, are you saying antibiotics won’t do anything but she’ll just take longer to die, so she’ll be in pain for longer?’ I asked, just to check.

A beat. ‘Yes.’

‘Then, if it’s not going to help, that’s just prolonging her suffering. Please don’t let her suffer any more than she has to. This is about making her comfortable and relaxed. Plase stop everything that is extending her life and just carry on with things that are going to ease her pain or help her breathe.’

So they took out the drip, because it wouldn’t help her dry mouth and she’d be more comfortable without the cannula in. They kept the oxygen because that was helping and they told me they would give her morphine as soon as she or I asked. They said they’d carry on turning her because that would ease the pain and obviously they’d keep changing her pad.

She was breathing through her mouth and it was drying out. The carers showed me some ointment to put on her lips with a nice brush thing that would feel pleasant and explained how to wet the inside of her mouth with tiny bits of water from a cup, or a toothbrush. Then they went.

Mum wanted me to make sure that the people in the care team who joined her after she made her will got the same as the others, and after they’d gone, I promised her I would see them right.

She took off the oxygen line and tried it without for a bit but didn’t like it and decided to put the line back in. I helped her do that and they fixed it up for me so it was working, but at a lower pressure which wouldn’t dry out her throat so much.

She was very sleepy but would wake up for a few minutes here and there and I’d tell her that I loved her. While she slept, in case she was drifting, half awake, rather than sleeping, I’d reminisce about things we’d done as a family; holidays, day trips, parties and of course, the time she and I had turned out a perfect apple suet pudding together … on the kitchen work surface, because we’d missed the dish. And how my husband came in and caught the pair of us, crying with laughter like naughty kids, as we tried to fix it. Mum was holding the dish under the edge and I, with rolled up sleeve, using my forearm as a giant spatula, was attempting to coerce the pudding across the formica surface to the edge, the plan being that it would make a short fall into the dish, hopefully landing the right way up, without compromising its structural integrity.

It hadn’t really bothered to get light that day, but darkness closed in outside anyway. Mum slept more and was awake less as the day wore on. I kept getting the water wrong. I used the wrong cup and made her cough, then it kept running out of the side of her mouth, down her chin and onto her chest. So I spent a lot of time apologising that it must be horrible and cold and making jokes along the lines that I was a shit nurse and that I wasn’t going to be admitted into the Royal College of Nursing any time soon. She laughed at first and then as she became weaker, it was a smile and finally just an imperceptible lightening of her face.

At one point she tried to sit up a bit and speak, so I put my arm round her and propped her up so she could. She said, ‘I love you darling, I love you very much.’ I just hugged her and told her I loved her too and that she was brilliant. That was the last full sentence she said to me.

Her voice sounded incredibly croaky and I remember thinking that she must have a horribly sore throat and that I must step it up with the water, which I did. We had a bit of a giggle when they gave me her shepherd’s pie to eat because she was too weak to swallow safely. I went to the loo and when I came back one of the nurses had left some packets of biscuits for me. They got the tea trolley in and gave me a cup of coffee. They were absolutely lovely to me (and my brother when he got there) as well as to Mum.

Mum was very peaceful, the staff remarked upon how relaxed and unafraid she was. They’d given her a little cross when she’d had the last rites or Extreme Unction as I prefer to call it because that sounds like some kind of superpower and is much funnier. I kept doing the water thing, at first asking if she wanted more each time she woke up and waiting for the, ‘yes please,’ but then I just put it into her open mouth with the toothbrush. She would usually suck it but towards the end she hadn’t the strength to do that. picture of the south downs dappled with sunlight and shade

My brother arrived and she tried to sit up a bit. I think she wanted to say the same thing to him as she’d said to me. He doesn’t think so, but I do. I missed my cue though and didn’t twig and pass it on for her. Mainly because I thought she was also in pain, which my lovely bruv thought, too, and I was concentrating on that. I suspect she had lost her voice by that time. I took her hand in mine and asked her to squeeze if she wanted morphine. She did. So we got some for her.

We held her hand, and stroked her face and told her we loved her, did the water thing and the lip stuff and chatted to one another. By 1.30 am, my brother suggested that we go back to the family home and get some sleep. I didn’t want to leave her but she seemed very peaceful, her breathing very regular, and as my brother pointed out, if it took a while and we were with her the next night, we’d need some proper zeds in for when it really mattered.

We consulted with the nurses who said it would be a sensible decision and that’s when they passed on the message she’d given them, via the chaplain, that we were not to worry if she died when we weren’t there.

There were some other quite challenging patients, people with Alzheimer’s with disrupted sleep patterns and I explained that while I had every confidence that they would make regular checks on Mum, if she was in pain and called out, they might not hear her straight away, or they might be with one of the other ladies and not be able to come at once. We agreed she should have some more morphine as that would see her through until 7.30 am and we’d aim to come back then.

Sometime around five they turned Mum and one nurse went off while the other primped her pillows, did the water in the mouth thing and made sure she was comfortable. She noticed Mum’s pulse was quite weak so decided it might be time to call us in. She went to get the other nurse to see what she thought and when they both came back, Mum had died.

Sunrise Over West Sussex, 1996 by Christopher Aggs, Worthing & Southlands art in hospitals project

We went into the hospital to see her, and I dunno, give her a hug one last time while she was still warm and it felt as if there was still someone there or at least, hovering close.

It was 11th December.

My brother and I spent three days at Mum’s house, going through her stuff. We did the desks first, which was hilarious. Mum had kept all our school reports and we found all his letters home from boarding school asking why I never got a star at my school, ‘Mary, you got full marks for that test but your handwriting is too untidy to give you an A so I’m afraid that’s an A minus, no star for you this time.’ (Or any other fucking time to be honest because my handwriting was always too messy for me to get an A. But that’s what school was like in those days. Luckily the only people who didn’t value the neatness of my handwriting over what I actually wrote were the examiners who marked my O and A level papers but I digress.)

We also got very giggly about Mum’s photos, we used to have to wait ages for her to take one and then she had a tendency to line it up wrong, that was mostly the camera rather than her but bless. And then we had an old friend round for dinner. It was interesting trying to cook vegetarian, because though my brother is, I’m not at all, but we ate a lot of roast veg and we had cheese and eggs with us so all was dandy … and we’d gone down there equipped with wine, which was great.

It being Christmas post, there was fuck all I could do about telling anyone by that time other than phoning a lot of people, including the local undertakers who knew both my parents well (Dad was church warden and Mum did the flowers) and who are lovely. Turns out there is a new vicar, who comes over as one of those rather difficult Christians who’s rather big on the ‘thou shalt not’. How he’s ended up at an inclusive church with its roots in the Oxford movement is beyond me but hey ho.

Luckily Mum was too infirm to get to church by the time he arrived and he never visited her, so he’s no clue who she is. As a result, he won’t be having any input into her funeral other than issuing the odd bizarre diktat to make sure we all know that the church building belongs to him and he’s in charge. The rest of the team are as lovely as they ever were. They quite clearly loved Mum to bits and it’s one of them who is doing the service. So that’s grand.

So there we are…

Looking back on it, there’s a waiting phase before death, a kind of state of grace people go into and if I’d thought about it, I’d have seen that Mum was in that on the Wednesday, I’d have known, and maybe visited on the Friday, too. Maybe … I dunno.

Am I sad? Well … yes but also … no. My overwhelming emotions are gratefulness and joy that I had such lovely people as parents. Mum was totally OK with dying. She’d told me less than five weeks previously, a propos nothing much, that I did know, didn’t I, that if she died, she’d be quite alright and I was not to worry. Other good bits … having been really quite batty for a week or two, she’d been very switched on for my last five visits. And even when batty her perssonality and generally lovely demeanour was unaffected.

Regrets? Not really, I wish I’d got the cue to ask her if she was trying to tell my brother she loved him, and I regret that my last two visits to her at home I was running round like a blue arsed fly, first showing some people over the house, then with the photographer (both times pretending they were surveyors come to look at the roof). I’d been going to make sure that on the last visit I really made up for that, but she was in hospital that week.

The fact is, Mum was about to leave her home forever and go to Shrewsbury, because it was time, and because we’d run out of money and had nothing left to pay the care fees other than the house. Mum and Dad’s furniture was all brown stuff and is therefore worth about five pence a pop if that. If we’d sold everything in the house, we might have covered care fees for a week or two. Instead she died while she was still living in Sussex, in the same house (even if she wasn’t there at the time).

Other positive things … Well … the move might have worked, but if it hadn’t it would have broken my heart as well as Mum’s. I’d have had a hard time coming to terms with it, even though there was no other option. As it is, I didn’t have to break my word to her. I didn’t have to move her. I never had to hurt her and I never have to worry about her any more. We get to do her funeral on home ground, where the highest numbers of the people who knew and loved her have the easiest access, if they want or are able to come and with Britain’s loveliest undertakers. I am incredibly grateful for that. And although she was still living in it when she died, we had conditionally accepted an offer on her house, which might help hurry up the paperwork.

It doesn’t really feel real. I suppose it won’t for a bit. But it did feel peaceful, and full of love and right. For the first time since 2012 I can say that I know, categorically, that both my parents are absolutely alright. That’s about the best Christmas gift of all.

Meanwhile at home, I’d bought a handful of presents but otherwise there’ve been no presents, no cards, indeed, not much of anything as we were busy taking anything of value out of the and into storage. We’ll have to put it back to get it valued for probate at some point but at least, for now, it’s safe. And all the Christmas malarkey? Well … there were some crackers in Mum’s cupboard, so my brother and I had a box each. I sang in the choir for midnight mass and we relaxed. McOther gave me a book to wrap up and put under the tree for him. He’d already given me a fitbit and McMini had already spent his Christmas money on stuff that arrived by post the previous week. He received a hefty wodge of christmas money from his grandparents but that was it.

When it comes down to it, all the gifts and the trimmings and the shit aren’t really so desperately necessary to make it work. It seems the Beatles were right. Love is all you need.

And on that rather schmultzy and trite note. Happy Christmas … a day late … because … this is me writing this, after all.

The end

Congratulatinos if you’ve made it this far. Weighing in at a hefty 5k, there are novellas out there and entire film scripts that are shorter than this post.

If you want some Christmas books, I’ve two available for your delectation; one reduced drastically to 99 American cents or British pee and another free. You can find them, in ebook or audiobook format until December 30th on this here page here:

https://hamgee.co.uk/christmas https://hamgee.co.uk/christmas

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Filed under General Wittering

Tagged as author blog, death, dementia, dying (not in comedy), M T McGuire, off topic, registering a death, sad

21 Oct 2023 · 12:00 pm

Balls … all of it.

Well, it’s been a long time and I suspect most of you have wandered off, assuming I have disappeared off into the ether.

Nope, like a bad smell, I never go away, I linger. I have just … yeh well, to be honest I’ve completely lost the plot. I wouldn’t say I’m actually burning out yet but let’s say … we’re on the red line and there’s definitely an alarming aroma of burning oil and hot metal. Hence my stepping back. So having not blogged for a long time it’s time to catch up. Yes. You know what you’re going to get now, don’t you? That’s right. An entire sodding book. Mwahahahrgh. Jolly dee then. On we go.

You want to know how my life’s going right now? Here’s how it’s going.

A few days ago, as I was walking up the garden path, minding my own bleedin’ business when a sleepy wasp fell out of a tree and landed on my head, at which point it got stuck in my hair and the little bastard stung my face. Worse, the breeze kept blowing my hair, plus—now incandescent—jabby stingy wasp, back at my cheek. As I flapped at my hair to try and keep the wasp off me, and at the same time, shake it free, I inadvertently batted my glasses into the shrubbery. Then of course, I couldn’t find them because I wasn’t wearing my bloody glasses. Luckily McOther heard me effing and blinding, took pity on me and found them for me, although he had to put on his reading glasses first or he wouldn’t have been able to sodding see.

Finally, after repeated bouts of ‘the Wasp Dance’ the pesky insect in question fell out of my hair and landed drunkenly on the patio. I’m afraid I was very angry with it and trod on it.

Welcome to my world. Shit like this happening the whole. Fucking. Time. Shit so fucking bizarre you couldn’t make it up; day, after day, after day. I really should write more of it down.

So that’s set the tone. Now you know what you’re in for with the rest of this. Mwahahahrgh! I can’t say my life is lacking in comedy it’s just that it’s the kind of stuff that, if I put it in a book, would have reviewers saying it was too slapstick and unrealistic to be true.

Mmm.

The evidence would suggest that, here at McGuire towers, we are some kind of fucking masochists, we have had the fullest room in the house re floored. Why the fuck did we do that? This has involved us moving shelves, about 300 books and about 8,000 LPs a table, a sofa, a doll’s house, a printer, a LOT of curtains and Lord knows how much other shite into different parts of the house.

When the LPs are leaning against the wall along the length of 3 metre room double thickness, you know there are rather a lot of them. Said room is also full of boxes of books, tables, there’s a doll’s house and all sorts of shit. Not to mention a sofa blocking the door so you can’t actually get into it and a giant set of shelves all but blocking the hall.

The room being re floored is also a main thoroughfare. Think, central hall. So to get from most of the house to the kitchen we have to go up the stairs, along a corridor, and down the back stairs into the kitchen instead of along a hall and through a room, because we can’t walk on a newly tiled floors because … glue.

To get to the utility room and the freezer we have to go outside into the pissing rain, round the side of the house and in through the back door. To put the cat to bed … well … he’s having to sleep in another room. He’s doing really well—because cats don’t like this kind of stuff but he hasn’t run away—although I suspect he’s not enjoying it. There were many set backs. It was meant to happen two weeks ago but other jobs over ran and the chap couldn’t get to us until this week.

On the up side, we can access all rooms without having to actually climb in through a window. Frankly, the state things are, I call that a win.

Unfortunately, having the entire house becoming more and more discombobulated over a period of several weeks (because that room has taken a long time to clear because it was packed well above it’s plimsoll line with shit, anyway) has left me astoundingly arse about face. I have no fucking clue which way is up. Or at least, even less fucking clue than I usually have. On the up side. They’re done. And though we can’t walk on it tonight. Again. It will be dry tomorrow and—pending a quick once over with a mop—finished.

Then it will take us another three weeks to move all the shit back again.

No. We’re not going to.

We’re going to sort though the shit and sell/bin it. That’s kind of OK except I have so much fucking shit to sort though and get rid of and now it looks like I might be adding Mum’s to the mix because we all know how brilliant I am at cataloguing and tidying things up or selling them/giving them away. There’s a reason my rather fabulous collection of plastic tat has been languishing in 39 boxes above the garage since we moved here 15 years ago, instead of on display and it’s not all about lacking the room.

(Yes, just in case you need this spelled out. I’m shit at those things. Really, astoundingly, gobsmackingly, special-super-hero-attribute levels of shit, so my life is going to be an unbounded joy for the next six months/year but hopefully things will fuck off and leave me alone after that.)

On the Mum front. Mum is running out of money. The people who are supposed to be getting continuing care for us appear to have stopped doing whatever it is they do and I’ve chalked 4 grand of her cash up to experience. My interactions with them are very different to that of Mum’s carer, who recommended them to us. She said they couldn’t do enough to help, my experience is they have taken 4 grand of Mum’s cash and can’t do enough not to. I’ve paid 4k and it seems their job is to tell me what to do and wait until I do it for them. I did think, for that kind of eye watering fee, that the carers and I were going to provide the information and they were going to collate it.

No. Maybe the precedents they will use to prove their case will make the cash worth it. Maybe but it’s worrying, when the key reason I went to them was because I knew I was too burned out to collect the information required and navigate the process on my own in the time we have available.

The way things are, I am, indeed, too burned out to chase this stuff up myself and they aren’t doing it either. They do not volunteer any communication. I have to contact them, they take two or three days to reply to emails, and it’s not possible to speak to anyone on the phone, you have to leave a message and then they call you back, usually during a doctor’s appointment, or while you’re driving, or on the loo or in an area of stupendously sketchy mobile phone coverage.

I asked how it was going and they said they were waiting for medical records and asked me to send a document I’d already sent. I did so and chased up Mum’s doctor. They then contacted me to say they were still waiting for the records. I said I’d chased and asked them to let me know when the records arrived. Next port of call, chase them again and then, presumably, chase it up with Mum’s doctor.

Having employed them because I needed someone to do this shit for me, to take the admin out of my hands because I’m too slow to do it they’re just sitting there making me do it all. Indeed, it seems I’ve lumbered myself with a double layer, and a stopper between myself and the care board that is slowing things down rather than speeding them up.

Ho hum. So yeh. It’s probably actually taken longer than it would have done if I’d done it on my own. Head. Desk.

A learning moment then. Chalking that one up to experience. I’ve sent them heaven knows how many documents, in certain instances, several times. You wait. I’ll get a lovely email from them tomorrow now and feel really guilty for writing this.

No. I won’t. Although they say it takes 8 weeks to process after they’ve received all the information and I think Mum’s doctor is dragging his feet signing off the medical records, because he’s absolutely swamped with admin.

Meanwhile things are progressing slowly with identifying a possible learning issue for McMini. I am hoping to get an assessment for visual processing which is something that is relatively straightforward to sort once it’s identified. He’s burned out and I don’t think he would be burning out from school if there wasn’t something making life extra difficult for him. His intellect is razor sharp, which makes it all the more difficult. As I understand it, burn out is one of the tell-tale signs of a learning thing.

Other Mum news. OK, so … the continuing health care company may yet come through, but Mum’s financial reserves are unlikely to outlast the time it is going to take. That means we have to sell the house. Talking to one of her carers the other Wednesday, she confirmed that Mum doesn’t really know where she is anymore, which means we can now move her. So she’s going to my lovely brother. Not to live with him but to a home near him which is opening up, quietly, bit by bit, and which specialises in dementia care. We were looking at next year but Bruv has to do the do during the school holidays and I should be there to help too. If I am going to have Christmas at Mum’s with her that means, the way our holidays and trips abroad fall, that it would be June 2024 before we could move her. Too late. We’ll have run out of cash. Or just after Christmas. Except, if I do that, it will have to be the first week in January or Bruv is back to work and as a teacher, with school holidays, he can’t really ask for time off during term time for this.

But … we are going to McOther’s folks in Scotland for New Year and we can’t cancel that because they are 5 hours away, they can’t travel and with Saturday school, holidays and half terms are the only times we can go.

So … the only other time is the beginning of the this school holidays … which means I needed to drop everything last weekend and belt up to Shrewsbury to look at the home, which was lovely, luckily. It was lovely to see Bruv, wife and kids too and heartening to meet the staff and see the home. I genuinely think Mum will be happy there.

Having given the home the green light, we’re moving her mid December. Then we have to clear the house and sell it. I have to do stuff like cancel the phone and broadband contracts and get the garage cleared (it’s full of stuff that belongs to someone else). Bruv and I have to decide a) who gets what and b) what we might sell to pay care fees.

It’s been interesting, as at one point I was looking to meld Mum’s broadband and phone into one. This would be £20 a month for both rather than £30 for each one. However, where the utilities (except the broadband) were all with one company; SSE, that company is now defunct so it all went to Ovum or OVO or whatever they are. They then divested themselves of the phone account to a company called Origin broadband. I rang Origin but in the long chain of passing accounts from one operator to another something has changed the account name. It’s no longer in Mum’s name it seems, or at least, when I gave the account number and they asked for my account name for ‘security’ and I gave mum’s name, as printed on their welcome letter, they said I had got it wrong. They asked for a title. There isn’t one so I said Mrs. That was not the correct salutation apparently. I then suggested ‘hello’ which is what it said on the welcome letter. That was also wrong. We tried two different spellings of Elisabeth; the way she spells it and the usual one but that wasn’t right either. So nobody at Origin can actually access my mother’s telephone account … because it’s not in her name. So that’s a joy to come when I try and cancel the phone.

Dealing with Origin I spoke to a lovely lady in South Africa (she used ‘just now’ and had the accent) and we did have quite a giggle about it as she tried 101 different permutations of Mum’s name to get in but we failed in our mission and she wasn’t able to help. We had to give up which is a little ominous.

I guess I just write to them and cancel the Direct Debit with the bank, but they are now dealt with by a call centre in India (even though Mum chose a special account specifically to have her telephone banking handled by a UK based call centre). The folks in Bombay or wherever it is are actually lovely but it’s a terrible line, a lot of them are really soft spoken so even I have trouble hearing them and they are far more interested a perfect administrative record than any meaningful customer service — jeez nobody does admin and minutia-driven bureaucracy like a this lot I wonder if they’re handling BT’s help line as well — so I’m not sure how far I’ll get with that.

Meanwhile, I’ve been getting vaguer and vaguer. I know dementia is my destiny but I was hoping not quite yet. Two weeks ago I bought an air plant in the market. I know I had it with me at the check out shortly afterwards in Marks & Spencer’s because I remember picking it up and taking it outside but somewhere between M&S and home I put down the bag it was in and failed to pick it up again. I literally don’t know where I lost it. I only remembered I’d bought it two weeks afterwards. Arnold’s pants. What a bell end.

In health news, because I am one eighth French, which means that if you ask me how I am I WILL tell you … I have finally been to the doctor properly about my aching hands and while I suspect they are a bit arthritic, the main problem is carpal tunnel. The sore arm I have been experiencing when metal detecting for the last year and a bit which has suddenly become permanently painful … that’s tennis elbow. So I’ve had that for over a year and the carpal tunnel since 2015.

Ah.

Nice to know I’ve been looking after myself. Mwahahahrgh!

On the upside, both those things can be fixed with physiotherapy. Excellent. So long as I haven’t fucked the hands up too badly in the intervening 7 years since they started. I had been to the doctor before about the hands but they said it was arthritis. My bad, though, I should have been more articulate about the type of pain. I didn’t really think about it until it got really bad. Then I realised it wasn’t responding to the same things as my arthritic bits do.

So that’s a joy. But hopefully a fixable one.

There are Christmas events too! Please do feel free to come and visit me at the St Edmundsbury Cathedral Christmas Fair on 23rd – 25th November, 2023. Woot. I will be the one dying on my arse while those around me sell stuff feverishly hand-over-fist. I’m busy prepping for this, I have to order some eyebombing calendars, a couple of books and some cards. I also have to decide whether I’m going to visit a local cafe, clean the mirror in their loos and take another photo of the eyebomb I did there so it looks better as a Christmas card than the picture I have already.

Picture of an ornate frame with eyes stuck on it so it looks like father Christmas

Oh ho ho

Right now it’s the spit of Father Christmas but you can really see the dust. I thought writing Oh-ho-ho! in red or drawing a silly hat on it might help. I dunno.

Events! Norcon! I never blogged about Norcon! It was fabulous this year. Sorry not to post. Although no Nigel Planer selfie this time because he wasn’t there. Pity as I loved his book and was hoping I could buttonhole him and tell him. It has a similar feel to mine, which was heartening. So yeh, would have loved to have talked to him about that. Never mind. Can’t win ‘em all. Maybe next year. I sold a lot of books though, at pre covid levels. Which was lovely.

Ditto McMini’s most recent gig. Jeepers but he has gigs springing up like mushrooms all over East Anglia, including a Friday here and another on the next night in Norwich which will be a bit hard core for his perennially knackered 55 year old mother even if it will be fun. I should add that I sell the merch so it’s like doing a small event. I’ll get used to it though and the last gig I went home to entertain dinner guests and other people sold the merch for me!

Where was I? Oh yes. Events. A few weeks after Norcon it was time to take part in the first ever Fringe Literary Festival, here in our very own Bury St Edmunds. They had a short story completion: Fast Forward, for flash fiction up to 500 words. I put the start of an incomplete series in (one of the many things I’ve managed to get half way through but is now too complicated to complete until the emotional load is lighter than it is now). OK I condensed it a lot but if you want to listen, it’s here. Although there’s a lot of background noise. Sorry about that but the stories were read out in venues around Bury which was brilliant but less easy to record cleanly. Not that it mattered! As always, I was stoked to hear it read out. Here it is anyway.

So there you have it. Things are very, very hectic. I have a talk about burnout on 7th December. I’ve been working on it all year and I am cautiously optimistic that I will get it done in time but it’s tough because I’m … well … burned out. Mwahahrgh! Even more burned out than usual! As for writing, have I written anything new? Have I bollocks? Sigh. Maybe LIFE will fuck off for a bit next year and I’ll get a chance.

Ho hum, onwards and upwards? How have you been this last three months?

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Tagged as author blog, author blogs, author parent, comedy fantasy fiction, dementia, I fucked this up so you don't have to, istuffedthisupsoyoudon’thaveto, K'Barthan Series, M T M Makes a complete tit of herself, M T McGuire, off topic, writers, writing

21 May 2023 · 6:47 pm

We’re not at home to Mr Cockup. Oh no, no, no, no.

Except we so smecking are. Mwahahargh!

Picture of an amber warning light for an automatic gate with plastic googly eyes on it to make it look like an irritated face.

Yes he’s a bit fucked off.

I was going to do a post about writing this week—and accompanying things—but the accompanying things got a bit out of hand and so I’ve gone off on a completely non-writing related tangent.

Do you remember a refrain from the Blackadder II episode where he’s made Lord High Executioner?

‘We’re not at home to Mr Cockup!’ he tells his team. And they fuck it up, of course, and Baldrick says, ‘Shall I prepare the guest room for Mr Cockup, my lord?’

Yeh, well … Mr Cock-up seems to have taken up permanent residence in the spare room and his omnipresence has affected most events this week. Sadly this time, my inefficiency has impacted on my ‘work’. I put ‘work’ in quotes because we all know that I don’t have time for a real job, since what I do is look after Mum and be a mum. My writing ‘career’ is the thing I pursue in the few minutes a week that I laughingly call, ‘my spare time’.

Here’s the thing.  For the last, I dunno how long, the cunningist of my most cunning marketing strategies has revolved around the crack dealer’s school of marketing. Give them books, get them hooked and then make them pay. To whit, I have been handing out cards … these cards … (see pic).

picture of two business card-sized flyers advertising free books.

The QR codes send people to a page where they can download The Last Word (top card shown) or join my mailing list (other card shown) and grab a copy of Nothing to See Here… In case, like me, readers can’t get the QR code reader on their electronic thingy of choice to work, there’s a link written out longhand as well.

When I changed ISPs a few months ago, I lost my website. I’d run out of space and there wasn’t enough room on the server to back it up properly … except that I didn’t realise that and so when I got the new site up and running and tried to upload the backed up file it told me to piss off.

On the face of it, this wasn’t so bad. I have an earlier back up which contains most of the material I’d want to keep. Also, I used a lot of orphan pages; that is blanks with information about my books etc but without the menu and distractions that might make people browse away before they’ve properly assimilated how fantastically brilliant my books are and ponied up for one. Phnark.

Those were stored on my computer. I composed and edited them in a very ancient copy of Dreamweaver … 2004 ancient, to be precise … and put them backwards and forwards using the ancient Dreamweaver’s integrated ftp. As a result I was able to upload those to the new site and so most of the stuff in my automations should be working as usual. But things with Dreamwever are getting a bit shonky—it being nearly 20 years old and that—so I’ve been attempting to use an alternative.

Anyway, because I’m so organised and efficient (oh ho ho) I made a list and started downloading the code for all the pages I wanted to use … except that then, I suspect, I saw a shiny thing, or something happened with Mum, or McMini needed a lift somewhere and I got called away, and when I returned, I thought I’d finished. What distracted me is immaterial, the point is I hadn’t finished the job that I thought I’d done.

Yes, it turns out I’ve been handing out these cards like confetti and sending people to my site to download a free book to read and all they get is a 404 error.

Mmm, well done MTM. Bellend of the week award anyone? Ah yes, that would be me.

Balls up discovered, I have now put it right and the page for people to go to when they click the QR code is back in position. However, my gargantuan cockwomblery does not end there. Oh, no, no, no …

It now transpires that the QR code on my mailing list sign up cards points people to a sign up page with my list provider rather than on my site. I did these cards when I had artwork but in advance of publishing the book so I had to guess what I’d call the landing page with a view to making it later—when there was a book there for people to download and I’d written an onboarding sequence. I duly made up a name for the landing page, which involved the working title of the novella rather than the one it actually has…

Can you guess what happened next?

That’s right. I forgot to make that page. I forgot I’d made the link. I forgot that was where the QR code pointed but I had the cards printed anyway. Once again, the helpful QR code was taking them to a page that said oops but this time, rather than an oops page hosted by me, it was hosted by Mailerlite.

Mmm. My professionalism knows no bounds.

Bollocks.

In order to have a neat link, I used a link shortener.  Needless to say, in the interim, the link shortener in question, Bit.ly, has drastically reduced the facilities of its free account so I can’t just make a new one for bit.ly/hupbook or whatever because I’m only allowed to use the ones bit.ly gives me, you know; bit.ly/1f*5hio;avew or something equally catchy and easy to print correctly and remember. So what did I do? Well, I just duplicated the signup page I have, and renamed it with the name I used when I made the original link. Simple! But also. Ugh. Head desk.

As you can see, my marketing’s been just peachy this week, say I with such leaden irony that if I decide to move this sentence I’ll need a special, heavy-duty winch. Then again, perhaps my … er hem … marketing prowess has been kind of OK because I can tell myself that I’ve fixed a long-term problem that’s been extant since mid January.  Which makes this a win. Obviously. Snortle.

How did I not spot this problem earlier? I hear you ask, except I probably don’t because I expect you’ve nodded off by this time, but as usual I’m going to pretend, for comic effect, that I did. Er … hang on … oh yes. How did I fail to spot this? Well the QR code isn’t the only thing on there, I have also written out the link … except … it’s a different link which goes to a real page which does exist and will allow them to sign up and download the book. Not a total disaster then but kind of weird, all the same. I’ve left it like that for now because an alternative means changing the artwork.

Going forward (not a phrase I like but probably the best one to use here) people can at least sign up to my mailing list or download a free book with those cards, now. They probably won’t but that’s not the point is it? The point is that they can.

It’s been one of those weeks this week.

Similarly, I ordered a new case for my phone. I needed a wallet case because I like to have a single card in there and be able to go out with just my phone without being caught short of cash. Also, if my wallet’s nicked and I have to stop everything else I can still pay for things in a shop and get cash while I’m waiting for them all to arrive AND I can still buy stuff if I go out and forget my wallet.

However, I couldn’t find any companies that made them for my phone initially and had to buy a normal case—this is me, it has to have a protective case of some sort because otherwise, I’ll smash it. Although even with the protective case I smashed the phone-before-last on day two.

The case it has is great but I have to take it off to plug in a USB stick to download my photos, and as I’m doing the eyebombing book at the moment, I need to keep moving eyebomb pictures from my phone to my computer so, as you can imagine, this has become a sizeable point of pain. I have google drive but anyone who’s ever tried to download anything more than one photo at a time from Google Drive will know a) what a palaver it is and b) that when it compresses the photos into a zip file it leaves three quarters of them out. Massive, MASSIVE ball ache. The USB storage stick is way easier, even if you have to keep taking the phone out of its ruddy bastard case each time. That’s how eager Google is to ensure you don’t bother and pay for extra storage. Money grubbing bastards.

Sorry, where was I? Ah yes.

Having ordered the case, it arrived two weeks later from China and I discovered I’d inadvertently ordered one to fit a Pixel PRO rather than a plain pixel. When I put ‘custom wallet case for google pixel 6’ into a search engine, I have to be very careful that I check the results are not for a Pixel 6 Pro, which is bigger, because no matter what I do, it lumps them all together. I also get annoyingly irrelevant ‘sponsored’ results from companies who don’t make a custom wallet case for a pixel at all. I know I had the right one initially but the internet dropped, I had to reload the page and I didn’t realise it had defaulted back to pixel 6 PRO again. Bastards. That said, it was so rubbish that when it arrived I was almost glad it didn’t fit.

Needless to say, only one other site offering a Pixel 6 (not pro) wallet case popped up on my search results, but apparently they’d changed some vital parameter to ‘custom’ that made BT parental controls ban them. Or perhaps it was because they’re called hairy worm, phnark. Uh yeh … I guess it could be that. Sometime, long ago, in the dim, dark, distant past, we put parental controls on our BT internet access because … you know … McMini.

However, that was eight years ago. We are out of contract and neither of us knows our BT password so we can’t change it. I tried to get this back off BT but was unable to because it was confidential information. So confidential that once it’s been lost, they can’t even tell the actual account holder what their own password is. Likewise, if they spell your name wrong, they can’t change it. I might be able to tone down parental controls via the wi-fi router and I will probably try at some point in the far future, when I’ve nothing better to do.

Alternatively, it might be that only McOther can do it because he’s the account holder and being his mere wife means I’m not secure enough. I did have a secondary account and password which I could do this stuff with but those no longer work, probably because I haven’t used my BT email address, ever.

As far as the account goes, I think there has to be one default email address but we can’t get in because … password … and they can’t send it to us because we can’t get in to read the email. Anyway, they’ve spelled our surname Maguire, the ignorant tossers, so they can fuck off.

Hmm. Sorry. Not ranty or anything today am I? I’m just in a grump because my son has very generously shared his cold with me. Back to my long and rambling story. I just know you’re on the edge of your seat. Mwahahargh!

Luckily, I have data on my phone so I just used that to bypass BT’s draconian system by using my data and my phone, instead. I did try to report it as an error but obviously I needed to know my account name and password for that. Considering I uploaded the artwork, positioned it and chose the text colour using my phone I am actually quite chuffed. See picture attached.

Mmm … K’Barthan swag.

Nothing much else has happened this week other than my opening what, I suspect, is going to be the most gargantuan can of worms. I asked about getting Mum a care assessment for a continuing care grant; mainly because one of her carers’ grandfather had been given it and she told me that, in her professional opinion, he was no more in need of help than Mum. Her mother, who is also on the care team, agreed. I asked what they did, and apparently another family member had contacted an agency who’d done it for them.

Armed with this information, I rang the agency in question but they told me that if Mum is able to speak she isn’t bad enough. The chap there seemed to think that non-verbal was a key factor and told me to come back when she reaches the pureed food stage. I’m a bit confused by that because if she needs help to stand, go to the loo, wash, dress, cook, clean and can’t even use the phone or turn the telly on by herself then surely that’s 24 hour care.  To be doubly sure, I rang the Admiral nurses helpline. Sadly they don’t cover where Mum lives so they won’t be able to help with the process but they were able to advise me and said that yes, Mum definitely had needs that made her eligible for Continuing Care.  Next, I got through to social care at the council who thought I should contact her Doctor. I guess what I really need to find is the local social services number for her and get a social worker on her case. I’m not 100% sure how that’s done, as with Dad I seem to remember it happening automatically. I’ll have to look up his notes and see if I have a number for them from then.

Essentially, Mum needs a care assessment first from the right team. Apparently you can call and ask for one of those any time. Then the results of that are scrutinised closely and financial help awarded … or not. The trouble is, nothing says who you call to get this initial care assessment sorted.  There are parameters and a procedure, but to the outsider looking in the vaguaries of the system are very difficult to understand, at best and at worst, it comes over as deliberately opaque, whimsical and arcane … Mum ticks most things on the list but, as yet, I’ve found no concrete information as to where the starting point of the system is. As a result, I’m not sure who to contact to have the care assessment done. It’s a NHS team, who does the assessment for the actual application, but I have no clue if we need a ‘normal’ assessment first from social services. I’m guessing we do, although I’ve found a thing that says a district nurse can arrange this, too so I might see if I can get the carers to liaise with them.

There are two agencies who will apply for NHS continuing care on behalf of people, and a law firm with the most ridiculous name on earth—they’re probably really good but the name screams cold-calling ambulance chasers. The only one of these august bodies that quoted a price for their work charged £2,500 and some suggest as much as £6,500 depending on what they have to do. I will have to think about whether it’s worth that. No, it’s definitely worth it, for my sanity, to pay someone else to do it for me because this will be a grim project to try and undertake on my own and, like all the Mum stuff, is a perfect storm of everything at which I am shit.

In the meantime, I’ve started filling out the form on the website of the other agency. I’ve already stalled at how much Mum has spent on her care … well … you know … apart from, ‘everything’ but some of that was the day-to-day costs of running the house. She has a state pension so there’s that on top, as well, though so theory, it’s actually a bit more than everything.  Everything with brass knobs on? I dunno.

What I don’t understand is this; while I appreciate that they aim to make it hard for people gaming the system, it would be quite nice to set it up so the people who needed this particular part of the system would have some blind clue as to what, exactly makes them eligible and how it works. There are lots of really clear accounts that explain what will happen when you are already in the system and what the steps of the evaluation are. But how to start the process? Absolutely fuck all.

Carers looking after a sick relative who are seeking continuing care for them, or people who are sick themselves and need continuing care … they’re not exactly endowed with an abundance of energy for administriviatitive shit because they have a craptonne on their plate and are already nearly broken. I should imagine many of them will never get money to help with care, money to which they are entitled, because they are too fucking ill and their relatives too fucking frazzled and burned out to even begin to work out how to fucking apply.

Fuckity fucking fuck! Preparing the guest room for Mr Cockup then, even, also as we speak.

Ho hum. Onwards and upwards.

Astonishingly cheap ebook and audiobook alert …

Yes. Spoil yourself with your good taste (Ambassador) and a wonderful free book. Mmm hmm. If you are looking for a fun novella—to relieve the considerable tedium you may be experiencing after reading this blog post, for example—or if you’d like to listen to an audio book in the car, or at work, or on the commute and you are just fresh out of ideas for fabulous newness … well, you can fix all those things by grabbing a free book.

This book.

Small Beginnings, K’Barthan Extras, Hamgeean Misfit: No 1.

It’s free to download in ebook format from most of the major retailers (except when Amazon is dicking with me) while two and a half hours of glorious K’Barthan audiobook deliciousness is a mere 99p or c from Kobo, Barnes & Noble, Spotify, Apple and Chirp (if you’re in the States). It’s also free to download from my web store.

If you think that sounds interesting and would like to take a look, just go here.

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Tagged as an author with children, author blog, dementia, full time mum writing, I fucked this up so you don't have to, istuffedthisupsoyoudon’thaveto, M T M Makes a complete tit of herself, M T McGuire, off topic, trying to be a writer, women in sci-fi, women writers, writers

26 Feb 2023 · 7:45 pm

Discombobulation … is the name of the game

Yes, you find me all arse-about-face this week. Well that’s the default state, I grant you, but in this particular instance I’m probably a bit more arse-about-face than usual. Yeh. I know. Impressive. Even for me.

One of the difficulties I’ve experienced recently with my blog is that there’s been so much to write about I haven’t really known where to start, so then I’ve just gone a bit droopy and given up on it.

The past few weeks have been rough.

On the Mum front, nothing much seems to be happening about getting her an official diagnosis for dementia and we are reaching the stage where she does need one. It’s a pain to have to keep chasing her doctor and getting absolutely nothing back. He’s normally excellent so I don’t know what’s happened but I think I’ll have to book a call next week and get to the bottom of what’s going on. If he can’t refer her to the NHS memory people for some reason then presumably I’ll have to try and get a diagnosis done privately. It will cost money but the expensive bit is the brain scan which has already been done in hospital and should be with her NHS record.

On the upside, having done my tax return which showed I owed tax, and having paid said tax, it now turns out I don’t so they’re going to give it back to me. On the downside, some numb nuts reversed into me at bloody Tesco’s filling station … why is that place always trouble? Turned out he wasn’t insured because he was driving his friend’s car and didn’t want his friend to know. I explained about fibreglass and the cost of repairs and he looked at the bill and decided he couldn’t pay so I reported it to my insurance company. Apparently they’ve agreed that the repair can be done by the bunch who always look after my car. Unfortunately they’ve told Enterprise rent a car that, and they’ve rung the fellow who will be fixing the damage and have left a message that he must call but when he does all they get is a message telling them that all their operators are busy and to ~~piss off~~ call back at another time.

Incidentally, since every single call centre has been experiencing ‘an unusually high demand’ since covid, I’d be tempted to say that the level of demand has been like this for three years and therefore it isn’t unusually high; it’s simply a case that they sacked everyone after covid and have decided they’ll make more money if they sacrifice any customer service principles they had and run on a shoe-string staff. But I digress.

As the mechanic apologetically explained to me, after making five attempts, there are only so many times you can call. So now I have to ring my insurers between 10.30 and 4.30 (nice hours if you can get them) and they’ll put me through ‘because they’re more likely to answer’ and get the bloody job number myself. FFS.

The next week, going to Mum’s because I’m so fucking intelligent, I was a bit upset by seeing a rolled horse box and car on the motorway and the green we’ve-just-shot-this-horse screens. Late for Mum’s and in a dither I reversed my car into a flint wall, fucking the other end of it although—thank the lord for small mercies—the wall was unscathed. Since it was the random wall of someone else’s drive that is a Good Thing. Why? Because I can’t claim on my insurance or I’ll lose my no claims bonus and my excess is just shy of £300 so unfortunately the £800 for this one is on me because if I lose the no claims I’ll only be getting about £100 for a claim in real terms and paying the rest in increased premiums and excess. It’s tough being this much of a twat but someone’s got to do it.

Another up and down one, I had planned to see Abba Voyage with a friend this week. She’s one half of a lovely couple who absolutely get me. They also like me as much as I like them and there is a huge amount of mutual respect and ditto with McOther too. McMini also loves them. The chap has had cancer on and off since just before lock down. It’s been a virulent bastard. He’s been playing bash-the-rat with it and we’ve been seeing them in the gaps between bouts of chemo. He’s not had much respite between ending one lot of chemo and it popping up again which is highly unfair.

He faced it with a great deal of courage and liberal dashings of his habitual droll humour. Last time we saw them, at the back end of last year, he was unable to eat all of his dinner round ours and suspected he had another tumour somewhere causing a blockage which would mean more chemo.

Knowing this, we sort of left them to it. McOther and I tend to take a, ‘you know where we are if you need us’ approach to this kind of thing and then give people space. We have a kid and if someone’s immune system is compromised with chemo we’re probably more likely to bring pathogens than most people—although McMini doesn’t get all the colds like some kids, it’s probably me that will bring the bugs in. Typhoid Mary anyone? Oh yes.

Long and the short, friend messaged me on Tuesday to say that he was in the hospice. I was particularly amused that, as a keen Viz reader, he should have ended up in the J Arthur Rank … which is ryhming slang for a wank, snortle. But it is a fab hospice and the original J Arthur left a lot of money for cancer care (I’m not sure if he died of it or someone close to him did, I should probably check). She explained that her other half had talked to her about Saturday and told her she had to go, whatever stage he was at. However, she felt her attendance still might depend slightly on him. I totally got that if he was dying, she would probably want to be holding his hand rather than watching Abba Voyage with me and I assumed, from this, that the odds were, he might be. I said that whatever she needed was fine.

Looking at the map, I realised that the hospice was only about 10 minutes out of my way on the way home from Mum’s so I arranged to pop in and see her the following day, and him if he was up to it. You know how with some people you can be really quite rude and abusive to one another and know it’s a joke. If you don’t you should as it’s an incredibly joyous and liberating thing to be able to insult people ironically because you love them.

These two were like this, with one another but also with us so I also told her that if his sense of humour was still in evidence to tell him that all she and I wanted was to nip down to London for a day to watch Abba and he had to make it all about him!

The next morning she contacted me to say that he had died very peacefully in the early hours of that morning. She must have told him I was coming to see him. I mentioned that to her, but obviously I offered condolences first. Then I cried a great deal, most of the way to Mum’s.

JD, the chap in question, was the absolute best of people. Much like my friend Duncan, he was into cars and was not remotely phased about speaking his mind—well, he was a Yorkshireman—or pricking the bubble of the pompous. He saw the humour in everything, but not to the point of offence, or at the expense of the humanity or pathos. Both he and his Mrs coped with the world using gallows humour, and wit, the way McOther and I do. Presumably that’s why we all got on so well.

He was very intense—but not in a way that was at all wearing—very intelligent and well informed about many things. He had an enquiring mind, so I guess if he was interested in something he needed to know about it. Properly. Among the things were music and cars to name two but history and wine, F1 … he was also a fabulous cook. Oh and he was endurance fit, one of these people who gets up at 6 am and goes for a 50 mile bike ride before breakfast. He was also highly amusing. He had a way of calling everyone by their surnames but in a way that felt rather less formal than using first names would be, although he always called me Sweary, for that is my nickname with that group of friends and they all call me Sweary.

His dry wit made the world a better and kinder place and when the cancer appeared he faced his affliction with so much positivity, pragmatism and courage. It’s clear, from talking to his Mrs, that he never gave up until acceptance was the best path. I will miss him dreadfully but, I’m very aware as I say this, that his wife and his mother (God love her, poor woman) have this way, way worse.

His Mrs is being as brilliant as I’d expect her to be. They were great friends, anyway, and clearly grew together rather than apart as his illness progressed. It can’t be easy though. They’re in their mid 50s. And I mean, as it is, I feel as if someone has turned a light out. There is so little humour in the world right now, so few people with a light touch. So few people who will catch my eye, in a situation where everyone is taking something far too seriously, and I will know they’re laughing inside as well. It feels like the world is being run by clones of Biff from Back To The Future. The Biffs are on the ascendant and those of us who understand the importance of humour to civilised living and discourse are fewer and further between than ever. And lightness and humour are so important. If you can be funny about stuff, you can explore some really scary shit in comparative safety, or at least, in a way you can’t if you are a humourless automaton.

The day after breaking the news, my friend contacted me to say she wanted to go to Abba because he would have wanted that and also that he had left instructions that his life should be celebrated. I said that was OK and did she want me to come and pick her up and drive us down there. She said that yes, if I could, that would be great.

I took a half bottle of champagne and on arrival we drank a toast to him. I think it made us both feel better. Then we had lunch and went to watch Abba Voyage which was very impressive and which I can recommend. It did strike me that some of the words were a bit close to the bone but it was only the second to last song where I thought she looked a bit wobbly and gave her a hug. She hugged me back so I think she may have needed it.

The audience was dancing but I was amused to see that, while they clearly wanted to dance the way they had as teenagers and kids, they were nursing the kind of backs, knees, ankles and collapsed arches that meant the couldn’t quite do it the way the used to. The intent was there though. There was a woman about our age near us who stripped down to her bra like it was some kind of 1990s Ibizan foam party, which we thought was hilarious, if a trifle weird. She came over as insecure and wanting to impress, like a teenager, rather than just being overheated, menopausal and giving no fucks. But what do I know?

When we came to leave we had to walk miles round the houses because West Ham were playing at home and turning out at the same time as us. All the streets had been barricaded so you simply could not leave them. I stopped to take a few photos, including a rainbow. A promise? Maybe.

The shopping centre we’d walked through to get to the Abba Arena was closed off with massive metal shutters like the blast doors out of a nuclear shelter and the streets lined with unhelpful stewards who said we had to go round.

We’re not football folks though, we’re here for Abba and we want to get a coffee. Never mind, that. You have to walk round the outside in the pissing rain with the West Ham peps.

Is the car park open? Are we allowed to go into the car park to get our car?

You have to go round. That way.

Yes. We have twigged. But are we going to be allowed into the car park to get our car?

You must go round.

Yeh, right. Thanks that’s been a great help.

On the upside, they demonstrated, clearly, that Westfield shopping centre could survive the Zombie Apocalypse, which is useful to know.

It was bizarre though.

Luckily, we were able to get into the car park, although not into the shopping centre from street level. But by climbing to the next floor we were able to walk into the shopping centre from there and go with our original plan to grab a cappuccino and an arancini.

When it was time to leave we found that the pay machine in the car park was one of these ones where you put in your number plate and it just tells you how long you’ve been there and presents you with a bill.

Except it didn’t.

It kept presenting us with pictures of wildly inappropriate and unmatching vehicles. The more times I tried to find my car’s numberplate, the more bizarrely wrong the suggestions it offered; enormous munter trucks, saloons, and the odd van. Each time it was kind of going, ‘well, there’s an A in the numberplate on this one, is this your car?’ I’d press ‘no’ because it was a bus/estate car/motorbike etc and it would start again. Finally it suggested a massive van which shared one of the same numbers as my car’s number plate, ‘What about this one?’ it says hopefully.

‘Nah-uh.’ Say I. And so on.

After we’d done about seven of these we were both snorting with laughter because we reckoned it would be just our luck to get trapped in the car park forever, unable to leave. In my head I could just hear JD laughing at our antics. There were many jokes about how us two could get in to the most ridiculous scrapes. McOther calls me The Woman THINGS Happen To and they had a similar gag running themselves. I pressed the help button and was told that we should just drive to the exit and ring them again and they’d charge us then.

Off we went. I managed to tell two lurking motorists that I was leaving, by mistake, but my friend explained to the second one that we’d told the other we were going first and so we avoided precipitating a hand bags at sundown situation over our parking spot. Phew.

When we reached the exit, I discovered that the help button was about 3 feet above the roof of my car. I dunno, maybe there were some exits for buses or something and I’d inadvertently picked one of those, but they’d all seemed to be the same. Then again, there were about 60,000 West Ham fans making their way home and most of them seemed to be parked in that car park so maybe it was just that there were cars over the top of the writing on the ground and I’d not seen the bus label on this one.

On the up side, there was a guy there and I explained what had happened and asked him to help. He pressed the button for me, not quite what I was expecting, I’d assumed he’d be able to work the machine. Never mind, it was a start. The sound of a distant phone ringing drifted down from above me as the help button attempted to make the connection. It went on for a while. Some of the West Ham fans behind us tooted.

‘I’m going to let you go,’ said the man and proceeded to raise the barrier just as a tinny voice 3 feet above my head said, ‘Hello?’

I’m afraid I didn’t reply. Instead, I thanked the man, hoofed it out of the car park and headed for home. As I drove, my friend had to ring some folks to explain when her husband’s funeral was. I listened as she spoke a cross between Italian and dialect to a cousin in Sicily. And tried to shut up Margaret (the sat nav on my phone) who seemed to be shouting orders on full volume. (It’s called Margaret because it sounds like Mrs Thatcher.)

As we got to the bottom of the M11 she (my friend, not Margaret, the sat-nav, obviously) was saying, ‘Caio, Caio, Ciao …’ exactly the same way Brits say, ‘bye’ successive times, really quickly, when ending a call. But then the person on the other end clearly asked her something and they started talking again and went on for another ten minutes.

This got me chuckling because I could imagine her husband laughing at this so vividly it was almost like he was in the car with us and I could hear it. And I immediately remembered a conversation the four of us had had with him and McOther ripping the piss out of myself and her over our inability to say goodbye quickly. McOther complained how, when I was leaving my parents, we’d suddenly start another conversation in the doorway and talk for another twenty minutes in the cold instead of getting into the car, at which point JD had cited examples of similar behaviour from her while visiting the rellies in Italy.

Once her call was done, we put on my Abba Gold CD and did some hard core singing as we drove up the motorway. I managed to get cramp in my shin on the home straight going to her house, which was interesting and made us laugh some more. It did go the minute I got out and went inside to say a quick hello to JD’s mum and have a wee. Then it was home for a well earned spag bol. I’d done 23,000 steps and an hour and a half of dancing so I had no qualms about eating a generous portion!

So yeh … all in all … a bittersweet few weeks. I haven’t written anything, and I can’t, but that’s OK.

On a vaguely book related note …

Graphic book cover with two old ladies silhouetted against a darkened street If you have the remotest interest in any of my books, I have a page on my site where I list all the stuff that’s reduced or free so you can try it out and see if you like it. If you think that sounds interesting (oh yes you DO think it sounds interesting) then click on this link: https://www.hamgee.co.uk/cmot3

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Tagged as death, I fucked this up so you don't have to, istuffedthisupsoyoudon’thaveto, M T McGuire, M T McGuire audiobooks, Mary Fails at Modern Life, off topic, women in sci-fi

7 Jan 2023 · 5:08 pm

In retrospect …

It has occurred to me that I haven’t done a blog post for a long time and when a friend noted it in my Christmas card, expressing concerns as to whether everything was OK I thought that maybe I ought to, so here I am.

Picture of coloured glass table decoration with candle inside and glasses plus another night light in the background First up. Happy New Year everyone … belatedly, I admit.

Second, just to confirm, yes, I’m still alive.

There is a lot going on and I think part of the problem with the blog is that when I come to talk about everything that’s happening … I just don’t want to give that shit any more air time. I’m exhausted, I’m spent, I’m done. I pull up the page with the best of intentions and then, suddenly, when I think about the events I have to describe, everything is grey and dull. The same thing is happening with my thank you letters and my tax return so I need to get my finger out from up my arse. On the upside, I have successfully opened a new savings account which pays a higher, and fixed, rate of interest. So there’s that …

The other thing that has curtailed the blog is that I was increasingly discovering that I only had time to write a blog post and market my books every week and so I dropped the blog in favour of using that time to inch the WIP forward, one tiny, tiny increment at a time. Yes, as usual, glaciers are leaving me standing and I am eating the dust of continental drift, so slow is my progress. On the up side. It is happening. Which is definitely a bit of a thing, woot. I’m having slight difficulty with the timeline but I think that will improve over the next couple of months … once I’ve finished my bloody bastard tax return, of course.

So there we are … what better time to jump back into my increasingly sporadic blog habit than now, with a look back over the year in a post peppered with pictures from the many and varied holidays I went on, which I almost completely fail to mention? Yes. I think it would. On we go.

Where have I been?

You may remember that last Christmas was, to put it politely, a fucking nightmare. I came out of three nights at Mum’s short of breath, sleep deprived—yet still unable to sleep when I got into bed—and with heart palpitations, which was fun. I was also fourteen and a half stones, which is well over 90 kilos and I ached pretty much everywhere.

I wore an ecg for a few days and was pronounced fit but menopausal. Yes the menopause also gives you palpitations as well as brain fog. It’s the gift that just keeps on giving.

In the New Year, I managed to get the tax return done early on in January and then do some writing January as well as February, March and April. Those three months tend to be my window of opportunity and then, by the time the April holidays are finished and we are into May and the Summer Term comes, it’s birthdays and shit, and summer bar-b-queues so peopling edges writing out of the frame until I end up finally giving up and shelving everything over the summer holidays. It tends to stay shelved until either the next year or until I do Nano in the November (more on that later). Meanwhile back to early 2022.

I had been concentrating on rehab for my replaced knee and I was aware that I had pretty much sorted it but that ideally, if I could find a gym to attend for a year, I could push it that little bit further. Strangely, an ad popped up for a local gym on my Facebook feed, but I was browsing a local community group at the time and thought it was just a post so I filled in the form and they rang me back by return. I was about to go skiing so I booked to join up on 30th April and do a try out over the month of May.

Things with Mum were tough, we were still coming out of COVID in that everything took twice as much admin conducted through call centres where management had fired half their staff and weren’t bringing them back any time soon. Worse, I still hadn’t really managed to get back on the dementia care horse after having lock down off and lovely easy runs down to Sussex in the intervening months. It’s all very well but running another house and another person’s life for seven years is actually pretty fucking tiring. I was so weary. I was done. I still am.

There are always points with dementia care when you want to give up and it feels like being dragged kicking, screaming and protesting to your doom. Oh no! No life for you this will take ALL your spoons FOREVER. Into the valley of death we go, where the gas will sit on our lungs and stifle the oxygen out of everything. Mum was getting worse, my heart was filling up, writing was getting harder and harder and I needed an easy win. Since I was getting less and less writing done in the time I had, using that time for something else, said easy win being a case in point, seemed like a plan.

sunset over mountains With the gym initiation booked for 30th April, we went skiing, I did more writing, but not as much as I’d have liked because I was sick as a dog, discovering, on my return home, that I had COVID.

Joy. The Pandemic. Another gift that keeps on giving.

View from the pilot’s seat of a fighter jet.

Yes those are my knees, sitting in a fighter jet. 2022 wasn’t all bad.

It was also Easter and by some unfortunate coincidence, we managed to arrive in pretty much every town we stopped in for the night of the week on which all the restaurants were closed. Not that I felt that well—but the McOther’s threw it off in a trice obvs. I felt post-feverish for about six weeks afterwards.

However, on the up side, when I got back, I was 14 stones 2 lbs—which is about 90kg and about 5lbs less than I had weighed before I left

The gym wanted me to ~~do a diet~~ play calorie pontoon every day by tracking what I eat. I am pathologically averse to dieting in any form but I decided that I could hack it for a month to see if it worked because otherwise, I wasn’t giving the regimen a chance. Counting calories is easier than you’d think because there are apps that help you.

However, it would be even more easy if ONE SINGLE BASTARD CALORIE COUNTING APP HAD THE COURTESY TO USE THE UNITS, MEASURES AND RETAILERS OF THE COUNTRIES IN WHICH THEY ARE SOLD. Can you imagine the uproar if the American site for MyfitnessPal was all in Metric weights and measures?

So why impose their stupid incomprehensible mentalist random bastard system of cups on us poor sods trying to use their app in Britain. How much is a cup? It varies, which is fine until the recipe suddenly demands you measure out half a pint of fluid, or do a fluid cup which is different to a solids cup, or an Australian cup which is not the same as an American cup.

Lovely though the Americans are, it never ceases to amaze me how absolutely batshit crazy they can be and how officiously difficult they like to make life for themselves … they are absolutely germanic about rules, but without the flawless logic. That’s three cups of rice, half a lb of butter, a quart of milk, what the fuck is a quart? and then suddenly, 25 grams of sugar. AAAAAARGH! (Throws recipe book across room!) MAKE UP YOUR FUCKING MIND!

Oops, sorry. Slight rant there. Where was I? Ah yes.

In the end I used the gym’s own app which was bad but gave a bit more of a nod to the UK existing. The only saving grace is that once I’d done it for a month, I had looked up all the things we usually eat, broken down the constituents I was required to track in metric and added them as my own foods. Some of the others also loaded up correctly with the app’s barcode reader, except Waitrose frozen peas which for some reason is a can of Jolly Green Giant sweetcorn from Kroger’s. We don’t even have Kroger’s in chuffing England.

Never mind, once I started eating as much protein a day as they suggested, I was absolutely stuffed well before I hit my calorie limit. At the end of the month, I’d lost weight and was doing my belt up a notch tighter. Despite the food tracking initially doing my head in. The idea of getting a bit fitter looked like it might work as Easy Win for 2022.

Trying to take an interesting view of the avenue de champagne in Epernay.

On the down side. The potential new gym cost as much, per month, as my last gym per year, even so, the easy win was clearly go! I signed up. I’m now 11 stones 12lbs or about 76 kg. I have not weighed as little as this for 25 years. My waist is 5” smaller than it was this time last year and I’m wearing clothes I haven’t been able to get into since 2005. The heart palpitations still pop up occasionally but for the most part, they’ve gone.

There were holidays too. The picture is from our summer holiday jaunting round Europe. First stop, Epernay …

The Mum Stuff.

2021 was a bad run financially for Mum. Carer after carer got sick and couldn’t work, they had been with Mum since 2012 and I felt it only right that I paid them sick pay. It wasn’t as much as they usually earned per week but it was something. But it did hammer us a bit. As a result, by the time we hit 2022 my Mum’s financial adviser got in touch with me and explained that he could no longer manage her portfolio through stocks and shares because there wasn’t enough of it. Anyway … Ukrain. Thanks Putin you absolute melt. So I agreed we should to sell them all.

Mum had enough money for one more year at the end of which she either needed to die in a timely fashion (this doesn’t happen with dementia) or we would have to put her into a home. The thing is, even if she’s living in her house, since it’s just her, she has to sell it and use the proceeds to pay for her care. This rule is the absolute zenith of bastardy but that’s the UK for you, horrid, small-minded pissy little island that we are.

There is healthcare insurance here in the UK but it’s not as plentiful or comprehensive as the US system. On the other hand, the NHS doesn’t treat dementia. It’s very expensive and as we all know, the NHS has been a) gradually run down and b) split into hundreds of private companies, each taking responsibility for one aspect of care the net result of which is that nobody seems to be accountable and a lot of money, time and effort is wasted.

Basically, the NHS palms dementia care off onto social services run by local authorities but they lack the funding to treat it properly either, although Social Services in Sussex were brilliant with Dad, truly brilliant, the parameters within which they worked still entailed taking all Dad’s pension to pay for this nursing home fees. Luckily Mum had some savings to live on, otherwise I’m not sure what we’d have done.

It is what it is.

So I’m sitting here, having spent all but £30k of my parents’ entire life savings, £750,000–yes that’s three quarter of a million quid—on care fees that they believed, for their entire lives, that they would get for free. It will be every last fucking penny and the rest before we are done. For most of the year I drifted, rudderless, towards the waterfall of disaster; glazed eyes staring into the abyss like a deer caught in the headlights. Immobilised by panic and horror, wishing my Mum dead so I didn’t have to break her heart and worsen her illness by taking her away from everything that was familiar; in this case, her home for 50 years.

Then I finally got my shit together and started negotiating an endowment mortgage. I wasn’t sure we’d go through with it but the care team reckoned that if we could keep her at home for another 18 months, she might not know where she was after that and we could move her into a home without it being cruel.

My brother had serious misgivings about keeping her where she was and wanted to whisk her off to a home near him. I think his social services are better than the ones here in Suffolk—indeed Suffolk mental health services are notorious, I think they were second from bottom in the round Britain league tables last time I looked. I had misgivings about moving her anywhere until she was ready. I was also petrified that I’d fall out with my brother—who I have always got on very well with—over this.

View of countryside from a very tall hill in the sun

It was hot … this is Italy

Finally, round about August the mortgage was ready to sign, but of course, the interest rate was rising just about weekly by this point—thanks bampot Putin. I was aware that we were going to lose a lot of the asset we were liquidating. We went on holiday and when we came home, my knee, the one that’s supposed to be fine, gave out. I suspect it’s back of the kneecap. I dunno. It might settle with a cortisone injection. I may give that a go. If it doesn’t, I guess I’ll have to see a surgeon. I think the next stage from the injection would be a MRI or whatever it is they do instead if you already have a knee full of metal the other side, and then an arthroscopy.

View looking up the side of a pillar at an ancient church painted ceiling

This is one of the churches in Alba, Italy. It was really rather lovely, as you can see

The knee was the final straw. I was well fucked off. I hadn’t written anything since March because my heart and brain were too full of Mum stuff. My book sales were tanking—in fact my whole literary career, such as it is, was dying on its arse even more spectacularly than it usually is. I remember going up the hill one day and quietly popping into church, lighting a candle and having very strong words with the Almighty about what an utter bastard he was being to me. I pointed out that seven years having to play to a perfect storm of everything at which I am shit is a sod of a long time and that I’d fucking had it. I told it that caring for Mum and Dad had taken everything from me; I’ve no job, no prospects and pea-souper brain fog. I explained, forcefully, that there was nothing left in my life but grey and also it’s hard, when you and your sibling stand to inherit about a million quid each in assets, to inherit nothing due sheer, shite luck.

It’s not like Mum and Dad spent their money, it was taken from them by a government that thinks it’s a really good idea to take a fucking horrible illness that wrecks lives and turn it from a horrific experience into something that will grind everyone involved to nothing. I was so fucking angry. I’m still fucking angry about that one.

Maybe God listened. I dunno.

A few days later bruv told me he didn’t want to do the mortgage but that he’d like to fund Mum’s care ourselves. At this point, I passed on McOther’s suggestion that we mortgage her house to us and that we should bethe lenders. If we did it all above board then then any of the asset we lost in interest would be paid to us anyway, as the lenders. We would be creditors, not family, so what we’d lent would not be included in death duties, which, if we’d just put money in and kept the house un-mortgaged, it would be.

He agreed. Then within days, Bruv was talking about it to one of Mum’s neighbours and they put me in touch with someone who was happy to buy the house and allow Mum to live there until she died. That didn’t work out, there are death duties implications around that, too, which make it tricky to sell the property for less than the market rate. But those two rays of hope were like sunlight in a darkened world where all was monotone and ash.

We have now mortgaged the house to ourselves, all done above board through a legal firm. I left the form at Mum’s for Bruv to sign after I visited, pre-Christmas. He’s signed it but needless to say there’s some giant slew of signatures from me on the end that need witnessed by someone who isn’t my husband or son. So I’ll take it to Church with me tomorrow and get some other poor sod to sign it, at which point, McOther takes it to the solicitors to date and register it.

I think we can manage 18 months between us. Then I think it will be time for Mum to go into a home anyway. Ideally the money will see her out but I doubt life will do anything that kind. It will be really tough to move her, when the time comes, but I hope she’ll be so away with the fairies by that time that she won’t really realise.

Visiting Mum is getting harder and harder because we are losing so much of her, but that permanent sense of dread in the pit of my stomach about her finances has finally gone after seven months. My resting pulse has dropped a few points, accordingly!

A morning glory (NO! Not that type) in Portugal

It was October by this time and after a nice holiday in Portugal, crap weather but lovely food although I caught some grim bug on the plane out which was a bit of a pisser. Then Mum broke her ankle and ended up in hospital. That was quite a lot more of a pisser but I did see my brother and his family which was lovely and got McMini, who is a hulking great teenager now, together with his similarly aged cousins. And we sorted that out and got her home, as you know from previous posts.

Other ‘Easy wins…’

All the same, after that lot I decided it was time to attempt another ~~easy~~ possible win; Nanowrimo.

Briefly, in case you don’t know, Nanowrimo is an initiative where you attempt to write 50,000 words over the month of November. The idea is that this is the length of a novel and you get to write yourself the first draft of your next book over that month. My novels tend to be more like 80-100k so I haven’t ever written a whole novel … although I did manage to finish one once.

For Nano 2022 I had a list of ‘scenes we’d like to see…’ for the book I’m currently writing so I thought I’d give it a go. Obviously, I can’t do anything on Wednesdays, so I always start a few days down on everyone else, the way they all fell this time; five days down. It’s a hiding to nothing a lot of the time, Nano, but it does usually result in my writing 35k. This year, amazingly, I managed the full 50.

Have I finished the story? Have I bollocks? But I am a lot clearer where it goes now which is a bonus.

Christmas was also easier. We were due to visit my lovely in laws this year and so we visited Mum earlier. She has a machine to help her stand up and the carers showed me how to use it. Mum is doing really well with her rehab and can stand on her own now, although I think the machine still gets used, too. Back then, though, it was machine only. She was way more with it, because she no longer had the UTI and chest infection they discovered when she was in hospital with her broken ankle. I couldn’t believe the huge difference that made. As a result, we had folks coming in to help her to bed and help her get up, more to keep continuity than anything.

In normal times we have a carer in at night but this time I did it. Mum was fine, she woke up early one morning (I didn’t) and McOther told her all was well, and to not worry and relax because the carer would be in soon, which she was. I even got a couple of hours out on the lawn metal detecting and found some reasonably interesting things which, I realise, I have not looked at since. Hmm… I know what I’m going to be doing when I finish writing this then.

Three pictures of a huge glass bottle with a cut glass lid from above, side and with cat for size.

The massive carboy, from different angles, with cat for size reference.

Another highlight of the stay with my in-laws was that we managed to make it to a small antiques shop up there that we always enjoy dropping into. I spent £50 (yeh, I know) on a massive jug like they use to put in the windows of chemists stores. I think the correct word is a carboy. I think it’s probably Regency to mid-Victorian but it might be later. It’s massive, and a bit mad but also awesome! I tried to photograph it just now, by draping the tablecloth from my bookstall over some things to make a neutral background. This interesting new soft thing had been on the carpet for approximately 30 seconds before McCat decided it would be a good place to sit and give his arse a really good bath. He gives you a sense of size though. It’s about two ft tall.

Brighton got drubbed but not as badly as the score looked.

By the 28th December, we’d done all the miles and were able to hunker down here. I spent New Year’s Eve sitting on the sofa watching telly with the McOthers wearing my pyjamas and the lovely fluffy new towelling bathrobe Mum and Dad in-law gave me, which made me feel as if I was in a posh hotel!

Since then things have been relaxed, the only blot being that I’ve run out of the magnesium pills I take. I had not realised what a significant difference they make to the brain fog. Oh lordy me my brain is mush right now. I have a new supply arriving on Monday though. So that’s grand.

Summary of the year then?

Hmm … interesting times. Lows and highs I guess. I’m proud of what bruv and I have achieved and Mum is doing really well with her ankle rehab, which helps. And although she’s way more nuts in some respects, she’s less nuts in others.

One of the noticeable things about dealing with the dementia this time is that I am leaning more and more heavily on escaping into my writing. The last time, with Dad, Mum and I talked. I don’t know how much I helped her or how much she couldn’t say but I just attempted to lighten the load and help her carry it, even if that just meant ringing her up with a shit joke or making her laugh.

This time, no assist of that type is required so instead, I am ~~pretending it’s not happening~~ trying not to concentrate the whole dementia mess unless I absolutely have to, and I’m sneaking off to K’Barth instead. Only for short periods of time but quite a lot more in my head. Yep. More ‘scenes we’d like to see’ there. I also have some non-fiction and other stuff to write, more on that story next time as I intend to do a look back over the year with my writing, too. It probably won’t be next week because I have a newsletter to write and the dreaded thank you letters and a fuck of a lot of peopling to do next week—plus McOther is off to Oxford on a work jolly so I have to squeeze the Mum visit in on Tuesday. But who knows, it might be. Whenever it is, I’ll try and make it a bit shorter than this one.

In truth I’d be lying if I said I’d enjoyed 2022. A lot of it was shite, except for the bit at the end and, for the most part, I’ll be glad to see the back of it. But I’d also be lying if I said it had all been awful. There was light as well as shade.

Also, another upside, I feel curiously proud to have got through it. Pats on the backs all round, I reckon. With the McOther’s and Bruv’s help we’ve sorted out epic amounts of godawful crap. That has to be a win, right?

Happy New Year lovely blog followers … Here’s hoping 2023 is a bit fucking kinder to all of us.

On a vaguely book related note …

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Tagged as an author with children, author blog, dementia, M T McGuire, off topic, trying to be a writer, writer parent, writers, writing

24 Sep 2022 · 12:12 pm

Compassion … so fucking underrated

A picture of the queen This week I was going to write about The Queen, I may not have time to do it justice because I am going to have to write today’s blog post yesterday and speak to you from the past. That means I only have half an hour or so before I’m due to take McMini off to a club. Then, since he’s already eaten I have to come home and eat, then shower and then McOther will be picking him up. Tomorrow, or at least, today as you read this—Crikey! This is complicated isn’t it?—I’m off at 6.30 am to Norcon; and on Sunday too.

The Queen was a reluctant monarch. She prayed that she’d have a brother so she didn’t have to be queen—at that time, a boy took precedence over a girl even if he was younger. She also prayed that her father wouldn’t have to be king because she understood, correctly, that it would do for him in the end. Then she went on to do this thing she didn’t want to do for 70 years. That’s … seriously impressive.

Managing my parents’ finances and watching them gradually losing their sanity is probably a perfect storm of everything at which I am shit. Seriously, if God had set out to give me everything I find difficult he couldn’t have done a better job. It’s all maths and being organised and remembering to do staff, remembering to phone at certain times, sitting for hours on hold, patience, and numbers; a side of my personality which is seriously lacking and an aspect of my intelligence that is entirely absent. If my other brain was like my numbers brain, I’d be living in sheltered accomodation for people with learning difficulties. I’m great in a crisis and so naturally I am given a long-term millstone; a grinding expanse of interminable twilight grey that stretches as far as I can see. I’m one for the sprint, so I have been given the marathon. I can’t bear watching people suffer and so I must. For years.

Thanks for that, God. Thanks a fucking bunch.

Then, of course, I look at The Queen who stuck at it for 70 years, and I’m complaining about seven. Maybe I should rethink my weapons-grade whining levels then. Although not here, because, clearly that’s what this is for. I watched all of the State Funeral, and I enjoyed it too. Oh I know all the miserable republicans will be saying that the money shouldn’t have been spent on the funeral but frankly, I would consider a national event like that more valuable than the pathetic drop in the ocean of public funds the money it cost would entail. Clearly, I lack the miserable protestant fun-sapping outlook to think The Moral Way. President Johnson? In his dreams but thankfully, not our reality. It’s worth the expense for that, alone. I believe it’s actually quite important to have someone in power who doesn’t want to be there. King George VI was a reluctant monarch, Queen Elizabeth II was a reluctant monarch and I suspect Charles III is equally reluctant.

Good.

Sorry Chas but at the same time, I feel your pain.

I suppose it’s hard to see past the luxury but to me, guilded or not, a cage is still a cage. I wouldn’t fancy it myself. Oh yeh, money makes things easier, C.F. my present predicament dealing with the whole Mum Thing, and money can contribute to happiness, but it doesn’t make you happy on its own. Something inside you has to do that.

Having lived in a very small community where everyone knew who I was, even though I didn’t know them, and where everyone felt as if they knew me, and treated me like a long lost friend (lovely in many respects but sometimes difficult) I can imagine what being Royal is like. I lived in a place where everyone expected me to know them the way they felt they knew me, even if we hadn’t actually met before (still touching but also extremely scary) I can tell you that, even from direct experience in a very, very small arena, this kind of notoriety is significantly less fun than people think. If there was no escape? Ugh.

Royals have lots of stuff but only two weeks a year in which to enjoy it. As non royals, the rest of us Brits get four. It’s easy to forget that people with money, or kept by the state, are still human beings like us at the bottom of it all.

Personally, I feel that the debate about costs is disingenuous; a blind to cover the real issue, which is that some nod to a sense of social justice among those in Parliament would be very helpful right now and seems to be distinctly lacking.

Yes. In all walks of life it seems we are still raging at the most vulnerable in pissy, small-minded anger and egging our government on to even greater heights of petty vindictiveness towards the have nots, while it does the metaphorical equivalent of trying to chisel off a fifty pence that’s been superglued to the pavement as a joke while they ignore the huge suitcase of money behind them in the form of corporate tax ~~dodging~~ efficiency. You know, the stuff over and above the 1% companies like Google and Starbucks pay that they’re supposed to be paying.

Also, excuse me but why the fuck are they using my tax money to cap fuel payments? The fuel companies are posting record profits while the vulnerable and poor are choosing between eating or heating. Who should be paying for this crisis? I’d humbly suggest the fuel and energy companies whose corporate greed caused it.

Here’s another example; supermarket petrol. Supermarkets use your loyalty card and credit card transactions as anonymous data to track which products sell best where. They give people a rating based on income, A through to C and possibly D, I don’t recall (it’s a while since I’ve done this kind of marketing). Then they split each group into numbered bands, A1 the richest, A2 less rich, A3 still loaded but not as rich, B1 well-off professionals, etc through to C3 … possibly D3 I have neither the time nor the inclination to look it up for this, a very generalist passing point.

The supermarkets use this information to look at who buys what, where and then provide more of those products in the places where they sell withdrawing unsuitable products for the market demographic in that particular place. There’s no point having shelves groaning with caviar and truffles in a place where most people take home about £20k a year. They can’t afford it.

However, they also use this information to set prices. In areas where they perceive the population as less well off, they will sell the same staple, petrol for example, at a lower price than they will in another area where the population contains a higher number of B and A level purchasers who can afford to pay more.

This is how petrol costs more at Tesco’s in Bury St Edmunds—£1.69 a litre as I write this—than BP petrol does at my Mum’s in Sussex—£1.67 a litre. It’s also why Tesco’s charges £1.59 a litre for its petrol 15 minutes down the A14 in Newmarket. More C-level purchasers in Newmarket Tesco’s, clearly, or perhaps there’s a local garage round there that they’re trying to drive out of business.

Yes, I suppose it depends how you look at this. A Bury resident, might see them as pitiless, profiteering bastards hiking up prices in specific areas, where a Newmarket resident might seen them as kindly benevolent people cutting the prices in an area where people can afford less. They might see it as folks of my ilk, in Bury, who the database classes as better off subsidising those less fortunate than ourselves. If only that’s what it was but I’m afraid it’s a simple case of their being profiteering bastards. They’re not going to sell anything for less than the biggest margin possible and where they can, they’ll carve out an even bigger one … like the energy companies and every other company that gets so big it loses sight of it’s actual customers, the point of its existance, in its bid to grow even bigger, lock people’s spending in with it and no-one else, serve shareholders a nice fat dividend etc.

Frankly, the older I get, the more of a raving pinko leftie I become. I cannot believe we are going to have a recession caused by the corporate greed of our energy providers. There might be a fuel crisis, I dunno, but they don’t seem to have had much trouble providing power and fuel so far. Any shortages have been about logistics rather than scarecity; people panic buying and the stores running out.

How I wish we could re-nationalise the whole bloody lot. Properly. Sure, keep the government at arm’s length and run it as a business but as a not-for-profit or simply a company that is accountable to it’s customers first—the nation in this case—rather than its board or its shareholders.

Maybe it’s just the way I’m feeling at the moment but I’m angry and bitter and everything feels grey.

Indeed, I had a major melt down at the boys the other morning before leaving for Sussex to see Mum in hospital. This was partly because the vertigo was truly appalling. The worst thing was that I woke up feeling fine, but then, as I raised the glass to finish the rest of a pint of water, it suddenly kicked in. The boys laughed and I just lost it completely. I nearly cried as I ranted at them. Not about the vertigo, but just about how I just couldn’t keep a lid on my grief, and how awful I felt about having to hurt my lovely Mum and make her miserable because of the institutional prejudice the State, and the NHS, displays against people with dementia. Because we are going to run out of money. And we will have to sell the house for her care. And every time I think about it my stomach ties itself into a veritable Gordian knot which no amount of breathing exercises and sundry attempts to relax will undo. I think I got so melodramatic that I actually said I wanted to die, and right there, in the moment, I probably almost did. Jeez it’s a fucking hard row looking after dementia people and the NHS and government seem to go out of their way to make it as hard as possible.

Putting the vertigo on top of that was the last straw, I guess. It was a right royal pain in the arse on a Wednesday, too. I was so giddy that accelerating was giving me the spins. I have perked up a great deal since then. But seriously, why no compassion? Why no mercy. Why make it as hard as possible for people to endure one of the most horrific illnesses out there. Oh yeh, because it takes a long time and so it’s expensive. Seriously though, dementia care in the UK needs an overhaul. Fast. And something approaching compassion or empathy in our lords and masters would be a good place to start.

So what is compassion? Well I saw some in hospital the other day; the most gloriously surreal moment but also lovely. An example of someone with dementia being treated, not as a thing, but as a debilitated human, who was worth something. Treated with understanding, compassion and kindness.

While I was sitting with Mum she told me she needed a poo, which involves several staff and a bed pan so I went and got the nurse who told me I should make a sharp exit and sit in the waiting area. There was a little old dear there, who’d been there for some time. She was very thin, with straggly hair and she was cradling a handbag in her lap. I had clocked that she might have dementia because of the handbag and the fact there was often a nurse or carer with her. I sat down and all was quiet for a while until she spoke.

‘You’d better watch your bag round here,’ she warned me.

‘Oh. Thanks. Right. Yes, I will,’ I replied, lifting my bag from the floor and putting it on my lap the same way she had hers. We sat in silence for a moment or two and then she said.

‘Has my friend gone home?’

I guessed she might be making sense of her situation by connecting it with a comparable experience from her past, which is what people with dementia are doing when they have those back-in-time moments apparently. It’s important to say the right thing so they are guided towards a make-sense-of-this memory moment where they are reassured rather than agitated so I answered with a certain amount of caution,

‘I’m very sorry but I don’t know.’

‘Oh. Only she said to wait for her but I think she’s gone without me.’

‘Oh. That’s a shame if she has,’ I said still treading water a bit, ‘I haven’t been here before, though so I wouldn’t know for certain.’

‘She was making up to some bloke, I think she’s gone home with him and left me here on my own.’

‘Oh dear. Would you like me to ask one of the others?’ I asked, looking helplessly over towards the ward desk where the nurses and clerk were in discussion about something. ‘They might know,’ I told her.

‘She said to—’ she began, at which point a nurse walked past. ‘Big boobs and a fat arse, that one,’ she said and then reverted to topic without missing a beat. ‘She said to wait for me but I haven’t seen her for some time,’ then she smiled and said. ‘I’ve not seen you here before.’

‘No, this is my first visit,’ I squeaked, trying not to laugh at her previous comment. Lucky I was wearing a mask.

At this point one of the admin or at least a plain clothes staff, she might have been a consultant I guess, came over and with a smile at me and the lady I was talking to she sat down on a chair the other side of her from me.

‘Hello Edna,’ she said.

‘Hello,’ said the little old dear, or Edna, as I now knew she was called. The newly arrived lady smiled over at me and I tried to smile back in as crinkly an eyed manner as possible so she realised that, behind the mask, I was smiling back and grateful to her for being kind to a dementia sufferer. Edna continued, ‘Has my friend gone?’

‘Yes Edna, she has,’ said the staff lady gently.

‘Oh,’ Edna’s face crumpled a bit. ‘She said she’d wait for me. What will I do now? How will I get home?’

‘Well, maybe you could go back to your room for a little while?’ asked the staff lady. She was so gentle and so sweet with the old lady that I almost wanted to cry (and I definitely wanted to hug her) because … Dad. And Mum but especially Dad because Mum isn’t as far gone as Edna was yet.

‘Should I? What if she hasn’t gone, I don’t want to miss her.’

‘No, I understand. Aren’t you tired, though, Edna?’

‘Yes, I am, very but I think I should wait for my friend.’

‘Why don’t you go back to your bed and wait there, then? You can have a little sleep.’

Clearly the idea of a sleep was very tempting but Edna’s reply sounded hesitant. ‘I don’t know if I should …’

‘Aren’t you tired?’

‘Yes I am.’

‘Why don’t you go back to your bed and have a sleep then? You won’t get lost. I’ll go with you and then, if she comes back, I can come and find you.’

And so they set off, ward lady taking Edna’s arm, shuffling slowly up the corridor, then back, into one of the ward bays and out again … at which point Mum had had her poo, the curtains round her bed were opened again and I was ushered back. I never found out if they got Edna back to bed. When I left the two of them were still shuffling slowly up and down the corridor, looking for Edna’s friend. The staff on that ward were lovely. Nothing was too much trouble and so many of the patients had dementia. Bearing in mind this was a ward to treat infections, the added load wasn’t what any of the staff would have signed up for.

We need more of this. We need compassion, and love and kindness. And I don’t know where it’s gone but we need it back. Maybe if everyone reading this tries to go out of their way to do one kind thing this week. One random act of kindness, it would be a start. Feel free to give it a try if you like. No obligation though.

And now … I must fly because tomorrow I have a six am start. Eeek!

Yep, tomorrow is Norcon. If you are interested, I will be at the Norfolk Showground which is on the outskirts of the city of Norwich, Norfolk, UK, tomorrow and the next day. I will be there, flogging my books to the unsuspecting public and devaluing them by signing them. Except it will be today and tomorrow by the time you read this because … scheduling techology. 🙂

If you want to know more or would like to come along, you can find more information here:

https://www.nor-con.co.uk/

On a completely different note …

Here’s some good news if you like cheap audio books!

Once again, I’m cutting my own throat and having a sale. Kobo is doing a buy more save more deal on audiobooks this September and the K’Barthan Series, as well as Too Good To Be True, are in it. As a result, to make it more exciting, I’ve reduced the first book in the series to 99c on Apple, Kobo (of course) and my own website. For anyone in the States, it’s also 99c on Barnes & Noble and Chirp (which is USA and Canada). So if you want to grab it while it’s mega cheap you can find store links and a bit more info here

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Tagged as author blog, author interviews, comedy fantasy fiction, dementia, Events and signings, K'Barth, M T McGuire, off topic, trying to be a writer, women in sci-fi, women writers, writers

28 Aug 2022 · 3:29 pm

Self Care, Hospital Care, Dementia Care

After last week’s rant, two things occurred to me; first that I probably needed to post this week as well, just so you know I’m alright and second; reading it back, I got the impression I might be sensible to do a little self care.

Self care is underrated.

The friend I go walking with one day a week was not around this week and as a result, I decided that, with nothing much else on, socially, this was the perfect time for a bit of self care. For this week only, I decided, Real Life could just do one. Obviously, I still went to Mum’s but the traffic was kind to me and she was in good form. I was also going to go to my metal detecting club meet on the Thursday but had a reprise of the lovely vertigo I’ve been enjoying on and off for a while. The rest of the week, I holed up at home and relaxed.

Self care measures included: writing, reading, going for walks alone, putting aside every single bit of admin and listening to music. We are also all building the same model ME 109 although we’re at different stages. I’ve made half the cockpit, McOther is painting his and McMini has pretty much finished his because he’s so patient … not. Mwahahahrgh. It’s been great fun though.

On the music front, taking McMini’s lead, I’ve recently signed up for Spotify since this seems to be the most straightforward way to listen to my vinyl records in the car. It’s what he uses it for too. Yes there are three people in our house and each one has a separate record player of their own. Jeepers we are such massive spuds. I also use it to listen to stuff that’s too obscure to source anywhere else – although Discogs is pretty good for getting hold of pretty much anything in that respect. So it was that I set about getting my library organised by searching out all those obscure things I don’t have, have lost or couldn’t track down.

About a million years ago I was sitting in a curry house and the background music was a Rolling Stones cover played on the Sitar. I thought it was brilliant and asked the waiter what it was. He was so excited that I’d shown an interest that he went and got the record sleeve, plus two more staff, from out back. They then explained, enthusiastically, that it was a guy called Anander Shanker (it turns out he’s Ravi’s nephew). A lot of his stuff is on Spotify.

What’s it like? Well, if the French electronica group Air added sitar to their stuff … something along those lines. There are also cover-versions; Shanker’s version of Jumping Jack Flash is genius and Come On Baby, Light My Fire is certainly a lot different from the Doors’ version. Next stop the original that Verve’s Bittersweet Symphony is based on by the Gary Oldham Orchestra. I had forgotten the name and I had to ask McMini for that one. He spoke about how he loved the bell at the beginning and it was lovely to see him discovering music with the same joyous enthusiasm that I had at his age. He is totally open to anything so as well as punk and thrash metal, he listens to military bands, bag pipes, Anander Shanker (of course) classical music, ancient ska, Finnish folk songs, electronica … all sorts.

After I’d added the original Gary Oldham song, or Snurds, in flight as I like to call it because if I play it, that’s what I see if I shut my eyes (The Pan of Hamgee whisking Ruth off from her palatial prison the night before the installation, for example). Spotify suggested all sorts of other similar things, and I liked the ones I … well … liked so I could find them again. This is where Spotify is good. I have about 9gb of my own music on my phone. It’s also on my iPad somewhere but Apple refuses to believe I’m not a pirate and has hidden it, only allowing me to play the handful of things I’ve purchased from iTunes over the years. The 9gb of music just sits there, invisibly, taking up space.

Now this is no longer a problem and Apple can ‘do one’ along with Real Life. I can listen on Spotify and the artist gets a tiny royalty for each listen in a way that they wouldn’t if I was listening to stuff I’ve bought on vinyl and transferred to my phone. Also, since most of the vinyl I have is no longer available new the artists get something, albeit a risibly tiny something for listens to the stuff I’ve purchased second-hand. I don’t like Spotify, but I do like that I can use it to fund my favourite artists simply by listening to them.

It strikes me that ‘responsible’ use of Spotify is all good, because it’s giving artists an income, however pissy that income may be, for listens they would not normally be paid for. It’s a pity Spotify don’t pay up front for a ‘new copy’ after every X number of listens, the way some libraries do for ebooks. Either that or pay more per listen, the way libraries do.

I also discovered a craptonne of early Ska and some of the songs by the Petshop Boys which I haven’t listened to for ages because I don’t have them. Indeed I spent the entire journey to Mum’s this week listening to Paninero on repeat conjuring up an image of The Pan of Hamgee being chased which played on loop in my head. He’s wearing a 1920s flapper dress, beads and the most ridiculous blonde wig and he keeps appearing and then disappearing as he runs over a row of peaked roofs with what looks like the entire world chasing after him.

Yes, the sausagewright mentioned in Too Good To Be True has been found. Kidnapped, locked up and forced to make Goojan sausage she is pining for the fjords! She has agreed to make four sausages and then Marcella, the pirate has sworn she’ll let her go but now her captors are demanding more. She has been on a go slow, so they kidnap her brother — Burton Coggles — a quiet, dapper, retired gentleman who volunteers at the local library.

A suitable K’Barthan street scene … it’s really Arras Grand Place.

Unfortunately, no-one in Marcella’s gang, least of all her, realises that the thoroughly anonymous Mr Coggles has a secret alter ego as half of K’Barth’s most famous comedy duo, drag queens Phlange and Knutt. Bitingly satirical and very quick witted, they are not exactly popular with the authorities but are loved by K’Barthans and the authorities recognise that they serve a purpose, in poking fun at those in power in a way that let’s the locals let of steam without them doing anything to clutter up the place or disturb the economy like having strikes, riots, revolutions etc.

Phlange and Knutt being an act, and imaginary aliases rather than real beings, the Grongles don’t know who the people behind the act really are, and the artists, themselves, ensure it stays that way. And yes, they are based extremely heavily on two of my favourite comedy artists Hinge and Bracket. I can’t quite work out if Burton Coggles’ alter ego is Dame Evangeline Phlange, or Doctor Ariadne Knutt. Or indeed, whether it’s Dame Ariadne Phlange and Doctor Evangeline Knutt. Only time will tell.

The mystery to solve then will be a) where is Marcella getting the sausage/keeping the sausagewright? b) What’s happened to Phlange (or is it Knutt?) of Phlange and Knutt? and c) how will The Pan spring Phlange/Knutt and his sister from their prison, on the top floor of a warehouse. d) Why is he springing them? Because Marcella is working with a Grongle Captain and Colonel to become a pliant, malleable (for the Grongles) Boss of Ning Dang Po. Clearly, neither Big Merv nor The Pan (who is one of the first people she’d kill) wants that. But neither do any of the other ganglords it turns out.

More scenes from Ning Dang Po … 😉

Obvs at some point, The Pan is going to be pretending he’s Phlange — to act as a diversion and draw off the pursuit? That must be the bit I keep seeing with the roofs. Yes, the fight among the helium canisters will still take place. Obviously the Grongles will disapprove of Phlange but be even more pissed off with Marcella for disappearing her because the average K’Barthan in the street is convinced the Grongles have mislaid Phlange and there are riots and all sorts of other untidy shenanigans which interfere with the Grongolian owned parts of the K’Barthan economy.

The Grongles don’t like Phlange and Knutt but they dislike rioting and disorder even more. Hence the Grongle Captain will attempt to whack Marcella the Pirate and I think she will whack him and get a laser pistol as a result. At which point, she will meet his superior, oh no, not the Colonel Kay but General Vernon, who will evaluate her, decide she falls short and throw her off a roof in front of a petrified (but hidden) Pan of Hamgee. Lord Vernon, newly ‘elected’ party leader will be lauded for fixing all the trouble so quickly and be elected leader of the house in the K’Barthan parliament … although he might possibly get elected because his predecessor has presided over this and he uses it to his advantage, I’m not sure.

So, writing? Yes. I have made a lot of time for that. As you can see, I do now have some idea of where this one’s going and more to the point, where it’s come from. There’s a fair bit of primping and squishing about on things I’ve already done so they fit in the right places, which I’m still doing. Then I have to work out what scenes are missing up to the point in the narrative I’ve reached and then I can get going on the nitty-gritty. Will it come out the way I’ve just described? Of course not but those are the basic threads, how they are eventually plaited together is up to the characters involved, I’m as in the dark as you until it’s written.

Other self care activities. It was McOther’s birthday and he does a lot of wine tasting. Everyone turns up with a nice bottle, covers it up and then they all try it and try to work out what wine it is. It’s fiendishly difficult but fun and the trick is more about knowing what’s in another person’s cellar than actually tasting the wine. I think I mentioned this a few weeks ago, and that I have been knitting some bottle covers to replace the dodgy socks McOther and friends tend to use to cover up the labels. Anyway, I managed to complete five; one for a friend who was attending and four for his nibs for his birthday.

To my delight, both recipients appeared to be genuinely pleased with them. Alongside, I gave McOther the usual lame presents; peanut butter cups and wine gums because he’s a little bit addicted to both but he was clearly chuffed with the bottle sleeves, as was the interested friend, who was one of a group who came to dinner to celebrate with us, so I’m chalking that one up as a win. I suspect I will need to knit more of them.

On Saturday morning, in a nod to the admin, I sorted out my car insurance for the next year but then … a slight disaster struck. Mum.

Bruv has been staying over the weekend. At the moment the mortgage is on hold because he wanted to evaluate whether or not we should be moving Mum earlier. I genuinely think she’ll be ready to move in the next year or so (as in we’ll be able to move her without her really realising what’s going on) and so do the carers but I’m not sure it’s time yet. Obviously because Bruv has a bigger family and stays longer she presents a very much worse picture for him than she does for me, but she’s definitely getting there.

Long and short, she fell on Friday night — her bad knee gave way and the next morning, when she tried to stand, it was so painful she nearly threw up. She ended up going to hospital, where she is currently staying. They couldn’t see if there was a break or not from the X-ray because she’s so arthritic but the orthopaedic surgeon wanted to have an MRI or CT scan or whatever it is they do in order to try and find out for sure one way or the other.

Serendipitously, a geriatric specialist was there too asking her all the dementia questions, none of which she could answer except her name and that of the monarch apparently. If she got an official dementia diagnosis in passing, that would be the icing on the cake. It’s nice leaving this to bruv and wife although I’m not sure how long before I have to go down there. I’ll visit on Wednesday, anyway.

As I write we are waiting to see if she’s seen by a physiotherapist this morning—if she isn’t it’ll be Wednesday before she is—and also whether she gets the scans etc and they are able to find out more. Then it’ll be a cast or a boot and she’ll need to start trying to walk on it. They’re also looking at her knees. Not that they can do anything about any of it now because she’s far too demented to undergo an anaesthetic.

We’ve hummed and haad about finding her a place in a home short-term for rehabilitation but her care team can do that, themselves, and I suspect she would do better at home. Also unless we can get her into a forever nursing home and hope that she likes it so much she wants to stay, it’s probably not worth doing that. What tends to happen is they send patients to the nearest place with spaces and that might be fifty miles from her village and her friends so it wouldn’t be any use.

So we wait …

It seems like a decent ward, and Mum is in good hands. Meanwhile, I learn that a week of self care is probably essential from time-to-time because I’m OK and without it, I think I’d be doing a lot more pointless worrying.

On a completely different note …

If you are looking to administer some self care yourself by reading for example … or listening, here’s something that might help; a free book.

Yes, Small Beginnings, K’Barthan Extras, Hamgeean Misfit: No 1 is free to download in ebook format from all the major retailers and you can also get the audiobook for free from my web store.

If you think that sounds interesting and would like to take a look, just go here.

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Tagged as author blog, author daughter, dementia, dementia emotional cost, dementia fiscal cost, K’Barthan Extras, M T McGuire, mtmcguire, off topic, slowwriting, The Pan of Hamgee, trying to be a writer, writers, writing

2 Jul 2022 · 9:15 pm

Siberian hamsters and other alarums and excursions …

Well that was an interesting day. Or perhaps more accurately, morning. But it explains why there has been no blog post until now … that said, ‘now’ will probably be tomorrow (Sunday) in light of what time it is already, and the gargantuan amount of time that the activities of ‘this morning’ involved.

Originally, McOther and I were heading off to a car boot and from there to the garage to get his car fixed. However, when push came to shove we realised he wouldn’t have time to do the boot and the garage so he went to the garage and I eschewed the boot and went to the market instead. I also have some secret knitting that I wanted to do in his absence. More on that story … later.

McCat came running in and to my complete and utter horror, I realised he had something hanging out of his mouth. Something grey, with a tail.

Remember a few years ago when that McCat brought that vole in? I can’t find the original post but it ran under the fridge in the utility room and then to the units where it disappeared and I never saw it again. I always hoped it had found its way outside again but then the room began to smell and it wasn’t McCat’s earth box or McMini’s socks. Yes, it died and I did find a post I did later about discovering its lifeless body in the washing machine while I was on the phone to my mum, six months after its disappearance. If you need to jog your memory, it’s here.

So there’s McCat running about and there’s another chuffing vole with it’s tale and arse hanging out of his mouth one side and it’s head and front paws the other side. It’s squeaking,

‘You absolute cockwomble! Put me down immediately! Ow! That fucking smarts you smecking furry gobshite!’ etc. Actually I have no clue what it was saying but I think we could safely assume that it’d be something along those lines so that seems about right.

Come here you little bastard! I shout (because I’m classy like that) and rushed after him. I’m speaking to the cat at this pint, obvs. not the rodent in distress.

Luckily, I cornered McCat in the hall and because it was his vole and not mine and he was not dropping it at any cost. I was therefore able to pick him up and carry him to the door, deposit both of them on the mat outside, shut the door and lock the cat flap before he could bring it back in.

There was no rescuing the poor little critter now, so it was best to leave them to it so he killed it quickly. I grabbed my kit and ensuring that I didn’t let him in, I went to the market to do my shopping.

Upon my return, McCat was lying on his back on the door mat chirruping and burbling in his most loving manner. He showed me his tummy and it was clear that the dead vole on the mat beside him was a gift. Yes. This was an effort at reconciliation.

‘I know you are head of the house mummy,’ he was saying, ‘but I just couldn’t give up the vole. My natural instincts wouldn’t let me but you can have it now.’

Likewise, I cannot guarantee that was what he was saying but I know the mentalist tabby git so well now that I suspect that was a pretty good approximation.

Naturally, I thanked him for his gift, because it was only polite. Then I explained that it was a lovely thought, but if he didn’t mind, I’d just pick it up with this trowel here and pop it in the dustbin. I thought of burying it but he’d only dig it up again.

I went inside, put away my purchases and I was just bumbling about the house when I heard McCat scampering about. Uh-oh, that was the kind of scampering he does when he’s playing with Mr Squishy (his favourite toy) or when he’s playing with something else …

‘Squeak!’ said somebody, who was very definitely not McCat!

‘Fucking fuck!’ I yelled and leapt into action. McMini had a second vole cornered behind a box in a corner and of course I arrived, grabbed said box and the vole disappeared underneath the book case. But wait, not quite underneath. He was under the large books on the bottom shelf that stick out, leaving a tiny half inch gap between their bottoms and the floor.

I started removing the books but by this stage McCat had lost interest, the absolute bastard, or maybe he’d decided that I’d claimed the vole. Whatever the cause, he’d wandered off. The room we were in was full of places where a small vole could hide, die and then smell impressively. I was determined to ensure that when I poked it out from its hiding place, there were no other crannies for it to run to. In short, despite trying to rescue it from McCat I could have done with a tabby backstop and I’d definitely have preferred to let him kill it quickly it was that or a second round of let-me-die-under-your-furniture.

I surrounded the vole with a wall of heavy hardback books. Got a piece of cloth and grabbed it. I picked it up and took it outside. It looked as if it had had a nasty bump on the head but I left it to recover near the place where I thought McCat had caught it.

McCat locked in, I went out and had a look.

The vole was not well. It appeared unable to move its hands. It was clearly injured, it was squeaking and it was in distress. I rang the vet and explained that I had this rodent that was probably a vole only now … looking at it … I wasn’t 100% sure and could they help.

Clearly if my furry friend was, as I was beginning to suspect, a young rat, I wasn’t too bothered if McCat murdered its family. If it was a vole, I should probably take it somewhere for treatment and leave McCat locked in. McCat’s vet informed me that they had a pigeon and chicken specialist but nobody who was too good on small feral critters. They recommended I phone a different vet surgery, which I did.

I explained that I thought I might have an injured rat but that I didn’t know and though it seemed a bit nasty of me, I felt that, if it was a rat, I was OK about letting McCat out to murder the rest of its family, because there are millions of rats but that, if it was a vole, I’d keep him in. I also explained that I thought it might be dying, that the kind thing to do would be to kill it but that I wasn’t a farm kid and I doubted I could dispatch it cleanly without subjecting it to more physical and emotional trauma. Our cat used to catch mice when I was a kid and Dad used to have to kill the ones she hadn’t quite killed. He was really good at delivering a swift blow to the head but it always used to upset him … not to mention us.

Bring it in, the vet told me and they would take a look at it.

Going back to the ‘vole’ which very much might not be a vole, I decided I’d wear gloves to handle it. Good thing that, because it was a great deal livelier than it had been when I put it out and it bit me as I tried to catch it. Although the bites didn’t break the skin they did pierce the gloves. McOther was home by this time and helped me put it in a cardboard box. I walked up to the vet’s with it and they took it in to have a look.

Turns out I was right to doubt and it wasn’t a vole after all. Just call me Manuel but it was a bona fide Siberian hamster although it escaped the ratatouille so that’s nice. I do know we have rats in our garden, but … yeh. Probably a good thing if the cat eats them then. The rat did, indeed, have some kind of head injury which was making him unable to move properly and they put him to sleep so he didn’t suffer any more.

And the vole last time? Er hem. Yeh. That was a rat and all. Even with a light bite, the vet warned me about Weil’s disease and said that if I start to develop cold symptoms I must go to the doctor’s and explain what’s happened. Me, I’m just wondering what my half-rat-half-human superpower might be.

Other things

It looks alright on the claret one (right).

What I should have been doing this morning was working on my latest and top secret knitting project while McOther was out, which is his fabulous birthday present. OK, this is me, so you know, by now, that it’s not a fabulous present especially if it involves my knitting prowess, which is more knitting prowless to be honest. On the upside, it is something he’ll use and ~~enjoy~~ … he’ll use and at least there’s thought in it. It’s a wine sock. Yeh. Don’t all fall over with excitement.

People who like wine do blind tastings, which basically means you put the bottle in a sock, except socks are a bit shit because they make the bottom of the bottle uneven and more likely to fall over. Enter the um … wine sleeve? Wine sleeves leave the bottom of the bottle clear so it will stand up, no matter how drunk you are when you place it on the table.

I’ve made the bit for the neck of the bottle too short. The bit of metal over the cork can give tasters in the know a bit clue, so I need to unpick five rows of ribbing, add six rows of plain knitting and then do the ribbing bits again. It looks shit flaccid but when you put it on the bottle … yeh, OK, it still looks a bit shit until you get to a claret bottle … then … Oh yeh. Ish.

Oh alright. It’s a disaster really. I decided to use some wool I had left over from making a pair of socks for McMini and a pair for me. But there wasn’t quite enough to get it to the shoulders of the bottle. I didn’t want to buy another ball of wool to do three stripes of fancy knitting so I bastardised another ball of similar wool and to be honest, it almost looks deliberate. I will have to knit him another less bodged one as well, clearly, but this is a nice start.

Other news …

It’s a long time since I’ve mentioned McMini here. But rest assured he is no less eccentric. He is older, and even more sarcastic, but still a delight (to his parents anyway). He did once tell me that he wanted to do the teen thing and rebel against us but he liked us too much. I’m not sure that’s anything we did, it’s just luck of the draw. Luckily there are some people at his school that he prefers to rebel against more.

Anyway, last week we were we’ve been watching the tennis as a family and supporting one player, the underdog, naturally, because we’re British. The audience on the telly were mostly supporting the other more famous player. Between each point there were shouts from the audience,

‘Come on Oojah!’ or ‘You’ve got this Thingy!’ etc.

Then as it all died away after the ‘quiet please’ one bloke right up in the gods at the back shouted something that sounded like, ‘bollocks!’ into the silence.

‘That sounded like, “bollocks!”’ said McMini. ‘Did he just shout, “bollocks!”?’

Next point, same male voice did it again and again, McMini said,

‘I’m sure he said, “Bollocks!”.’

McOther and I admitted, giggling, that it did sound like it and he might be right.

Next up to serve was the player we were not supporting. She threw the ball up and as she swung to hit it, McMini shouted, ‘Bollocks!’ and she served a fault.

She served again and in spite of McMin’s rousing cry of, ‘Bollocks!’ it was in. The lady we were supporting returned it and as the other swung her racket to hit the ball back, I shouted, ‘Arse!’ and it went into the net.

‘Woah! She can hear us!’ shouted McMini.

It opened the floodgates. They played a tie-breaker with McMini and I continuing to shout bollocks, arse and for some reason, follicles. Our lady won. I made a cheer which reminded McMini of an impression I do of Dad doing an impression of one of his teachers dropping dead in the middle of assembly (he yelled ‘eeeeeruuuuuw!’ and keeled over apparently). So McMini adds the part of the story following that which is the boing, boing diddly boing this teacher’s wooden leg made after he’d measured his length.

Despite this coming out of nowhere, I knew exactly what McMini was referring to and started to guffaw at which point McOther who was actually watching the tennis turned to us briefly, smiled indulgently in an oh-here-they-go-again sort of manner and reverted his attention to the TV.

McMini and I sat there crying with laughter and all was right with the world.

It’s competition time …

OK. Have you ever seen extreme ironing? If you haven’t it’s worth looking it up because it’s mad. Here’s a potted summary.

Let’s do our own variant Blog peps! Extreme Reading. It’s as easy as 1, 2, 3.

Here’s how it works.

1. Get one of my books. It has to be an actual M T McGuire book. No other authors’ books are admissible. You can use a paperback or your e-thing with your e/audio book open and showing really obviously.

2. Go the area you have selected in which to read in an extreme manner, be it upside down, hanging from the ceiling. Tobogganing down the Cresta run, *sitting in the fountains at Trafalgar Square in your swimming cozzie or whatever.

3. Get photographed in your extreme reading position and then submit your photos to me. I think I will probably put them to the public vote.

* don’t do actual this though. You’ll get arrested.

How do I submit my photo MT? I hear you ask.

Well, I don’t to hear you ask but let’s not complicate this. Let’s pretend, for the sake of making this section that tiny bit more interesting, that I did. Here’s what you do.

Attach your photo photo to an email. You’ll need to give me your name and me some brief details saying where and when the photo was taken (date, place/town and country) and any witty commentary you wish to make about it. Then send it to me by email with the header, EXTREME READING TOURNAMENT, like that to list at hamgee.co.uk. You can send a maximum of two entries and it will cost you nothing to enter.

If you want to, you will be able to share the entries you submit on the Hamgee University Press Facebook page. I’ll make a specific post and pin it to the top so you can comment and add a photo but that’s not obligatory because I totally get that not everyone does Facebook. I wouldn’t do much social media if I didn’t have to.

Small Print: Nothing above 3mb please or Google won’t deliver them to me and a maximum of two entries per person. You may have to resize mobile/iThing photos to get them to me.

Obviously, it goes without saying that you shouldn’t do anything dangerous or stupid. This is an extreme reading tournament, it’s not the Darwin Awards or a game of who dares wins. Happy snapping.

And finally …

The Last Word is available in Audio.

If you enjoyed the short story, The Last Word, the audio of that is also available or at least, still available. If you need it, here’s a quick reminder of the blurb.

When Mrs Ormaloo brings the terrible news to the Turnadot Street Businesswomen’s Association that the Grongles are going to burn some more banned books on the night of Arnold, The Prophet’s birthday, Gladys and Ada decide to Take Steps. They even enrol some of the punters from their pub to help out. The books are in a warehouse being kept under guard. Gladys, Ada, Their Trev and the rest of the group embark on a plan of devilish cunning to rescue as many banned books from the flames as they can. But the key player in their plan is Humbert and there is no guarantee that he’ll cooperate.

Corporal Crundy is determined not to mess up his first assignment since his promotion. It should be easy. All he has to do is guard some books. Yeh. It should be a piece of cake but somehow that’s not the way it turns out.

To find it, go here.

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Tagged as an author with children, author blog, full time mum writing, humour, I fucked this up so you don't have to, istuffedthisupsoyoudon’thaveto, K'Barthan Series, M T M Makes a complete tit of herself, M T McGuire, M T McGuire audiobooks, McMini, off topic, trying to be a writer, women in sci-fi, women writers, writer mom, writer mum, writer parent, writers, writing

25 Jun 2022 · 5:18 pm

And his mummy cried …

This week, I was thinking about discussing world events but looking at them … for fuck’s sake. I can’t bring myself to do it. Let’s look at the fact America has passed its first gun legislation since 1994! Bloody well done America, we’ll ignore your apparent descent into the abyss on the women’s rights front because let’s face it, nothing’s more important than life, including a life worth living.

Seriously though, we need to relearn the art of deep thought—or, indeed, any thought. Fast.

We have to learn that not everyone who is different from us is a monster.

There is a standard branding technique that is supremely effective it’s this: make people feel they are part of a group, part of a tribe. Make them feel they have found their home with us (the brand). It speaks to our most primal instincts. The trouble starts when politicians get hold of it.

First up, the most motivating thing to a primal critter such as a human is fear, so they aim to use that. At the same time, as politicians, they also want a certain amount of control because what they want is your vote. They want you to feel that by joining their cause you are part of a warm fuzzy loving community that is fighting against a dangerous and unseen enemy. They want you to feel the blitz spirit of WW2, except over things that are not nearly as serious a threat. But to get that motivation, that solid Dunkirk spirit, they have to scare you enough for you to feel as if they, you and the people with whom you stand are, literally, holding back the forces of chaos. They use strong NLP trigger words like ‘war’ to validate the importance of your fight and write robust and forthright articles showing you that you need to press your cause, for the public good and those who oppose you must be ignored or walked over, for their own good.

Example: We are at war with litter louts, the war on noise pollution, etc. It’s all bollocks and actually trivialises issues which, while not on a war footing, are still important.

Stupid twats.

Once they’ve got you scared enough to think you’re fighting a ‘war on …’ whatever it is, ~~rape or incest victims~~ I mean sorry, people who asked for it as we’re probably meant to call them from now on, or possibly dissolute women who can’t say no*, whatever it is this week, they want you to feel self congratulatory and smug. How do they do that? By pointing at other tribes and saying stuff like,

‘Look at these folks. They’re not like you. They’re scary. They’re threatening us. They’re taking our jobs. They’re not on the run from extremist states, they’re just here to sponge off our welfare system. We’re not undermining your human rights so we can take over. We are taking difficult but necessary steps because they are planning a bloodless coup. They have control of the mainstream media. We need to stick together and fight them, No is still the best form of contraceptive if they didn’t listen and screwed you anyway it’s your fault.’ etc.

* Yes that was inflammatory but I’m fucking angry.

This is, as one of the historical masters at the art put it, ‘persuading one group of people that another group of people is less than human.’ These days. There’s a lot of it about. Big business owns most things. The richest individuals own everything, including many politicians and the newspapers. Democracy and a fair society is not in their interest. Nothing must stand in the way of them accruing more wealth because the billions they already have aren’t enough.

On a side note though, have you ever wondered why, in the UK, people on the political fringes attempt to undermine the BBC? It’s because for all it’s flaws and Oxbridge elitism, it’s the nearest thing to an impartial press we have … oh, along with Private Eye.

I have friends from a wide range of social and political backgrounds as our common ground is often a hobby, such as detecting, writing, foraging, wine, music … whatever. I know seemingly benign and friendly folk who will turn round and tell me they believe stuff that is pretty fucking appalling. The thing is though, sometimes, not always, but often, they are people I get on with in the context in which I see them. Because we’re not talking about their offensive views, we’re discussing book marketing, or foraging, or some other topic upon which we completely agree. Sometimes I take the piss out of them for being very right wing, or out of myself for being the token bleeding-heart liberal in their life/club/forum whatever.

The way I see it, if I suddenly discover an author friend holds views that puts them close to being Marxist or something equally moronic, they are usually completely brainwashed into thinking that people of a different political persuasion are bad and that they shouldn’t mix with them. If all I can do is show them, by being the official bleeding-heart liberal of the group, that actually nothing is quite that black and white, then maybe I’ve done something good.

Sometimes, I continue to talk to people for the simple reason that, if they see that we agree on many things, there is a chance that they will understand that not everyone to the political left or right of them (depending where they are on the scale compared to me) is a threat to society, since I’m not.

Take away that ability to mix and people are sitting in an echo chamber and see nothing but their own views. Over time they find it increasingly difficult to mix with people who don’t believe the same things as them. After spending a lot of time on the internet, I, myself am finding this. Although I think our right wing, here in the UK, has moved a long, long way to the right of what ‘conservatism’ actually stood for when I was a kid. Either that or its PR has—presumably it’s gloating far right voters they are looking to steal, rather than centrists, like myself.

It’s important to be able to mix; I like to discuss stuff, you know, without evangelising or trying to win anyone over, but just because I’m really interested in what other people think and how they’ve come to their conclusions. I think, as human beings, it’s part of our nature to want to share our views so it’s important to be able to do so without getting too emotional, even if it’s hard. Take away this ability to share views and before you know where you are, you’ve got groups of feckless idiots smashing up synagogues and … the rest is history.

I’m not shitting you here, ceasing to engage, ghettoising ourselves or others … this is how wars start.

When you start to make people feel part of a tribe by playing on their fears of people or things they don’t know, pointing out the ‘threats’ posed by others, or as normal humans would call it, the ‘differences’ you get polarisation. The fact there are churches which will tell their congregations not to speak to, or mix with. non-christians … hmm, where in Christ’s teachings do we see that. Oh wait! I know. NOWHERE! That’s where.

Why are some people so bloody poisonous? But more to the point, why can’t they see? It’s like people are too scared to think. Too scared to face the grey areas between thou shalt and thou shalt not. It’s like a lot of people mull something over once and then decide what they’ll believe about it for the rest of their lives. Then, no matter how circumstances may change or what new facts may come to light they never revisit their opinion. How can people live like that? I mean sure, it’s nice and simple but it must be so empty.

Seriously, I am constantly revising my opinions on things. Is that weird? I think Brexit was a terrible idea but I’m interested as to why other folks disagree and actually, in many cases I totally get why they voted how they did.

Is it about confidence? Could it be? You see, I fuck up a lot, so I am not in any way afraid to admit to getting things wrong. You can only be carpeted by the headmaster so many times before you start to give a bit less of a shit about how other people see you and a bit more of a shite about how you, personally, see yourself and what you are actually like.

Maybe people perceive changing their minds as a sign of weakness which they’re too afraid to show. Certainly I know there are people who mistake my tendency to be accommodating with being a push over. But surely, if someone perceives changing their mind — or compromising — as a sign of weakness and failure, they’ll never be able to revise their opinions about anything. Whereas, if a person is genuinely strong, they will have the confidence to change their mind over things when new facts emerge or their experience alters. Let’s face it, no-one’s ever going to be afraid of people thinking that they’re weak if they know, in their hearts, that they aren’t.

Often, I wonder if a lot of these people who hold very fixed or hard opinions simply do so because they don’t have the strength of character to cope with a world where nothing is certain. It is difficult, I know but sometimes, there is grey. Sometimes it’s a case of ‘Usually, thou shalt not but in this case, if thou art just, thou shalt …’

On other topics …

Yes! I am still reading through what I have of the current book and yes, it’s going OK, indeed, I’m enjoying reading what I’ve written, which is a bit of a turn up! I am also continuing to make accompanying notes to be sure I smooth out the bits I’ve cocked up.

There’s a terrible lull which I need to fix but essentially, it zips along. I just need to figure out the end; simple or complicated, that’s my choice. Simple may still make it very, very long so I might do complicated as that will be two books. Once I have finished I’ll decide where to split it and then I’ll send it out to beta readers, get it edited and do a kickstarter instead of a preorder.

Also the cosplay … I looked for cloaks online and I found this … it’s velvet but it’s very cool and you can stipulate what colours you want. Oh yes.

And on a lighter note …

My audiobook sale is still on and (woot) the odd person has even bought one here and there.

Not nearly enough to pay for the cost of the advertising but hey, you can’t win ’em all. If you want one, grab them while you can. Or if you want to encourage your friends to have a listen feel free to do so by clicking or sharing this link: https://www.hamgee.co.uk/cmot

Last but not least …

I think this song is pertinent today. Personally, I think procreation isn’t the answer without some promise of a life worth living afterwards. Could I have an abortion, no I couldn’t. But if someone else needs to for their mental or medical health, it’s not my business to stop them. The original name for this song was The Vicious Circle. It’s also worth reading this article.

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Tagged as endless whinging, M T M Makes a complete tit of herself, M T McGuire, M T McGuire new releases, massive rant, off topic, politics, rant, what the fuck do I tag this as?, writer parent, writers

19 Jun 2022 · 6:46 pm

Spigotry …

Yes, I am still alive, although you could be forgiven for wondering if I’ve quietly shuffled off this mortal coil the amount of time it’s been since I wrote a blog post. I suppose the main reason for this is that the mood to waffle about my life tends to hit at the weekends, therefore, if I happen to be Doing Stuff several weekends in a row, the blog grinds to a halt. Case in point, when I came to write this post I found two others that I’d already begun before going out. On the upside, all this Doing Things does come under the heading of Putting Stuff In which is probably what other people call ‘refilling the well’.

So what’s been happening. Well, Mum stuff although less of it, Mc(Not So)Mini stuff and too much stuff of my own. I suppose you could say I’ve over-peopled but it isn’t really the social that’s hampering my efforts to achieve anything. I just keep on having to do things because I make trouble for myself. Yes, the reason for my absence is that I have been, mostly, trying to put out the fires I’ve inadvertently started in the dry grass of life. Or trying to unfuckup the fuckups, of which there are legion.

This week I went to see my writer friends where I used to live. For years they’ve been coming to me but now that I don’t have to collect McMini from school until 5 on the day we meet – or because, a lot of the time McOther picks him up – we have started going to the house of our eldest member and having lunch in the village pub. On the way I pick up the other lady in our group. She has a great deal of difficulty getting in and out of my car and this week, I discovered that taking the roof off merely made it worse. It was hot and I was wearing my prescription shades so while I was getting ready I took my actual spectacles out of my pocket and put them, in the little bag in which they come, on the back of the car because I didn’t want to bend them. The last thing I remember thinking is, ‘I must remember to put those back in the care before I drive off.’

Can you guess what happened next?

Of course you can! Yes. That’s right, I drove off with the glasses on the back of the car. Obviously, the fates didn’t do anything kind to me, like arrange for them to slide off on the side roads leading from the estate on which my friend lives. Oh no. They fell off as I turned onto the main road. When I reached my destination and went into the house I found I no longer had my specs. It being a social event and there being a table booked for lunch, I couldn’t just say, ‘Guys, I have to nip back and check.’ It would have been rude. The lady I had just picked up rang her husband and he went and looked but found nothing.

Resigned to their fate – I didn’t hold out much hope for my glasses surviving, unsquashed, until I dropped her back – we read each other our work, had lunched and talked writing things. When I dropped the lady back, it turned out her husband had popped out for a bike ride and found the glasses on the main road. They had sustained a small amount of damage, as you can see from this picture.

When I break something, I like to do it properly.

Strangely, I had to visit the optician the next day to pick up some contact lenses for a friend’s daughter who’s a border at McMini’s school so I took my glasses with me along with another pair of frames that I’d picked up for a song at TK Maxx about twenty years previously (when I’d bought the smashed pair). I asked if they could fix my specs.

Yes well … at least I gave them all a good laugh.

Naturally, it turned out that they’d have to send the new frames I had away because it involved drilling the actual lense. In addition, it turned out that I was due for an eye test so they recommended I do that first, in case my prescription has changed. On the up side, they did have a slot sooner rather than later, on the downside, ‘sooner’ was next Friday. I found a similar pair on ebay for £24 and sent off for them so I do have those, although when I put them on they exaggerate the fact that I have asymmetrical ears and one is a lot higher than the other. On the up side, they don’t involve drilling the lenses so I can get them sooner and, if I have to go varifocal, maybe I can get the send always done as varifocals and the other as bog-standard prescription.

So now I’m wearing my sunglasses most of the time, Roy Orbison style, although he went on tour and left his prescription specs at home whereas I … yeh. If I ever can find another set of the others I’ll buy them and replace my old ones as they suited me better than any specs I’ve ever had before. In the meantime, I’m wearing a pair from 2008 which are more-or-less OK, although slightly weaker than the originals.

Add taking the cat to the vet, me to the gym and all sorts of other stuff and somehow, I achieve very little. That said the writing is still going. I’ve been going through Misfit 5 editing it and picking out where I’ve added tracers for plot development. I usually know where it’s going at the time and I put the tracers in but if I’m not writing for a long time, I then forget what they are and end up writing off in the wrong direction. This is a Bad Thing.

Other news, McOther has been a bit busy at work recently and McMini has had a gig with his band again. Their singer left, which looked as if it was going to be a bit of a disaster, but they’ve found a new one who is less experienced but I think could be very good so that’s a win.

Picture of a hitler european tour t-shirt

Height of bad punk taste.

We went to a re-enacters’ event today which was excellent and McMini spotted a Hitler European Tour T-shirt to wear on stage (it’s a punk band, after all). I bought it for him.

Lord but this is not Setting A Good Example, but since I had one when I was about his age, I’d be a special kind of hypocrite to point that out. Also it’s actually slightly less offensive than the T-shirt McMini was wearing, which advertises a band called Deicide.

On the up side, it’s black and white, and a lot more understated than the enormous red and black, front and back printed white one I had when I was the same age which also featured a huge swastika.

It’s also a bit easier to wear these days, I think. There were many instances when I simply couldn’t wear mine because it might be taken the wrong way. McMini’s is a great deal more understated than mine was, which is no bad thing, even though, as a whole, it’s still a bad thing and I am still a Bad Person for caving in.

It is difficult with gallows humour. I strongly believe that actually jokes do occasionally need to be offensive. I also believe that comedy is often far harder-hitting than the heaviest of moral-lesson type stories. I also think that one of the reasons Britain is such a horrible place right now is because we have lost our ability to laugh at ourselves in ways that are a bit sick, and we’ve lost the ability to trivialise the things that scare us to a manageable level by making jokes about it. Nonetheless, McMini has promised me this one is on stage only.

On a different note

My audiobooks are on sale again, so you can grab Few Are Chosen for 99c and Small Beginnings for 99c or free.

I’ve also reduced the other books in the K’Barthan series though some stores (a.k.a. where I can). Help yourself while you they’re cheap. They’re on sale until the end of June.

If you’re interested and would like more information about that, just click here.

AAAAAAND! There’s more!