As you know, I don’t normally talk about my family, mainly because I’m pretty sure you wouldn’t want to know about them and that they, in turn, would be absolutely horrified if I did. However, today, I’m going to make an exception. This is a personal post, about my brother, and at the end of it, I’m going to ask for your help. I aim to beg in an amusing way, without putting anyone under pressure, but if you think you’ll be uncomfortable with that feel free to make a swift exit!
Right, if anyone’s still here, on we go.
Today, I’d like to tell you about a very important event which my brother, Giles Bell: A prime examples of er, middle aged athleticism if ever there was one; a man in the peak of physical fitness – see photo – is going to undertake with a team of other brave sporting gentlemen: Simon Sowdon, Will Hughes, Paul Vicars and Andy Weston.
The five brave souls of the Famous Five, or Team Giles Bell – or Team GB unless I am unable to call them that for legal reasons – are going to be taking part in the Shrewsbury half marathon to raise money for the Scleroderma Society. They’re going to try to make it look really difficult by completing it in under two hours.
“God made me for a purpose but he also made me FAST and when I run I feel his pleasure!”*
Being such fine athletes it will be difficult for them to run that slowly, so they will be making it look hard with as much sporting hamminess as possible. To this end they are studying videos of premier league football players showing pain and undertaking a heavy schedule of grimacing practise in readiness. Speaking as someone who can’t run or walk more than a mile and would have to be dragged round, or perhaps pushed, St-Cuthbert’s-Mum-style, in a wheelbarrow I can only stand in awe and admire (phnark).
Why the Scleroderma Society?
Well, because Giles has just discovered that his youngest son, Reggie has scleroderma. It’s an auto immune problem which can cause painful joints, tightening and stiffness of the joints and skin, fatigue and in unlucky cases, it can affect the internal organs. There is no cure, it’s just something you have to take on the chin and learn to live with, rather than suffer from.
There are two types of scleroderma:
- localised scleroderma, which affects just the skin
- systemic sclerosis, which may affect blood circulation and internal organs, as well as the skin.
Reggie definitely has the first and it looks as if he may have both, which is a pretty harsh deal for a six year old: think Lupus, rhumatoid arthritis, chrones disease or the like. The effects are treated with physiotherapy and immuno-suppresants. Reggie will have to have treatment to stabilise the condition to start with. Over a 2 year period he will have to ingest some fairly hefty chemicals: suff that’s usually used in chemotherapy – although in much lower doses. He’ll have to have weekly blood tests and he will probably feel pretty knocked out for most of that time.
Currently, there is no cure for scleroderma and very little funding to find one but the Scleroderma Society is fighting to achieve it. So if you have any funds spare that you’d like to give to a good cause feel free to sponsor Giles who is raising funds for them, by clicking the ‘sponsor Giles’ just there, or using the link below. I’ve added two links about the disease, too, to give you a feel for what Reggie is up against.
- If you want to know more about Giles’ bid for sporting prowess (his post is much funnier than mine) or would like to sponsor him, his VirginMoneyGiving page is here.
- If you want to know more about Scleroderma, there’s an excellent explanation on the NHS website here.
- If you want to know more about the Scleroderma Society, you can visit their website here .
* only Giles will get this joke.