Marathon Man and Team GB: A Personal Appeal from Me.

As you know, I don’t normally talk about my family, mainly because I’m pretty sure you wouldn’t want to know about them and that they, in turn, would be absolutely horrified if I did. However, today, I’m going to make an exception. This is a personal post, about my brother, and at the end of it, I’m going to ask for your help. I aim to beg in an amusing way, without putting anyone under pressure, but if you think you’ll be uncomfortable with that feel free to make a swift exit!

Right, if anyone’s still here, on we go.

Today, I’d like to tell you about a very important event which my brother, Giles Bell: A prime examples of er,  middle aged athleticism if ever there was one; a man in the peak of physical fitness – see photo – is going to undertake with a team of other brave sporting gentlemen: Simon Sowdon, Will Hughes, Paul Vicars and Andy Weston.

Giles Bell, the apogee of sporting prowess is the one on the right. As you can see, he's very tall which is why he's having to concentrate extremely hard on not smacking his head on the speaker mounted at a height that is well above danger level for most of us. I apologise to the lady in the middle for not knowing who he is. The lady on the left is his wife. ;-)

Giles Bell, the apogee of sporting prowess, is the one on the right. As you can see, he’s very tall which is why he’s having to concentrate extremely hard on not smacking his head on the speaker mounted at a height that wouldn’t normally bother most of us. He is holding a special, yeast and hops based vitamin drink he uses to run faster. I apologise to the lady in the middle for not knowing who she is – or at least not remembering, I’m sure I do know. The lady on the left is his wife, Emily. 😉

The five brave souls of the Famous Five, or Team Giles Bell – or Team GB unless I am unable to call them that for legal reasons – are going to be taking part in the Shrewsbury half marathon to raise money for the Scleroderma Society. They’re going to try to make it look really difficult by completing it in under two hours.

“God made me for a purpose but he also made me FAST and when I run I feel his pleasure!”*

Being such  fine athletes it will be difficult for them to run that slowly, so they will be making it look hard with as much sporting hamminess as possible. To this end they are studying videos of premier league football players showing pain and undertaking a heavy schedule of grimacing practise in readiness. Speaking as someone who can’t run or walk more than a mile and would have to be dragged round, or perhaps pushed, St-Cuthbert’s-Mum-style, in a wheelbarrow I can only stand in awe and admire (phnark).

Why the Scleroderma Society?

Well, because Giles has just discovered that his youngest son, Reggie has scleroderma. It’s an auto immune problem which can cause painful joints, tightening and stiffness of the joints and skin, fatigue and in unlucky cases, it can affect the internal organs. There is no cure, it’s just something you have to take on the chin and learn to live with, rather than suffer from.

Reggie, for added cuteness. ;-)

Reggie – for added cuteness 😉 – looking very serious while holding an owl.

There are two types of scleroderma:

  •     localised scleroderma, which affects just the skin
  •    systemic sclerosis, which may affect blood circulation and internal organs, as well as the skin.

Reggie definitely has the first and it looks as if he may have both, which is a pretty harsh deal for a six year old: think Lupus, rhumatoid arthritis, chrones disease or the like. The effects are treated with physiotherapy and immuno-suppresants. Reggie will have to have treatment to stabilise the condition to start with. Over a 2 year period he will have to ingest some fairly hefty chemicals: suff that’s usually used in chemotherapy – although in much lower doses. He’ll have to have weekly blood tests and he will probably feel pretty knocked out for most of that time.

Currently, there is no cure for scleroderma and very little funding to find one but the Scleroderma Society is fighting to achieve it. So if you have any funds spare that you’d like to give to a good cause feel free to sponsor Giles who is raising funds for them, by clicking the ‘sponsor Giles’ just there, or using the link below. I’ve added two links about the disease, too, to give you a feel for what Reggie is up against.

  • If you want to know more about Giles’ bid for sporting prowess (his post is much funnier than mine) or would like to sponsor him, his VirginMoneyGiving page is here.
  • If you want to know more about Scleroderma, there’s an excellent explanation on the NHS website here.
  • If you want to know more about the Scleroderma Society, you can visit their website here .

* only Giles will get this joke.

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27 Comments

Filed under General Wittering

27 responses to “Marathon Man and Team GB: A Personal Appeal from Me.

  1. Done. Wishing your brother and Reggie the very best xxx

  2. Reblogged this on writermummy and commented:
    Time for some fellow blogger lovin’ 🙂

  3. God Bless, Reggie his whole life through. To you as well for helping to raise awareness of this ‘Chronic Condition.’ Thank you.

  4. Reblogged this on Chronic Conditions & Life Lessons and commented:
    A great post to help educate others. Please help support little Reggie and others who fight this Chronic Condition.

  5. My very best wishes for your nephew. I hope they discover a cure.

  6. I’ve deep sympathy, for your nephew as I have for great swathes of people on this planet. If you donate the profits from your books, then I’ll buy those I haven’t got, and those you’ll write in the future. I know MT the author. That deservedly helps you grow as a writer and the more you grow the more you’ll be helping your nephew. If you have already made that commitment then let us know.
    Great people give all charity to many world causes and to the needy they know. The rest of us, cruel by degrees, are selective about which parts of our hearts we afford to bleed.

    • I have been thinking about that. I can manage a third…. Probably, or all the profits from one. But I can’t manage all because selling the books I write is the only way I can finance the production of subsequent books. I don’t have any other form of income. I’ll update that on my blog when I decide how… So far I’ve just sponsored Giles.

      Cheers

      MTM

  7. Donated, tweeted and shared on Facebook. Blessings to Reggie, Giles and his team, and you, MT. I know what it like to live with a chronic illness. Very hard for one so young.

  8. Donated – and wishing Reggie all the very best.

  9. My commendations to Giles, he is a hero and deserves accolades in the support of his son Reggie.
    I wish the marathon every success, at this stage I can only offer a prayer, one for Giles for having a beautiful son, and one for Reggie for having a beautiful father, may God hold you both in the palm of his hands.

  10. Reblogged this on MarvellousAlbion and commented:
    A very worthwhile and touching post.

  11. Strewth – I hope they find a cure soon!
    Done – best of luck to them xx

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